Doctors

[Guest guest]

Hi Everyone,

I have been out of commission for 3 wks with another hospitalization....

severe vomiting= nasal gastric tube and suction; paralyzed small intestine,

both lower quadrants which after 6 days resulted in stat x-rays and a

consult from the surgeon; excruciating pain from the ischemia so had the

morphine patch as well as regular morphine IM; in short I felt like hell. I

am now struggling to put back on the weight I lost, but since I am still

pumping at 1/2 strength as my digestive system reacts violently if I try to

pump full strength pre-digested formula through my g-tube, it will take some

time. Also since I no longer break down my pills and absorb them properly,

they have to be crushed and dissolved in water then injected into my tube.

The malabsoption ended in my INR (thickness of my blood) going all over the

place after having been stable for close to 10 months, and chest pains

because my heart med wasn't controlling my arrhythmia.

The reason for the heading is the comment my doctor made when I saw him. I

had to go to his office for a post hospitalization follow-up and weigh in.

After he examined me and we had concluded all the necessary things he closed

my file, leaned back in his chair and asked me " How does it feel to be

unique? " Needless to say that took me by surprise coming as it were out of

left field, in the 5 yrs we have battled this together he has never said

anything remotely like this. I told him I would much rather not be unique,

that I would gladly exchange it for being normal and healthy in an instant.

His reply, " Yes, but just think of how unique you are. There is no one

else in the whole wide world like you. "

I am at a total lost as to where he and that conversation were coming from.

All I can figure is that from a medical standpoint he gets something from

having such a " unique " patient and each twist my disease takes is a new and

intriguing challenge for him and the other specialists. BUT!!! for me the

lowly patient each twist is met with apprehension..... no down right fear,

along with having to endure the physical symptoms. I swear these doctors

just don't get it!

Marg )

mesenteric vascular insufficiency, chronic pancreatitis, severe

malabsorption, paralytic ilius, non eater, g-tube

doll@...