Guest guest Posted March 5, 2005 Report Share Posted March 5, 2005 I, like Jelly, am very upset by what you folks have been through. I have posted here a few times and read the site every day....You have a wonderful, highly knowledgeable group of posters. Jelly and I know each other from a few different boards I would also like to offer you to take at look ar our sight. Three of us run " Rheumatic Support " ..... www.rs.option8.net...We are very open to new ideas... I sincerely hope you folks get this mess straightened out....Your board has been a fountain of knowledge. Barbs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2005 Report Share Posted March 5, 2005 nice board Jelly. colour too.. agent bleu. > > I used to spend alot of time on the Immuesupport Board. Some here > people know me from there. I did a lot of research and posted it > there. Literally 100s of pieces of research were in their archives. > My dad had Lupus and so I had been spending a little time on the > Lupus board talking about ABX therapy. There were a couple of people > there that didn't like me talking about ABX and would chase me from > one thread to another, getting strangely irrate for me discussing it > there. There were some who were interested, so I hung around for > them and to see what I could learn for my dad. > > One day these few were particularly bad, real drama and anger and I > got tired of it. I said something, that I decided with in seconds I > didn't want to leave it there. I went back to delete it and one of > these people copied it out of context and sent it to one of the > moderators. It was never discussed with me or was I ever given a > warning. Within minutes I was banned and ALL of the research was > deleted. I was horrified and so were honestly 100s of other people > who had followed my research. 100s of people left IS and started > decending on 2 other boards I had landed on. > > Anyway, I was devestated by the loss of all that research. At the > urging of a few people I decided to start a research message board. > I house research there. Mine and others. It's kind of like a > library. Not a ton of conversation goes on there so there really > isn't much of a chance of having someone delete the whole board > because someone got a little aggresive talking about someone else. > > I'd like to offer the site to you guys to house your research. You > can have a board like this one to talk all you want but then you can > add links to my board pointing out research you may have found. That > way the research is just a click away but tucked neatly away on a > totally seperate board and a different company. > > I love research and am open to anything that might get me and my > family totally well. The board is set up with topics and it is real > easy to change things around and add new topics. I'd be open to any > ideas you might have. People have offered in the past to make it > real big, but I don't want the hassel of what you all have > experienced her, very sad. > > It's called " Look for the Cure " > http://cure2003.conforums.com/index.cgi > Take a look and if you don't want to house stuff there, then maybe > you want to start something like that for yourselves. > > The board has been pretty quiet as far as new research goes because > I have been so overwhelmed the last year and a half. Hopefully I > will be in a position to research again very soon. > > When the info flows in, there are always people there reading. So > give it some thought. It's there even for individuals if you want. > You don't have to be a member to post either! > > Jelly > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2005 Report Share Posted March 6, 2005 Jelly, Like the board --- but in doing due diligence, I notice that the following in the Terms of Service… “3. CONTENT RESTRICTIONS Your web site must conform to the following standards to be eligible to utilize this service: A. User's content must comply in a manner consistent with any and all applicable laws of the State of California and the US Federal Government. B. User's message board may not contain content promoting the use of illegal drugs, alcohol, sex, pornography, nudity, or any other form of adult content, profanity, hate, " spam, " fraud, racism, mlm, pyramid schemes, or promote any illegal activity. C. User's message board and Web site must be in English. “ ** all applicable laws of the State of California ** I view as a real major problem because AutoImmunityResearch and Trevor Marshall are located in that state, so ‘legal action silencing’ of the board is a very high risk. IMHO, the ownership of the domain should NOT reside in the US (We are an international group)… that is all that I wish to say. Excellent board – but I feel it is located in the wrong legal jurisdiction to provide protection against nuisance actions… Any other suggestions? We could take the risk – but the moment we are on the radar, this issue could arise again. Should I resume my research and back channel activities to get a robust, survivable solution? Ken Lassesen, Lassesen Consulting ©2004 Ken Lassesen ALL RIGHTS RESERVED. This is a private and confidential email for the attention of the addressees only. It is not intending for public or media use, either in full or in part. This email is confidential and may contain legally privileged information. If you are not the intended recipient, you must not disclose or use the information contained in it. If you have received this email in error, please notify us immediately by return email and delete the document. From: Colourbleu [mailto:colourbleu@...] Sent: Saturday, March 05, 2005 3:41 PM To: infections Subject: Re: [infections] My Research Board nice board Jelly. colour too.. agent bleu. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2005 Report Share Posted March 6, 2005 Yes, Ken, I think you should continue your research. Thanks for doing so. Bleu, is your board in the U.S? I know you aren't. penny Jelly, I also think you have an awesome site. > Jelly, > > Like the board --- but in doing due diligence, I notice that the > following in the Terms of Service. > > " 3. CONTENT RESTRICTIONS > > Your web site must conform to the following standards to be eligible to > utilize this service: > > A. User's content must comply in a manner consistent with any and all > applicable laws of the State of California and the US Federal Government. > > B. User's message board may not contain content promoting the use of > illegal drugs, alcohol, sex, pornography, nudity, or any other form of adult > content, profanity, hate, " spam, " fraud, racism, mlm, pyramid schemes, or > promote any illegal activity. > > C. User's message board and Web site must be in English. > > " > > ** all applicable laws of the State of California ** I view as a real major > problem because AutoImmunityResearch and Trevor Marshall are located in that > state, so 'legal action silencing' of the board is a very high risk. IMHO, > the ownership of the domain should NOT reside in the US (We are an > international group). that is all that I wish to say. > > > > Excellent board - but I feel it is located in the wrong legal jurisdiction > to provide protection against nuisance actions. > > > > > > Any other suggestions? We could take the risk - but the moment we are on > the radar, this issue could arise again. Should I resume my research and > back channel activities to get a robust, survivable solution? > > Ken Lassesen, > Lassesen Consulting > > C2004 Ken Lassesen ALL RIGHTS RESERVED. This is a private and confidential > email for the attention of the addressees only. It is not intending for > public or media use, either in full or in part. > > This email is confidential and may contain legally privileged information. > If you are not the intended recipient, you must not disclose or use the > information contained in it. If you have received this email in error, > please notify us immediately by return email and delete the document. > > _____ > > From: Colourbleu [mailto:colourbleu@f...] > Sent: Saturday, March 05, 2005 3:41 PM > infections > Subject: Re: [infections] My Research Board > > > > nice board Jelly. colour too.. > > agent bleu. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Ken If you keep discussions on that board to all research, the pros and cons, and not to personal issues then it probably wouldn't cause problems. Just and exchange of RESEARCH and personal experiences with vairous protocols (not particularly any one). Nice thing about a board like that is that if you need to vent, there is always the PM/Personal Message feature. Sometimes discussions can get pretty intense on a board like this, not a bad thing, but it is open for ALL to see. > Jelly, > > Like the board --- but in doing due diligence, I notice that the > following in the Terms of Service. > > " 3. CONTENT RESTRICTIONS > > Your web site must conform to the following standards to be eligible to > utilize this service: > > A. User's content must comply in a manner consistent with any and all > applicable laws of the State of California and the US Federal Government. > > B. User's message board may not contain content promoting the use of > illegal drugs, alcohol, sex, pornography, nudity, or any other form of adult > content, profanity, hate, " spam, " fraud, racism, mlm, pyramid schemes, or > promote any illegal activity. > > C. User's message board and Web site must be in English. > > " > > ** all applicable laws of the State of California ** I view as a real major > problem because AutoImmunityResearch and Trevor Marshall are located in that > state, so 'legal action silencing' of the board is a very high risk. IMHO, > the ownership of the domain should NOT reside in the US (We are an > international group). that is all that I wish to say. > > > > Excellent board - but I feel it is located in the wrong legal jurisdiction > to provide protection against nuisance actions. > > > > > > Any other suggestions? We could take the risk - but the moment we are on > the radar, this issue could arise again. Should I resume my research and > back channel activities to get a robust, survivable solution? > > Ken Lassesen, > Lassesen Consulting > > C2004 Ken Lassesen ALL RIGHTS RESERVED. This is a private and confidential > email for the attention of the addressees only. It is not intending for > public or media use, either in full or in part. > > This email is confidential and may contain legally privileged information. > If you are not the intended recipient, you must not disclose or use the > information contained in it. If you have received this email in error, > please notify us immediately by return email and delete the document. > > _____ > > From: Colourbleu [mailto:colourbleu@f...] > Sent: Saturday, March 05, 2005 3:41 PM > infections > Subject: Re: [infections] My Research Board > > > > nice board Jelly. colour too.. > > agent bleu. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 Penny, please eliminate me from all correspondence in your group. Please no more e-mails - I am drowning int he stuff. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 In a message dated 3/14/2005 12:49:44 PM Pacific Standard Time, Gjgilberg@... writes: infections infections Penny, Please eliminate me from any and all e-mail from your group. Thank you. Quote Link to comment Share on other sites More sharing options...
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