Guest guest Posted March 24, 2005 Report Share Posted March 24, 2005 My doc says his patients are raving about this. I haven't heard of it before. Anyone else? http://www.allergyresearchgroup.com/proddesc/products/mucolyxir.htm penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2005 Report Share Posted March 26, 2005 http://www.allergyresearchgroup.com/proddesc/products/mucolyxir.htm " Mucolyxir™ is a DNA-based nutritional supplement, utilizing DNA from wild Pacific salmon. " If I had a nickle for every supplement bottle that doctors whip out of their stash, I'd be a rich woman. But, hey, I'm willing to try anything that won't kill me first. Peg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2005 Report Share Posted March 26, 2005 Yeah, I know. It's just that my doc says his patients are really raving about it, and I hadn't heard of salmon dna before. Thought maybe someone might have some info on it. My doc's actually a really cool guy. Not in this for the money, so I trust him. Although, every treatment I've tried with him so far, except for antibiotics, hasn't really done all that much good. But he keeps trying. He really does care, which is a rare thing to be able to say. penny > " Mucolyxir™ is a DNA-based nutritional supplement, utilizing DNA from > wild Pacific salmon. " > > > If I had a nickle for every supplement bottle that doctors whip out of their stash, I'd be a rich woman. But, hey, I'm willing to try anything that won't kill me first. > > Peg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2005 Report Share Posted March 26, 2005 No, actually, the problem is that the cilia aren't working properly which promotes infection in the head region. This is a HUGE part of my disease process. I've got constant infection festering in my head (even though I have no symptoms, my CT scans show a very different picture in my sinuses and jaw). No matter how many i.v. abx I take, it can't seem to be eradicated. It always comes back. I don't want sinus surgery because that permanently damages the cilia (if they have any function left after being paralyzed this long). Anything that gets the cilia moving is good, because that moves the crap out of the sinuses, which reduces the risk of chronic infection and biofilms forming and the release of neurotoxins, etc. If you look at polls we've taken, a huge number of pwc do have sinus/dental problems. For me, a runny nose is always a good thing. Usually, it's just thick mucous sitting in my sinuses and sliding down the back of my throat. So thick, I often don't realize it's happening. Abx usually loosens it up. penny > > > quote " appears to support cilia motion, and liquification and > elimination of mucoid substance. " > > Soooooooo, we won't have a runny nose anymore? > > Peg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2005 Report Share Posted March 26, 2005 > > > > > > quote " appears to support cilia motion, and liquification and > > elimination of mucoid substance. " > > > > Soooooooo, we won't have a runny nose anymore? > > > > Peg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2005 Report Share Posted March 26, 2005 Lynne, Is this endoscopic surgery or just exploratory endoscopy to see what's up there? I'm very leary of surgery, the kind that "reams" your sinuses, because that permanently destroys the cilia. If the cilia aren't functioning, your body can't fight the infection. There are other types of surgery where they just enlarge some of the openings in the sinuses without ripping everything out. If I had to do it (which I was very much pressured to do), I'd go for the second option. I'd recommend the Sino Fresh, too. It always gets me sneezing, which is interesting. And it thins the mucous and I've even been getting a slightly runny nose every once in a while. This is a very positive sign.Do you know about the hydropulse/Grossan Irrigator? It pulses saline through the sinuses at the same rate the cilia are supposed to move. It's also getting rave reviews from ENTs and patients with chronic sinusitis. My only problem with it is I feel I might be getting too much moisture in my sinuses, and considering I've got a pseudomonas bug up there (which thrives in moisture), that could be a problem.However, the great thing about the Hydropulse is you can put stuff in the water, like silver, Breathe Ease, etc. which kills bugs while promoting cilia movement.It's extremely easy to use, too. No discomfort. It's just one of those things I don't do daily like I should (plus, there's that moisture issue that I'm not sure about).If you have symptoms, then the relief of those symptoms will be a sure sign of whether these things are helping or not. MY problem is I don't have the typical sinus symptoms. Just scans that show serious sinus infection. And of course, chronic, debilitating fatigue. :-( (and you know, people can have sinus infections that don't even show up on scans).I would most definitely try these various inexpensive approaches before surgery, though.http://www.hydromedonline.com/ I'm going to try the mucolyxir. Why not?penny"Physiologic and Hypertonic Saline Solutions Impair Ciliary Activity in Vitro, Boeck, Wilbert. Keles, Nesil. Graamans, Kees, Laryngoscope March 99 No 3, p.396. Certain hypertonic saline solutions cause ciliostasis (the cilia stop functioning) from which the cilia may not recover. If cilia are permanently damaged, the ability to fight infection is lost. Dr Boek recommends the Locke-Ringer's solution for nasal spray and irrigation.Merkus: Classification of Cilio-Inhibiting Effects of Nasal Drugs. Merkus. Laryngoscpe: 111 April 2001 pp 595 - 601 Use of Locke-Ringer's formula is best for enhancing cilia. (Breathe.ease is a Locke-Ringer's formulation" http://www.allergyconsumerreview.com/sinus-nasal-spray.html > Dear Penny> > I am scheduled for an endoscopy of my sinuses next week. How damaging is this to the cilia? I've had sinus problems off and on for many > years. I think this doctor is "itching" to give me allergy shots. > Ugh. He drew blood to test for allergies, which I'm sure I have, but I sure would like to treat for infection until it's as gone as > possible.> > One of my sisters-in-law has had repeated sinus surgeries for polyps and each time her congestion comes back sooner. I am apprehensive > since I never know how being numbed is going to effect me. The doctor is going to pack my sinuses with something so it's just a local > anesthesia I guess.> > This Mucolyxir may be an option. It would be great, too, if it could help make some real good sneezes!> Thanks, Lynne. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2005 Report Share Posted March 27, 2005 Thanks Penny. I think this is just to look up there and see what's giving me trouble. I've sometimes made things worse using too much liquid in my sinuses, maybe because we live in a hot humid climate. It worked well for me when I lived in a dry place. But your suggestions are great--thanks for the info. Did you have sinus symptoms to begin with? Sounds like you've got some terrible germs. Do your ears ring? Mine have been ringing for ages. My hearing doesn't seem to be any different. Im afraid that this ENT will focus on my allergies--which I can live with, and have for years, and not consider infection as being more important. This happened before, but that doctor based his diagnosis on an X-RAY ONLY. So I'm going along with the endoscopy this time. I really don't want to have to get allergy shots. Yesterday I came down with an acute urinary track infection. Got some Uristat and antibiotics (SMZ-TMP) but I still feel pretty shakey today. Can't figure out where this came from. Having something else wrong makes every muscle in my body ache, gives me the brain fog, and I'm so tired. My husband may be cooking Easter dinner! Lynne > Lynne, > > Is this endoscopic surgery or just exploratory endoscopy to see what's up there? I'm very leary of surgery, the kind that " reams " your sinuses, because that permanently destroys the cilia. If the cilia aren't functioning, your body can't fight the infection. There are other types of surgery where they just enlarge some of the openings in the sinuses without ripping everything out. If I had to do it (which I was very much pressured to do), I'd go for the second option. > > I'd recommend the Sino Fresh, too. It always gets me sneezing, which > is interesting. And it thins the mucous and I've even been getting a > slightly runny nose every once in a while. This is a very positive > sign. > > Do you know about the hydropulse/Grossan Irrigator? It pulses saline > through the sinuses at the same rate the cilia are supposed to move. > It's also getting rave reviews from ENTs and patients with chronic > sinusitis. > > My only problem with it is I feel I might be getting too much > moisture in my sinuses, and considering I've got a pseudomonas bug > up there (which thrives in moisture), that could be a problem. > > However, the great thing about the Hydropulse is you can put stuff > in the water, like silver, Breathe Ease, etc. which kills bugs while > promoting cilia movement. > > It's extremely easy to use, too. No discomfort. It's just one of > those things I don't do daily like I should (plus, there's that > moisture issue that I'm not sure about). > > If you have symptoms, then the relief of those symptoms will be a > sure sign of whether these things are helping or not. MY problem is > I don't have the typical sinus symptoms. Just scans that show > serious sinus infection. And of course, chronic, debilitating > fatigue. :-( (and you know, people can have sinus infections that > don't even show up on scans). > > I would most definitely try these various inexpensive approaches before > surgery, though. > > http://www.hydromedonline.com/ > > I'm going to try the mucolyxir. Why not? > > penny > > " Physiologic and Hypertonic Saline Solutions Impair Ciliary Activity > in Vitro, Boeck, Wilbert. Keles, Nesil. Graamans, Kees, Laryngoscope > March 99 No 3, p.396. Certain hypertonic saline solutions cause > ciliostasis (the cilia stop functioning) from which the cilia may > not recover. If cilia are permanently damaged, the ability to fight > infection is lost. Dr Boek recommends the Locke-Ringer's solution > for nasal spray and irrigation. > > Merkus: Classification of Cilio-Inhibiting Effects of Nasal Drugs. > Merkus. Laryngoscpe: 111 April 2001 pp 595 - 601 Use of Locke- > Ringer's formula is best for enhancing cilia. (Breathe.ease is a > Locke-Ringer's formulation " > > http://www.allergyconsumerreview.com/sinus-nasal-spray.html > > > Quote Link to comment Share on other sites More sharing options...
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