Re: Topic of the week: using alternative meds,homeopathy, and essential...

[Guest guest]

I think this is a great topic!

I'm studying to be a nurse... learning so much about how the body works.

's also waiting to be tested psychologically, and neurologically because

he may have other learning disorders. So that will teach me a lot more

information in the coming months.

has a bowel disease though... I've been doing some new things with him

in regards to it, but it's not directly MDS related, so maybe its too off

topic??

Looking forward to hearing what others are doing/thinking!

Angel

Mom to 11 MDS/Hirschsprung's Disease

Lance 15, Tyler 12, 9

Jaeda 7 and Shayne 1

[Guest guest]

I don't really think that the bowel disease is off topic. Because many children

with MDS have the bowel disease problems that faces. If you want this to

be a topic, email me directly and we will talk about what you want to know.

Kristy

LDSAngel77@... wrote:

I think this is a great topic!

I'm studying to be a nurse... learning so much about how the body works.

's also waiting to be tested psychologically, and neurologically because

he may have other learning disorders. So that will teach me a lot more

information in the coming months.

has a bowel disease though... I've been doing some new things with him

in regards to it, but it's not directly MDS related, so maybe its too off

topic??

Looking forward to hearing what others are doing/thinking!

Angel

Mom to 11 MDS/Hirschsprung's Disease

Lance 15, Tyler 12, 9

Jaeda 7 and Shayne 1

[Guest guest]

Just saw this post from earlier this month. One of my girls (with " regular "

DS) has a bowel problem, and I myself have IBS. I wouldn't mind discussing this

on or offlist with anyone. I use nutritional supplements and dietary

intervention and it is working beautifully! I'd be happy to share, if anyone

wants.

Marilyn

[Guest guest]

--I don't mind sharing. What I do is not for everyone, of course, but

it is definitely helping me, and I am doing a modified version with my

daughter. I will probably do the full version with her soon, since she really

needs

it! For starters, I eliminated ALL forms of dairy and wheat (yes, really!). BIG

difference. I didn't eliminate all gluten products yet, although I will if I

have to. They say that with many kids with disabilities, eliminating these

items has been KEY to their improved health, behavior, and mental functioning. I

seriously limit sodas, alcohol, and caffeine--almost never have them--and this

has helped my stomach tremendously! I also do not eat foods with artificial

colors, flavors, preservatives, or additives in them. It sounds hard, but it

really hasn't been for me. There are plenty of easy foods to make out there

without all the chemicals and junk. I severely limit sugar (haven't eliminated

it--yet). I eat almost no meat, eggs, or fish. With all the diseases out there

these days, it's not safe anyway! I try to stay with organic, free range meats

and eggs if I do eat them. I bought a juicer, and I use it every day to make

fresh veggie and fruit drinks--this has been a HUGE part of my recovery! As for

supplements, I use several every day, for more energy and mental clarity, for

menopausal symptoms, and for IBS. For the sake of this discussion, I will give

only the IBS routine. I take four Slippery Elm capsules with some freshly made

juice every morning. The juice I make usually has cucumbers, celery, organic

apples (this is a key item), fresh ginger root (this is a key item), and

grapes in it, in whatever combination I feel like or have on hand. The contents

do

vary. I am trying to drink a lot more water--filtered from my kitchen sink. I

have managed, with just these few steps, to greatly improve my symptoms,

nearly eliminate my medications for IBS, and to lose almost 10 lbs. this month

without trying at all! I eat when hungry. I think first--am I really hungry,

what

should I have, is it good for me? I have not seriously limited my fat intake

or done any calorie counting. The fresh juices, all natural foods, and

Slippery Elm capsules have been my main things I've done to improve my health,

and it

is working! Off the top of my head right now, that's about it! Any more

questions, just ask. I've done a lot of research on nutrition as it relates to

Down

Syndrome and other developmental disorders, IBS, obesity, and depression,

among other conditions, and I'd be happy to help. One great book I recommend

HIGHLY is Dr. Balch's " Prescription for Nutritional Healing " , which gives TONS

of

information on using vitamins, herbs, diet, and natural remedies for healing

all sorts of medical problems. HTH! Marilyn

[Guest guest]

Hi Marilyn,

Can you tell us what you are using?

, mom to Gwendolyn, 12, (mds)

> From: sahmomof8@...

> Reply-To: MosaicDS

> Date: Mon, 29 Mar 2004 10:32:32 EST

> To: MosaicDS

> Subject: Re: Topic of the week: using alternative meds,homeopathy, and

> essential...

>

> Just saw this post from earlier this month. One of my girls (with " regular "

> DS) has a bowel problem, and I myself have IBS. I wouldn't mind discussing

> this

> on or offlist with anyone. I use nutritional supplements and dietary

> intervention and it is working beautifully! I'd be happy to share, if anyone

> wants.

> Marilyn

>

>

>