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Dear ,

Sounds like things are going very well for ! I am so happy to

hear that. I can use all the positive stories about schooling that I can get

right about now. I think I am losing faith that I can make the transition

when the time comes, so thanks for sharing your story. One problem, it is

certainly a bit cruel as I sit here in Pennsylvania, USA to talk about

riding a bike. The wind is blowing hard this evening as we brace ourselves

for 2-3 inches of snow overnight! The temperature at the bus stop this

morning was 6 degrees F. BRRRRR! I am sick of the hats, the gloves, the

coats, the messy winter shoes and boots at the door, and I would like to

come to your house and " hoon " down the footpath with ! :)

Blessings,

Barb Martz

Mom to Jonas (MDS) 2 & 7

Update

> Hi everyone,

>

> Just to add to the point about accents and such. I always have to

> laugh at Hogan and The Crocodile Hunter. They are so okker its

> not funny, but I must say I don't sound anything like that

> either,....more like the Wiggles.lol but without the singing voices!!

>

> has started school. Tosay was his third day. First two days

> were great and he waved happily as i left the room, but today was a

> bit grimmer, and the bottom lip dropped and he was a bit upset.....so

> was mum....but apparently as soon as i left everything was bright

> again, and he had a great day. The first day the only the teacher

> had to comment on was the fact he wouldn't eat his lunch. She is a

> big stickler that the kids eat their sandwichs first, and as they eat

> in the classroom in a circle, before being allowed out to play, she

> keeps an eagle eye on them. But he wouldn't eat AT ALL!!!! I told

> her it was just a first day thing and he was just too excited!!(It

> didnt stop him devouring a little pkt of twisties at play lunch in

> the afternoon...). Anyway, his lunchbox has been empty both these

> last two days, so i can't see a problem there. I have posted photos

> on the photo link with him in his uniform and a few others. One of

> the photos is with him with his little friend . She is my best

> friends daughter, and has started school too, and they have purposely

> put her in scotts class, so she can " help him out " . They love each

> other so much, and she understand him as well as me, so she can help

> the teacher if he is having trouble explaining something. She got a

> bit distressed yesterday however, when she couldnt find him at

> lunchtime, but he was playing with the boys....lol. We have also

> taken scotts training wheels off his bike, at his request, and he has

> been hooning down our footpath all arfternoon. Anyway, hope everyone

> is well, and sorry to write so much, it just kept coming lol.

> Cheers

> in Aus, mum to scott (5mds) and emily 3(my little ballerina)

>

>

> Won't you please consider adding your personal story on the MDS website

today? http://www.mosaicdownsyndrome.com

> *************************************************

> MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus

> *************************************************

>

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LOL, Barb, there is certainly a big difference then, i just did a

conversion, and it works out to be about 104degs F here at the

moment. And we are just about to go from kindly " please " water

restrictions, to " if you don't you're fined " water restrictions for

the entire NSW and possibly more states. We are in such a major

drought. Send some snow to melt here. lol.

finished his first week of kindergarten today. This morning he

also did the sad face, but was fine after I left. (I checked him out

through the window) He has done some lovely drawings so far, and

from the first day to today, he has already fixed up his back to

front s and c's for his name. It was also quite a thrill when

heading to his classroom to have another little boy yell out " Hi

" . When i said to him scott wasnt happy about coming to class,

he said " i'll come with him " . It was so lovely.

Anyway, must go, starts tiny tots dancing in the morning. She

is ever so excited!!!!

in Aus, mum to 5mds, and 3

> Dear ,

> Sounds like things are going very well for ! I am so

happy to

> hear that. I can use all the positive stories about schooling that

I can get

> right about now. I think I am losing faith that I can make the

transition

> when the time comes, so thanks for sharing your story. One

problem, it is

> certainly a bit cruel as I sit here in Pennsylvania, USA to talk

about

> riding a bike. The wind is blowing hard this evening as we brace

ourselves

> for 2-3 inches of snow overnight! The temperature at the bus stop

this

> morning was 6 degrees F. BRRRRR! I am sick of the hats, the

gloves, the

> coats, the messy winter shoes and boots at the door, and I would

like to

> come to your house and " hoon " down the footpath with ! :)

> Blessings,

> Barb Martz

> Mom to Jonas (MDS) 2 & 7

>

>

> Update

>

>

> > Hi everyone,

> >

> > Just to add to the point about accents and such. I always have to

> > laugh at Hogan and The Crocodile Hunter. They are so okker

its

> > not funny, but I must say I don't sound anything like that

> > either,....more like the Wiggles.lol but without the singing

voices!!

> >

> > has started school. Tosay was his third day. First two

days

> > were great and he waved happily as i left the room, but today was

a

> > bit grimmer, and the bottom lip dropped and he was a bit

upset.....so

> > was mum....but apparently as soon as i left everything was bright

> > again, and he had a great day. The first day the only the teacher

> > had to comment on was the fact he wouldn't eat his lunch. She is

a

> > big stickler that the kids eat their sandwichs first, and as they

eat

> > in the classroom in a circle, before being allowed out to play,

she

> > keeps an eagle eye on them. But he wouldn't eat AT ALL!!!! I

told

> > her it was just a first day thing and he was just too excited!!(It

> > didnt stop him devouring a little pkt of twisties at play lunch in

> > the afternoon...). Anyway, his lunchbox has been empty both these

> > last two days, so i can't see a problem there. I have posted

photos

> > on the photo link with him in his uniform and a few others. One

of

> > the photos is with him with his little friend . She is my

best

> > friends daughter, and has started school too, and they have

purposely

> > put her in scotts class, so she can " help him out " . They love

each

> > other so much, and she understand him as well as me, so she can

help

> > the teacher if he is having trouble explaining something. She

got a

> > bit distressed yesterday however, when she couldnt find him at

> > lunchtime, but he was playing with the boys....lol. We have also

> > taken scotts training wheels off his bike, at his request, and he

has

> > been hooning down our footpath all arfternoon. Anyway, hope

everyone

> > is well, and sorry to write so much, it just kept coming lol.

> > Cheers

> > in Aus, mum to scott (5mds) and emily 3(my little ballerina)

> >

> >

> > Won't you please consider adding your personal story on the MDS

website

> today? http://www.mosaicdownsyndrome.com

> > *************************************************

> > MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus

> > *************************************************

> >

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,

You have me in tears all the way over here! How

wonderful that the little boy yelled out his name when

he entered the room!!!! That is so good! I am so

excited for him starting Kindergarten and already

making friends and learning so much!

I bet is precious in her dancing! Boy, you sure

have gotten busy all of the sudden! lol School and

Dancing!

Kristy

--- " Twomey "

wrote:

---------------------------------

LOL, Barb, there is certainly a big difference then, i

just did a

conversion, and it works out to be about 104degs F

here at the

moment. And we are just about to go from kindly

" please " water

restrictions, to " if you don't you're fined " water

restrictions for

the entire NSW and possibly more states. We are in

such a major

drought. Send some snow to melt here. lol.

finished his first week of kindergarten today.

This morning he

also did the sad face, but was fine after I left. (I

checked him out

through the window) He has done some lovely drawings

so far, and

from the first day to today, he has already fixed up

his back to

front s and c's for his name. It was also quite a

thrill when

heading to his classroom to have another little boy

yell out " Hi

" . When i said to him scott wasnt happy about

coming to class,

he said " i'll come with him " . It was so lovely.

Anyway, must go, starts tiny tots dancing in the

morning. She

is ever so excited!!!!

in Aus, mum to 5mds, and 3

> Dear ,

> Sounds like things are going very well for

! I am so

happy to

> hear that. I can use all the positive stories about

schooling that

I can get

> right about now. I think I am losing faith that I

can make the

transition

> when the time comes, so thanks for sharing your

story. One

problem, it is

> certainly a bit cruel as I sit here in Pennsylvania,

USA to talk

about

> riding a bike. The wind is blowing hard this evening

as we brace

ourselves

> for 2-3 inches of snow overnight! The temperature at

the bus stop

this

> morning was 6 degrees F. BRRRRR! I am sick of the

hats, the

gloves, the

> coats, the messy winter shoes and boots at the door,

and I would

like to

> come to your house and " hoon " down the footpath with

! :)

> Blessings,

> Barb Martz

> Mom to Jonas

(MDS) 2 & 7

>

>

> Update

>

>

> > Hi everyone,

> >

> > Just to add to the point about accents and such.

I always have to

> > laugh at Hogan and The Crocodile Hunter.

They are so okker

its

> > not funny, but I must say I don't sound anything

like that

> > either,....more like the Wiggles.lol but without

the singing

voices!!

> >

> > has started school. Tosay was his third

day. First two

days

> > were great and he waved happily as i left the

room, but today was

a

> > bit grimmer, and the bottom lip dropped and he was

a bit

upset.....so

> > was mum....but apparently as soon as i left

everything was bright

> > again, and he had a great day. The first day the

only the teacher

> > had to comment on was the fact he wouldn't eat his

lunch. She is

a

> > big stickler that the kids eat their sandwichs

first, and as they

eat

> > in the classroom in a circle, before being allowed

out to play,

she

> > keeps an eagle eye on them. But he wouldn't eat

AT ALL!!!! I

told

> > her it was just a first day thing and he was just

too excited!!(It

> > didnt stop him devouring a little pkt of twisties

at play lunch in

> > the afternoon...). Anyway, his lunchbox has been

empty both these

> > last two days, so i can't see a problem there. I

have posted

photos

> > on the photo link with him in his uniform and a

few others. One

of

> > the photos is with him with his little friend

. She is my

best

> > friends daughter, and has started school too, and

they have

purposely

> > put her in scotts class, so she can " help him

out " . They love

each

> > other so much, and she understand him as well as

me, so she can

help

> > the teacher if he is having trouble explaining

something. She

got a

> > bit distressed yesterday however, when she couldnt

find him at

> > lunchtime, but he was playing with the

boys....lol. We have also

> > taken scotts training wheels off his bike, at his

request, and he

has

> > been hooning down our footpath all arfternoon.

Anyway, hope

everyone

> > is well, and sorry to write so much, it just kept

coming lol.

> > Cheers

> > in Aus, mum to scott (5mds) and emily 3(my

little ballerina)

> >

> >

> > Won't you please consider adding your personal

story on the MDS

website

> today? http://www.mosaicdownsyndrome.com

> > *************************************************

> > MDS MESSAGE BOARD -

http://www.mosaicdownsyndrome.com/discus

> > *************************************************

> >

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,

Sounds like everything is going to be just fine for in school,

and I am glad he is making friends too. I LOVE to see those little ones

dance! They are too cute for words! I hope the dancing goes well too! Love

to both your dear ones,

Barb Martz

Mom to Jonas 2 (MDS) & 7

Update

> >

> >

> > > Hi everyone,

> > >

> > > Just to add to the point about accents and such. I always have to

> > > laugh at Hogan and The Crocodile Hunter. They are so okker

> its

> > > not funny, but I must say I don't sound anything like that

> > > either,....more like the Wiggles.lol but without the singing

> voices!!

> > >

> > > has started school. Tosay was his third day. First two

> days

> > > were great and he waved happily as i left the room, but today was

> a

> > > bit grimmer, and the bottom lip dropped and he was a bit

> upset.....so

> > > was mum....but apparently as soon as i left everything was bright

> > > again, and he had a great day. The first day the only the teacher

> > > had to comment on was the fact he wouldn't eat his lunch. She is

> a

> > > big stickler that the kids eat their sandwichs first, and as they

> eat

> > > in the classroom in a circle, before being allowed out to play,

> she

> > > keeps an eagle eye on them. But he wouldn't eat AT ALL!!!! I

> told

> > > her it was just a first day thing and he was just too excited!!(It

> > > didnt stop him devouring a little pkt of twisties at play lunch in

> > > the afternoon...). Anyway, his lunchbox has been empty both these

> > > last two days, so i can't see a problem there. I have posted

> photos

> > > on the photo link with him in his uniform and a few others. One

> of

> > > the photos is with him with his little friend . She is my

> best

> > > friends daughter, and has started school too, and they have

> purposely

> > > put her in scotts class, so she can " help him out " . They love

> each

> > > other so much, and she understand him as well as me, so she can

> help

> > > the teacher if he is having trouble explaining something. She

> got a

> > > bit distressed yesterday however, when she couldnt find him at

> > > lunchtime, but he was playing with the boys....lol. We have also

> > > taken scotts training wheels off his bike, at his request, and he

> has

> > > been hooning down our footpath all arfternoon. Anyway, hope

> everyone

> > > is well, and sorry to write so much, it just kept coming lol.

> > > Cheers

> > > in Aus, mum to scott (5mds) and emily 3(my little ballerina)

> > >

> > >

> > > Won't you please consider adding your personal story on the MDS

> website

> > today? http://www.mosaicdownsyndrome.com

> > > *************************************************

> > > MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus

> > > *************************************************

> > >

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  • 1 year later...
Guest guest

...if you've got that DS specialist.. you're WAY ahead of the game~~ I

have yet to have a pediatrician for who takes anything about his Down's

seriously because he's mosaic. I wish we had a specialist with our HMO!

HMPH!!!!

Angel

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Guest guest

He was screaming, it is not really a happy scream and it is not really an angry

scream, it is just a little bit of I am annoyed, so change my scenery before I

get really mad. :)

Caden does the all over body shake also, she said she was going to ask the OT or

PT in the office--so I will be interested to see if they say anything.

Thanks for your response!

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Guest guest

Angel,

Ya I am not too worried about it, my daycare providers son has tourettes and he

punches out, so when he was little they put him into Karate because they thought

he just liked to punch the air! LOL That was before they knew his dx. I do

have that list, but mine is a hard copy, so I cannot pass it along to the

others. Caden also sees a DS specialist at Minneapolis Children's Hospital

every 6 mos. If anyone of you have the oppurtunity to see a DS specialist I

would do it. He runs all the mandatory tests and even some extra ones. He

wrote a letter to my pediatrician about the tests that he wants ran and my ped

didn't do them, so he did them and then wrote him another letter telling him

again. We will see if he can read this time. The funny thing is my ped tried

to tell me that wasn't what the letter said and I pulled out my 3 ring binder

and said oh-yes it does. I think he was in shock that I had a 3 ring binder

with me!! LOL I got a good chuckle, but I told him we would just have the DS

doctor do the test.

Thanks for the info!!

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