Re: Re: Clarithromycin and the MP

[Guest guest]

Penny, I found that Biaxin was very good at getting into the spine and

clearing that from bacteria. The other place it worked very well was an

infection lower down from my stomach jodenium area that would not

shift, this was really nasty.

B12 is making a HUGE difference for me.

I think I must have been starved of the stuff. I am still climbing with

it.

>

> " doggy532001 " <doggy532001@y...> wrote:

> >

> > I wonder if anybody can comment on whether my taking 500 mg twice

> > daily of Clarithromycin should be beneficial. 

>

> Everybody's different and so are their bugs, but I don't know anyone

> who's found clarithromycin to be all that powerful. Maybe helpful

> for a little while. But like I said, everybody's different. I don't

> know anyone who's had the kind of results Steve is having with B12

> either (except true anemics), and B12 is one of the first things

> almost every PWC I know, including myself, has tried.

>

> This question reminds me of how surprised I was to see

> Clarithromycin as an option on the MP now as I don't know anyone

> who's found it to have any kind of staying power.

>

> With all the trial and error going on with the MP antibiotics, IMO,

> the only consistency it has now, that makes it stand apart from

> other abx treatments, is the Benicar and living in the dark.

>

> I'm still finding the Benicar beneficial. Can't live without it

> (unfortunately). But living in the dark for months at a time? No

> way, and amazingly, the Benicar is still effective anyway. Too bad

> the official protocol is so dogmatic. IMO, there wouldn't be nearly

> so many people shunning the entire protocol, and especially the

> Benicar, if the attitudes weren't so dictatorial and inflexible.

> Especially ironic as we watch the protocol continue to evolve

> despite the admonitions against varying it.

>

> I'm also surprised if so many doctors are really signing on as

> claimed, especially with so little evidence of recovery so far. The

> MP literally has people living in the dark for long periods of time.

> I don't care what the rationalization is, I think such extreme sun

> avoidance could be harmful long term.

>

> Vitamin D is already a big area of reasearch. So I really hope that

> Sankyo and other researchers come out soon with more studies on ARBs

> as anti-inflammatories. We really need to understand better what's

> going on here, how safe the drugs truly are, etc., in tightly

> controlled studies.

>

> penny

>

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[Guest guest]

On Tuesday, March 15, 2005, at 12:30 PM, Colourbleu wrote:

> I found that Biaxin was very good at getting into the spine and

> clearing that from bacteria. The other place it worked very well was

> an infection lower down from my stomach jodenium area that would not

> shift, this was really nasty.

Oh, I am still having pain from spinal inflammation. The MP has reduced

it by maybe 75% but I'm very aware that the problem is still there,

maybe turning into permanent arthritis. Maybe I should do the

Clarithromycin on the MP for a while instead of sticking with Zithromax.

About the MP, it does seem to be working for me, and I definitely am

still herxing, but I am losing patience with the slowness of it. I'm

watching to see how my son's more traditional Lyme treatment goes and

may end up taking an MP break to use something that has worked for him

to get my own bacterial load down. I figure our basic bacteria is much

the same since he was born with mine to start with.

Pam, it sure sounds from the Donta study like the macrolides aren't

very effective for Lyme without help from HCQ. Maybe there is a

substitute for HCQ?

- Kate D.