Re: Bob

[Guest guest]

Hi, Abijann. I'm not doin so peachy. I have a terrible pain in my left upper

quad, and feel all queesy.

Kind of dizzy and nauseated. We spent a couple of hours waiting at one ER, but

they were full,

so after awhile, Sharon is going to take me to another ER at a different

hospital. I sure hope this isn't my spleen getting bigger. It's 16cm on the

last scan. Good luck to your husband. I said a prayer for him. I'll

say one for you too. There. You two are all prayed for by me., love, Bobby.

Bob

Thanks for thinking of us.

My husband might be looking at more surgery and it is upsetting me

very much. Things are not looking all that great.

His medical supplier put us through the mill trying to get them

set up with the insurance and doctors for these supplies.

They drove everyone half nuts including us. We got one go of

supplies from them and they called and said they were dropping

us because they weren't making any money on the supplies we

were getting and they were not going to carry them anymore.

SMILE...I just about could of strangled them. For a whole

month they pester and complained and whined about the forms

not being filled out right from the doctor office for these

supplies and I ended up trying to be a middle man between them

all. Finally, thought we had this all cleared up and now we

are back to square one...I think the doctor office is going

to kill me. I've been having migraines but there isn't much

I can do about them.

I sure hope you are doing better and that your daughter is

getting well. I know you have quite another hurdle to go

over with Sharon being operated on. I want you to know you

guys are in my prayers and I hope Sharon does so well and

has an angel watching over her through everything. We never

know what life is going to throw at us...but, at least we

know that this life isn't the end.

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[Guest guest]

Wow. I'm curious how you are able to get power to your computer? . Last year

Sharon and I bought a state of the art laptop, our first computer. I also bought

Pinnacle Studio, a movie making program. It was around one hundred dollars(the

movie making program). It takes quit a bit of memory to run it, a minimum of 512

mg of ram, but we got 2 gigs of ram. So it works very well, but was very

challenging to learn. Now It's like second nature, but when I have memory loss,

BIG problems happen. You would not want to trust me with your computer. I delete

things. I spend a lot of hours backing up onto disk. It is worth it. I film with

small m-peg 4 cameras, one a regular samsung digimax, but the other a tiny dxg

digital video camera that was dirt cheap and uses SD memory cards. I love this

hobby. It also alows me to remember things, and to realize the importance of

staying on my medications.

There are many times I don't remember saying something, but the video doesn't

lie.

Most people with a fairly new computer do not even realize that they have a

program called windows movie maker, and it is a fairly easy way to make a DVD.

Bob

We lost everything 110 in our home a few years back when

a stone underground cut through our electric wire leading

to our home. It was never replaced cause the electric

company and the homeowners insurance would not cover any damage

caused by artificial electric problems. Maybe sometimes

again. Thanks for offering, though.

Boy, you must really be up to date on all kinds of

special equipment. You make up your own DVD's now?

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[Guest guest]

Having you around makes me feel better.:-) Actually now that I remembered who

was spoken to by the ER doc, and that it was a two year resident, whom is going

to hear from us through the hospital admin., I feel a lot better.

Bob

There are two blood tests to check for pancreatitis and

that is the amylase and lipase levels. The marker for

pancreatic cancer that they use is CA19-9.

I wish there was some way the doctors could make you more

comfortable. This constant stress and getting you upset,

isn't helping you heal and feel better.

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[Guest guest]

Abijann, it's really great to hear from you. I hope you can stay around. He SSDI

is going to remember me when I get done. Ardis was able to win her case with a

good lawer, and I am either in so much pain, nauseated or confused that The days

are all melting together, and someone suggested to throw up on the interviewer,

so I might just do that, although these days you might get a felony charge for

it. Haha. Any way, I've been just miserable, but - see no reason to get upset,

its not really in my hands any way, and I expect there will be more than a few

dissapointments on this ride, and a wild one it has been!

Sent via BlackBerry from T-Mobile

Bob

I sure hope you are going to appeal that decision with the SS.

I am finding out that it is getting harder to get SS because

they don't have enough workers anymore to go over all the claims.

I read where they said that if the form is incomplete or have any

questions regarding whether or not people should be on it, it

is put aside because it takes a long time to process.

Well, I'm finally back here again. I don't know for how long.

Still been feeling really tired and run down. I haven't got a

chance to read any of the posts, so I think I'll just start with

the last few and go from here.

[Guest guest]

does any one know how to help me help my shelf i work and health ins just went

up co pays 20 to 40 will ss help me with med bills not enough money to go

around between house bills food and gas to get work cant afford to pay for the

doc app to.cant afford to go to doc any more

robwalkingeagle@... wrote: Abijann, it's really great to hear from you.

I hope you can stay around. He SSDI is going to remember me when I get done.

Ardis was able to win her case with a good lawer, and I am either in so much

pain, nauseated or confused that The days are all melting together, and someone

suggested to throw up on the interviewer, so I might just do that, although

these days you might get a felony charge for it. Haha. Any way, I've been just

miserable, but - see no reason to get upset, its not really in my hands any way,

and I expect there will be more than a few dissapointments on this ride, and a

wild one it has been!

Sent via BlackBerry from T-Mobile

Bob

I sure hope you are going to appeal that decision with the SS.

I am finding out that it is getting harder to get SS because

they don't have enough workers anymore to go over all the claims.

I read where they said that if the form is incomplete or have any

questions regarding whether or not people should be on it, it

is put aside because it takes a long time to process.

Well, I'm finally back here again. I don't know for how long.

Still been feeling really tired and run down. I haven't got a

chance to read any of the posts, so I think I'll just start with

the last few and go from here.

Group Email: livercirrhosissupport

web address:

http://groups.yahoo.com/group/livercirrhosissupport/

[Guest guest]

, my heart goes out to you. My husband works too and our

insurance doubled in August from 200 to a little over 400 a month and

this has really affected us as we were barely living from check to

check as it was. As far as your prescriptions go you should ask your

pharmacy about any federal programs that can help you pay the cost.

40 is a high copay for prescriptions. Mine is high like that too,

but only on off list, non generic. Make sure your doctor is

prescribing you only onlist meds. As far as doctor appointments go

make it clear to your doctor you financial situation and that you

cannot come in for any unnecessary reasons. My new primary

understood this completely. Tell them that routine unnecesary visits

are impossible on your financial situation. I dont know your age and

if you can get help from ssdi or not. But do check with your local

health dept and social services to see if they have any programs to

help you. God Bless, Debra Abijann, it's really great to hear

from you. I hope you can stay around. He SSDI is going to remember me

when I get done. Ardis was able to win her case with a good lawer,

and I am either in so much pain, nauseated or confused that The days

are all melting together, and someone suggested to throw up on the

interviewer, so I might just do that, although these days you might

get a felony charge for it. Haha. Any way, I've been just miserable,

but - see no reason to get upset, its not really in my hands any way,

and I expect there will be more than a few dissapointments on this

ride, and a wild one it has been!

> Sent via BlackBerry from T-Mobile

>

> Bob

>

>

> I sure hope you are going to appeal that decision with the SS.

> I am finding out that it is getting harder to get SS because

> they don't have enough workers anymore to go over all the claims.

> I read where they said that if the form is incomplete or have any

> questions regarding whether or not people should be on it, it

> is put aside because it takes a long time to process.

>

> Well, I'm finally back here again. I don't know for how long.

> Still been feeling really tired and run down. I haven't got a

> chance to read any of the posts, so I think I'll just start with

> the last few and go from here.

>

>

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

>

[Guest guest]

, your situation is much like mine except that I no longer work and am

already on SSD -- have been for over 10 years with heart condition; my liver

situation is just an added attraction.

The mortgage payment on my house is far less than the minimal I could

possibly rent. If my children were to do as they [jokingly] threaten and

'put me in a home,' the cost would be about 5x what current costs are and

I'd share one room with . . . somebody.

I am back to using the County Health System for health care. I'd gotten off

it at daughter's insistence because though I was satisfied with it, she was

not. Once the bills piled up, she dropped the subject, so I went back to

County. If you are working, you may have a hard time qualifying, but it's

worth a try if your county has such a system. There are still costs.

I used to think " There's gotta be a way, " but there is no way. You want to

pay your bills. The system is such that lots of us are in the same situation

and there are reasons to believe it's by design. We have a bad name for not

paying up. But the costs are out of all reason. Try not to think about those

corporate CEOs and their millions. Pay what you can. Believe me, the medical

providers have back-up for when their patients don't/can't pay. It's the

patients who have no back-up.

I have come to the realization that we are not supposed to be able to make

it.

This is only part of the reason I'm a political activist -- albeit of the

" armchair " type.

" The two greatest obstacles to democracy in the United States are, first,

the widespread delusion among the poor that we have a democracy, and second,

the chronic terror among the rich, lest we get it. " — Dowling, Editor

and Priest, Chicago Daily News, 28jul41 [found at mindfully.org/ ]

Re: Bob

does any one know how to help me help my shelf i work and health ins just

went up co pays 20 to 40 will ss help me with med bills not enough money to

go around between house bills food and gas to get work cant afford to pay

for the doc app to.cant afford to go to doc any more

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.503 / Virus Database: 269.15.30/1126 - Release Date: 11/12/2007

12:56 PM

[Guest guest]

Thanks for the time .Ilive in fl don't think this state wants to help any one. I

also iam looking for new doct I was just told that i have alcoholic cirrhosis

and not to drink that i would under stand,. still wonder about this one ,not

much of a drinker, but any way i was told no need to follow up? no check up no

nothing.

Bracewell wrote: , your situation is much

like mine except that I no longer work and am

already on SSD -- have been for over 10 years with heart condition; my liver

situation is just an added attraction.

The mortgage payment on my house is far less than the minimal I could

possibly rent. If my children were to do as they [jokingly] threaten and

'put me in a home,' the cost would be about 5x what current costs are and

I'd share one room with . . . somebody.

I am back to using the County Health System for health care. I'd gotten off

it at daughter's insistence because though I was satisfied with it, she was

not. Once the bills piled up, she dropped the subject, so I went back to

County. If you are working, you may have a hard time qualifying, but it's

worth a try if your county has such a system. There are still costs.

I used to think " There's gotta be a way, " but there is no way. You want to

pay your bills. The system is such that lots of us are in the same situation

and there are reasons to believe it's by design. We have a bad name for not

paying up. But the costs are out of all reason. Try not to think about those

corporate CEOs and their millions. Pay what you can. Believe me, the medical

providers have back-up for when their patients don't/can't pay. It's the

patients who have no back-up.

I have come to the realization that we are not supposed to be able to make

it.

This is only part of the reason I'm a political activist -- albeit of the

" armchair " type.

" The two greatest obstacles to democracy in the United States are, first,

the widespread delusion among the poor that we have a democracy, and second,

the chronic terror among the rich, lest we get it. " — Dowling, Editor

and Priest, Chicago Daily News, 28jul41 [found at mindfully.org/ ]

Re: Bob

does any one know how to help me help my shelf i work and health ins just

went up co pays 20 to 40 will ss help me with med bills not enough money to

go around between house bills food and gas to get work cant afford to pay

for the doc app to.cant afford to go to doc any more

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.503 / Virus Database: 269.15.30/1126 - Release Date: 11/12/2007

12:56 PM

Group Email: livercirrhosissupport

web address:

http://groups.yahoo.com/group/livercirrhosissupport/

[Guest guest]

Thanks for your time .I check with wel fare and food stamps, to take some of the

burden off, they say i make about 6000 to 7000 to much but money is spent when

the pay check comes in ,so nothing left till the nezt one arrives so much for

the healthy diet.

Debra wrote: , my heart goes out to

you. My husband works too and our

insurance doubled in August from 200 to a little over 400 a month and

this has really affected us as we were barely living from check to

check as it was. As far as your prescriptions go you should ask your

pharmacy about any federal programs that can help you pay the cost.

40 is a high copay for prescriptions. Mine is high like that too,

but only on off list, non generic. Make sure your doctor is

prescribing you only onlist meds. As far as doctor appointments go

make it clear to your doctor you financial situation and that you

cannot come in for any unnecessary reasons. My new primary

understood this completely. Tell them that routine unnecesary visits

are impossible on your financial situation. I dont know your age and

if you can get help from ssdi or not. But do check with your local

health dept and social services to see if they have any programs to

help you. God Bless, Debra Abijann, it's really great to hear

from you. I hope you can stay around. He SSDI is going to remember me

when I get done. Ardis was able to win her case with a good lawer,

and I am either in so much pain, nauseated or confused that The days

are all melting together, and someone suggested to throw up on the

interviewer, so I might just do that, although these days you might

get a felony charge for it. Haha. Any way, I've been just miserable,

but - see no reason to get upset, its not really in my hands any way,

and I expect there will be more than a few dissapointments on this

ride, and a wild one it has been!

> Sent via BlackBerry from T-Mobile

>

> Bob

>

>

> I sure hope you are going to appeal that decision with the SS.

> I am finding out that it is getting harder to get SS because

> they don't have enough workers anymore to go over all the claims.

> I read where they said that if the form is incomplete or have any

> questions regarding whether or not people should be on it, it

> is put aside because it takes a long time to process.

>

> Well, I'm finally back here again. I don't know for how long.

> Still been feeling really tired and run down. I haven't got a

> chance to read any of the posts, so I think I'll just start with

> the last few and go from here.

>

>

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

>

[Guest guest]

Hi, Abijann. Thank you for asking. I am just exausted from the pain. Sharon is

going to try to lobby our pain doc for an increase. I don't have any patience to

do it because I can't communicate very well in prson or on the phone. I think

I'm just dreaming all of this. But the pain reminds me that its real. I tried to

vacuum this afternoon, and it just kicked my ass. I hope he will write me for

some extra doses. This morning I slept till 11:00, so I will be able to split up

all the morning doses to make tommorrow's doses fatter. I just don't sleep in

till 11 every day, and somtimes I'll be up all night hurting, and there is only

what I was prescribed. Sharon isn't even thinking of having any more surgery.

The operation was only a sucsess if you count living, and no major

complications. The 5 year headache is still there. Thing is, we've met a slew of

other chiarians, and only a select few have the surgery stop the pain. The rest

suffer even after the surgery. How are you and your husband?

Sent via BlackBerry from T-Mobile

Bob

How has your rib been doing? I sure hope you are not in pain now.

Was the rib completely broken or was it fractured? How is your

little wifey doing....I hope that she doesn't have to have more surgery.

I don't get time to read all the past posts. Everyone here really

went to town on posting after I had left.

[Guest guest]

Oh, Bob, how disturbing! I thought that once Sharon had her surgery, the

cause of the pain would be gone, so the pain would be gone.

Is there another cause of the pain that the doctors overlook because they

don't look further than the one problem?

There I go again, thinking all problems must be solved. I'm hoping for you

and Sharon that your pain decreases and you can be more comfortable.

Old

Bob

How has your rib been doing? I sure hope you are not in pain now.

Was the rib completely broken or was it fractured? How is your

little wifey doing....I hope that she doesn't have to have more surgery.

I don't get time to read all the past posts. Everyone here really

went to town on posting after I had left.

Group Email: livercirrhosissupport

web address:

http://groups.yahoo.com/group/livercirrhosissupport/

[Guest guest]

Good morning . Well, from the perspective that when we were told of her

diagnosis, and then sought a second opinion, how devastating that was, this is

not that bad. Our original plan was a trip to the Barrow neurological inst. In

Pheonix, but we drug our heels. We later learned from a friend we have come to

know through Sharons blog that that might have been a disaster. This friend had

surgery to correct the exact same problem at the Barrow and was so severely

butchered that she has had to undergo 12 additional surgeries. She was

eventually treated at the Chiari institute in Long island, and is never going to

be the same. Her blog is at http://chiarian.blogspot.com/

We have grown very fond of this woman and to hear her story is very chilling

indeed. She is a mother of two and a wife of an Arizona highway patrolman.

Sharon , as it turns out made a significant decsion by not going to Pheonix.

She had her surgery by the best man outside of long island, and they are calling

Aurora, Colorado the 'Chiari institute of the west' in the Chiari world. For any

new comers, My wife has Chiari malformation, and a blog at

http://headsaga.blogspot.com

Things could be worse.

Sent via BlackBerry from T-Mobile

Bob

How has your rib been doing? I sure hope you are not in pain now.

Was the rib completely broken or was it fractured? How is your

little wifey doing....I hope that she doesn't have to have more surgery.

I don't get time to read all the past posts. Everyone here really

went to town on posting after I had left.

Group Email: livercirrhosissupport

web address:

http://groups.yahoo.com/group/livercirrhosissupport/

[Guest guest]

Oh wow! She sounds so upbeat. That's wonderful in her situation. Sometimes

it makes a difference as to outcome and I sure hope hers is good. And with

all her physical problems the insurance, too. I can see how you've become

fond of her. With all this on her and her daughter too. Sometimes we who

have fewer problems don't realize how many there can be.

Thanks for " introducing " me to her!

Old

PEACE ON EARTH

GOOD WILL TO MEN

Bob

How has your rib been doing? I sure hope you are not in pain now.

Was the rib completely broken or was it fractured? How is your

little wifey doing....I hope that she doesn't have to have more surgery.

I don't get time to read all the past posts. Everyone here really

went to town on posting after I had left.

Group Email: livercirrhosissupport

web address:

http://groups.yahoo.com/group/livercirrhosissupport/

[Guest guest]

Amen!!!!! So very true!!!!

Pamela

Bob

It is pretty bad when someone, who is disabled, had to point out to

people around them to treat them with respect and to not take

advantage of them and be discriminated against because of the way

they are.

They are constantly put in a position on being on the defensive side.

We are now going through something very similar to what you have

gone through. And your right, it is their mistake and we are

the ones suffering for it.

I know that you and Sharon are very sick. That is why I consider

you guys kindred spirits because we are also.

I said to someone once: they may save your life, but you end up

on the streets like bums when you leave...cause you will lose

everything you worked for all your life to have...then wonder

why you wanted to go on. The only thing in life that you can

count on is the love you have and give to others...lack of money

can't take that away.