OT- chit chat Malinda/mom with child.next Lorenzo's oil

[Guest guest]

I am also a mom with a child that has Lyme. If you want to email me at any time off the group please feel free to do so. When my daughter feels the least bit better she wants to be out of her room, even if it only means talking to me or cooking. When she used to have better days, she loved to go into town. When I try to get her to go out she says why should she when she feels so terrible and as soon as she feels the least bit better she wants to do things. My daughter was coiling for Babesia and actually felt good enough for the first time in eons to talk to her cousin. She had so much fun, but her coil machine is not working and she has greatly regressed. Good luck to you and I was told by many people on this group the moms are as welcome as the lyme people themselves. It makes sense to me to welcome because we are here for the same purpose which is to learn how to heal Lyme, be it for us or for a loved one. Who knows, we may contribute as well. With so many of us looking for the holy grail so to speak it could be anyone of us that makes a break through.Remember the movie Lorenzo's oil! Wouldn't that be grand if something came along like that for all the Lymies?Hi Malinda,

Thanks for your kind words about the group... You know this group is not just for Lymies, but also for those who are here because of a loved one, so you are very much a member just like everyone else... :-)

What your son is feeling by not wanting to be with others is really very common... When we feel so lousy, it can be tough to socialize with healthy folks loaded with energy... BUT, the very best thing for your son is to get him into social situations as often as possible and when he really isn't feeling terrible... Really, we all do need other people and isolation is not healthy for any Lymie... I make it a point to meet new people when possible and to be with others whenever I can. Many times I have told other Lymies the importance of getting back to work just to be in daily social situations... The more we are with others, the more "normal" life feels for us...

I don't know how young your son is, but now younger folks have stronger immune systems and usually smaller bacterial loads, so hopefully one day he will walk away from this disease and have a normal life... The fact you are a Mom who is here on his behalf makes him one fortunate kid.... :-) The more we learn from each other about Lyme, the greater the chances we will improve, get healthier and hopefully one day get well...

Stay strong,

Jim