Guest guest Posted April 14, 2005 Report Share Posted April 14, 2005 Just a bit of info on Fibromyalgia. FM is a syndrome, not a disease. A syndrome is a collection of symptoms that have enough in common to be given a name. A sleep disorder goes hand and glove with FM. . . In one study, the found that they could cause FM in anyone by depriving them of sleep. However, after catching up on their sleep, some people KEPT the FM symptoms, where others became symptom free. FM frequently begins after a major life stressor. . . An accident, and illness, or stress like that caused by a family death. IMHO . . . what these have in common is that all of these can cause one to lose sleep! FM is diagnosed by pain in 11 of 18 pressure points on the body. These points are where muscles come together to connect to the bone. With FM, the membrane that covers the muscle becomes very tight. . . This causes the muscle to pull agains the joints and feels like joint pain. Treatment needs to be multi-faceted. . Getting sufficient deep sleep is essential! . . . There are a number of methods to try . . . relaxation techniques, hot baths, Sleep Time tea . . . on a temporary basis, Melatonin, i.e. whatever it takes to get deep sleep. I take Temazapam, 15mg. Although it's not recommended for use over a long period, I've been taking it, with my doctor's blessings, for years with no disernable side effects. Deep massage therapy is essential for me. . . every two weeks. . . I don't consider it a luxury, but a necessity. Initially massage is very painful because the therapist is stretching that membrane . . . with regular massage, it's much better. Massage therapists have told me that a FM client starts out feeling as though they have very strong muscles, and end up feeling mushy. Supplementing with Magnesium can be very helpful. My computer, with it's links, is in the shop. I've posted Dr. Mannesmann's Magnesium Research Lab web address a number of times but can't find it now. The body stores 20% of it's magnesium in the muscles. Being deficient can cause added muscle pain. You need a supplement that has two parts Calcium to one part Magnesium to be effective. Observing a healthy diet is important. Exercising - as in keep moving - is important. Too many people with FM go to bed, or sit around, think they will get better . . . actually, the more you rest, the worse you hurt! There are books and support groups for FM . . . If you get into a support group, be sure it's a postive one that works towards healing, not one that dwells on the negatives! Learning to manage stress and anger is extremely important as well. For my self, I've reached a point where I wouldn't know that I have FM . . . neither would my massage therapist. However, if I fail to observe any single part of my " program " , it can come back with a vengence! My analogy for it is walking a balance beam. As long as I keep everything in balance, I do fine. But if any single aspect of my life gets off balance, I can fall. My goal is to get the beam as wide and as close to the floor as possible. There are probably a few things I've missed . . . like using a far infrared sauna that can help too . . . Maybe some other ladies would like to add their observations/suggestions! Hugs to all, Rogene Quote Link to comment Share on other sites More sharing options...
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