Inosine & increasing ATP - Dr. JM & everyone/sensitivity to light

[Guest guest]

Dr. McCandless,

Is this something that might help with visual photosensitivity? This is one

of my daughter's last major outstanding disturbances. It was not evident as

an infant or toddler but has been getting progressively worse as the years

go by. I was looking at some pictures of her with her brother from last

year taken on a cool, overcast day and she's squinting horribly. She can't

go outside and play like she used to because it's just too painful for her

eyes...even when we wait until after 5pm to walk the dog she still has to

wear dark glasses and a hat in order to tolerate that level of light.

Curtains have to be drawn in the morning while she's working at the dining

room table because of the direction of the sun yet indoor lighting does not

seem to bother her. The developmental optometrist says she has normal

pupillary response and had hoped that as some of her other visual

corrections were made that this might work itself out. Unfortunately it

hasn't even though she's progressing very well through all her VT. One of

her doctors had her try an oral cell solution as well as some homeopathics

but neither helped. He also wanted her to try a specific form of silver

pellets, but the person who produced it died and the family didn't want to

continue production so that was the end of that.

Do you have any ideas if there's any supplement that might be helpful for

this? Any other thought or ideas?

Thanks so much,

Susi

Re: Inosine & increasing ATP - Dr. JM & everyone

>

> Many adults with eye problems use inosine which infused actually can help

> optic nerves regenerate. Oral studies have never shown this benefit, and

it

> may be that you would have to take 5-6 grams at a time or more, and it's

> hard to get this much stuff down our kids. Ecological formulas has

> liposine-enhanced inosine 500mg caps that Jack and I both take for eye

> health, but it's one of those things that is very difficult to tell

whether

> it's beneficial or not as it is preventive medicine. So, it is hard to

> know, I'm sure it wouldn't hurt, and when you start prioritizing it just

> hasn't made the list for my ASD kids yet. However, this

acetyl-l-carnitine

> arginate mentioned on the list this morning sounds quite promising, and I

> have ordered some to try on some of my kids - will keep you posted. Dr.

JM

[Guest guest]

Susi: Most photosensitivity is caused by certain medications, but there are

those who are actually allergic to sunlight. Those with autoimmune

illnesses seem to be more prone, so strategies that heighten the immune

system may help. Other than avoiding those meds that may cause it and

protective measures, I personally do not know of any way to treat

photosensitivity, sorry! Dr. JM

Re: Inosine & increasing ATP - Dr. JM & everyone

>

>

> >

> > Many adults with eye problems use inosine which infused actually can

help

> > optic nerves regenerate. Oral studies have never shown this benefit,

and

> it

> > may be that you would have to take 5-6 grams at a time or more, and it's

> > hard to get this much stuff down our kids. Ecological formulas has

> > liposine-enhanced inosine 500mg caps that Jack and I both take for eye

> > health, but it's one of those things that is very difficult to tell

> whether

> > it's beneficial or not as it is preventive medicine. So, it is hard to

> > know, I'm sure it wouldn't hurt, and when you start prioritizing it just

> > hasn't made the list for my ASD kids yet. However, this

> acetyl-l-carnitine

> > arginate mentioned on the list this morning sounds quite promising, and

I

> > have ordered some to try on some of my kids - will keep you posted. Dr.

> JM

>

>

>

>

>

>

> Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com/default.aspx>

>

>

[Guest guest]

> That's a relief to hear about lupus...whew! Hailey is one of the MMR

kids.

> She was given her first one at the age of 6 months when the doctor thought

> her brother had contracted the measles. He told me if I didn't allow her

to

> be vaccinated I was setting her up for encephalitis or death. He scared

me

> right into it. On the same day she also received the DPT, HepB and polio

> vaccines which I'm assuming he decided to do to save us another trip to

his

> office :-( I didn't realize he'd given them until I requested her records

2

> years ago. What a shock. She had a violent reaction to the vaccines

which

> the pediatrician responded to by saying " babies do all sorts of funny

> things, give her some tylenol if it makes YOU feel better " Unfortunately

> she had the second MMR at 13 months and a third one at 4 years. With each

> one she got worse.

>

> Hailey had the panel from Immunosciences done last February and she tested

> positive to MBP antibodies. She also had elevated serum rubeola and

> positive for the IgA salivary rubeola. Hailey is on your waiting list for

> an evaluation and I'm pretty sure I included the results with all the

> paperwork, so I'll be interested to hear what you think once you evaluate

> her. It's been over 6 months since she did the Vit A megadose so I

should

> try that again. She did take CLO for a long time but it upset her

stomach.

> I just read tho this past week that some of the kids are having a reaction

> to the flavorings in the CLO so maybe we should just try an unflavored

one.

> Is there an unflavored one that you prefer? I tried to convince a couple

of

> her doctors to try a trial of beathanechol but none of them were willing.

> That's still an interest to me if I could find a doctor confortable and

> knowledgeable to supervise it.

>

> Hailey just started on the LipoGSH in mid November. It is doing GREAT

> things for her. She started at 1 tsp twice a day for 3 weeks and now I've

> backed down to once a day. Her symptoms of apraxia are improved, speech

and

> language are booming and her mood and stamina are better than they've ever

> been.

>

> Thanks so much!

>

> Susi

>

> Re: Inosine & increasing ATP - Dr. JM &

> > > everyone

> > > > >

> > > > >

> > > > > >

> > > > > > Many adults with eye problems use inosine which infused actually

> can

> > > > help

> > > > > > optic nerves regenerate. Oral studies have never shown this

> > benefit,

> > > > and

> > > > > it

> > > > > > may be that you would have to take 5-6 grams at a time or more,

> and

> > > it's

> > > > > > hard to get this much stuff down our kids. Ecological formulas

> has

> > > > > > liposine-enhanced inosine 500mg caps that Jack and I both take

for

> > eye

> > > > > > health, but it's one of those things that is very difficult to

> tell

> > > > > whether

> > > > > > it's beneficial or not as it is preventive medicine. So, it is

> hard

> > > to

> > > > > > know, I'm sure it wouldn't hurt, and when you start prioritizing

> it

> > > just

> > > > > > hasn't made the list for my ASD kids yet. However, this

> > > > > acetyl-l-carnitine

> > > > > > arginate mentioned on the list this morning sounds quite

> promising,

> > > and

> > > > I

> > > > > > have ordered some to try on some of my kids - will keep you

> posted.

> > > Dr.

> > > > > JM

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > Many frequently asked questions and answers can be found at

> > > > <http://forums.autism-rxguidebook.com/default.aspx>

> > > > >

> > > > >