Guest guest Posted April 27, 2005 Report Share Posted April 27, 2005 Dear Lea, You've gone through so much! I wish there was a simple answer to your problems. I suspect that you have considerable nerve damage . . . the numbness and vibrations sound like nerve damage. However, nerves do improve with time and healthy living. Sometimes it seems like forever. Patty had some ideas earlier today about burning tongue sensations . . . You might check that out . . . Also, have you considered contacting Dr. Leu? You might find an overall evaluation from a naturopathic standpoint very helpful. I know you've just about squeezed just about everything the medical profession knows out of your doctors. Are the knots on your fingers at the joints? I am familiar with this . . . I have a genetic arthritic condition . . . my mother and both my siblings have this form of arthritis. Actually, mine is minor compared to my sister who has worked with hair dressing chemicals all her adult life. Looking at her hands with the palm up, her hands look almost normal, but from the top, they look deformed. This particular arthritis doesn't cause me any pain, unless a joint gets squeezed! . . . My sister has lost considerable movement, but I've lost very little. My mother (92) has knuckles that, even though she's skin and bone, are so large she can't remove her rings. I thought the article I posted the other day on cinnamon was interesting. I'm adding a teaspoon of cinnamon to my daily diet to see if this has any effect. Hugs, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 Hello again, Lea! Have you ever been diagnosed with Lupus? Both C3 and C4 can be indicators of Lupus and other illness. Have you already been diagnosed with Carcinoid Syndrome and Pheochromocytoma? Kenda Carcinoid Syndrome Background: Malignant carcinoid syndrome is the constellation of symptoms typically exhibited by patients with metastases from carcinoid tumors. These tumors usually secrete excessive amounts of the hormone serotonin. The carcinoid tumors arise from neuroendocrine cells, which are widespread in the human body, especially in the organs derived from the primitive intestine. In 1907, Oberndorfer called a group of small, benign-appearing tumors karzinoide tumoren (carcinoid). The name was chosen to separate these tumors from ordinary malignancies, but, by the 1950s, the fact that carcinoids could be malignant was obvious. These intensely vascularized tumors follow the so-called " rule of one third, " which states that one third of the tumors are multiple, one third of those in the GI tract are located in the small bowel, one third have a second malignancy, and one third metastasize. In fact, some of the tumors produce hormones excessively, determining a condition known as malignant carcinoid syndrome. This syndrome is characterized by hot red flushing of the face, severe and debilitating diarrhea, and asthma attacks. Malignant carcinoid syndrome occurs in less than 10% of patients with a carcinoid tumor. Typically, 90% of the cases originate from the distal ileum or appendix (the embryologic midgut) and represent 90% of appendiceal tumors. And What is pheochromocytoma? Pheochromocytoma is a tumor of the adrenal medulla that produces excess adrenaline. It can be a deadly tumor because of the severe elevation in blood pressure it causes. It usually is not cancerous but may be associated with cancerous tumors in other endocrine glands such as the thyroid. C3 Normal Values: The normal range is 75-135 mg/dl (milligrams per deciliter). Complement activity (CH50, CH100, terminal complement component, or individual complement proteins) is measured to determine if complement is involved in the development of a number of diseases. Complement activity is also measured to monitor how severe a disease is or to determine if treatment is working. For example, patients with active lupus erythematosus may have low levels of C3 and C4, and these component levels may be watched as an indicator of disease activity. Patients with gram negative septicemia and shock often have very low or no C3, and C3 is often also low in fungal infections and some parasitic infections such as malaria. Red blood cells from patients with paroxysmal nocturnal hemoglobinuria (PNH) carry more C3 than do normal cells. C4 Complement activity (CH50, CH100, terminal complement component, or individual complement proteins) is measured to determine if complement is involved in the development of a disease. Complement activity is also measured to monitor how severe a disease is, or if treatment is working. For example, patients with active systemic lupus erythematosus may have lower-than-normal levels of C3 and C4, and these component levels may be monitored as a rough index of disease activity. Normal Results Females: 13 to 75 mg/dl (130 to 750 mg/L) What Abnormal Results Mean Increased complement activity may be seen in: * Cancer * Ulcerative colitis Decreased complement activity may be seen in: * Hereditary angioedema * Bacterial infections (especially Neisseria) * Cirrhosis * Glomerulonephritis * Hepatitis * Lupus nephritis * Malnutrition * Kidney transplant rejection * Systemic lupus erythematosus Could some one please tell me what Ferritin is because I found it in my blood work, it is 260...Ug/L. Iron deficient >12 ug/L, and a quote from an Endocrinologist regarding my flushing and night swerats, he said that my history of carcinoid syndrome, pheochromocytoma, etc causing would have to be most unusual!! My C3 is 1.73 and my C4 is 0.39, TSH 3.45, Cortisol AM 279. What does this all mean? I wish that I had become a doctor. Our Kenda might want to comment on this. One good thing is that my liver is back to normal, it was way over 0.400 and now since my implants are gone it is 0.11!! Love to all....Lea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 Dearest Kenda: I do have lupus, and I fired this doctor because he was in collusion with my plastic surgeon. After I had my breast implants removed, I became much sicker. I was so very sick before my explant, but if the doctors had cleaned me out properly in the first surgery I might have had a better chance at getting well. As you might know, my first set were thin-shelled Dow silicone gel and the second were the deadly polyurethane. The results that I gave you today were from 1996, and all of my health problems got much worse after that. The endocrinologist did not see me again, because he did not want to hear about breast implants. I now stay with my family doctor and the doctor from Cross Cancer and my other specialists. Thank you, Kenda, and if you want me to frighten you, I could give you blood results from 2000. We went to the hospital and demanded all of my medical records from the first pulmonary embolism in 1999. This was not good news. The one thing we know is that I am getting better, even when I have these flares. My rheumatologist is wonderful, and he plans on doing many more tests, even platinum testing for Dr. Lykissa. Thank you so much for all the information that you sent! You are an angel! Love you....Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`` Re: Lea Hello again, Lea!Have you ever been diagnosed with Lupus? Both C3 and C4 can be indicators of Lupus and other illness. Have you already been diagnosed with Carcinoid Syndrome and Pheochromocytoma?KendaCarcinoid SyndromeBackground: Malignant carcinoid syndrome is the constellation of symptoms typically exhibited by patients with metastases from carcinoid tumors. These tumors usually secrete excessive amounts of the hormone serotonin. The carcinoid tumors arise from neuroendocrine cells, which are widespread in the human body, especially in the organs derived from the primitive intestine. In 1907, Oberndorfer called a group of small, benign-appearing tumors karzinoide tumoren (carcinoid). The name was chosen to separate these tumors from ordinary malignancies, but, by the 1950s, the fact that carcinoids could be malignant was obvious. These intensely vascularized tumors follow the so-called "rule of one third," which states that one third of the tumors are multiple, one third of those in the GI tract are located in the small bowel, one third have a second malignancy, and one third metastasize. In fact, some of the tumors produce hormones excessively, determining a condition known as malignant carcinoid syndrome. This syndrome is characterized by hot red flushing of the face, severe and debilitating diarrhea, and asthma attacks. Malignant carcinoid syndrome occurs in less than 10% of patients with a carcinoid tumor. Typically, 90% of the cases originate from the distal ileum or appendix (the embryologic midgut) and represent 90% of appendiceal tumors. AndWhat is pheochromocytoma?Pheochromocytoma is a tumor of the adrenal medulla that produces excess adrenaline. It can be a deadly tumor because of the severe elevation in blood pressure it causes. It usually is not cancerous but may be associated with cancerous tumors in other endocrine glands such as the thyroid.C3 Normal Values: The normal range is 75-135 mg/dl (milligrams per deciliter).Complement activity (CH50, CH100, terminal complement component, or individual complement proteins) is measured to determine if complement is involved in the development of a number of diseases. Complement activity is also measured to monitor how severe a disease is or to determine if treatment is working. For example, patients with active lupus erythematosus may have low levels of C3 and C4, and these component levels may be watched as an indicator of disease activity.Patients with gram negative septicemia and shock often have very low or no C3, and C3 is often also low in fungal infections and some parasitic infections such as malaria. Red blood cells from patients with paroxysmal nocturnal hemoglobinuria (PNH) carry more C3 than do normal cells.C4Complement activity (CH50, CH100, terminal complement component, or individual complement proteins) is measured to determine if complement is involved in the development of a disease. Complement activity is also measured to monitor how severe a disease is, or if treatment is working.For example, patients with active systemic lupus erythematosus may have lower-than-normal levels of C3 and C4, and these component levels may be monitored as a rough index of disease activity.Normal Results Females: 13 to 75 mg/dl (130 to 750 mg/L)What Abnormal Results Mean Increased complement activity may be seen in:* Cancer * Ulcerative colitisDecreased complement activity may be seen in: * Hereditary angioedema* Bacterial infections (especially Neisseria) * Cirrhosis* Glomerulonephritis* Hepatitis* Lupus nephritis* Malnutrition * Kidney transplant rejection * Systemic lupus erythematosus Could some one please tell me what Ferritin is because I found it in my blood work, it is 260...Ug/L. Iron deficient >12 ug/L, and a quote from an Endocrinologist regarding my flushing and night swerats, he said that my history of carcinoid syndrome, pheochromocytoma, etc causing would have to be most unusual!! My C3 is 1.73 and my C4 is 0.39, TSH 3.45, Cortisol AM 279. What does this all mean? I wish that I had become a doctor. Our Kenda might want to comment on this. One good thing is that my liver is back to normal, it was way over 0.400 and now since my implants are gone it is 0.11!!Love to all....Lea Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 Hi Lea, So the lab work was measuring your C4 and C5 for Lupus. I wonder what the doctor’s note meant. Is there any type of poly urethane sensitivity test that is available? If there was, it would be really simple to prove that you reacted to the implants. I’d guess that the implant manufacturers don’t want something like that to become available. What does your 2000 lab work contain that is so frightening? I’d love to see it, if you want to share. You’re very welcome, Lea. If there is ever anything I can do to help you, please let me know. Kenda Dearest Kenda: I do have lupus, and I fired this doctor because he was in collusion with my plastic surgeon. After I had my breast implants removed, I became much sicker. I was so very sick before my explant, but if the doctors had cleaned me out properly in the first surgery I might have had a better chance at getting well. As you might know, my first set were thin-shelled Dow silicone gel and the second were the deadly polyurethane. The results that I gave you today were from 1996, and all of my health problems got much worse after that. The endocrinologist did not see me again, because he did not want to hear about breast implants. I now stay with my family doctor and the doctor from Cross Cancer and my other specialists. Thank you, Kenda, and if you want me to frighten you, I could give you blood results from 2000. We went to the hospital and demanded all of my medical records from the first pulmonary embolism in 1999. This was not good news. The one thing we know is that I am getting better, even when I have these flares. My rheumatologist is wonderful, and he plans on doing many more tests, even platinum testing for Dr. Lykissa. Thank you so much for all the information that you sent! You are an angel! Love you....Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`` Re: Lea Hello again, Lea! Have you ever been diagnosed with Lupus? Both C3 and C4 can be indicators of Lupus and other illness. Have you already been diagnosed with Carcinoid Syndrome and Pheochromocytoma? Kenda Carcinoid Syndrome Background: Malignant carcinoid syndrome is the constellation of symptoms typically exhibited by patients with metastases from carcinoid tumors. These tumors usually secrete excessive amounts of the hormone serotonin. The carcinoid tumors arise from neuroendocrine cells, which are widespread in the human body, especially in the organs derived from the primitive intestine. In 1907, Oberndorfer called a group of small, benign-appearing tumors karzinoide tumoren (carcinoid). The name was chosen to separate these tumors from ordinary malignancies, but, by the 1950s, the fact that carcinoids could be malignant was obvious. These intensely vascularized tumors follow the so-called " rule of one third, " which states that one third of the tumors are multiple, one third of those in the GI tract are located in the small bowel, one third have a second malignancy, and one third metastasize. In fact, some of the tumors produce hormones excessively, determining a condition known as malignant carcinoid syndrome. This syndrome is characterized by hot red flushing of the face, severe and debilitating diarrhea, and asthma attacks. Malignant carcinoid syndrome occurs in less than 10% of patients with a carcinoid tumor. Typically, 90% of the cases originate from the distal ileum or appendix (the embryologic midgut) and represent 90% of appendiceal tumors. And What is pheochromocytoma? Pheochromocytoma is a tumor of the adrenal medulla that produces excess adrenaline. It can be a deadly tumor because of the severe elevation in blood pressure it causes. It usually is not cancerous but may be associated with cancerous tumors in other endocrine glands such as the thyroid. C3 Normal Values: The normal range is 75-135 mg/dl (milligrams per deciliter). Complement activity (CH50, CH100, terminal complement component, or individual complement proteins) is measured to determine if complement is involved in the development of a number of diseases. Complement activity is also measured to monitor how severe a disease is or to determine if treatment is working. For example, patients with active lupus erythematosus may have low levels of C3 and C4, and these component levels may be watched as an indicator of disease activity. Patients with gram negative septicemia and shock often have very low or no C3, and C3 is often also low in fungal infections and some parasitic infections such as malaria. Red blood cells from patients with paroxysmal nocturnal hemoglobinuria (PNH) carry more C3 than do normal cells. C4 Complement activity (CH50, CH100, terminal complement component, or individual complement proteins) is measured to determine if complement is involved in the development of a disease. Complement activity is also measured to monitor how severe a disease is, or if treatment is working. For example, patients with active systemic lupus erythematosus may have lower-than-normal levels of C3 and C4, and these component levels may be monitored as a rough index of disease activity. Normal Results Females: 13 to 75 mg/dl (130 to 750 mg/L) What Abnormal Results Mean Increased complement activity may be seen in: * Cancer * Ulcerative colitis Decreased complement activity may be seen in: * Hereditary angioedema * Bacterial infections (especially Neisseria) * Cirrhosis * Glomerulonephritis * Hepatitis * Lupus nephritis * Malnutrition * Kidney transplant rejection * Systemic lupus erythematosus Could some one please tell me what Ferritin is because I found it in my blood work, it is 260...Ug/L. Iron deficient >12 ug/L, and a quote from an Endocrinologist regarding my flushing and night swerats, he said that my history of carcinoid syndrome, pheochromocytoma, etc causing would have to be most unusual!! My C3 is 1.73 and my C4 is 0.39, TSH 3.45, Cortisol AM 279. What does this all mean? I wish that I had become a doctor. Our Kenda might want to comment on this. One good thing is that my liver is back to normal, it was way over 0.400 and now since my implants are gone it is 0.11!! Love to all....Lea Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. " Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world. " - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 Honey: Thank you for your help. I will scan the bloodwork from 2000. My doctor was so upset that I was released from the hospital in my condition. They claimed that I had walking pneumonia and chronic asthma/bronchitis, but it was a severe respiratory attack, and they had a respiratory therapist stay by my bed. It turned out to be another PE; however, this was not documented in my files. A doctor who took me for a walk to see if I was well enough to go home told me that he suspected that it was another PE. My white blood count was high, and when I walked I felt as if I was walking on foam...it was so weird. The PE in 1999 was documented, but it was just ignored because the blood clot went away the next day. The doctor in the ER told us that I had a blood clot and that I could die in the parking lot...and then sent me home after telling me this! He said come back in the morning and we will do a scan. That night I looked at my children's pictures and our little cats thinking that I could die in the night. We reported this doctor, and I found out later that he was hurried into retirement. I took so much abuse in the nineties, but it changed me, and they knew that I would report any abuse to the top...and did. The doctors at the same hospital treat me with respect, and they now believe that my silicone breast implants have destroyed my health. I now have a pulmonary specialist, a cardiologist, a rheumatologist and some other doctors at the same university where all the abuse took place. They are very interested in my case because of the silicone. told them in the ER that I was a research paper waiting to be written, and they said that it had been done!! Most of this is in my story. I will scan some bloodwork later. I see our dentist tomorrow morning, and because I have MVP he has me on a massive dose of Amoxicillin starting today before he cleans my teeth. Love you....Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~``````` Re: Lea Hello again, Lea!Have you ever been diagnosed with Lupus? Both C3 and C4 can be indicators of Lupus and other illness. Have you already been diagnosed with Carcinoid Syndrome and Pheochromocytoma?KendaCarcinoid SyndromeBackground: Malignant carcinoid syndrome is the constellation of symptoms typically exhibited by patients with metastases from carcinoid tumors. These tumors usually secrete excessive amounts of the hormone serotonin. The carcinoid tumors arise from neuroendocrine cells, which are widespread in the human body, especially in the organs derived from the primitive intestine. In 1907, Oberndorfer called a group of small, benign-appearing tumors karzinoide tumoren (carcinoid). The name was chosen to separate these tumors from ordinary malignancies, but, by the 1950s, the fact that carcinoids could be malignant was obvious. These intensely vascularized tumors follow the so-called "rule of one third," which states that one third of the tumors are multiple, one third of those in the GI tract are located in the small bowel, one third have a second malignancy, and one third metastasize. In fact, some of the tumors produce hormones excessively, determining a condition known as malignant carcinoid syndrome. This syndrome is characterized by hot red flushing of the face, severe and debilitating diarrhea, and asthma attacks. Malignant carcinoid syndrome occurs in less than 10% of patients with a carcinoid tumor. Typically, 90% of the cases originate from the distal ileum or appendix (the embryologic midgut) and represent 90% of appendiceal tumors. AndWhat is pheochromocytoma?Pheochromocytoma is a tumor of the adrenal medulla that produces excess adrenaline. It can be a deadly tumor because of the severe elevation in blood pressure it causes. It usually is not cancerous but may be associated with cancerous tumors in other endocrine glands such as the thyroid.C3 Normal Values: The normal range is 75-135 mg/dl (milligrams per deciliter).Complement activity (CH50, CH100, terminal complement component, or individual complement proteins) is measured to determine if complement is involved in the development of a number of diseases. Complement activity is also measured to monitor how severe a disease is or to determine if treatment is working. For example, patients with active lupus erythematosus may have low levels of C3 and C4, and these component levels may be watched as an indicator of disease activity.Patients with gram negative septicemia and shock often have very low or no C3, and C3 is often also low in fungal infections and some parasitic infections such as malaria. Red blood cells from patients with paroxysmal nocturnal hemoglobinuria (PNH) carry more C3 than do normal cells.C4Complement activity (CH50, CH100, terminal complement component, or individual complement proteins) is measured to determine if complement is involved in the development of a disease. Complement activity is also measured to monitor how severe a disease is, or if treatment is working.For example, patients with active systemic lupus erythematosus may have lower-than-normal levels of C3 and C4, and these component levels may be monitored as a rough index of disease activity.Normal Results Females: 13 to 75 mg/dl (130 to 750 mg/L)What Abnormal Results Mean Increased complement activity may be seen in:* Cancer * Ulcerative colitisDecreased complement activity may be seen in: * Hereditary angioedema* Bacterial infections (especially Neisseria) * Cirrhosis* Glomerulonephritis* Hepatitis* Lupus nephritis* Malnutrition * Kidney transplant rejection * Systemic lupus erythematosus Could some one please tell me what Ferritin is because I found it in my blood work, it is 260...Ug/L. Iron deficient >12 ug/L, and a quote from an Endocrinologist regarding my flushing and night swerats, he said that my history of carcinoid syndrome, pheochromocytoma, etc causing would have to be most unusual!! My C3 is 1.73 and my C4 is 0.39, TSH 3.45, Cortisol AM 279. What does this all mean? I wish that I had become a doctor. Our Kenda might want to comment on this. One good thing is that my liver is back to normal, it was way over 0.400 and now since my implants are gone it is 0.11!!Love to all....Lea Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace) Quote Link to comment Share on other sites More sharing options...
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