Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 Sorry Sally for assuming Owens was right in her assumption, scientist dont always make the best writers and vice-versa!!! it really is a good thing to have all the solid science in one place like this, a very useful tool indeed. Nikki In Autism-Biomedical-Europe , Eva family wrote: > > We are both English .........I used to write for a living as a > journalist. Steve has written scientific papers. He has written a couple > of books (the last one on BSE but it is not a great read). > > You really want the book when it all comes together, and as far as Steve > is concerned, it hasn't yet. There's lots of science, lots of > interesting findings and lots of progress but not yet a definite idea > that pulls it all together. Partly, he thinks, because different > conditions which are symptomatically similar are jumbled > together..........like having a category marked pain in head and putting > into it headaches, migraine, and brain tumours. A few centuries ago lots > of what we now consider separate illnesses were all called " fever " > because they came with a high temperature. > > Also there is no science about treatment .......or not very much because > there is no agreement on what the problem is. So you really have a lot > of description and a lot of findings which are very odd but don't seem > to fall into a pattern. He wanted me to write an intro to the immunology > section and I said I couldn't because I couldn't understand it. He said > immunology was very complicated and immunologists didn't really > understand how the system worked or what the ASD findings meant. > > Part of his thinking is to put the best bits together (this is just a > fraction of the research) and hope that someone in science will see a > pattern, or think of a new way to approach ASD. For parents, I think > it's just encouraging, particularly in the UK, to see that there is so > much research. And the next time we have to deal with a doctor maybe we > can draw relevant bits of it to his/her attention. > > xx Sally > > Nikki wrote: > > > > > > Hmmmm, ok maybe something to consider for the future, when everything > > comes together! Are you both not English then (sorry being very > > nosey!), your written english is extremely fluent if it is not your > > first language, much better than me!!! > > > > Nikki > > > > In Autism-Biomedical-Europe > > <mailto:Autism-Biomedical-Europe%40yahoogroups.com>, Eva family > > <bobsallyeva@> wrote: > > > > > > One trouble is that Steve's writing style is opaque. Owens > > from > > > the US was looking at his stuff and she said politely " of course > > English > > > isn't his first language so maybe I could help him out with a bit > > of > > > rewriting " . He tends to write in a scientific fashion or very > > > convolutedly. He wanted me to write summarizing intros to each > > section > > > and so I have done some. But part of the problem is that the > > evidence > > > doesn't fit together and point ...............tada!!. It is a > > jumble > > > sale of facts and doesn't fit together at the moment. > > > > > > Sally > > > > > > Nikki wrote: > > > > > > > > > > > > Hi Sally, > > > > > > > > i was just wondering whether your brother might consider writing a > > > > book as well (if you politely prompted him!). We really do need > > > > someone to do this, with a medical qualification, not just a Mum, > > to > > > > pit against the nonsense written by a certain other Doc (you all > > know > > > > who i mean!)who seems to get all the press these days, we really > > do > > > > need to even things out a bit don't you think??? > > > > > > > > Nikki x > > > > > > > > > > > > > > I'm sure he's be thrilled Caroline. It knocks on the head the > > > > argument > > > > > that it's all psychological doesn't it! > > > > > xx Sally > > > > > > > > > > carolinetraa2000 wrote: > > > > > > > > > > > > > > > > > > > > > > > > > > http://www.science-autism.org/ > > <http://www.science-autism.org/> <http://www.science- > > autism.org/> > > > > <http://www.science-autism.org/ <http://www.science- autism.org/> > > <http://www.science-autism.org/ <http://www.science-autism.org/>>> > > > > > > > > > > > > > Hi Sally > > > > > > > > > > > > This is great, do you think your brother would mind if we put > > > > this link > > > > > > on the DVD people will get who attend the Mnacehster > > Conference? > > > > > > > > > > > > Luv Caroline > > > > > > xxx > > > > > > > > > > > > > > > > > > ---------------------------------------------------------- > > ------ > > > > > > > > > > > > No virus found in this incoming message. > > > > Checked by AVG. > > > > Version: 8.0.100 / Virus Database: 270.4.0/1506 - Release Date: > > 17/06/2008 16:30 > > > > > > > > > > > > > ------------------------------------------------------------------ ------ > > > > > > No virus found in this incoming message. > > Checked by AVG. > > Version: 8.0.100 / Virus Database: 270.4.0/1506 - Release Date: 17/06/2008 16:30 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 He won't have read it. He's not saying that there isn't any treatment -- just that the science doesn't indicate any. There's clinical practice (what works) and science ...what is shown to work and understood. I think with quite a lot of medicine they have a treatment and work out why it works afterwards. But so many asd treatments work brilliantly for a few, Ok for some and not at all for lots ...............B6, LDN, B12 etc even chelation.... Shattock is working on why a theory of why chelation might work which has nothing to do with metals because so many children for whom it works don't show as poisoned on teh metal tests. Does that make sense? xx Sally Neno/Natasa wrote: > > > Sally, has Steve read Jepson’s book? If so what is his take on it? > > nx > > We are both English .........I used to write for a living as a > journalist. Steve has written scientific papers. He has written a > couple > of books (the last one on BSE but it is not a great read). > > You really want the book when it all comes together, and as far as > Steve > is concerned, it hasn't yet. There's lots of science, lots of > interesting findings and lots of progress but not yet a definite idea > that pulls it all together. Partly, he thinks, because different > conditions which are symptomatically similar are jumbled > together..........like having a category marked pain in head and > putting > into it headaches, migraine, and brain tumours. A few centuries > ago lots > of what we now consider separate illnesses were all called " fever " > because they came with a high temperature. > > Also there is no science about treatment .......or not very much > because > there is no agreement on what the problem is. So you really have a > lot > of description and a lot of findings which are very odd but don't > seem > to fall into a pattern. He wanted me to write an intro to the > immunology > section and I said I couldn't because I couldn't understand it. He > said > immunology was very complicated and immunologists didn't really > understand how the system worked or what the ASD findings meant. > > Part of his thinking is to put the best bits together (this is just a > fraction of the research) and hope that someone in science will see a > pattern, or think of a new way to approach ASD. For parents, I think > it's just encouraging, particularly in the UK, to see that there > is so > much research. And the next time we have to deal with a doctor > maybe we > can draw relevant bits of it to his/her attention. > > xx Sally > > Nikki wrote: > > > > > > Hmmmm, ok maybe something to consider for the future, when everything > > comes together! Are you both not English then (sorry being very > > nosey!), your written english is extremely fluent if it is not your > > first language, much better than me!!! > > > > Nikki > > > > In Autism-Biomedical-Europe > <mailto:Autism-Biomedical-Europe%40yahoogroups.com> > <mailto:Autism-Biomedical-Europe%40yahoogroups.com> > > <mailto:Autism-Biomedical-Europe%40yahoogroups.com> > <mailto:Autism-Biomedical-Europe%40yahoogroups.com>, Eva family > > wrote: > > > > > > One trouble is that Steve's writing style is opaque. Owens > > from > > > the US was looking at his stuff and she said politely " of course > > English > > > isn't his first language so maybe I could help him out with a bit > > of > > > rewriting " . He tends to write in a scientific fashion or very > > > convolutedly. He wanted me to write summarizing intros to each > > section > > > and so I have done some. But part of the problem is that the > > evidence > > > doesn't fit together and point ...............tada!!. It is a > > jumble > > > sale of facts and doesn't fit together at the moment. > > > > > > Sally > > > > > > Nikki wrote: > > > > > > > > > > > > Hi Sally, > > > > > > > > i was just wondering whether your brother might consider > writing a > > > > book as well (if you politely prompted him!). We really do need > > > > someone to do this, with a medical qualification, not just a Mum, > > to > > > > pit against the nonsense written by a certain other Doc (you all > > know > > > > who i mean!)who seems to get all the press these days, we really > > do > > > > need to even things out a bit don't you think??? > > > > > > > > Nikki x > > > > > > > > > > > > > > I'm sure he's be thrilled Caroline. It knocks on the head the > > > > argument > > > > > that it's all psychological doesn't it! > > > > > xx Sally > > > > > > > > > > carolinetraa2000 wrote: > > > > > > > > > > > > > > > > > > > > > > > > > > http://www.science-autism.org/ > <http://www.science-autism.org/> > > <http://www.science-autism.org/> <http://www.science-autism.org/> > <http://www.science- > > autism.org/> > > > > <http://www.science-autism.org/ > <http://www.science-autism.org/> > <http://www.science-autism.org/%20%3Chttp://www.science-autism.org/> > > <http://www.science-autism.org/ <http://www.science-autism.org/> > <http://www.science-autism.org/%20%3Chttp://www.science-autism.org/>>> > > > > > > > > > > > > > Hi Sally > > > > > > > > > > > > This is great, do you think your brother would mind if we put > > > > this link > > > > > > on the DVD people will get who attend the Mnacehster > > Conference? > > > > > > > > > > > > Luv Caroline > > > > > > xxx > > > > > > > > > > > > > > > > > > ---------------------------------------------------------- > > ------ > > > > > > > > > > > > No virus found in this incoming message. > > > > Checked by AVG. > > > > Version: 8.0.100 / Virus Database: 270.4.0/1506 - Release Date: > > 17/06/2008 16:30 > > > > > > > > > > > > > ---------------------------------------------------------- > > > > > > No virus found in this incoming message. > > Checked by AVG. > > Version: 8.0.100 / Virus Database: 270.4.0/1506 - Release Date: > 17/06/2008 16:30 > > > > > > > ------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG. > Version: 8.0.100 / Virus Database: 270.4.0/1506 - Release Date: 17/06/2008 16:30 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 thanks , he has spent weeks on it. Praise will do wonders for him xx Sally JULIE GRIFFITHS wrote: > > Eva, > > I've had a quick look through your brother's site. My Goodness, he has > put hours and hours of work into building up a most comprehensive > database, complete with abstracts and hyperlinks to the relevent > studies. It's just amazing! There were quite a few studies on oxidative > stress which I hadn't seen before. > > Great stuff! > > > > Eva family schrieb: > > > > One trouble is that Steve's writing style is opaque. Owens from > > the US was looking at his stuff and she said politely " of course English > > isn't his first language so maybe I could help him out with a bit of > > rewriting " . He tends to write in a scientific fashion or very > > convolutedly. He wanted me to write summarizing intros to each section > > and so I have done some. But part of the problem is that the evidence > > doesn't fit together and point ...............tada!!. It is a jumble > > sale of facts and doesn't fit together at the moment. > > > > Sally > > > > Nikki wrote: > > > > > > > > > Hi Sally, > > > > > > i was just wondering whether your brother might consider writing a > > > book as well (if you politely prompted him!). We really do need > > > someone to do this, with a medical qualification, not just a Mum, to > > > pit against the nonsense written by a certain other Doc (you all know > > > who i mean!)who seems to get all the press these days, we really do > > > need to even things out a bit don't you think??? > > > > > > Nikki x > > > > > > > > > > > I'm sure he's be thrilled Caroline. It knocks on the head the > > > argument > > > > that it's all psychological doesn't it! > > > > xx Sally > > > > > > > > carolinetraa2000 wrote: > > > > > > > > > > > > > > > > > > > > > > http://www.science-autism.org/ <http://www.science-autism.org/> > > <http://www.science-autism.org/ <http://www.science-autism.org/>> > <http://www.science-autism.org/ <http://www.science-autism.org/> > > <http://www.science-autism.org/ <http://www.science-autism.org/>>> > > > <http://www.science-autism.org/ <http://www.science-autism.org/> > <http://www.science-autism.org/ <http://www.science-autism.org/>> > > <http://www.science-autism.org/ <http://www.science-autism.org/> > <http://www.science-autism.org/ <http://www.science-autism.org/>>>> > > > > > > > > > > > Hi Sally > > > > > > > > > > This is great, do you think your brother would mind if we put > > > this link > > > > > on the DVD people will get who attend the Mnacehster Conference? > > > > > > > > > > Luv Caroline > > > > > xxx > > > > > > > > > > > > > > ---------------------------------------------------------- > > > > > > > > > No virus found in this incoming message. > > > Checked by AVG. > > > Version: 8.0.100 / Virus Database: 270.4.0/1506 - Release Date: > > 17/06/2008 16:30 > > > > > > > > > ---------------------------------------------------------- > > > > No virus found in this incoming message. > > Checked by AVG. > > Version: 7.5.524 / Virus Database: 270.4.0/1506 - Release Date: > 17/06/2008 16:30 > > > > > ------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG. > Version: 8.0.100 / Virus Database: 270.4.0/1506 - Release Date: 17/06/2008 16:30 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 That's alright Nikki, I wasn't being clear. I thought Owens' assumption was very funny and in a sisterly way I forwarded it to him and he was duly miffed xx Sally Nikki wrote: > > > > Sorry Sally for assuming Owens was right in her assumption, > scientist dont always make the best writers and vice-versa!!! it > really is a good thing to have all the solid science in one place > like this, a very useful tool indeed. > > Nikki > > In Autism-Biomedical-Europe > <mailto:Autism-Biomedical-Europe%40yahoogroups.com>, Eva family > wrote: > > > > We are both English .........I used to write for a living as a > > journalist. Steve has written scientific papers. He has written a > couple > > of books (the last one on BSE but it is not a great read). > > > > You really want the book when it all comes together, and as far as > Steve > > is concerned, it hasn't yet. There's lots of science, lots of > > interesting findings and lots of progress but not yet a definite > idea > > that pulls it all together. Partly, he thinks, because different > > conditions which are symptomatically similar are jumbled > > together..........like having a category marked pain in head and > putting > > into it headaches, migraine, and brain tumours. A few centuries ago > lots > > of what we now consider separate illnesses were all called " fever " > > because they came with a high temperature. > > > > Also there is no science about treatment .......or not very much > because > > there is no agreement on what the problem is. So you really have a > lot > > of description and a lot of findings which are very odd but don't > seem > > to fall into a pattern. He wanted me to write an intro to the > immunology > > section and I said I couldn't because I couldn't understand it. He > said > > immunology was very complicated and immunologists didn't really > > understand how the system worked or what the ASD findings meant. > > > > Part of his thinking is to put the best bits together (this is just > a > > fraction of the research) and hope that someone in science will see > a > > pattern, or think of a new way to approach ASD. For parents, I > think > > it's just encouraging, particularly in the UK, to see that there is > so > > much research. And the next time we have to deal with a doctor > maybe we > > can draw relevant bits of it to his/her attention. > > > > xx Sally > > > > Nikki wrote: > > > > > > > > > Hmmmm, ok maybe something to consider for the future, when > everything > > > comes together! Are you both not English then (sorry being very > > > nosey!), your written english is extremely fluent if it is not > your > > > first language, much better than me!!! > > > > > > Nikki > > > > > > In Autism-Biomedical-Europe > <mailto:Autism-Biomedical-Europe%40yahoogroups.com> > > > <mailto:Autism-Biomedical-Europe%40yahoogroups.com>, Eva family > > > <bobsallyeva@> wrote: > > > > > > > > One trouble is that Steve's writing style is opaque. Owens > > > from > > > > the US was looking at his stuff and she said politely " of course > > > English > > > > isn't his first language so maybe I could help him out with a > bit > > > of > > > > rewriting " . He tends to write in a scientific fashion or very > > > > convolutedly. He wanted me to write summarizing intros to each > > > section > > > > and so I have done some. But part of the problem is that the > > > evidence > > > > doesn't fit together and point ...............tada!!. It is a > > > jumble > > > > sale of facts and doesn't fit together at the moment. > > > > > > > > Sally > > > > > > > > Nikki wrote: > > > > > > > > > > > > > > > Hi Sally, > > > > > > > > > > i was just wondering whether your brother might consider > writing a > > > > > book as well (if you politely prompted him!). We really do > need > > > > > someone to do this, with a medical qualification, not just a > Mum, > > > to > > > > > pit against the nonsense written by a certain other Doc (you > all > > > know > > > > > who i mean!)who seems to get all the press these days, we > really > > > do > > > > > need to even things out a bit don't you think??? > > > > > > > > > > Nikki x > > > > > > > > > > > > > > > > > I'm sure he's be thrilled Caroline. It knocks on the head > the > > > > > argument > > > > > > that it's all psychological doesn't it! > > > > > > xx Sally > > > > > > > > > > > > carolinetraa2000 wrote: > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > http://www.science-autism.org/ > <http://www.science-autism.org/> > > > <http://www.science-autism.org/ <http://www.science-autism.org/>> > <http://www.science- > > > autism.org/> > > > > > <http://www.science-autism.org/ > <http://www.science-autism.org/> <http://www.science- > autism.org/> > > > <http://www.science-autism.org/ <http://www.science-autism.org/> > <http://www.science-autism.org/ <http://www.science-autism.org/>>>> > > > > > > > > > > > > > > > Hi Sally > > > > > > > > > > > > > > This is great, do you think your brother would mind if we > put > > > > > this link > > > > > > > on the DVD people will get who attend the Mnacehster > > > Conference? > > > > > > > > > > > > > > Luv Caroline > > > > > > > xxx > > > > > > > > > > > > > > > > > > > > > > ---------------------------------------------------------- > > > ------ > > > > > > > > > > > > > > > No virus found in this incoming message. > > > > > Checked by AVG. > > > > > Version: 8.0.100 / Virus Database: 270.4.0/1506 - Release > Date: > > > 17/06/2008 16:30 > > > > > > > > > > > > > > > > > > ---------------------------------------------------------- > ------ > > > > > > > > > No virus found in this incoming message. > > > Checked by AVG. > > > Version: 8.0.100 / Virus Database: 270.4.0/1506 - Release Date: > 17/06/2008 16:30 > > > > > > > > ------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG. > Version: 8.0.100 / Virus Database: 270.4.0/1506 - Release Date: 17/06/2008 16:30 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Tee-hee, now that is a very english thing to do, wind-up you sibling!!! Nikki In Autism-Biomedical-Europe , Eva family wrote: > > That's alright Nikki, I wasn't being clear. I thought Owens' > assumption was very funny and in a sisterly way I forwarded it to him > and he was duly miffed > xx Sally > Quote Link to comment Share on other sites More sharing options...
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