Anybody have angiolipomas with their lipodystrophy

[Guest guest]

Hi everyone,

I am just curious about this after reading a bit about a report of

an HIV lipodystrophy patient developing angiolipomatosis.

Angiolipomas which I have in a rather rare combination with

Madelungs disease (aka multiple symmetrical lipomatosis) has not

been well evaluated.

I recently learned that the condition MSL is much more common in

Mediterranian areas than in North America. It seems that the

incidence there is 1:25000 which is relatively common.

A doctor I recently met with at Stanford (oddly enough a sleep

disorders specialist) knew all about these conditions and said that

angiolipomas (harder than regular lipomas because they contain blood

vessels, other tissue and genetic information) often pump out

various hormones.

If anyone else has HIV Lipodystrophy (essentially the same condition

I've got) with angiolipomas I'd like to compare notes on this.

I'm also working on trying to get into studies where they're

studying you all with HIV Lipodystrophy to see if there are other

correlating factors. It seems that MSL patients have an extra fat

vacuole in many cells.

I'm also experiencing the same kind of fat wasting as some of you,

yet I don't seem to have HIV and so far as I know I've never taken a

protease inhibitor.

Have any of you needed breast reduction? In typical MSL both male

and female patients sometimes need this and it is second on my list

of upcoming surgeries. If anybody did have I'm curious about how

results.

Thanks,