Re: Epstein Barr Revisited - Feb 05 Abstract

[Guest guest]

Absolutely. It is ridiculous that they stopped looking at it just because

not everyone had it. Many of the symptoms are due ot infections like EBV.

Reducing your EBV load significantly improves symptoms.

Doris

----- Original Message -----

From: " Schaafsma " <compucruz@...>

> Most people stopped paying attention to Epstein Barr when

> researchers concluded it wasn't the cause of chronic fatigue

> syndrome.

>

> So now I'm taking a second look at EBV, not as a primary culprit but

> as a chronic co-infection, with possible symptomatic relevance and

> implications for how my immune system is coping (or NOT coping) with

> Lyme.

[Guest guest]

Thanks, Doris! I quite agree.

How to bring that viral load down? That is an interesting question.

There are no antiviral medications, to my knowledge, that are

effective against EBV. But that doesn't stop a die hard like me from

wanting to try.

However, I came across suggestions that IVIG can help reduce EBV

titers, and also a case study in Pub Med concerning a rare, lethal

form of EBV that appears to have been successfully resolved through

stem cell transplant.

Other than that, the only thing I've heard of that might be helpful

is transfer factor, and since it lays people out and I'm already

laid out with Lyme I'm not much inclined to pursue it.

Anybody have other thoughts on treatment?

> Absolutely. It is ridiculous that they stopped looking at it just

because

> not everyone had it. Many of the symptoms are due ot infections

like EBV.

> Reducing your EBV load significantly improves symptoms.

>

> Doris

> ----- Original Message -----

> From: " Schaafsma " <compucruz@y...>

> > Most people stopped paying attention to Epstein Barr when

> > researchers concluded it wasn't the cause of chronic fatigue

> > syndrome.

> >

> > So now I'm taking a second look at EBV, not as a primary culprit

but

> > as a chronic co-infection, with possible symptomatic relevance

and

> > implications for how my immune system is coping (or NOT coping)

with

> > Lyme.

[Guest guest]

, in answer to your question... I have it on good authority that

the only effective cure for EBV is chemo therapy.

On a related note, EBV is one of the viruses known to cause central

nervous system cancers, like astrocytomas.

Trish

CFS & brain tumor patient (grade 4 astrocytoma)

carcinogenic

--- " Schaafsma " <compucruz@y...> wrote:

> How to bring that viral load down? That is an interesting

question.

> There are no antiviral medications, to my knowledge, that are

> effective against EBV. But that doesn't stop a die hard like me

from

> wanting to try.

>

> However, I came across suggestions that IVIG can help reduce EBV

> titers, and also a case study in Pub Med concerning a rare, lethal

> form of EBV that appears to have been successfully resolved

through

> stem cell transplant.

>

> Other than that, the only thing I've heard of that might be

helpful

> is transfer factor, and since it lays people out and I'm already

> laid out with Lyme I'm not much inclined to pursue it.

>

> Anybody have other thoughts on treatment?

>

>

>

>

>

> > Absolutely. It is ridiculous that they stopped looking at it

just

> because

> > not everyone had it. Many of the symptoms are due ot infections

> like EBV.

> > Reducing your EBV load significantly improves symptoms.

> >

> > Doris

> > ----- Original Message -----

> > From: " Schaafsma " <compucruz@y...>

> > > Most people stopped paying attention to Epstein Barr when

> > > researchers concluded it wasn't the cause of chronic fatigue

> > > syndrome.

> > >

> > > So now I'm taking a second look at EBV, not as a primary

culprit

> but

> > > as a chronic co-infection, with possible symptomatic relevance

> and

> > > implications for how my immune system is coping (or NOT

coping)

> with

> > > Lyme.

[Guest guest]

Thanks for that info, Trish! I knew EBV was linked to several

cancers, but hadn't seen astrocytomas specified.

Are you undergoing chemo as part of treatment for that tumor?

> > > Absolutely. It is ridiculous that they stopped looking at it

> just

> > because

> > > not everyone had it. Many of the symptoms are due ot

infections

> > like EBV.

> > > Reducing your EBV load significantly improves symptoms.

> > >

> > > Doris

> > > ----- Original Message -----

> > > From: " Schaafsma " <compucruz@y...>

> > > > Most people stopped paying attention to Epstein Barr when

> > > > researchers concluded it wasn't the cause of chronic fatigue

> > > > syndrome.

> > > >

> > > > So now I'm taking a second look at EBV, not as a primary

> culprit

> > but

> > > > as a chronic co-infection, with possible symptomatic

relevance

> > and

> > > > implications for how my immune system is coping (or NOT

> coping)

> > with

> > > > Lyme.

[Guest guest]

, yes, I'm taking chemo for the tumor -- but sure it helps w/ the

EBV too.

--- " Schaafsma " <compucruz@y...> wrote:

>

> Thanks for that info, Trish! I knew EBV was linked to several

> cancers, but hadn't seen astrocytomas specified.

>

> Are you undergoing chemo as part of treatment for that tumor?

>

>

[Guest guest]

Trish,

I'm sorry to hear of your tumor. Good luck with your

treatment.

Marie

--- pawpurr256 <pawpurr256@...> wrote:

>

> , yes, I'm taking chemo for the tumor -- but

> sure it helps w/ the

> EBV too.

>

> --- " Schaafsma " <compucruz@y...> wrote:

> >

> > Thanks for that info, Trish! I knew EBV was linked

> to several

> > cancers, but hadn't seen astrocytomas specified.

> >

> > Are you undergoing chemo as part of treatment for

> that tumor?

> >

> >

>

>

>

>

__________________________________

Messenger

Show us what our next emoticon should look like. Join the fun.

http://www.advision.webevents./emoticontest

[Guest guest]

My doc#2 has just recently recommended enzymes and L

carnitine. Didn't know they had anything to do with

viruses. Tell us more.

Marie

--- Colourbleu <colourbleu@...> wrote:

> anyone using high doses of L-Lysine or the

> L-carnitine? for virius

>

> > I take Famvir.

> > I have taken antivirals for 4 years. I took

> Valtrex

> > for about three years and have taken Famvir since

> Jan

> > 2004 when I had a very bad relaps and Doc thought

> the

> > Valtrex had quit working. I have high antibody

> count

> > for HHV6 and CMV. I think the results from the

> > antibiotic are more dramatic. However I was so

> ill in

> > 2001 that I don't know where I would be today had

> I

> > not been started on them. I suppose it is a

> chicken

> > and egg thing. Which has the biggest drag on the

> > immune system the viruses or the antibiotics.

> > For some reason Doc #1 has been more reluctant to

> do

> > long term antibiotics than long term antivirals.

> > Marie

> > Marie

> >

> > --- Schaafsma <compucruz@...> wrote:

> > >

> > > Thanks, Doris! I quite agree.

> > >

> > > How to bring that viral load down? That is an

> > > interesting question.

> > > There are no antiviral medications, to my

> knowledge,

> > > that are

> > > effective against EBV. But that doesn't stop a

> die

> > > hard like me from

> > > wanting to try.

> > >

> > > However, I came across suggestions that IVIG

> can

> > > help reduce EBV

> > > titers, and also a case study in Pub Med

> concerning

> > > a rare, lethal

> > > form of EBV that appears to have been

> successfully

> > > resolved through

> > > stem cell transplant.

> > >

> > > Other than that, the only thing I've heard of

> that

> > > might be helpful

> > > is transfer factor, and since it lays people

> out and

> > > I'm already

> > > laid out with Lyme I'm not much inclined to

> pursue

> > > it.

> > >

> > > Anybody have other thoughts on treatment?

> > >

> > >

> > >

> > >

> > >

> > > > Absolutely. It is ridiculous that they

> stopped

> > > looking at it just

> > > because

> > > > not everyone had it. Many of the symptoms

> are due

> > > ot infections

> > > like EBV.

> > > > Reducing your EBV load significantly improves

> > > symptoms.

> > > >

> > > > Doris

> > > > ----- Original Message -----

> > > > From: " Schaafsma " <compucruz@y...>

> > > > > Most people stopped paying attention to

> Epstein

> > > Barr when

> > > > > researchers concluded it wasn't the cause

> of

> > > chronic fatigue

> > > > > syndrome.

> > > > >

> > > > > So now I'm taking a second look at EBV, not

> as a

> > > primary culprit

> > > but

> > > > > as a chronic co-infection, with possible

> > > symptomatic relevance

> > > and

> > > > > implications for how my immune system is

> coping

> > > (or NOT coping)

> > > with

> > > > > Lyme.

> > >

> > >

> > >

> > >

> >

> >

> >

> > __________________________________

> > Do you ?

> > Personals - Better first dates. More

> second dates.

> > http://personals.

> >

> >

> >

> >

[Guest guest]

Hi

Sorry for the huge dealy, I was getting ready for then went on vacation.

Antivirals work very well on my EBV. I have taken Famvir for the past

couple years and just keep getting better and better. Before that, I was

doing pretty well with transfer factor and colostrum.

Doris

----- Original Message -----

From: " Schaafsma " <compucruz@...>

> Thanks, Doris! I quite agree.

>

> How to bring that viral load down? That is an interesting question.

> There are no antiviral medications, to my knowledge, that are

> effective against EBV. But that doesn't stop a die hard like me from

> wanting to try.

>

> However, I came across suggestions that IVIG can help reduce EBV

> titers, and also a case study in Pub Med concerning a rare, lethal

> form of EBV that appears to have been successfully resolved through

> stem cell transplant.

>

> Other than that, the only thing I've heard of that might be helpful

> is transfer factor, and since it lays people out and I'm already

> laid out with Lyme I'm not much inclined to pursue it.

>

> Anybody have other thoughts on treatment?

>

>