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Re: HOLA

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HELLO ROBERT. YES I AM SPANISH, ORIGINALLY FROM PUERTO RICO. I WOULD LIKE TO ASK

YOU AND THE REST OF THE GROUP SOME SUGGESTIONS ABOUT HOW TO TALK TO MY 14 YRS.

OLD MDS SON ABOUT SEX AND SEXUAL DEVELOPMENT. I DON'T WANT HIM TO BE TOO NAIVE

NOR TOO CURIOUS.

GABY IS A SMART GUY.HE WILL ATTEND HIGH SCHOOL NEXT YEAR. I WILL SEND YOU A

PICTURE OF US. I HAVE ANOTHER DAUGHTER, SHE IS FOUR.

THANK YOU, ANA

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Dear Ana,

I am afraid that I do not have any great suggestions yet about the sex

talk with your son, but I am very certain there are folks here who can give

you their experience, and will. Our oldest son is just 8 years old, so I am

hoping not to get into that for a year or so yet. We have talked to him of

course about things he needs to know to help him say no to anything that

does not feel right to him, and that he should never be asked to take his

clothes off by anyone inappropriately etc. (Just the basic hope of trying to

give him some tools to fend off abusive older children and adults). I think

you are quite right that you are at the time and age to have this discussion

with Gaby though. Once they hit the high school, there is so much for them

to learn that we parents would prefer they not have to know about just yet,

but then the curiosity and naïve nature leads often to the very things we

would like to avoid. So, good luck with it, and I hope you get some great

advice. You could consider shopping for a good book to help you discuss

this, and discuss what is necessary without an overwhelming amount of

information. I know there are some good ones out there.

Barb Martz

Mom to Jonas (MDS) 2 & 8

wife of 17 years to Bob

Re: HOLA

> HELLO ROBERT. YES I AM SPANISH, ORIGINALLY FROM PUERTO RICO. I WOULD LIKE

TO ASK

> YOU AND THE REST OF THE GROUP SOME SUGGESTIONS ABOUT HOW TO TALK TO MY 14

YRS.

> OLD MDS SON ABOUT SEX AND SEXUAL DEVELOPMENT. I DON'T WANT HIM TO BE TOO

NAIVE

> NOR TOO CURIOUS.

>

> GABY IS A SMART GUY.HE WILL ATTEND HIGH SCHOOL NEXT YEAR. I WILL SEND YOU

A

> PICTURE OF US. I HAVE ANOTHER DAUGHTER, SHE IS FOUR.

>

> THANK YOU, ANA

>

>

> Won't you please consider adding your personal story on the MDS website

today? http://www.mosaicdownsyndrome.com

> *************************************************

> Become a member of IMDSA at http://www.imdsa.com

> *************************************************

> MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus

> *************************************************

>

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Dear Ana,

Please forgive me for referring to Gaby as HER! I have a niece called

Gaby short for la, and that was on my mind and I missed that you said

that Gaby is your son. I am pulling my foot out of my mouth as I type this!

Barb Martz

Mom to Jonas (MDS) 2 & 7

Re: HOLA

> HELLO ROBERT. YES I AM SPANISH, ORIGINALLY FROM PUERTO RICO. I WOULD LIKE

TO ASK

> YOU AND THE REST OF THE GROUP SOME SUGGESTIONS ABOUT HOW TO TALK TO MY 14

YRS.

> OLD MDS SON ABOUT SEX AND SEXUAL DEVELOPMENT. I DON'T WANT HIM TO BE TOO

NAIVE

> NOR TOO CURIOUS.

>

> GABY IS A SMART GUY.HE WILL ATTEND HIGH SCHOOL NEXT YEAR. I WILL SEND YOU

A

> PICTURE OF US. I HAVE ANOTHER DAUGHTER, SHE IS FOUR.

>

> THANK YOU, ANA

>

>

> Won't you please consider adding your personal story on the MDS website

today? http://www.mosaicdownsyndrome.com

> *************************************************

> Become a member of IMDSA at http://www.imdsa.com

> *************************************************

> MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus

> *************************************************

>

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Hello Ana & Gaby,

We are Bob, Pam and , MDS, 23 yrs...and yes, we live in Florida

but about 7 hours from Orlando. We live just North of Pensacola.

Anyway, welcome to the group. Bob McKinney

> HELLO EVERYBODY. MY NAME IS ANA AGOSTINI FROM ORLANDO, FL. MY SON

GABY IS A 14

> YRS OLD MDS. I AM GLAD TAHT I FOUND A SUPPORT GROUP. ANYBODY FROM

FLORIDA?

> NICE TO MEET YOU, ANA.

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Ana and Gab

Welcome to our family. We are here for each other so please make

yourself at home.

When you have time please check this site that has all our children's

picture. I love going back to it and seeing their beautiful faces.

www.photoisland.com

The log in ID is vktphipps

Password is mds

Once you enter in on the left you will see the two albums. One for

individual pictures and one for families.

If you would like to add a picture or anyone else please

email me at vktphipps@... and please put MDS on the subject line.

Once again Welcome!

a

Mom to Brannon almost 3 yrs old and le 1 yrs old.

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Hello Ana and Gaby,

Welcome to our group !! I was born in Titusville, Florida, not to far

from Orlando, and alot of my family still live in Mims, Daytona, and

Orlando. My Aunt and Uncle worked at the Kennedy Space Center and

Mc- before they retired. I keep wishing I could move back to

Florida someday. I love it there !! Glad you found our group!

My name is Sherry and my 2 year old daughter , has MDS. If there

is ever anyway that I can be of assistance to your family, please let me

know and I will help as best I can. Take care and again, welcome.

Sincerely,

Sherry

(Mom to ,2 yrs.old w/MDS)

IMDSA National Publicity Chairperson

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