Re: pre-school

[Guest guest]

Hi , & Welcome to you!

Barb Martz, Jonas' Mommy here. We have now gone to the initial meeting

with the folks at the intermediate unit about Jonas attending the preschool

there when he turns three on November 1st. We have definitely decided that we

will be transporting him to the school and not using the van/ bus, as this is

too heartbreaking for me just yet, and for Bob too. The school seems like it is

going to be good for him. He will receive his therapies there and we are going

to let him do the 2 1/2 hour day in the class with other kids, not just take him

for his therapies. Like you said, the interaction with the other kids may be

really good for him. They have 3 other new children his age with Down syndrome

(not mosaic), and I think he will do well with them. We got clearance from his

cardiologist due to his heart problem that he was born with. We see the

cardiologist in December, and you can imagine what I want for Christmas... a

really exceptionally good report! Jonas is exhibiting NO signs of cardiac

distress. Quite the contrary, his climbing abilities and physical activity give

me a bit of cardiac distress! LOL So, we have our second " more final " meeting

with these folks on the 9th of October so they can get him all set up by his

birthday. Jonas is increasing in language skills and some new signing is

appearing so things are looking good in that respect. He has been using the

word " IT " for the past few weeks a lot. He says a line of " Jonas talk " and

somewhere in it is the word " IT " . This week however, he seems to have added the

phonic SH to his garbled speech, and so you can imagine how much I am loving

what seems to be coming out of his mouth as he plays with toys, and generally

tears up the living room (his favorite pastime). I will surely be letting you

all know how the preschool is going once we start. Luckily for us and for

Jonas, a sweet woman from our church family who has been carrying Jonas around

the church and loving him up since he was just 5 pounds works at the preschool,

and he will be in her room! He already loves her and is used to her holding him

and so that will make transition easier on us all.

Welcome to you again, a joy to have you here ! Hugs and kisses to !

Blessings,

Barb Martz

Mom to Jonas 2y. 10m. (MDS) & 8

Re: pre-school

I am directing this to Tina and Barb and hello to everyone else. I never

actually introduced myself to the group but I am so happy that I found you

all!!!! My name is Ross. My son just turned 2 on July 30th. He was

diaagnosed MDS in May. He has been receiving early intervention since he was

one

(physical therapy and a teacher). We just started speech therapy last month

and

next month occupational therapy. I'm taking all the therapy I can get. How

is Krissy with her speech? This is definately 's biggest hurdle at this

point. When will Krissy turn 3. We do not have the public pre school available

until they turn 3. I was actually thinking of sending him to a private

pre-school this fall because I think the interaction with kids his age is so

helpful.

Anyway, no decisions are ever easy. I know that whatever Barb you decide to

do with Jonas will be right for him. I am very interested to hear how Krissy

and Jonas make out with their new endeavors. My thoughts and prayers are with

you!!!! Good Luck.... I am sure they will do great!!!!!!

Mom to age6, age 2 MDS and Kirk age 4

1/2 mos.

[Guest guest]

Hi Barb, That is great news about Jonas. I am sure you are enjoying his new

sounds... SH and IT. That just cracked me up. You must enter that in his baby

book as his first word (ha ha). is big on SH also so he may follow

suit!!!

We just had 's IFSP review and I was able to get alot more services.

Speech, occupational, physical, and the teacher each once a week. So 4x a week

he will have someone. I am still going to try for even more speech if possible

but I am happy with the increase. has been making alot more

sounds...very promising

GOOD LUCK with Jonas. Let me know how he is doing. That is so great that you

have someone you know in class with him. That will make it much easier for you

to adjust. Hope all is well. I read your husband is looking for a job. I hope

that is going well. I,ll keep you in my thoughts and prayers.

LOL