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I used to spend alot of time on the Immuesupport Board. Some here

people know me from there. I did a lot of research and posted it

there. Literally 100s of pieces of research were in their archives.

My dad had Lupus and so I had been spending a little time on the

Lupus board talking about ABX therapy. There were a couple of people

there that didn't like me talking about ABX and would chase me from

one thread to another, getting strangely irrate for me discussing it

there. There were some who were interested, so I hung around for

them and to see what I could learn for my dad.

One day these few were particularly bad, real drama and anger and I

got tired of it. I said something, that I decided with in seconds I

didn't want to leave it there. I went back to delete it and one of

these people copied it out of context and sent it to one of the

moderators. It was never discussed with me or was I ever given a

warning. Within minutes I was banned and ALL of the research was

deleted. I was horrified and so were honestly 100s of other people

who had followed my research. 100s of people left IS and started

decending on 2 other boards I had landed on.

Anyway, I was devestated by the loss of all that research. At the

urging of a few people I decided to start a research message board.

I house research there. Mine and others. It's kind of like a

library. Not a ton of conversation goes on there so there really

isn't much of a chance of having someone delete the whole board

because someone got a little aggresive talking about someone else.

I'd like to offer the site to you guys to house your research. You

can have a board like this one to talk all you want but then you can

add links to my board pointing out research you may have found. That

way the research is just a click away but tucked neatly away on a

totally seperate board and a different company.

I love research and am open to anything that might get me and my

family totally well. The board is set up with topics and it is real

easy to change things around and add new topics. I'd be open to any

ideas you might have. People have offered in the past to make it

real big, but I don't want the hassel of what you all have

experienced her, very sad.

It's called " Look for the Cure "

http://cure2003.conforums.com/index.cgi

Take a look and if you don't want to house stuff there, then maybe

you want to start something like that for yourselves.

The board has been pretty quiet as far as new research goes because

I have been so overwhelmed the last year and a half. Hopefully I

will be in a position to research again very soon.

When the info flows in, there are always people there reading. So

give it some thought. It's there even for individuals if you want.

You don't have to be a member to post either!

Jelly

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