Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 Hi everyone, Tomarrow is my grandson, Aidan's, first birthday. I can't believe that it has already been a whole year! I am able to reflect back to the day that he was born and all the emotions, good and bad, that came with it. Aidan is a fighter! And, I strongly believe that God must have big plans for our little guy, or he would have left us long ago. Despite all of Aidan's medical problems, he is right on track developmently. He loves to pull out the kitchen drawer and play with the red knob on the flour sifter! He will play with that knob forever! LOL He also is making the clicking sounds with his tounge. LOL I remember when my kids did that constantly all day long! He has learned to stand on his own, although I was with him all weekend and he wouldn't do it for me! And he crawls everywhere! Tomarrow, on Aidan's birthday, he will have skull surgery. A bone has grown over his soft spot and they have to scrape the bone away. There is a risk that they could leave bone fragments in his brain. My son is very scared that that might happen. If you pray, please pray about this surgery. This will be Aidan's 4th surgery in his little life. The first was when he was born to repair his esophogus, the second was to try to open his trache after 2 cardiac arrests, the third was for a tracheotomy after he went into cardiac arrest at my house and I had to give him CPR.(That was my first time and hopefully my last), and now he is due for the skull surgery. In August, we are planning on heart surgery. Thank you all for your support and prayers. Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 Happy Birthday Aidan. I am so sorry your grandson has to spend his first birthday in the hospital. Try not to worry (impossible) and I will pray for Aidan. Donna - Adam's (9 months) grandmother -- Aidan Hi everyone, Tomarrow is my grandson, Aidan's, first birthday. I can't believe that it has already been a whole year! I am able to reflect back to the day that he was born and all the emotions, good and bad, that came with it. Aidan is a fighter! And, I strongly believe that God must have big plans for our little guy, or he would have left us long ago. Despite all of Aidan's medical problems, he is right on track developmently. He loves to pull out the kitchen drawer and play with the red knob on the flour sifter! He will play with that knob forever! LOL He also is making the clicking sounds with his tounge. LOL I remember when my kids did that constantly all day long! He has learned to stand on his own, although I was with him all weekend and he wouldn't do it for me! And he crawls everywhere! Tomarrow, on Aidan's birthday, he will have skull surgery. A bone has grown over his soft spot and they have to scrape the bone away. There is a risk that they could leave bone fragments in his brain. My son is very scared that that might happen. If you pray, please pray about this surgery. This will be Aidan's 4th surgery in his little life. The first was when he was born to repair his esophogus, the second was to try to open his trache after 2 cardiac arrests, the third was for a tracheotomy after he went into cardiac arrest at my house and I had to give him CPR.(That was my first time and hopefully my last), and now he is due for the skull surgery. In August, we are planning on heart surgery. Thank you all for your support and prayers. Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2003 Report Share Posted May 8, 2003 We just got through a heart surgery, so you bet that I will pray for Aidan for his skull surgery. Good luck. He's quite a little guy! Aidan Hi everyone, Tomarrow is my grandson, Aidan's, first birthday. I can't believe that it has already been a whole year! I am able to reflect back to the day that he was born and all the emotions, good and bad, that came with it. Aidan is a fighter! And, I strongly believe that God must have big plans for our little guy, or he would have left us long ago. Despite all of Aidan's medical problems, he is right on track developmently. He loves to pull out the kitchen drawer and play with the red knob on the flour sifter! He will play with that knob forever! LOL He also is making the clicking sounds with his tounge. LOL I remember when my kids did that constantly all day long! He has learned to stand on his own, although I was with him all weekend and he wouldn't do it for me! And he crawls everywhere! Tomarrow, on Aidan's birthday, he will have skull surgery. A bone has grown over his soft spot and they have to scrape the bone away. There is a risk that they could leave bone fragments in his brain. My son is very scared that that might happen. If you pray, please pray about this surgery. This will be Aidan's 4th surgery in his little life. The first was when he was born to repair his esophogus, the second was to try to open his trache after 2 cardiac arrests, the third was for a tracheotomy after he went into cardiac arrest at my house and I had to give him CPR.(That was my first time and hopefully my last), and now he is due for the skull surgery. In August, we are planning on heart surgery. Thank you all for your support and prayers. Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2003 Report Share Posted May 8, 2003 Kristy, Wow! One year old already! And he is standing too, that is great. Are you absolutely sure he is one year old already? I am still thinking he is a newborn! Time has a way of marching on! Please know that the Martz family will be praying fervently for Aidan, and I thank you for letting us know so that I can pray very specifically for him about this surgery. I pray for the little guy all the time anyway, but it is great to be updated. Do please let us know how things go for him when you have a chance. Poor dear has been a real fighter! You are right, only heaven knows what is in store for him. Take Care, Bless Your Family, Barb Martz Mom To Jonas 2 1/2 (MDS) & 8 Aidan > Hi everyone, > Tomarrow is my grandson, Aidan's, first birthday. I > can't believe that it has already been a whole year! I > am able to reflect back to the day that he was born > and all the emotions, good and bad, that came with it. > Aidan is a fighter! And, I strongly believe that God > must have big plans for our little guy, or he would > have left us long ago. > Despite all of Aidan's medical problems, he is right > on track developmently. He loves to pull out the > kitchen drawer and play with the red knob on the flour > sifter! He will play with that knob forever! LOL He > also is making the clicking sounds with his tounge. > LOL I remember when my kids did that constantly all > day long! He has learned to stand on his own, although > I was with him all weekend and he wouldn't do it for > me! And he crawls everywhere! > Tomarrow, on Aidan's birthday, he will have skull > surgery. A bone has grown over his soft spot and they > have to scrape the bone away. There is a risk that > they could leave bone fragments in his brain. My son > is very scared that that might happen. > If you pray, please pray about this surgery. This will > be Aidan's 4th surgery in his little life. The first > was when he was born to repair his esophogus, the > second was to try to open his trache after 2 cardiac > arrests, the third was for a tracheotomy after he went > into cardiac arrest at my house and I had to give him > CPR.(That was my first time and hopefully my last), > and now he is due for the skull surgery. In August, we > are planning on heart surgery. > Thank you all for your support and prayers. > Kristy > > > > Won't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com > ************************************************* > Become a member of IMDSA at http://www.imdsa.com > ************************************************* > MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus > ************************************************* > Quote Link to comment Share on other sites More sharing options...
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