Guest guest Posted November 17, 1998 Report Share Posted November 17, 1998 Hi Everyone, I am going to try Arava starting next week, when my mail order prescription comes, My rheumatologist says it is an anti-metabolite, similar to methotrexate and Imuran. He wants to leave Enbrel for later if we need it. He says its action is different altogether and may or may not work for PA - no one knows -- it has not been tested. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 1999 Report Share Posted August 7, 1999 > From: MissDenim@... >Subject: Re: Digest Number 29 > Pam, you seem so knowledgeable. I printed out your last reply to refer to. >Are you saying that if my TSH is high, then in fact my thyroid is low, thus, >the increase in strength of meds? >Anne Yes that's exactly what I'm saying. The reason it's so hard to remember is that it's not intuitive. It may help to remember that TSH means thyroid stimulating hormone. When it goes up it is because your body is trying to stimulate your thyroid into action. And don't blame yourself for the weight fluctuations either, with low thyroid it really screws up your metabolism and keeps your body from self correcting for the infractions that others get away with. Because low thyroid lowers our bodies basal temperature, enzyme activity slows down considerably. Your body just cannot do the work it's supposed to do, and because of the lower enzyme activity, it doesn't produce the heat that would get your body temp up AND more importantly burn up excess fat. Additionally, hypothyroids process fats differently than those with normal thyroids. Most of us actually eat less than our thin counterparts, and still gain. Low thyroid shifts the balance of the game to unfair for those of us who have it. If you are interested in some additional web resources, feel free to email me directly. Pam ______________________________________________________________________ > >Message: 2 > Date: Fri, 6 Aug 1999 21:52:18 -0400 > From: " Trish " <herbs@...> >Subject: Estratest/hypothyroid >No I do not have progesteron in the formula. I don't have a uterus so I >don't need it. Trish: The progesterone protects you from the cancer causing effects of the estrogen, and it makes no difference if you have a uterus or not - you don't want to take estrogen without progesterone. (It (progesterone) may be labelled norethindrone also.) According to the research I've read, the female hormones are a significant factor in whether or not you'll develop osteo problems, which is why they are prescribed a lot for people who are at risk. The fosamax or allendronate (sp) might be a good choice for you also, but in addition to the HRT and depending on how bad your situation is. Evening primrose oil smooths out a lot of the problems of PMS and whatnot. I'd try B6 for bloating, it has a natural diuretic effect also. For the constipation, (which by the way is a symptom of low thyroid!) try taking ground high lignan flaxmeal. Start with a teaspoon in water or juice, (let it set for about 5-10 minutes so it isn't scratchy) and build up to a tablespoon or two per day--whatever you need to keep regular. Increasing the veggies and fruits will help too. You might find that seeing a naturopathic doctor would help a lot--you could be on the wrong dose or type of HRT for you. I wouldn't go jumping around from prescription to herbals--your body will need quite a while to adjust, so you need to work with it for several months at least to see what will happen. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 1999 Report Share Posted August 8, 1999 In a message dated 8/7/99 10:03:32 PM Central Daylight Time, orca2@... writes: << Yes that's exactly what I'm saying. The reason it's so hard to remember is >> Pam, thanks for another informative e-mail. Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 1999 Report Share Posted August 9, 1999 Pam, your postings are so informative and you have great way of explaining things that make it so easy to understand. Thanks so much. MissDenim@... wrote: > From: MissDenim@... > > In a message dated 8/7/99 10:03:32 PM Central Daylight Time, orca2@... > writes: > > << Yes that's exactly what I'm saying. The reason it's so hard to remember > is > >> > > Pam, thanks for another informative e-mail. > > Ann > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 1999 Report Share Posted August 10, 1999 Pam, I'd be interested in websites on weight problems and thyroids and other things =) Dawn Blaidd email: blaidd@... webpage: http://blaidd.home.texas.net/ ICQ#15014644 Join the Wolfdog Alliance Webring : http://blaidd.home.texas.net/wolfdogalliance.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 1999 Report Share Posted December 28, 1999 Earlier I ask LizaMarie if a Bamix would work. Maybe some of the others would know, or would it be to powerful? Jacque W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2000 Report Share Posted January 30, 2000 Re; Conspiracy theory One more interesting theory (with some fact), In the 60's and early 70's the army gave us shots that they said where to prevent Spinal Meningititis due to breakouts at other camps(no documents this ever happened). What may have really happened was the where experiminting with vaccines for meningititis and hepatitist. What separates thisfrom other theories is there is a lot of fact to back it up. Us activist veterans are trying to get to the bttom of this one way or another. Hep C rates are highest among our veteran population. But this is the same group tat got tatoos, did IV drugs,etc. So far this is believed to affect army vets because I haveyet to talk to a marine o navy vet who remembers getting this vaccine. Yet many army vets do remember. Just a theory at this time guys. Theory meaning unproven. - " ...I dream then ask why not " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2000 Report Share Posted January 30, 2000 Re; Conspiracy theory One more interesting theory (with some fact), In the 60's and early 70's the army gave us shots that they said where to prevent Spinal Meningititis due to breakouts at other camps(no documents this ever happened). What may have really happened was the where experiminting with vaccines for meningititis and hepatitist. What separates thisfrom other theories is there is a lot of fact to back it up. Us activist veterans are trying to get to the bttom of this one way or another. Hep C rates are highest among our veteran population. But this is the same group tat got tatoos, did IV drugs,etc. So far this is believed to affect army vets because I haveyet to talk to a marine o navy vet who remembers getting this vaccine. Yet many army vets do remember. Just a theory at this time guys. Theory meaning unproven. - " ...I dream then ask why not " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2000 Report Share Posted January 30, 2000 didnt someone out here say hep c was created when a dr. with the " Rockerfeller Foundation " created a vaccine for yellow fever. from what i understand , disesed mice brains were used, and that is how hep c was created. A doc named Max Thieler was the one who created it. this is just what I heard, there is alot of info on the web about the doc. also about lab work, when i was first diagnosed in 1991, i worked at a hospital, so i had easy acces to medical books and such. So since than, EVERY TIME i get blood ork done, i tell the lab people and the doctor to send me a copy, and if they forget, i call them to remind them of my request. I have a file filled with lab work i had done since 1991, and i can see when my liver enzymes rose and dropped, how my body handled Interferon in 1993, and in the future i can look back at this time, as see how the combo worked for me. By looking at my labs, i see my liver enzymes stayed down for about four years last time. So i am sure with the combo, i will get atleast that. So i tell everyone DEMAND a copy of the labs be sent to you, if they tell u to come in and get them, do that too. i think they legally have to give you the info. plus i have had doc come and go in the past, and i was the only one keeping track of my labs. now i have a good primary care, so he does what i want him to do, like he should. well i hope everyone hangs in there, Corey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2000 Report Share Posted January 30, 2000 didnt someone out here say hep c was created when a dr. with the " Rockerfeller Foundation " created a vaccine for yellow fever. from what i understand , disesed mice brains were used, and that is how hep c was created. A doc named Max Thieler was the one who created it. this is just what I heard, there is alot of info on the web about the doc. also about lab work, when i was first diagnosed in 1991, i worked at a hospital, so i had easy acces to medical books and such. So since than, EVERY TIME i get blood ork done, i tell the lab people and the doctor to send me a copy, and if they forget, i call them to remind them of my request. I have a file filled with lab work i had done since 1991, and i can see when my liver enzymes rose and dropped, how my body handled Interferon in 1993, and in the future i can look back at this time, as see how the combo worked for me. By looking at my labs, i see my liver enzymes stayed down for about four years last time. So i am sure with the combo, i will get atleast that. So i tell everyone DEMAND a copy of the labs be sent to you, if they tell u to come in and get them, do that too. i think they legally have to give you the info. plus i have had doc come and go in the past, and i was the only one keeping track of my labs. now i have a good primary care, so he does what i want him to do, like he should. well i hope everyone hangs in there, Corey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2000 Report Share Posted February 14, 2000 Welcome New Friends! (I'm sorry, but my 40's- something brain has not taken kindly to continuous input lately and I haven't been keeping everyone straight lately.) I keep saying I'm going to make a list of who has what age kid(s) who live where but I never have. I did enjoy the story of Mom and Dad having a champaign toast to their child's new dx. I love it! Boy, is THAT ever a good attitude to have! You'll hang well with this crowd!! ; ) New 's Mom- welcome, and great that you were able to get a dx so early. The pica sounds really tough. Please educate us more about this. I'm generally familiar with the term but have mostly heard about it in terms of pregnant women with certain vitamin and mineral deficiencies. Is there medication or effective treatment when kids have this disorder? , does JJ just have this problem with poop or are there other things you have to watch out for? Ben (age 9) is a pretty good eater, but he never tells us when he's hungry or thirsty. Occasionally he might help himself to something if it's sitting out (when Dad was on a donut-buying spree for a while, for example) but it's sort of like the toilet schedule: " okay, time to eat " . Margaret, , and others who have written about the Catholic schools (and other religious schools issues) situation, I hear you loud and clear. I would have pursued things with our parish if I'd had other kids but I just didn't have the energy to take on the diocese. I had attended the NICE (National Inclusive Catholic Education) conference a few years back in Dayton. I loved it- met some great people there- lots of tears, hope, and anger. HAHAHA I just recalled an offhand comment I made to one of my sibs who was busy planning his two babies' Catholic education. It stopped him in his tracks when I said that my son should have the same opportunities that my sibs and I all had (products of many years of Catholic schooling) and he just couldn't disagree with me. But he mentioned it to another brother and pretty soon some of them were having a big argument about it. I was amused. One brother told me he heard I was bitter. No, I said, just worn out. My home parish in Erie PA has begun to include some kids but I know of some families who were also refused. It hurts. It really, really hurts. I have a little fantasy that if I ever played the lottery and one I'd take a big chunk of that money and put it in escrow to begin funding special ed *services* in the diocese. I'm always amazed how funds can be found if things are prioritized. For some reason, it never has been. But I'll tell you what- the rhetoric at that NICE conference was loud and clear: we are having the babies because we are respecting the teachings of the Church. NOW YOU RESPECT US AND HELP US EDUCATE EVERY ONE OF THEM!!! Whew- nobody wants to touch that one. I am not going to go on any more about this issue- just to let you know I've been there and looked at it and said I can't champion that cause too. (I don't know how to even tell the Knights of Columbus to change the rhetoric of their " help retarded children " campaign. AAUUUGGHH!!) A couple of other things: Nonni has actually done very well during her short term stay in the nursing home. She's recovering nicely from the pneumonia and has ended up doing much better there than I would have expected. I think the place is pretty good, so far as nursing homes go, and there seems to be quite caring people there. I think she'll be there for about another week, and then when she comes home we will start having her go to day care 3x a week. That should really help things around here. She'll be busier, be able to get more excercise, and expand her world. I won't feel like I have to be at her beck and call, and then she can still go back to the nursing home for respite when we go away for a few days. We all know what to expect of this place, and it's only 5 minutes away! I feel like what's been a scary and stressful time has turned into a blessing. Ben seems to be playing a lot more with his dolls and stuffed animals, including doing some of the things that Nonni does like put her kleenex in the sleeve of her sweater. He's been wiping their noses and I think saying part of the Albanian nursery rhyme that she tells him. So I guess that's all therapeutic. We also had some excitement yesterday. Seems that PB picked up the wall telephone and randomly dialed 911. They called back to verify but DH is deaf and didn't hear the phone. I was out shopping two blocks away and had no idea. So the police showed up to check on things. SIGH. I am out of ideas already because I don't know how to keep PB from touching the telephone if DH has decided to use the BR for a minute. Of course, PB hates the telephone for the most part and barely tolerates holding it up to his ear. But it's a machine with buttons. SIGH. If it wasn't such a dangerous thing to do- calling the police out on a false alarm- I'd be proud that he dialed a number. Oh well. Sorry for running on. Good to meet all you lovely new families. Enjoy! Beth Mum to Ben, 9 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2000 Report Share Posted August 16, 2000 We are using this with Holly and it seems to make a big difference for her and keeps her off long rounds of oral antibiotics. M. In a message dated 8/16/00 2:51:29 PM, egroups writes: << The doctor he saw asked if his dr had said anything about Bactroban nasal solution. He said it is being used and has shown great effectiveness in preventing sinus infections. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2001 Report Share Posted May 3, 2001 Just thought you would like to know Ruan O'Neal has CML Digest Number 31 Let's keep the list UNCLUTTERED!!! To do ANY HOUSEKEEPING business such as changing the way you get mail, please go to mygoups or mail me at scott_fs@.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 snip > Date: Thu, 18 Jul 2002 12:04:48 -0000 > From: " rastapoodle " <herblady@...> > I feel you have to be centered and focused to blend, so I'm just in > the info-gathering and ruminating stage right now, and I just wanted > to post the truffle idea before I forgot it, since I'm about to plunge > into a day of paperwork. snip I totally agree with you about the centering and focusing! Just conceptualizing can be exhausting when I have done 'too much' already. -- L Wakefield, owner and operator of the beastly truck heretik, that refuses to stay between the lines when parking -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 Isn't a laminectomy kind of the be all and end all of spine surgeries? I mean if you have one done what is left to do? I have many questions to ask the surgeon at my appt next month... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 Well in my case a laminectomy was necessary with my type of stenosis. If I didn't have the laminectomy I'd be in a wheelchair by now from the CES. I think you have that confused with fusion because fusion is the be all and end of of spine surgeries. safegirl@... wrote: > Isn't a laminectomy kind of the be all and end all of spine > surgeries? I mean if you have one done what is left to do? > > I have many questions to ask the surgeon at my appt next month... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 ______________________________________________________________________ Hi , I live in Las Cruces and will be glad to send you a culture for the price of shipping, or you can pick it up. Message: 4 Date: Mon, 04 Oct 2004 01:08:07 -0000 From: " " <mariadelaluzrodriguez67@...> Subject: Where can i buy one I live in El Paso Texas and I am trying to find out where I can purchase a kombucha culture. Thank You Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 Hi , That is great, I can come pick it up just let me know when and where. You are a life saver. Thanks, cweeks@... wrote: ______________________________________________________________________ Hi , I live in Las Cruces and will be glad to send you a culture for the price of shipping, or you can pick it up. Message: 4 Date: Mon, 04 Oct 2004 01:08:07 -0000 From: " " <mariadelaluzrodriguez67@...> Subject: Where can i buy one I live in El Paso Texas and I am trying to find out where I can purchase a kombucha culture. Thank You Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2005 Report Share Posted March 22, 2005 Many thanks for all of you who sent me the links for the Stratton protocal. I'm doing a lot of thinking about some of the added data here which was simplified on Wheldon's regime, especially the concern about secondary porphyria and the treatment options for this, as well as the interesting fact that niacinamide (a form of niacin) is anti-chlamydial to a certain stage of it's life form, and something I could easily add to the doxy/azithro/flagyl regime to increase it's power, or that's my first read. I had already tried the charcoal to limit neurotoxin reabsorbtion, but was not doing it in near as large amounts as he recommends as well. Thanks, Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2005 Report Share Posted March 22, 2005 yes I will also try the charcoal in high doses too. I seem to have run out of the stuff, but I have never done it in the large doses he recommends. Are you currently on abx? > Many thanks for all of you who sent me the links for > the Stratton protocal. I'm doing a lot of thinking > about some of the added data here which was simplified > on Wheldon's regime, especially the concern about > secondary porphyria and the treatment options for > this, as well as the interesting fact that niacinamide > (a form of niacin) is anti-chlamydial to a certain > stage of it's life form, and something I could easily > add to the doxy/azithro/flagyl regime to increase it's > power, or that's my first read. I had already tried > the charcoal to limit neurotoxin reabsorbtion, but was > not doing it in near as large amounts as he recommends > as well. > Thanks, > Jim > > > > Quote Link to comment Share on other sites More sharing options...
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