Guest guest Posted April 27, 2005 Report Share Posted April 27, 2005 More old information, this is good because it shows that I'm getting better. love...Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~```````` Heart problems Lea, I am a RN and find it absolutely amazing how many women with implants have heart problems. Myself included. I have always been very active and athletic until approx 1997. Then I developed similar symptoms as you. I developed shortness of breath, intolerance to just about any type of physical activity, palpitations, occasional chest pain, and a worsening of a heart murmur I've had since birth. I was worked up for every condition but a cardiac condition. Finally, a FLAIR MRI was done of my brain as the docs were trying to rule out MS. It was then that it was discovered that I'd had a left cerebellar stroke. That obviously provoked some questions, as I was only 28 at the time, and the docs were now scratching their heads wondering how someone my age had had a stroke. So that is how I was referred to a cardiologist. An echo showed an enlarged heart and mitral and tricuspid insufficiency as well as an atrial septal defect (ASD). It was believed at the time that I threw a clot through this ASD and I had to have emergent open heart surgery. When the heart surgery failed to correct my problems, my cardiac surgeon started asking more questions related to my implants. He and my neurosurgeon (of all docs!) now feel that some silicone which was embedded in my chest/breast tissue broke off and "floated" through the ASD and straight to my brain. We all know that silicone is not inert, and this makes more sense. When I had my explantation, my ps had a very difficult time removing my left implant and silicone had leaked from the shell and embedded in my tissues. Anyway, now that my implants are out, my heart problems have decreased slightly in severity. I still have an intolerance to physical activity, but I can do more than I could back in '97 and '98. I rarely have palpitations, and I no longer have SOB (shortness of breath) or chest pain. It is amazing. If only doctors would educate themselves more on implants and the effects they have on the entire body, then maybe we wouldn't be made to sound like hypochondriacs. I know that that is exactly what I was made to feel like when I complained of my symptoms. But once again, we are up against the medical establishment who vehemently denies that implants can cause systemic health problems. I just hope and pray that one of these days these doctors and other medical professionals will be apologizing to each and every one of us. Being a RN for 10 yrs, I have come to distrust the majority of medical professionals, and know how most doctors think. And until some ps' start to refuse to implant women, then I'm afraid our complaints, symptoms, and allegations of harm will continue to fall on deaf ears. I wish you the best and hope that you start feeling better. Sincerely,e, RN, BSN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 I think that I had posted this before, but here it is again....love to all........Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~``````` Heart problems Lea, I am a RN and find it absolutely amazing how many women with implants have heart problems. Myself included. I have always been very active and athletic until approx 1997. Then I developed similar symptoms as you. I developed shortness of breath, intolerance to just about any type of physical activity, palpitations, occasional chest pain, and a worsening of a heart murmur I've had since birth. I was worked up for every condition but a cardiac condition. Finally, a FLAIR MRI was done of my brain as the docs were trying to rule out MS. It was then that it was discovered that I'd had a left cerebellar stroke. That obviously provoked some questions, as I was only 28 at the time, and the docs were now scratching their heads wondering how someone my age had had a stroke. So that is how I was referred to a cardiologist. An echo showed an enlarged heart and mitral and tricuspid insufficiency as well as an atrial septal defect (ASD). It was believed at the time that I threw a clot through this ASD and I had to have emergent open heart surgery. When the heart surgery failed to correct my problems, my cardiac surgeon started asking more questions related to my implants. He and my neurosurgeon (of all docs!) now feel that some silicone which was embedded in my chest/breast tissue broke off and "floated" through the ASD and straight to my brain. We all know that silicone is not inert, and this makes more sense. When I had my explantation, my ps had a very difficult time removing my left implant and silicone had leaked from the shell and embedded in my tissues. Anyway, now that my implants are out, my heart problems have decreased slightly in severity. I still have an intolerance to physical activity, but I can do more than I could back in '97 and '98. I rarely have palpitations, and I no longer have SOB (shortness of breath) or chest pain. It is amazing. If only doctors would educate themselves more on implants and the effects they have on the entire body, then maybe we wouldn't be made to sound like hypochondriacs. I know that that is exactly what I was made to feel like when I complained of my symptoms. But once again, we are up against the medical establishment who vehemently denies that implants can cause systemic health problems. I just hope and pray that one of these days these doctors and other medical professionals will be apologizing to each and every one of us. Being a RN for 10 yrs, I have come to distrust the majority of medical professionals, and know how most doctors think. And until some ps' start to refuse to implant women, then I'm afraid our complaints, symptoms, and allegations of harm will continue to fall on deaf ears. I wish you the best and hope that you start feeling better. Sincerely,e, RN, BSN Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 Dearest Friends: I wrote to e and my note came back. I wonder if any of you ladies might know what has happened to her. Love always........Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~``````` Heart problems Lea, I am a RN and find it absolutely amazing how many women with implants have heart problems. Myself included. I have always been very active and athletic until approx 1997. Then I developed similar symptoms as you. I developed shortness of breath, intolerance to just about any type of physical activity, palpitations, occasional chest pain, and a worsening of a heart murmur I've had since birth. I was worked up for every condition but a cardiac condition. Finally, a FLAIR MRI was done of my brain as the docs were trying to rule out MS. It was then that it was discovered that I'd had a left cerebellar stroke. That obviously provoked some questions, as I was only 28 at the time, and the docs were now scratching their heads wondering how someone my age had had a stroke. So that is how I was referred to a cardiologist. An echo showed an enlarged heart and mitral and tricuspid insufficiency as well as an atrial septal defect (ASD). It was believed at the time that I threw a clot through this ASD and I had to have emergent open heart surgery. When the heart surgery failed to correct my problems, my cardiac surgeon started asking more questions related to my implants. He and my neurosurgeon (of all docs!) now feel that some silicone which was embedded in my chest/breast tissue broke off and "floated" through the ASD and straight to my brain. We all know that silicone is not inert, and this makes more sense. When I had my explantation, my ps had a very difficult time removing my left implant and silicone had leaked from the shell and embedded in my tissues. Anyway, now that my implants are out, my heart problems have decreased slightly in severity. I still have an intolerance to physical activity, but I can do more than I could back in '97 and '98. I rarely have palpitations, and I no longer have SOB (shortness of breath) or chest pain. It is amazing. If only doctors would educate themselves more on implants and the effects they have on the entire body, then maybe we wouldn't be made to sound like hypochondriacs. I know that that is exactly what I was made to feel like when I complained of my symptoms. But once again, we are up against the medical establishment who vehemently denies that implants can cause systemic health problems. I just hope and pray that one of these days these doctors and other medical professionals will be apologizing to each and every one of us. Being a RN for 10 yrs, I have come to distrust the majority of medical professionals, and know how most doctors think. And until some ps' start to refuse to implant women, then I'm afraid our complaints, symptoms, and allegations of harm will continue to fall on deaf ears. I wish you the best and hope that you start feeling better. Sincerely,e, RN, BSN Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 Lea, I think e is still around . . . although I haven't heard from her in a long time. . . Someone, maybe Ilena, mentioned her sometime this past year. Do you still have the link to her website? . . .she may have updated her email address there. Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2007 Report Share Posted May 24, 2007 Oh, thank you, Rogene: I have been so worried about her, and I did not know that she had a website. I will send this to Ilena, because I would love to know how e is doing. Honey, do you still have fatigue? We worry about you, and would love to see you dancing and doing your pottery. Love you always..........Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~````` Re: Fw: Fw: Heart problems] Lea, I think e is still around . . . although I haven't heard from her in a long time. . . Someone, maybe Ilena, mentioned her sometime this past year. Do you still have the link to her website? . . .she may have updated her email address there. Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Lea, I'm dong great . . . we're in Fort Worth for my grandson's graduation today, The fatigue I experience is fleeting . . . It occcurs when I'm exerting myself and, if I rest a few minutes, I'm good to go again. . . Not a serious issue. The doctor said my lungs were OK . . that I need to do some cardiac conditioning. Rogene Quote Link to comment Share on other sites More sharing options...
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