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Re: HCQ and CQ (Kate)

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That's very helpful information, Barb. You set kind of a standard

for honest presentation of pros and cons.

A breath of fresh air, these days.

>

> Chloroquine (CQ) and hydroxychloroquine (HCQ) are a members of the

> quinolone family, at the molecular level, these are different than

> fluroquinolines (with which they are sometimes confused).

>

> There is a molecular distinction between fluroquinoline and

> quinolones (please notice the spellings.. the " i " instead of

the " o "

> and the fluro prefix) which includes their side effects and there

are

> also distinctions between CQ and HCQ. As far as I know, the

tendon

> degradation problems with the fluroquinolines are not listed as

side

> effects by the drug companies witht these anti malarial

quinolones.

>

> But these (antimalarial) drugs do have side efects , especially

with

> raising the intraocular pressure (and you can't feel that

happening).

> Chloroquine (CQ) is more dangerous than hydroxychloroquine (HCQ)

and

> they

> have very long half lives, and unbeleivably long wash-out periods

> see this site:

> http://www.fqresearch.org/vision_archives.htm

>

> In some infections HCQ is used in combo with other drugs long term

> and there's quite a bit of data out there about HCQ and Doxy:

> http://archinte.ama-assn.org/cgi/content/abstract/159/2/167

>

> My docs baselined my IOC (introcular pressure) when starting HCQ,

> even though it used as a monotherapy and used at the safe dose

> (<400mg/day) and I was monitored thru higher doses.

>

> My eyes were really bad, and I was seeing my ohpthalmologist

every

> week anyway.. measuring a bunch of eye problems - so I was

monitored

> extremely closely. So although I used > 400mg and in combo with

> other abx, for some unknown reason, my intra-ocular pressure never

> increased.. So I was lucky.

>

> And IMO this isn't a drug anyone should self medicate (not that

any

> one would do that - but I need to say that because we are talking

> about ones eyes after all).

>

> And in my case, there did appear to be a synergy, or additive

effect

> when HCQ was combined some other abx. (see my other posts on

HCQ).

> With HCQ and Mino the dosages of both drugs were reduced by

about

> two thirds or I would reach too high a consentration in the inner

> ear, and vestibular dyfunction resulted (disabling vertigo from

the

> Mino consentration in the inner ear).

>

> So people - HCQ is a drug that IMO if you use it with other

drugs,

> you need to be under the care of not just any Dr.. but a smart Dr.

> .. you know.. some of these drug combo's are really a double edged

> swords, and one really has to weight the risks.

>

> I really really really worry about the the side efects of

toxicity

> being misinterpreted as herx when HCQ is used in combo with other

abx

> because tissue consentration levels will vary greatly between

people

> depending the combo drug used and the person's own genetic

metabolic

> make up.

> .. and I've seen plenty of reports of people calling these

effects

> herxes....and I just chringe.

>

> Barb

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On Tuesday, March 22, 2005, at 08:42 PM, Barb Peck wrote:

> As far as I know, the tendon

> degradation problems with the fluroquinolines are not listed as side

> effects by the drug companies with these anti malarial quinolones.

I haven't seen them listed either.

>   So people - HCQ  is a drug that IMO if you use it with other drugs,

> you need to be under the care of not just any Dr.. but a smart Dr.

That's what I had concluded and since we are still looking for a smart

local doctor, I tend to worry. (My son is seeing Dr. J in CT but that's

out of the country for us.)

>   .. and I've seen plenty of reports of people calling these effects

> herxes....and I just chringe.

Yes, it's torture for me seeing my son take it and not being able to

feel the effects myself and make a judgment. For instance, when he gets

a stomach ache, I don't know whether it's the HCQ, the Zith, or a herx

(he did have digestive system problems before treatment). So far no

worse symptoms though. Just muscle aches and so forth.

We did take my son for a pre-HCQ eye exam, but they claim he only needs

another exam after 6 months. I'm sure we could pay for another one

though, to allay our fears.

- Kate

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>There is a molecular distinction between fluroquinoline and >quinolones (please notice the spellings.. the "i" instead of the "o" >and the fluro prefix) which includes their side effects and there are >also distinctions between CQ and HCQ.

Barb,

If you are talking of abx like ciprofloxacin etc I am pretty sure they are "fluroquinolones". In fact, I have never seen "fluroquinolines" mentioned any place.

But I agree with you HCQ doesn't carry the same risks of tendon damage as fluroquinolones sometimes carry

Nelly

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