Re: Slow-Motion Miracle: One Boy's Journey Out of Autism'...

[Guest guest]

We tried using solely ABA for the first 6 months after Brett's diagnosis. It

was miraculous at the time; when we started, he didn't understand the word

" mommy " but after 6 months, at his 3rd birthday, he could say " Mommy " when he

saw me or my picture. However, he was still SO far behind his peers, we knew we

had to do something else. We started gfcf as our first foray into biomedical

interventions.

Fast forward almost 4 years later, and Brett still has moderate to severe

autism. He is making painfully slow progress, but at least I feel like we are

doing EVERYTHING we can to help him: the diet, chelation, nutritional

supplements, Dr. McC's quintet, AND an ABA-based school, speech & OT.

I think what really annoys Theresa (and me!) is that ONLY behavioral

treatments seem to get any press. There are probably at least as many kids who

have

recovered through biomedical interventions as behavioral, and probably many

more through a combination of treatments. It would be nice to see the NYT write

some balanced articles about recovery from autism, but I'm glad at least they

are printing something and not ignoring the epidemic, as most media are doing!

Hoping, praying and working for full recovery in 2005~

Sue

[Guest guest]

Very well said Sue. That is what we would all like to see. Some balanced

reporting.

Re: Re: Slow-Motion Miracle: One Boy's Journey Out of

Autism'...

We tried using solely ABA for the first 6 months after Brett's diagnosis. It

was miraculous at the time; when we started, he didn't understand the word

" mommy " but after 6 months, at his 3rd birthday, he could say " Mommy " when he

saw me or my picture. However, he was still SO far behind his peers, we knew

we

had to do something else. We started gfcf as our first foray into biomedical

interventions.

Fast forward almost 4 years later, and Brett still has moderate to severe

autism. He is making painfully slow progress, but at least I feel like we are

doing EVERYTHING we can to help him: the diet, chelation, nutritional

supplements, Dr. McC's quintet, AND an ABA-based school, speech & OT.

I think what really annoys Theresa (and me!) is that ONLY behavioral

treatments seem to get any press. There are probably at least as many kids

who have

recovered through biomedical interventions as behavioral, and probably many

more through a combination of treatments. It would be nice to see the NYT

write

some balanced articles about recovery from autism, but I'm glad at least they

are printing something and not ignoring the epidemic, as most media are doing!

Hoping, praying and working for full recovery in 2005~

Sue

[Guest guest]

In a message dated 12/30/2004 11:03:05 AM Eastern Standard Time,

ACTA@... writes:

but I'm actively looking for another doctor to oversee the

TD-DMPS protocol who will be willing to do the necessary testing, but

not as much as Buttar requires.

We started seeing Dr. Usman, just outside of Chicago, and were very

pleasantly surprised by her low fees. The total cost of the initial

appointment,

including the purchase of a couple of new supplements and a baseline hair test,

was

about $500. She requires much less testing than Dr. Buttar: a periodic

blood test for mineral depletion (which can be done at a local lab), a urine

test

every 2 months (to determine what metals are being pulled), and a stool test

every 6 months to check for metals.

Even if you have to travel and get a hotel room for a night, the total cost

for treatment with Dr. Usman should be MUCH less than with Dr. Buttar- and her

waiting list is shorter!

HTH-

Sue

[Guest guest]

Thanks Sue - I'll keep her in mind. I'm also thinking of trying Dr.

Megson in Richmond - it's a more feasible drive for us. I was hoping

that a doctor in Asheville might have worked out, but a parent on

another list recently had a ridiculously expensive first visit with

him - although they did not opt for everything he recommended, the

initial total was at least as much if not more as Buttar. I'm going

to propose to Buttar's office that they do what McCandless does -

order the tests, let the labs send us the kits and we'll pay them

directly. I know that would be less expensive - but I doubt they'll

go for that.

> In a message dated 12/30/2004 11:03:05 AM Eastern Standard Time,

> ACTA@a... writes:

> but I'm actively looking for another doctor to oversee the

> TD-DMPS protocol who will be willing to do the necessary testing,

but

> not as much as Buttar requires.

> We started seeing Dr. Usman, just outside of Chicago, and were very

> pleasantly surprised by her low fees. The total cost of the

initial appointment,

> including the purchase of a couple of new supplements and a

baseline hair test, was

> about $500. She requires much less testing than Dr. Buttar: a

periodic

> blood test for mineral depletion (which can be done at a local

lab), a urine test

> every 2 months (to determine what metals are being pulled), and a

stool test

> every 6 months to check for metals.

>

> Even if you have to travel and get a hotel room for a night, the

total cost

> for treatment with Dr. Usman should be MUCH less than with Dr.

Buttar- and her

> waiting list is shorter!

>

> HTH-

> Sue

>

>

>