Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 Hi , Noelle doesn't have PE, but another mom from the group has a son with a mild case of it... I believe his case was mild and no medical intervention was needed. I believe there is sometimes a connection between PE and scoli, but, in truth, I really don't know much about it. I remember Jen posting a pic of it on our website and what you are describing does sound like PE to me also... I would call your ortho about it and set up an appointment. Pronated feet are also common in kids with scoli... Noelle's left foot is slightly pronated and has a bit of an outstep. Hers is mild for now, so we are just keeping an eye on it, but I have been told she may need an orthotic in her shoe if it doesn't improve as her scoli improves. Hope this helps and please keep me posted. Hugs, Steph Subject: pectus excavatumTo: infantile_scoliosis Date: Saturday, January 10, 2009, 4:37 AM Dear friends,I have a son with mild and currently untreated scoliosis. He is almostfive and this past month the center of his chest has sunken to thepoint I could drop a piece of candy in the hollow in his chest and heis short on breath and has discomfort in his abdomen. We go to thedoctor tomorrow -- I suspect pectus excavatum -- another bonedeformation. Has anyone else had experience with this or know ofanother condition that might explain both issues in one child? He alsorequires orthotics for ankles that bend in to much. Thank you for your insights, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 Amada- My son Jack 18 months old has PE. That was what I noticed right before I discovered the "muscles" in his back bulging on one side. Obviously that turned out to be scoliosis. When I brought up the PE to the Pedi, she brushed it off, like it was no big deal, but later through my own research, I found that there is a connection between PE and scoliosis. It made me even more upset, that upon discussing the PE, I felt that a spinal check should have followed. We no longer go to that Pediatrician. Jack's PE is quite mild. Hope this helps. ~Krista Subject: pectus excavatumTo: infantile_scoliosis Date: Saturday, January 10, 2009, 4:37 AM Dear friends,I have a son with mild and currently untreated scoliosis. He is almostfive and this past month the center of his chest has sunken to thepoint I could drop a piece of candy in the hollow in his chest and heis short on breath and has discomfort in his abdomen. We go to thedoctor tomorrow -- I suspect pectus excavatum -- another bonedeformation. Has anyone else had experience with this or know ofanother condition that might explain both issues in one child? He alsorequires orthotics for ankles that bend in to much. Thank you for your insights, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 Hi, My son, has mild pectus excavactum. It doesn't cause him any harm. My dad has it and so does my cousin (on my mom's side), so guess coming form both sides I am surprised he is the only one of my kids with it. I am sure your ortho will be able to tell you if that is what is causing his breathing issues or discomfort. Please let us know what you find out and good luck! Jill Subject: pectus excavatumTo: infantile_scoliosis Date: Friday, January 9, 2009, 11:37 PM Dear friends,I have a son with mild and currently untreated scoliosis. He is almostfive and this past month the center of his chest has sunken to thepoint I could drop a piece of candy in the hollow in his chest and heis short on breath and has discomfort in his abdomen. We go to thedoctor tomorrow -- I suspect pectus excavatum -- another bonedeformation. Has anyone else had experience with this or know ofanother condition that might explain both issues in one child? He alsorequires orthotics for ankles that bend in to much. Thank you for your insights, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 Yes, I heard that there is a genetic component to PE. My grandfather on my mother's side had it and I think he also had scoliosis. ~krista From: brunnercommunicatio ns <brunnercommunicatio nsyahoo (DOT) com>Subject: [infantile_scoliosi s] pectus excavatumTo: infantile_scoliosis @yahoogroups. comDate: Friday, January 9, 2009, 11:37 PM Dear friends,I have a son with mild and currently untreated scoliosis. He is almostfive and this past month the center of his chest has sunken to thepoint I could drop a piece of candy in the hollow in his chest and heis short on breath and has discomfort in his abdomen. We go to thedoctor tomorrow -- I suspect pectus excavatum -- another bonedeformation. Has anyone else had experience with this or know ofanother condition that might explain both issues in one child? He alsorequires orthotics for ankles that bend in to much. Thank you for your insights, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 My son has PE. A lot of times it is a characteristic of a connective tissue disorder. In almost all cases it doesn't lead to any kind of health issues. Sometimes people with Marfan Syndrome will choose to have surgery for cosmetic reasons. My son's actually got a bit better after he had his heart surgery... Connie [infantile_scoliosi s] pectus excavatum To: infantile_scoliosis @yahoogroups. com Date: Friday, January 9, 2009, 11:37 PM Dear friends, I have a son with mild and currently untreated scoliosis. He is almost five and this past month the center of his chest has sunken to the point I could drop a piece of candy in the hollow in his chest and he is short on breath and has discomfort in his abdomen. We go to the doctor tomorrow -- I suspect pectus excavatum -- another bone deformation. Has anyone else had experience with this or know of another condition that might explain both issues in one child? He also requires orthotics for ankles that bend in to much. Thank you for your insights, A Good Credit Score is 700 or Above. See yours in just 2 easy steps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2009 Report Share Posted January 12, 2009 ,Thank goodness we have a doctor's appointment tomorrow -- I am anxious to nail down this issue -- Miles complains daily of not feeling like there is enough air and of back and stomach pains. And that is interesting regarding the foot and back problems -- I always want to know what the connections are!And if you do have to get orthotics the good new is they are one of the easier medical treatments!-- Re: pectus excavatum Posted by: " Kauffunger" slguerra710@... slguerra710 Sat Jan 10, 2009 3:32 pm (PST) Hi , Noelle doesn't have PE, but another mom from the group has a son with a mild case of it... I believe his case was mild and no medical intervention was needed. I believe there is sometimes a connection between PE and scoli, but, in truth, I really don't know much about it. I remember Jen posting a pic of it on our website and what you are describing does sound like PE to me also... I would call your ortho about it and set up an appointment. Pronated feet are also common in kids with scoli... Noelle's left foot is slightly pronated and has a bit of an outstep. Hers is mild for now, so we are just keeping an eye on it, but I have been told she may need an orthotic in her shoe if it doesn't improve as her scoli improves. Hope this helps and please keep me posted. Hugs, Steph Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2009 Report Share Posted January 12, 2009 I hear you on the doctor switching -- I am dismayed by the number of times my family's health concerns have been marginalized and neglected. I am so grateful for the internet and chat groups such as this one where I can get informed and focused on what will help our family!What connections did you find? So far I have found Erhelr Danlos and Rickets. I'm just wondering if there are other possibilities.Miles has shortness of breath and stomach pains -- does Jack seem to suffer from this? Miles is four and I have just now gotten the clue he is just "really bony" so I'm a little slow here!-- Re: pectus excavatum Posted by: "Krista Sloan" kmsloan18@... kmsloan18 Sat Jan 10, 2009 8:24 pm (PST) Amada- My son Jack 18 months old has PE. That was what I noticed right before I discovered the "muscles" in his back bulging on one side. Obviously that turned out to be scoliosis. When I brought up the PE to the Pedi, she brushed it off, like it was no big deal, but later through my own research, I found that there is a connection between PE and scoliosis. It made me even more upset, that upon discussing the PE, I felt that a spinal check should have followed. We no longer go to that Pediatrician. Jack's PE is quite mild. Hope this helps. ~Krista Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.