Re: Clarithromycin and the MP

[Guest guest]

" doggy532001 " <doggy532001@y...> wrote:

>

> I wonder if anybody can comment on whether my taking 500 mg twice

> daily of Clarithromycin should be beneficial.

Everybody's different and so are their bugs, but I don't know anyone

who's found clarithromycin to be all that powerful. Maybe helpful

for a little while. But like I said, everybody's different. I don't

know anyone who's had the kind of results Steve is having with B12

either (except true anemics), and B12 is one of the first things

almost every PWC I know, including myself, has tried.

This question reminds me of how surprised I was to see

Clarithromycin as an option on the MP now as I don't know anyone

who's found it to have any kind of staying power.

With all the trial and error going on with the MP antibiotics, IMO,

the only consistency it has now, that makes it stand apart from

other abx treatments, is the Benicar and living in the dark.

I'm still finding the Benicar beneficial. Can't live without it

(unfortunately). But living in the dark for months at a time? No

way, and amazingly, the Benicar is still effective anyway. Too bad

the official protocol is so dogmatic. IMO, there wouldn't be nearly

so many people shunning the entire protocol, and especially the

Benicar, if the attitudes weren't so dictatorial and inflexible.

Especially ironic as we watch the protocol continue to evolve

despite the admonitions against varying it.

I'm also surprised if so many doctors are really signing on as

claimed, especially with so little evidence of recovery so far. The

MP literally has people living in the dark for long periods of time.

I don't care what the rationalization is, I think such extreme sun

avoidance could be harmful long term.

Vitamin D is already a big area of reasearch. So I really hope that

Sankyo and other researchers come out soon with more studies on ARBs

as anti-inflammatories. We really need to understand better what's

going on here, how safe the drugs truly are, etc., in tightly

controlled studies.

penny

[Guest guest]

> Pam, it sure sounds from the Donta study like the macrolides

aren't very effective for Lyme without help from HCQ. Maybe there is

a substitute for HCQ?

>

> - Kate D.

This is curious, because if I remember correctly, when the MP was

first being developed, the inventor used HCQ. That was before the

current version of the protocol, of course. Someone should verify

this. Ask the inventor about the development of the MP and if HCQ

was used, and if so, could it have actually been a factor in

achieving his " remission " .

penny