Re: Supp: Re: Doctor's Visit

[Guest guest]

Some of you have asked me to keep you informed. After the debacle with

the Rheumatologist I visited in July, who wouldn't listen to me, but

instead began telling me what symptoms I was having (regardless of what

symptoms I was really having), I decided to go back to my own Internist

in town. Driving for hours to see specialist isn't always necessary if

you have an informed and compassionate doctor who will seek information

from medical resources and act on that information. I wrote up my

medications, symptoms, etc., and handed them to my doctor when I went

in. He complimented me on the " professional " summary and asked if he

could put it in my file. He took information I had downloaded on

protocol for Minocin and wrote out a prescription I will begin taking

after current urethritis/cystitis/prostatitis has been treated with

Cipro. He is sending me to PT for left ankle which keeps giving way.

Last night I took a tumble down the stairs when it decided not to

support me any longer. Same thing has happened elsewhere, several times

at church. I know they all think I must be drinking to be " lurching " so

much. The rheumatologist totally disregarded the above complaints, and

took me off of the Feldene which only caused my flare-up to get more

intense. The difference between the two doctors is unbelievable! Good

hunting for the best doctor you can find.

Ray in Virginia, just over the mountain from Asheville, N.C.

----------------------------------------------------

Reach me by ICQ. My ICQ# is 14278868 or,

* Page me online through my Personal Communication Center:

http://wwp.mirabilis.com/14278868 (go there and try it!) or,

* Send me E-mail Express directly to my computer screen

14278868@...

For downloading ICQ at http://www.icq.com/

Ray in Virginia

[Guest guest]

Ray,

Glad to hear what went on with the doc & about the Minocin. Did a little

searching on Reiter's and found chlamydia associated with it in about 30%

of instances in a number of studies. This was in the back of my mind, but

couldn't quite get it on paper & out to you.

Hope the new Rx helps. I think it will. I probably contracted same a long

time ago, untreated, and it took place before I had truly significant

problems. Rheumatologist attributed my AS to a history of chronic strep,

but now I think it was more likely the spore infection, which remained for

a long time & was untreated because I was told " men don't get that. "

There seems to be a lot of inattention to incidence in men of diseases

women get more commonly. Afriend of mine back in NY (man) had to have a

mastectomy due to breast cancer, & it turns out there is about 25% chance

of occurrence in men compared to women. Boy, is he mad. Permanently!

Ken

Ken

At 04:02 PM 9/3/98 -0400, you wrote:

>

>

>Some of you have asked me to keep you informed. After the debacle with

>the Rheumatologist I visited in July, who wouldn't listen to me, but

>instead began telling me what symptoms I was having (regardless of what

>symptoms I was really having), I decided to go back to my own Internist

>in town. Driving for hours to see specialist isn't always necessary if

>you have an informed and compassionate doctor who will seek information

>from medical resources and act on that information. I wrote up my

>medications, symptoms, etc., and handed them to my doctor when I went

>in. He complimented me on the " professional " summary and asked if he

>could put it in my file. He took information I had downloaded on

>protocol for Minocin and wrote out a prescription I will begin taking

>after current urethritis/cystitis/prostatitis has been treated with

>Cipro. He is sending me to PT for left ankle which keeps giving way.

>Last night I took a tumble down the stairs when it decided not to

>support me any longer. Same thing has happened elsewhere, several times

>at church. I know they all think I must be drinking to be " lurching " so

>much. The rheumatologist totally disregarded the above complaints, and

>took me off of the Feldene which only caused my flare-up to get more

>intense. The difference between the two doctors is unbelievable! Good

>hunting for the best doctor you can find.

>Ray in Virginia, just over the mountain from Asheville, N.C.

>----------------------------------------------------

>Reach me by ICQ. My ICQ# is 14278868 or,

>* Page me online through my Personal Communication Center:

>http://wwp.mirabilis.com/14278868 (go there and try it!) or,

>* Send me E-mail Express directly to my computer screen

>14278868@...

>For downloading ICQ at http://www.icq.com/

>Ray in Virginia

>

>

>

>------------------------------------------------------------------------

>

[Guest guest]

Ken,

I've had symptoms of Reiters since before age 15, as early as age 12

according to my parents. Most likely cause in my case, i.e., most

likely trigger, was intestinal infections. Had them frequently as a

child and teenager. Diagnosed at age 25. Minocycline, etc., is being

prescribed. Apparently works on mycoplasms in joints, tendons, etc.

Can lead to a remission, but usually takes 3-5 years of constantly

taking med. That may seem like a long time, but after putting up with

Reiters for years, and years (am now 49) to wait 3-5 years for remission

doesn't seem too long. I've gone downhill so fast in last two years...

Thanks for your encouragement.

Ray

----------------------------------------------------

>

>

>Ray,

>

> Glad to hear what went on with the doc & about the Minocin. Did a

little

>searching on Reiter's and found chlamydia associated with it in about

30%

>of instances in a number of studies. This was in the back of my mind,

but

>couldn't quite get it on paper & out to you.

>

> Hope the new Rx helps. I think it will. I probably contracted same a

long

>time ago, untreated, and it took place before I had truly significant

>problems. Rheumatologist attributed my AS to a history of chronic

strep,

>but now I think it was more likely the spore infection, which remained

for

>a long time & was untreated because I was told " men don't get that. "

>

> There seems to be a lot of inattention to incidence in men of diseases

>women get more commonly. Afriend of mine back in NY (man) had to have a

>mastectomy due to breast cancer, & it turns out there is about 25%

chance

>of occurrence in men compared to women. Boy, is he mad. Permanently!

>

> Ken

>