Re: Kate/ Maybe some answers

[Guest guest]

Kate,

I don't dare play with titles, will never have rheumy behind my name. lol.

I do know that well, when this bugger of a flare started on me in May that

most if not all of the blood work that was checked was OK. The MRI's,

X-rays----all no change. It did not last though unfortunately. Within a

month the sed rate was up, I had " other " parts of my body being attacked, and

the WBC's were through the roof along with the glucose. Liver enzymes were

up and well, I landed in the hospital and.... ya'll know about that. :-)

So, my thoughts on this, " strictly my own personal thoughts " are that over

the years it seems to depend on what specific part of the body or organ that

is being attacked as to wheather or not the labs are affected. It also seems

to " at least for me " depend on how hard the " flare " decides to hit me. I

asked my doc about my own theory regarding the ANA anyway. As mine was >1200

a week prior to the steroid IV pulse therapy and and two weeks after that

treatment it was >333. Doc replied that the ANA # is not a indicator of just

how bad the flare is at any given time. Something to that nature anyway.

For me though, it seems that it is regardless of what the books teach. Just

something I've noticed over the years and so I made him aware of it. lol.

Just goes to show one has to look at what the person is experiencing and not

the numbers of a lab test though. ;-) Rest as you need to now, and I

truly feel for you having come out of a remission. Maybe it is going to be

just one of those " little " flares, ( I hope). We never know when the big

one will hit again till it does, do we? I wish I could offer you more.

Try not to pay to much attention to the #'s as they don't tell you as much as

your body does. Listen to your body. I know as well as anyone that is hard

to do. Especially when one has been doing so well. We don't really want

this to be happening to us again. Unfortunately, it does not always listen

to or care what we think when it strikes. Man alive! If we could only

discover a way to make it go away and stay away, then we'd have gotten

somewhere. Keep us up on how your doing so we won't worry, OK.

Love, K

[Guest guest]

Sorry this is a late reply. My labs can all be normal and i feel crappy. I

think alot of the meds we take to control this darn dragon cover up some of

the blood work,I can be swollern,stiff and sore with the night sweats and and

still feel yukey. But my rheumy is the only the one who understands. My PCD

just looks at me and shales his head. I like my new PCD but he doesnt

understant stills and treats it more like RA.I would really like to go back

to my old internest who is great but hes not in my hmo and i would have to

pay out of my pocket. and hes very expensive.

Just my thoughts,

luv connie