Quasimodo Syndrome

[Guest guest]

If I were any more hunched over, my spine would snap like a pretzel.

I read the actual report from December's brain MRI at my LLMD's

office yesterday. Over and over and over, because its only a couple

long paragraphs, but contains a really impressive array of bad news,

only some of which the doctor had mentioned to me.

My brain is not just too small, its apparently actively shrinking.

There are signs of more advanced atrophy in the hypothalamus and

also in the left hemisphere of the brain.

I had another Bicillin shot, and experienced none of the benefits I

noticed with the first one. My pain level is higher than its been in

several months. Back and neck are spasming more or less

continuously. Spending a lot of time in bed.

My neck MRI is another gruesome piece of work, all this damage in

multiple verterbrae, and a number of references to something that

could be discitis (inflammation of the disc space).

IV antibiotics might trigger a spectacular herx if there are in fact

borrelia swimming around like ill-tempered electrical eels in my

spinal fluid. But without them, how likely am I to zap the little

vermin?

So, you know, all is very far from well. Still, I am in good

spirits, engaged enough to follow recent developments on other

websites.

Which I will not discuss *writes this on blackboard 100 times*.

My senses continue to be hyperacute, my nervous system

hypervigilant. Several times a day now, I experience 'earthquakes',

moments when gravity seems to shift and I'm thrown off my balance.

It starts with a pulsing sensation in my feet, and seems to work its

way instantly up my spine, till it rings a bell somewhere at the

back of my brain.

I don't go to sleep like Peg, but blank out and stop sensing the

passage of time, sometimes for an hour or more.

I have the knees of an old man, hell, I have the knees of a poorly

preserved mummy.

The noises my neck makes when I move it make me think injections of

3-in-1 oil might be needed.

All in all, I'm about ready to sell my body for parts and start over.

Referrals to neurologist and pain specialist are pending.

I posted the Burrascano guidelines in slide format, revised for

2004. They seem like a useful reference for those interested in

ILADS style treatments.