Re: some symptoms better, others worse, burning nerve pain

[Guest guest]

Paresthesia is a word I've read to describe this. In my case, the pain

originates from very specific trigger points, some in my mid back, one in my

lower back, one in my lower left ab. I can press on them with my thumb and the

pain radiates outward, sometimes into my hip, sometimes down my leg. Trigger

point self-therapy can give me relief for a bit and a heating pad sometimes

helps although it's definitely not muscle pain. So far, the pain is reversible

meaning that I wake in the morning and it's gone but sometime over the course of

the day, it returns. I don't know if this is a buildup of toxins or lactic acid

due to poor circulation/lack of oxygen in these areas. I wonder if it's caused

by bacterial colonies in the muscle or GI tissue.

Anyway, I was looking for thoughts on whether anyone has had similar and if B12

shots helped (read this in a post somewhere) and now more recently whether

ammonia toxicity might be causing this.

Thanks,

deb

> > >

> > > > Hi,

> > > >

> > > > Like everyone on these groups, I am combining a number of

> > > > supplements and therapies. I have been encouraged that my brain fog

> > > > and fatigue appear to have lessened and I've seen an improvement in

> > > > my vision problems. On the other hand, I have experienced an

> > > > increase in pain from burning and trigger points in my back. In the

> > > > past day or two, I've also noticed some vibrating in my left arm.

> > > > It perplexes me that some symptoms could get better and others

> > > > worse (or at least more active).

> > > >

> > > > I am using a machine and CS among other things and only now just

> > > > hitting therapeutic levels after a long ramp-up. So I don't know if

> > > > the machine is flushing things out which is causing more noticeable

> > > > neurological symptoms.

> > > >

> > > > Looking for any words of wisdom/experience out there.

> > > >

> > > > Thanks,

> > > >

> > > > deb

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

[Guest guest]

Hi Tammyyes others experience this exact thing.For immediate relief I suggest hypericum spray by highlands or st johns wort infused oil.You can also get hypericum in homeopathic pill form, but immediaterelief for me comes in the sprayThyroid may be part of the issue and yes B vitamins help with this issue as well.It is known that Lyme tends to take away our B vitamins and you will feel better to supplement them.Make sure you get yeast free vitamin B if you go this routeRe: some symptoms better, others worse, burning nerve pain Posted by: "Tammy Hotmail" mstammyt@... mstammyt62 Date: Wed Jan 13, 2010 8:45 pm ((PST))Hi,Something just

caught my eye.. "Burning Nerve Pain"My hubby and I both get a feeling of burning skin all over our body's and at the sametime feel like we have the chills and it gets so icky that it makes us nauseous.The doctor says its Lyme, but I haven't seen anyone else say much about it before??Does anyone else experience this??Thanks,Tammy <>< "Im not trying to counsel any of you to do anything really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely." -R. Buckminster Fuller

[Guest guest]

Hi ,I'm so sorry you're suffering. It's one thing to have symptoms, but to not know exactly what's causing them is the worst. With Lyme, often the 'cure' is as bad as the disease.I'm assuming you're doing lots of good detox, but I wonder if epsom salt baths have helped. I've had fiery nerves, almost like hives, that have been helped this way, and applying coconut oil afterward seemed to help. I'm not sure what was happening with either, but I do know that coconut oil has lots of 'anti' properties that could help quell any pathogen issues near the skin surface.So much of relief comes from hit-or-miss, trial and error. Keep trying. You'll get it right.Be well,Léna I don't know if this is the same thing, but I have horrible paresthesia (sp?). It feel like all my nerve endings are firing off. Sort of a pins and needles sensation, but different. Tingling, burning, driving me crazy. The worst is my face, but it is all over. 36 months ago I started on Armour thyroid and 30mg of cortisol (before I knew I had Lyme). My pain decreased by 80%, the tingling completely went away, but brain fog and energy were horrible - but a bit better. This was within two weeks. 1 year ago, I switched from Armour to all T3 and felt a bit better. Then last fall the paresthesia returned. I've not been able to figure it. It does coincide with my timing of when I began coiling for Lyme. I was trying to figure out if it's being caused by a severe die off and lots of neurotoxins released or if it's unrelated. I'm not sure yet. (herx, low T4, worse damage?) I'm not coiling right now, but doing an intense MMS1/2 protocol to try and kill the co-infections. I will go back to coiling for Lyme on the 25th.Some days, right now, are severe tingling, some not so bad?????????? On Wed, Jan 13, 2010 at 8:44 PM, Tammy Hotmail <mstammythotmail> wrote: Hi, Something just caught my eye.. "Burning Nerve Pain" My hubby and I both get a feeling of burning skin all over our body's and at the same time feel like we have the chills and it gets so icky that it makes us nauseous. The doctor says its Lyme, but I haven't seen anyone else say much about it before?? Does anyone else experience this?? Thanks, Tammy <>< From: Deb57 Sent: Wednesday, January 13, 2010 9:01 PM To: Lyme_and_Rife Subject: Re: some symptoms better, others worse Thanks Lena,After reading some of the posts today, I wonder if perhaps some of these symptoms are due to ammonia toxicity.I also read somewhere that B12 can help the burning/nerve pain. Does anyone know about this?Thanks,deb> > > Hi,> >> > Like everyone on these groups, I am combining a number of > > supplements and therapies. I have been encouraged that my brain fog > > and fatigue appear to have lessened and I've seen an improvement in > > my vision problems. On the other hand, I have experienced an > > increase in pain from burning and trigger points in my back. In the > > past day or two, I've also noticed some vibrating in my left arm. > > It perplexes me that some symptoms could get better and others > > worse (or at least more active).> >> > I am using a machine and CS among other things and only now just > > hitting therapeutic levels after a long ramp-up. So I don't know if > > the machine is flushing things out which is causing more noticeable > > neurological symptoms.> >> > Looking for any words of wisdom/experience out there.> >> > Thanks,> >> > deb> >> >> >>

[Guest guest]

Hi , I'm sorry to hear how you're suffering.  I don't have that symptoms but I can imagine it makes you want to climb out of your skin. Yeah, when it originally started I thought I'd loose my mind.  I was pretty desperate. Now I'm much more patient and just tolerate it and track it.

 

I wonder if the coil machine is causing some cysts to hatch  in your nervous system, so that while you improve you have old symptoms come active as the bugs make their last stand.  Just a though...I really have no idea, but I do notice the return of some of my symptoms like bad nerve related back pain when I take cyst busters, etc...Thanks for that information.  I've never taken abx for spiros or cysts so I don't have that experience.  Wouldn't that be great!  

 

Thane

To: Lyme_and_Rife

Sent: Wed, January 13, 2010 11:44:06 PMSubject: Re: Re: some symptoms better, others worse, burning nerve pain

 

I don't know if this is the same thing, but I have horrible paresthesia (sp?).  It feel like all my nerve endings are firing off.  Sort of a pins and needles sensation, but different. Tingling, burning, driving me crazy. The worst is my face, but it is all over.

36 months ago I started on Armour thyroid and 30mg of cortisol (before I knew I had Lyme).  My pain decreased by 80%, the tingling completely went away, but brain fog and energy were horrible - but a bit better. This was within two weeks.

1 year ago, I switched from Armour to all T3 and felt a bit better.  Then last fall the paresthesia returned.  I've not been able to figure it.  It does coincide with my timing of when I began coiling for Lyme.  I was trying to figure out if it's being caused by a severe die off and lots of neurotoxins released or if it's unrelated.  I'm not sure yet. (herx, low T4, worse damage?)

I'm not

coiling right now, but doing an intense MMS1/2 protocol to try and kill the co-infections.  I will go back to coiling for Lyme on the 25th.Some days, right now, are severe tingling, some not so bad????????? ?

 

On Wed, Jan 13, 2010 at 8:44 PM, Tammy Hotmail <mstammythotmail (DOT) com> wrote:

 

Hi,

Something just caught my eye.. " Burning Nerve Pain "

My hubby and I both get a feeling of burning skin all over our body's and at the same

time feel like we have the chills and it gets so icky that it makes us nauseous.

The doctor says its Lyme, but I haven't seen anyone else say much about it before??

Does anyone else experience this??

Thanks,

Tammy <><

From: Deb57

Sent: Wednesday, January 13, 2010 9:01 PM

To: Lyme_and_Rife@ yahoogroups. com

Subject: Re: some symptoms better, others worse

 

Thanks Lena,After reading some of the posts today, I wonder if perhaps some of these symptoms are due to ammonia toxicity.I also read somewhere that B12 can help the burning/nerve pain. Does anyone know about this?

Thanks,deb> > > Hi,> >> > Like everyone on these groups, I am combining a number of > >

supplements and therapies. I have been encouraged that my brain fog > > and fatigue appear to have lessened and I've seen an improvement in > > my vision problems. On the other hand, I have experienced an

> > increase in pain from burning and trigger points in my back. In the > > past day or two, I've also noticed some vibrating in my left arm. > > It perplexes me that some symptoms could get better and others

> > worse (or at least more active).> >> > I am using a machine and CS among other things and only now just > > hitting therapeutic levels after a long ramp-up. So I don't know if

> > the machine is flushing things out which is causing more noticeable > > neurological symptoms.> >> > Looking for any words of wisdom/experience out there.> >> > Thanks,

> >> > deb> >>

>> >>

[Guest guest]

I haven't had it for a long time, but it was one of the most severe symptoms I had - the feeling of burning on the skin without the heat. At the time I thought it was a reaction to Doxy since I don't handle ABX well. On the other hand it could have been a herx. Dont' know now.

OIive

 

Hi,

Something just caught my eye.. " Burning Nerve Pain "

My hubby and I both get a feeling of burning skin all over our body's and at the same

time feel like we have the chills and it gets so icky that it makes us nauseous.

The doctor says its Lyme, but I haven't seen anyone else say much about it before??

Does anyone else experience this??

Thanks,

Tammy <><

From: Deb57

Sent: Wednesday, January 13, 2010 9:01 PM

To: Lyme_and_Rife

Subject: Re: some symptoms better, others worse

 

Thanks Lena,After reading some of the posts today, I wonder if perhaps some of these symptoms are due to ammonia toxicity.I also read somewhere that B12 can help the burning/nerve pain. Does anyone know about this?Thanks,deb> > > Hi,> >> > Like everyone on these groups, I am combining a number of > > supplements and therapies. I have been encouraged that my brain fog > > and fatigue appear to have lessened and I've seen an improvement in > > my vision problems. On the other hand, I have experienced an > > increase in pain from burning and trigger points in my back. In the > > past day or two, I've also noticed some vibrating in my left arm. > > It perplexes me that some symptoms could get better and others > > worse (or at least more active).> >> > I am using a machine and CS among other things and only now just > > hitting therapeutic levels after a long ramp-up. So I don't know if > > the machine is flushing things out which is causing more noticeable > > neurological symptoms.> >> > Looking for any words of wisdom/experience out there.> >> > Thanks,> >> > deb> >> >> >>

-- OliveYou can lead a horse to water, but you can't make it drink. (unknown)Your can lead a person to a fact, but you can't make them think.  - (a friend)