Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Hi Kristy, I'm having trouble finding out where I need to fill out information to be included on the mailing list. I already get all the posting (e-mails), so I thought I was a member, but when I go to the website and click on " join the mailing list " , it appears to enroll me in the group. (as if I were never a member). Help! Thanks, (mother of Annie, 20 years old July 16) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 Hey , I was just thinking of you tonight and wondering how Annie was doing! I hope that all is well and I will ask for special blessings on your family tonight as I lay down to sleep for whatever special needs you may be having. It is too much of a coincidence that thoughts of you were really weighing on me tonight and then here is a message from you. Bless You, Barb Martz Mom to Jonas 1 1/2 (MDS) & 7 Re: IMDSA Mailing list Hi Kristy, I'm having trouble finding out where I need to fill out information to beincluded on the mailing list. I already get all the posting (e-mails), so Ithought I was a member, but when I go to the website and click on "join themailing list" , it appears to enroll me in the group. (as if I were never amember). Help!Thanks, (mother of Annie, 20 years old July 16) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 Hi Barb, Thanks for your e-mail. I couldn't believe it when you said you'd be keeping my family in your prayers and that we have been on your mind. Because, it's true, our family could use your extra prayers right now. My husband's brother Tom passed away in June. He had lung cancer and we knew the prognosis was not good, but he went so fast. He was only 52. It has hit Jim (my husband) very hard because they were close. To make matters worse, his other brother Rob, was diagnosed with colon cancer about two months ago. He is having alot of trouble healing from the initial surgery and is still not able to eat. The doctors are not sure if he will ever be able to again. We have spent nearly the whole summer on the road, visiting and attending the funeral and such. Things are actually beginning to get somewhat back to normal for us. So, as you can see, we need lots of prayer right now. We have felt God's love and care throughout this ordeal and we are very thankful that Rob has turned to God for the first time in his life. Actually, we began to see him turning to God for several months before he was diagnosed, and he has found much peace through it all. Annie is doing well right now. She has been hanging out with me this summer. (I'm off because I'm a teacher). In a few weeks, she will be returning to the community center where she had so much trouble with paranoia before. We are praying she will have a better stint this time. We know of no other place for her to go at this point. Her illness has been less disruptive this summer, but it's most likely due to the very low stress and expectations she has had. The doctor says she is on as much medicine as she can safely take, so this may be as good as it gets. We still pray for a miracle. Man, this e-mail is mighty depressing. I didn't mean it to be.....I'm just so thankful for your concern and prayers and I wanted to update you on all that's going on. Sounds as if you have some pretty big things going on right now too. I'll keep you and your family in my prayers. I saw where you were going to a NC beach for vacation. (that was you wasn't it?) Anyway, it kills me because you were so close. We live in Durham, NC. I'd love to meet you. Don't you feel such a connection to the people in the group that you'd like to meet them personally? Every time I hear someone's going to be close by, I want to run right out and say " Hey " . Well, I'd better go. Annie wants to go to Staples and get a folder. She has written some long (and I mean long!) novel or something and wants to put it in a folder. I tried to read it, but it was very complex. (unorganized and hard to follow.) Talk to you later. And thanks again for thinking of us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 , I will send your problem to , our listserv, and see if she can answer your question. I am clueless to these kind of things! LOL I think if you fill out the " information sheet " at the bottom of the page in the middle it will get you on our mailing list. When you click " join our mailing list " it takes you to our e-group. So, let me forward this and hopefully can help you. Kristy --- catknapp75@... wrote: > Hi Kristy, > I'm having trouble finding out where I need to > fill out information to be > included on the mailing list. I already get all the > posting (e-mails), so I > thought I was a member, but when I go to the website > and click on " join the > mailing list " , it appears to enroll me in the > group. (as if I were never a > member). Help! > Thanks, (mother of Annie, 20 years old July > 16) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2002 Report Share Posted August 14, 2002 Kristy- I have gone to the mosiac down dymdrome site and put my name on the mailing list and I joined IMDSA. I wanted to make sure that you had our name: APPLEN. We are very interested in attending the convention. Thanks!Lynn Applen applen8@... Cell: 730 8380 Home: 608 0861 Kirsty and Craig, we are trying to get rates for travel for the convention. I will have someone check into Amtrack, but, flying from LA to Florida may be a quicker option. Kristy --- Craig wrote: > Hi a, > I checked to see if we were on list and we > wern't. I logged onto website but had problems > adding our name pc kept locking up. Is it possible > to get someone to put us on email is > turner@... Kirsty & Craig > Thank you. > Also is there someone out there who knows much about > Amtrack. We land in L.A. and were thinking of > catching the train to Orlando in a sleeper) The > fares from Australia are expensive wondering if it > was cheaper to book in America. If anyone has any > clues we would be grateful > Love > Kirsty Craig on & mds > IMDSA Mailing list > > > Hi Everyone, > We are trying to get our mailing list together for > IMDSA. Would you please look over the list here. > If > your name is not included, that means you are not > on > our mailing list! We will not be able to send you > information that we aquire. If you are not on the > list, please go to www.mosaicdownsyndrome.com and > scroll down to the bottom and fill out the > information > sheet. > Thank you, > Kristy Colvin > President IMDSA > > LAST NAME > > Agostini > > > > Barabas > > Barrett > > Bates > > Bell > > Benoit > > Blades > > Braughton > > Bredthauer > > Buie > > Burke > > Cabrera > > > > Canale-Parola > > re- > > Chandler > > > > Colvin > > Conner > > Cope > > Dailey > > > > Dehoff > > Dietz > > Doherty > > Drake > > Duffy > > Dumais > > Eckert > > > > Faust > > Ferraaro > > Fichera > > Fortwengler > > Fullarton > > Fuller > > Garrity > > Ghouse > > Giesman > > Gilmartin > > Gilmour > > Giroux > > > > Gowdey > > Green > > Greene > > Greenlee > > Grimes > > Guercio > > Gupta > > Hamlin > > Hanly > > Hannapel > > Hardin > > > > Harvill > > Hashimoto > > Heitmeyer > > > > Hougen > > > > > > Hunt > > Hyers > > Iversen > > Jablonski > > > > Johansson > > > > Khederian > > Khederian > > Laird > > Large > > Lingard > > Loveys > > ada > > Lund > > Magill > > Maguire > > Mangili > === message truncated === Won't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com ************************************************* MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus ************************************************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2002 Report Share Posted August 14, 2002 Lynn, Did you fill out the "information sheet" at the bottom of the web site? I will make a note that you are interested in the convention. Thank you for joining IMDSA. Kristy Colvin President IMDSA --- applen8@... wrote: Kristy- I have gone to the mosiac down dymdrome site and put my name on the mailing list and I joined IMDSA. I wanted to make sure that you had our name: APPLEN. We are very interested in attending the convention. Thanks!Lynn Applen applen8@... Cell: 730 8380 Home: 608 0861 Won't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com ************************************************* MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus ************************************************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2002 Report Share Posted August 14, 2002 Yes!Lynn Applen applen8@... Cell: 730 8380 Home: 608 0861 Re: IMDSA Mailing list > Lynn, Did you fill out the "information sheet" at the bottom of > the web site? I will make a note that you are interested in the > convention. Thank you for joining IMDSA.Kristy ColvinPresident > IMDSA--- applen8@... wrote: > --------------------------------- > > Kristy- > > I have gone to the mosiac down dymdrome site and put my name on > the mailing list and I joined IMDSA. I wanted to make sure that > you had our name: APPLEN. We are very interested in attending the > convention. > Thanks! > > Lynn Applen > applen8@... > Cell: 730 8380 > Home: 608 0861 > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 the convention is October 31, to Nov 2, 2003 in Kissimmee, Florida (a suburb of Orlando). More info on convention will be posted on web by November 2002, I hope. Sharon Wilt, convention chairperson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Hello My name is . I too am interested in going to the convention, however, I have seen conflicting information regarding the dates. Is the conference October, 2003 or 2002? Thank you for your help in advance. Alec's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Hi As Sharon has said the first MDS convention will be in October/November 2003. The web page has a typo on it. Sorry about that. When people were originally registering an interest in the convention, I made it clear that it was 2003 and not 2002. We have had more than 60 families registering an interest in attending the convention and they have all received e-mails enquiring about different needs. There have been quite a few new parents on here recently and they may not know what they need to do to register their interest in attending the convention. Well can I suggest that they let Sharon Wilt (slwiltjmj@...) know of their requirements as detailed below. Sharon has recently taken over the reins as Chair of the Convention Committee from myself (the hotel needed someone in the USA to deal with) and we have regular convention meetings to discuss and agree the detail of the convention. Some of the early chats are still on the website. It is hoped to release more details of the convention in the near future. Anyway, these are the details you need to give Sharon: a) Are you interested in attending the MDS convention in 2003 ? if so, how many rooms would you require (based on four people per room ie two double beds) ? c) how many people will be in your party (adults and children) ? d) how many cots/cribs would you require ? e) would you be interested in attending the Disney (and other) parks as part of the group (assuming we can obtain discounts) ? f) do any of your party have special dietary needs ? Hope this helps. Judy (Mum to 9yrs mds) UK Country rep UK Re: IMDSA Mailing list > Hello > > My name is . I too am interested in > going to the convention, however, I have seen > conflicting information regarding the dates. Is the > conference October, 2003 or 2002? > > Thank you for your help in advance. > > > > Alec's Mom > > > > Won't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com > ************************************************* > MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus > ************************************************* > Quote Link to comment Share on other sites More sharing options...
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