Re: PSSD plus Parkinson's symptoms - anyone?

[Guest guest]

Your neurologist will differentiate between the more severe parkinson's and the rather benign essential tremor (familial tremor) To: SSRIsex Sent: Friday, April 13, 2012 7:00

PM Subject: Re: PSSD plus Parkinson's symptoms - anyone?

Your doctor gave you a a tricyclic antidepressant, Amitriptyline, to treat a bladder condition? (!)

Do you think that condition may been a result of the genital anesthesia you developed after discontinuing Zoloft? I have problems with MY bladder too. It gets too full because I have genital anesthesia, and I can't tell I need to urinate until I feel pressure in my abdomen.

Kay

>

> Hello all,

>

> I have had PSSD for 6 years since taking Zoloft for a few months in 2006. I have 'full blown' PSSD with genital numbness, ejaculatory anhedonia and no repsonse to visual stimuli.

>

> I have recently got a noticeable tremor in my right hand and right foot, stiffness in my right hand and problems with handwriting. I saw a neurologist today and he is concerned that I may have drug-induced parkinsonism or Parkinson's disease itself. I told the neurologist about PSSD and gave him some of the published PSSD articles (he did not know about it, but is promising to keep an open mind).

>

> I am going to have a DAT scan which measures dopamine levels in the brain. Obviously I am aware that one of the theories about the cause of PSSD is that the SSRI down-regulates dopamine in some way and so am very worried that the SSRI has now also caused Parkinson's, although these symptoms have appeared many years later (whereas my PSSD was immediate upon stopping the SSRI). I also took amityrptyline for a few months last year for a bladder condition.

>

> There may be a more benign cause for these parkinson's-like symptoms of course, but I am naturally suspicious. Has anyone else developed tremors or muscle stiffness since stopping the SSRI? If so, did the Parkinson's symptoms occur many years later, as in my case?

>

> I've completed the PSSD survey by the way - a welcome initiative and long overdue! Let's hope some research comes out of it..

>

[Guest guest]

Two pints of Worthington's White Shield always brings out my sad side.

Okay, it's back to work on my recovery now. Do you know I was at a party

last night and there was all these lovely women......damn it!

Kv

> > >

> > > Hello all,

> > >

> > > I have had PSSD for 6 years since taking Zoloft for a few months

in

> > 2006. I have 'full blown' PSSD with genital numbness, ejaculatory

> > anhedonia and no repsonse to visual stimuli.

> > >

> > > I have recently got a noticeable tremor in my right hand and right

> > foot, stiffness in my right hand and problems with handwriting. I

saw

> a

> > neurologist today and he is concerned that I may have drug-induced

> > parkinsonism or Parkinson's disease itself. I told the neurologist

> about

> > PSSD and gave him some of the published PSSD articles (he did not

know

> > about it, but is promising to keep an open mind).

> > >

> > > I am going to have a DAT scan which measures dopamine levels in

the

> > brain. Obviously I am aware that one of the theories about the cause

> of

> > PSSD is that the SSRI down-regulates dopamine in some way and so am

> very

> > worried that the SSRI has now also caused Parkinson's, although

these

> > symptoms have appeared many years later (whereas my PSSD was

immediate

> > upon stopping the SSRI). I also took amityrptyline for a few months

> last

> > year for a bladder condition.

> > >

> > > There may be a more benign cause for these parkinson's-like

symptoms

> > of course, but I am naturally suspicious. Has anyone else developed

> > tremors or muscle stiffness since stopping the SSRI? If so, did the

> > Parkinson's symptoms occur many years later, as in my case?

> > >

> > > I've completed the PSSD survey by the way - a welcome initiative

and

> > long overdue! Let's hope some research comes out of it..

> > >

> >

>

[Guest guest]

, the amitryptyline was prescribed for pain relief for my separate pelvic

pain/bladder condition. This drug is routinely prescribed at a low dose for

neuropathic pain relief.

Kaivey, you make a good point that our brains' recovery from pssd may be

hindered by being in a state of chronic stress. I have certainly been very

stressed constantly since getting pssd 6 years ago and now have new symptoms,

which like my bladder problems, cold be attributable to low dopamine, though I'm

sure it is probably more complicated than that.

I have had a DAT scan today and get the results next week. I am encouraged that

there aren't lots of pssd people reporting tremor type symptoms or other signs

of parkinson's, but it does feel strange and not just coincidental that I

already have a prescription for a Parkinson medication (canergoline) which

anotherndoctor suggested I try for pssd and now several months' later I actually

have parkinsons's type symptoms.

> > >

> > > Hello all,

> > >

> > > I have had PSSD for 6 years since taking Zoloft for a few months in 2006.

I have 'full blown' PSSD with genital numbness, ejaculatory anhedonia and no

repsonse to visual stimuli.

> > >

> > > I have recently got a noticeable tremor in my right hand and right foot,

stiffness in my right hand and problems with handwriting. I saw a neurologist

today and he is concerned that I may have drug-induced parkinsonism or

Parkinson's disease itself. I told the neurologist about PSSD and gave him some

of the published PSSD articles (he did not know about it, but is promising to

keep an open mind).

> > >

> > > I am going to have a DAT scan which measures dopamine levels in the brain.

Obviously I am aware that one of the theories about the cause of PSSD is that

the SSRI down-regulates dopamine in some way and so am very worried that the

SSRI has now also caused Parkinson's, although these symptoms have appeared many

years later (whereas my PSSD was immediate upon stopping the SSRI). I also took

amityrptyline for a few months last year for a bladder condition.

> > >

> > > There may be a more benign cause for these parkinson's-like symptoms of

course, but I am naturally suspicious. Has anyone else developed tremors or

muscle stiffness since stopping the SSRI? If so, did the Parkinson's symptoms

occur many years later, as in my case?

> > >

> > > I've completed the PSSD survey by the way - a welcome initiative and long

overdue! Let's hope some research comes out of it..

> > >

> >

>

[Guest guest]

It isn't just about lowering stress, it is about feeling happy, vibrant,

and alive again. When I was young the world was so magically awesome and

I was completely in love with it. Although I was quite badly damaged by

shyness, sensitivity, and low self esteem, I adored being alive in such

a beautiful, incredibly amazing, and splendid world just the same. If I

can regain some of that happiness, serenity, and splender, then months

-or a year or so if need be - of good quality sleep, contentment,

relaxation, and enjoying life again, could be the start of my recovery.

So I reckon I'm in for a chance. But also overcoming my ingrained

shyness and low esteem will help as well. Healing in other words.

Kv

> > > >

> > > > Hello all,

> > > >

> > > > I have had PSSD for 6 years since taking Zoloft for a few months

in 2006. I have 'full blown' PSSD with genital numbness, ejaculatory

anhedonia and no repsonse to visual stimuli.

> > > >

> > > > I have recently got a noticeable tremor in my right hand and

right foot, stiffness in my right hand and problems with handwriting. I

saw a neurologist today and he is concerned that I may have drug-induced

parkinsonism or Parkinson's disease itself. I told the neurologist about

PSSD and gave him some of the published PSSD articles (he did not know

about it, but is promising to keep an open mind).

> > > >

> > > > I am going to have a DAT scan which measures dopamine levels in

the brain. Obviously I am aware that one of the theories about the cause

of PSSD is that the SSRI down-regulates dopamine in some way and so am

very worried that the SSRI has now also caused Parkinson's, although

these symptoms have appeared many years later (whereas my PSSD was

immediate upon stopping the SSRI). I also took amityrptyline for a few

months last year for a bladder condition.

> > > >

> > > > There may be a more benign cause for these parkinson's-like

symptoms of course, but I am naturally suspicious. Has anyone else

developed tremors or muscle stiffness since stopping the SSRI? If so,

did the Parkinson's symptoms occur many years later, as in my case?

> > > >

> > > > I've completed the PSSD survey by the way - a welcome initiative

and long overdue! Let's hope some research comes out of it..

> > > >

> > >

> >

>

[Guest guest]

I have often had a LOT of discomfort because of not noticing the pressure in my

abdomen in time. I have to remind myself to go. Years ago I was CONSTANTLY

getting urinary infections until the physician's assistant told me that I could

harm myself by continuing to take antibiotics for them. He suggested I use

natural home remedies instead.

Since then I have used cranberry juice and, more recently honey and cinnamon (in

tea and on my cerial) to help prevent these infections. I wasn't always

successful in doing that though. Through the years I wondered if I would live

to see my children grow up, because sometimes I could feel very definite pain in

the area of my left kidney. I worried that my kidneys might fail.

Kay

> > > >

> > > > Hello all,

> > > >

> > > > I have had PSSD for 6 years since taking Zoloft for a few months in

2006. I have 'full blown' PSSD with genital numbness, ejaculatory anhedonia and

no repsonse to visual stimuli.

> > > >

> > > > I have recently got a noticeable tremor in my right hand and right foot,

stiffness in my right hand and problems with handwriting. I saw a neurologist

today and he is concerned that I may have drug-induced parkinsonism or

Parkinson's disease itself. I told the neurologist about PSSD and gave him some

of the published PSSD articles (he did not know about it, but is promising to

keep an open mind).

> > > >

> > > > I am going to have a DAT scan which measures dopamine levels in the

brain. Obviously I am aware that one of the theories about the cause of PSSD is

that the SSRI down-regulates dopamine in some way and so am very worried that

the SSRI has now also caused Parkinson's, although these symptoms have appeared

many years later (whereas my PSSD was immediate upon stopping the SSRI). I also

took amityrptyline for a few months last year for a bladder condition.

> > > >

> > > > There may be a more benign cause for these parkinson's-like symptoms of

course, but I am naturally suspicious. Has anyone else developed tremors or

muscle stiffness since stopping the SSRI? If so, did the Parkinson's symptoms

occur many years later, as in my case?

> > > >

> > > > I've completed the PSSD survey by the way - a welcome initiative and

long overdue! Let's hope some research comes out of it..

> > > >

> > >

> >

>