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Re: firefly

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don't know. I don't get that kind of difinitive information. I have

labs, ultra sound,and endosopy's (which i call " the dreaded procedure "

because it always ends in banding == a guarantee of at least a week of

discomfort) and I see the hepatologist on a 6 month basis. I saw the

hepatlogist last week. They were happy with my progress on weight loss

(47 \lbs since March) and my only real complaint is increasing

fatigue. The consult letter the Dr. prepared was posssitive.... then

they upped my meld score 2 points. In March my score was 7 which I was

glad about. But two points feels like a giant leap. I'm torn between

hoping I can drag this out as long as possible and just getting it over

with...:D

>

> How far out are you from the transplant itself and how often

> do you have to see the transplant team?

>

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The nutritionist put put me on a diet of so many carbs and so much

protain and 2grams or less of salt. So it's pretty restricted. I find

banding causes pain that feels a lot like very intense acid reflux

disease. I don't get nauseated because I can get anything down without

a lot of pain...so i drink liquids (whichstill cause spasms but releave

hunger)

>

> When they do this banding of the varies, do you

> get nauseated with it? Are you able to eat or do they

> have you on a special diet?

>

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by the way... sorry for my typing. i actually can spell. I have been

getting used to this flat laptop keyboard and it it makes me look

iliterate.

> >

> > When they do this banding of the varies, do you

> > get nauseated with it? Are you able to eat or do they

> > have you on a special diet?

> >

>

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Just figured there was some confusion.

>

> I have to apologize to you. I tend to get people mixed up

> here at times. I thought you had the liver transplant already.

> Then I reread your post that said you were waiting on the list.

> I will have to go back and double check myself. It is Pat

> who had the transplant. You probably wondered why I asked

> you certain things. I could chalk it up to old age...my

> mind isn't what it used to be.

>

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