Re: Was B12-now, how 's doing

[Guest guest]

Thank you, . As some of you know, I suffered a very bad reaction from the demands of the treatment protocol on the 'site which shall not be named.' I am still not doing well. All of my hormones (including my thyroid) are become unbalanced. It appears that my adrenals are not doing well either, but we are having to take things one at a time in order not to overload my system. In addition, there are now lots of problems with vitamins and minerals. (I have just been to very ill to have tests done for everything.) My doctor surmises that the Vit. D deprivation is what tipped my body over the edge. I had become very much more hypothyroid than I was when I started, and what little Vit D I had when I had started had disappeared when I went off it. I am still suffering from vision problems which began while on that treatment and were touched off by intracranial hypertension. My vision is not steady and clear even now; it varies from one hour or one day to the next.

I now suffer from atrocious headaches almost all the time, and often have very severe muscle aches too. At night I cannot sleep and I am in terrible pain.

In addition, my entire body shakes, I become dizzy, I lose my balance, and I have much worse cognitive problems than before.

Although digestive problems have been very rare throughout my 14 years experience with CFS, since this last treatment try, I am now having a tough time with them.

These were really extreme reactions. I have been so ill that I have not been able to sit or stand in order to go to the lab; I went once and got basic blood tests, including thyroid, done, but have been unable to go back. I am adding vitamins, especially Vit. D, back into my life.

I have mostly been too brain fogged, too dizzy, lacking balance to sit or stand, and having extreme muscle weakness to participate much in any of the lists. The truth is, my doctor is doing his best to help me figure out what the damage is and what we can do about it.

I do try to read the lists when I can, because I learn so much and it helps me not to feel alone in my symptoms. I thank all of you so much for your sharing.

Wishing everyone the best,

[infections] Was Re: More info on Sino Fresh Now B12> > > I took 10,000mcg (10mg) of B12 every day for years. That is the Cheney reccommendation. I have studies that show they have tested doses much higher than that to be safe. This is hydroxycobalamin. In my years of hearing from people on this protocol, I have never heard of an anaphylactic shock. I'm not sure what your reaction is about, maybe to a preservative or filler?> > Doris> ----- Original Message ----- > From: Colourbleu > > ARE YOU SURE ABOUT THE LEVEL, > I injected 1000mcg and had an Anaphylactic shock. > My mother had a shock from just one tablet, Methyl 1000mcg> > > > Yes, started out with 6000mg injectable daily for> several days. > I am told that Stratton recommends highs doses of> B12, are you doing > this too?> > > >

[Guest guest]

Oh , I am so sorry you've been having such a bad time. They

symptoms you describe are a close match for my own, and I know how

debilitating they can be.

I think our reactions to D-deprivation were also quite similar.

Perhaps if enough of us tell our stories those who haven't had this

experience will catch on that it is real and very serious.

I know what you mean about having so many things off-kilter that you

can only address a handful at a time.

You have been an invaluable member of this list, , and I

know I speak for many when I wish you the quickest possible recovery.

> > Yes, that is the Cheney recommendation. However, when he

> prescribed it for me, and I tried it, it put me into very grave

> shape. I reacted well the first day or so, then went into a

deep

> crash. Cheney finally decided that the reason I reacted to the

high

> B12 dosage (hydroxycobalamin) was because it was chelating the

high

> levels of mercury in my body (which he said was a different kind

of

> mercury from that in my teeth fillings), and causing the VERY

VERY

> BAD reaction.

> >

> > So I advise anyone to be wary, even if they are being treated

by a

> brilliant and very skilled physician.

> >

> >

> > [infections] Was Re: More info on

Sino

> Fresh Now B12

> >

> >

> > I took 10,000mcg (10mg) of B12 every day for years. That is

the

> Cheney reccommendation. I have studies that show they have

tested

> doses much higher than that to be safe. This is

hydroxycobalamin.

> In my years of hearing from people on this protocol, I have

never

> heard of an anaphylactic shock. I'm not sure what your reaction

is

> about, maybe to a preservative or filler?

> >

> > Doris

> > ----- Original Message -----

> > From: Colourbleu

> >

> > ARE YOU SURE ABOUT THE LEVEL,

> > I injected 1000mcg and had an Anaphylactic shock.

> > My mother had a shock from just one tablet, Methyl 1000mcg

> >

> >

> >

> > Yes, started out with 6000mg injectable daily for

> > several days.

> > I am told that Stratton recommends highs doses of

> > B12, are you doing

> > this too?

> >

> >

> >

> >

[Guest guest]

I had all of what you describe, and after 3 weeks of high doses of b12,

(building gradually) and b6, folic acid, and loads of oysters, high

salt, potassium, liquorice. b complex. I am now back to having some

quality life again.

I think the problem is Homocysteine and Pernicious Anaemia. Read my

recent posts and you will see what a re recovery I am making.

I hope you hear this.

s

> Thank you, .  As some of you know, I suffered a very bad reaction

> from the demands of the treatment protocol on the 'site which shall

> not be named.'  I am still not doing well.  All of my hormones

> (including my thyroid) are  become unbalanced.  It appears that my

> adrenals are not doing well either, but we are having to take things

> one at a time in order not to overload my system.  In addition, there

> are now lots of problems with vitamins and minerals.  (I have just

> been to very ill to have tests done for everything.)  My doctor

> surmises that the Vit. D deprivation is what tipped my body over the

> edge.  I had become very much more hypothyroid than I was when I

> started, and what little Vit D I had when I had started had

> disappeared when I went off it.  I am still suffering from vision

> problems which began while on that treatment and were touched off by

> intracranial hypertension.  My vision is not steady and clear even

> now; it varies from one hour or one day to the next.

>  

> I now suffer from atrocious headaches almost all the time, and often

> have very severe muscle aches too.  At night I cannot sleep and I am

> in terrible pain.

>  

> In addition, my entire body shakes, I become dizzy, I lose my balance,

> and I have much worse cognitive problems than before.

>  

> Although digestive problems have been very rare throughout my 14 years

> experience with CFS, since this last treatment try, I am now having a

> tough time with them.

>  

> These were really extreme reactions.  I have been so ill that I have

> not been able to sit or stand in order to go to the lab; I went once

> and got basic blood tests, including thyroid, done, but have been

> unable to go back.  I am adding vitamins, especially Vit. D, back into

> my life. 

>  

> I have mostly been too brain fogged, too dizzy, lacking balance to sit

> or stand, and having extreme muscle weakness to participate much in

> any of the lists.  The truth is, my doctor is doing his best to help

> me figure out what the damage is and what we can do about it.

>  

> I do try to read the lists when I can, because I learn so much and it

> helps me not to feel alone in my symptoms.  I thank all of you so much

> for your sharing.

>  

> Wishing everyone the best,

>

> [infections] Was Re: More info on Sino

> Fresh Now B12

> >

> >

> >   I took 10,000mcg (10mg) of B12 every day for years.  That is the

> Cheney reccommendation.  I have studies that show they have tested

> doses much higher than that to be safe.  This is hydroxycobalamin. 

> In my years of hearing from people on this protocol, I have never

> heard of an anaphylactic shock.  I'm not sure what your reaction is

> about, maybe to a preservative or filler?

> >

> >   Doris

> >     ----- Original Message -----

> >     From: Colourbleu

> >

> >     ARE YOU SURE ABOUT THE LEVEL,

> >     I injected 1000mcg and had an Anaphylactic shock.

> >     My mother had a shock from just one tablet, Methyl 1000mcg

> >

> >

> >

> >       Yes, started out with 6000mg injectable daily for

> >       several days.

> >         I am told that Stratton recommends highs doses of

> >         B12, are you doing

> >         this too?

> >

> >

> >

> >