Guest guest Posted March 24, 2005 Report Share Posted March 24, 2005 Here's the story, and I'm hoping for your insights. My daughter has had debilitating symptoms since she was 13. Prior to that, she'd had gastro symptoms since birth, cognitive/emotional stuff best described in retrospect as brain fog, yeast infections dx'd first at age 4. At age 10, she had an emergency appendectomy (nothing burst) that went south with post-operative internal bleeding that resulted in her having 4 pts of blood transfused from unknown sources. At 12 (Dec), she began reporting dizziness. At 13, she had a hard fall on a gym floor that cracked her coxxyx and increased the dizziness intolerably (Dec the next year). She began having migraines, and was out of school for 6 weeks with one that couldn't be controlled until she was hospitalized in May for ergotamine, morphine, and who knows what else. Migraines were intermittent that summer, dx'd with orthostatic intolerance in Sept. In Oct, she developed intractable neck and back pain, and our PCP first said " fibromyalgia " to us in Nov. Subsequent symptoms have included excessive fatigue, poor sleep, IBS, VV - the gamut. We're in central PA, so there have been plenty of opportunities for Bb exposures. Naturally, nothing has come back positive on the normal tests run or mildly positive test results (e.g. TSH) haven't led to anything. Mild improvements associated with guaifenesin. So, we had a first visit to a Fibromyalgia and Fatigue Center in Pittsburgh today. These are the blood tests the dr. there ordered: ACE ACTH Aldosterone Angiontensin II AST/SGOT B12 Cardio CRP CBC w/diff CMP Cortisol Free Cortisol Total DHEA-S Fibrinogen Heave Metals Panel Meoglobin IGF-1 Insulin Lipid Panel Lipoprotein Magnesium, RBC NK Cell activity Pregnenolone PTT Reverse T3 SHGB T3, free T4, free Testosterone F & T Thrombotic Marker Panel Thyroglobulin Thyroid Peroxidase AB Total IGG/IGM/IGA TSH receptor AB TSh Vitamin D Panel Estradiol FSH LH Progesterone Prolactin Somatostatin Anti T3 AB Anti T4 AB Anti-TSH AB RNASE-L Act IGFBP-d Babesia Candida IgG/IgM/IgA Chlamydia Pneum CMV CMV IgM EBV early antigen EBV panel HHV6 Lym Disease IgG/IgM Lyme Disease WB Mycoplasma IgG Mycoplasma IgM He prescribed Xyrem and Nystatin for now, based on symptoms. Gave her an IV colloidal silver infusion, an IV cocktail comprised of unknown goodies, and an injection primarily of B12, glutathione, and other stuff. She's in surprisingly good shape tonight, considering the long drive to get to Pitt from home and what she went through today. He's familiar with the MP. He's looking for Igenex Western Blot results before going to samento. Based on her symptoms, he's especially looking for her thyroid info. So, does this seem to y'all as complete as it does to me? Thanks, Val in PA Quote Link to comment Share on other sites More sharing options...
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