Guest guest Posted May 14, 1998 Report Share Posted May 14, 1998 Greetings: Here are some sites you can look at. 1. http://www.barryd.com/addition.htm 2. http://www.mhmet.org/guide/lupus.htm 3. http://members.aol.com/mycircle/index.htm Hope this helps. Blessings and Peace E. Darwent Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 1998 Report Share Posted October 4, 1998 I have RA which is very close to lupus and my daughter has lupus. I will send everything I have. Let me explain chemo drug for arthritis(lupus, is a form of arthritis). They have found that lesser amounts of chemo drugs than used in cancer can modify or slow down the disease. Sometimes even into remission. They are called DMARDS, disease modifyers. There are many, methotrexate, imuran neoral, plaquenil, chlormabucil , cyclosporine...they do have side effects, yes, but they are the only way to stop the progression of the disease. Lupus can kill, becuase it will attack the internal organ system before RA for instance will. He needs to be encouraged to go on the DMARDS as SOON as possible. They will obviously haveto choose carefully which one as to his liver problems, but it can done. Cortisone can also be given IV, called Solu-medrol, or methylprednisalone. That can give up to amonth of some relief. He needs also to be on stronger pain meds. I have had RA for almost 16 years with no remission, and I use percocet every 4 hours, roxycodone for breakthru pain, and a fentanyl pain patch every day. Plus they are now installying the morphine pumps in the spine for arthritis conditions. I would say his best bet is to get a new rheumatologist first , and then get checked into a hospital to get this flare under control and get on some stable meds. I will send him all the info I have. Love Lyn That which happens in life is not as important as how you accept it. http://home.talkcity.com/spiritcir/lynmari/index.html Dachsie B'day Page: http://members.tripod.com/~Lynmari/DACHSHUND Join the arthritis warriors at: http://www.onelist.com/subscribe.cgi/rheumathritis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 1998 Report Share Posted October 4, 1998 What's a " detox bath " ? ~››~››~››~››~›› Did you really live today or were you merely passing time?. ‹‹§‹‹§‹‹§‹‹§‹‹§‹‹§ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 1998 Report Share Posted October 4, 1998 Dear Sweet Lyn, Thanks sooooo much. I will alert him. I think he needs to be on this list too. I feel so sorry for him. My sister is an RN and can give him anything at home, but she seems to be at a loss as to what to do. Her health is not all that great...she is full of calcium deposits and still driving 100 mi a day to Paris Tx to work on the floor in hospital there. Her expertise for years was in CCU, and she can tell you all about that, but they sure need help here. I have been trying to get them OFF the fats and other junk for quite some time. I told Leon that he had autoimmune disease of some sort long before the Docs finally dx'd it. Recognized the symptoms. Thanks a bunch agin buddy! And you better listen to the Doctors too and do what you are told to do...I may have to come up there and sit on you! *L* If you like to read, let me suggest " Songs In Ordinary Time " by McGarry . It was an " Oprah " selection and is a super good book for whiling away the hours. It took me a little bit to get into it, but once I did I was gone...did not want it to end. Warm fuzzy HUGS! Di Lynda Gottschalk wrote: > From: lynmari@... (Lynda Gottschalk) > > I have RA which is very close to lupus and my daughter has lupus. I will > send everything I have. > Let me explain chemo drug for arthritis(lupus, is a form of arthritis). > They have found that lesser amounts of chemo drugs than used in cancer > can modify or slow down the disease. Sometimes even > into remission. They are called DMARDS, disease modifyers. There are > many, methotrexate, imuran neoral, plaquenil, > chlormabucil , cyclosporine...they do have side effects, yes, but they > are the only way to stop the progression of the disease. Lupus can kill, > becuase it will attack the internal organ system before RA for instance > will. He needs to be encouraged to go on the DMARDS as SOON as possible. > They will obviously haveto choose carefully which one as to his liver > problems, but it can done. Cortisone can also be given IV, called > Solu-medrol, or methylprednisalone. That can give up to amonth of some > relief. He needs also to be on stronger pain meds. I have had RA for > almost 16 years with no remission, and I use percocet every 4 hours, > roxycodone for breakthru pain, and a fentanyl pain patch every day. Plus > they are now installying the morphine pumps in the spine for arthritis > conditions. I would say his best bet is to get a new rheumatologist > first , and then get checked into a hospital to get this flare under > control and get on some stable meds. I will send him all the info I > have. > Love Lyn > > That which happens in life is not as important as how you accept it. > http://home.talkcity.com/spiritcir/lynmari/index.html > Dachsie B'day Page: http://members.tripod.com/~Lynmari/DACHSHUND > Join the arthritis warriors at: > http://www.onelist.com/subscribe.cgi/rheumathritis > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 1998 Report Share Posted October 4, 1998 Andy, I use emsom salts and baking soda in a good hot bath. You know how you used to soak sprains, etc. in epsom salts? Matter of fact, did too much walking today and plantar fascitis is kicking up, so headed to soak my feet now. There is some good info on detoxing at www.dorway.com *S* Di A. wrote: > From: Andy24747@... (A. ) > > What's a " detox bath " ? > > > ~››~››~››~››~›› > Did you really live today or were you merely passing time?. > ‹‹§‹‹§‹‹§‹‹§‹‹§‹‹§ > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 1998 Report Share Posted October 4, 1998 Also, he either has to make permanent travel arrangement or get a local doc who can cooperate with a good specialist, if there are none in immediate area. Yes, I know asking 2 dox to talk to each other is crazy. Especially when only 1 can bill. Ken At 09:43 AM 10/4/98 -0500, you wrote: >From: lynmari@... (Lynda Gottschalk) > >I have RA which is very close to lupus and my daughter has lupus. I will >send everything I have. >Let me explain chemo drug for arthritis(lupus, is a form of arthritis). >They have found that lesser amounts of chemo drugs than used in cancer >can modify or slow down the disease. Sometimes even >into remission. They are called DMARDS, disease modifyers. There are >many, methotrexate, imuran neoral, plaquenil, >chlormabucil , cyclosporine...they do have side effects, yes, but they >are the only way to stop the progression of the disease. Lupus can kill, >becuase it will attack the internal organ system before RA for instance >will. He needs to be encouraged to go on the DMARDS as SOON as possible. >They will obviously haveto choose carefully which one as to his liver >problems, but it can done. Cortisone can also be given IV, called >Solu-medrol, or methylprednisalone. That can give up to amonth of some >relief. He needs also to be on stronger pain meds. I have had RA for >almost 16 years with no remission, and I use percocet every 4 hours, >roxycodone for breakthru pain, and a fentanyl pain patch every day. Plus >they are now installying the morphine pumps in the spine for arthritis >conditions. I would say his best bet is to get a new rheumatologist >first , and then get checked into a hospital to get this flare under >control and get on some stable meds. I will send him all the info I >have. >Love Lyn > > > >That which happens in life is not as important as how you accept it. >http://home.talkcity.com/spiritcir/lynmari/index.html >Dachsie B'day Page: http://members.tripod.com/~Lynmari/DACHSHUND > Join the arthritis warriors at: >http://www.onelist.com/subscribe.cgi/rheumathritis > > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 1998 Report Share Posted October 4, 1998 Yup Ken that is all true. And he needs a rheumatologist. They are the only ones with the savvy to treat lupus. I travel 2 hours at least onceamonth to see mine.Bummer.... Lyn That which happens in life is not as important as how you accept it. http://home.talkcity.com/spiritcir/lynmari/index.html Dachsie B'day Page: http://members.tripod.com/~Lynmari/DACHSHUND Join the arthritis warriors at: http://www.onelist.com/subscribe.cgi/rheumathritis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 1998 Report Share Posted October 4, 1998 Lyn and Ken, Gave sister a quick call and advised to expect avalanche of information. As I understand, the doctor he is seeing in OKC is Rheumy, BUT is out of town for three weeks, with no one to cover??? He had missed his last appt. as sis had to work and there is no way he could stand to drive the 4 hrs. to OKC in the shape he was in. I might suggest they ask at church for someone to drive Leon to OKC for appts. He is so DAMN proud, and has had quite a time accepting limitations ever since his back surgery. I should think someone at the church can and will help if they will ask....sis was audited by IRS because they could not believe that anyone would give as much money to church as she does, but she is a firm 10%er. I suggested that she read very carefully the info that Lyn is sharing and she worships her husband and will go to any lengths to help him. Thanks again all. Big Hugs, Di Lynda Gottschalk wrote: > From: lynmari@... (Lynda Gottschalk) > > Yup Ken that is all true. And he needs a rheumatologist. They are the > only ones with the savvy to treat lupus. > I travel 2 hours at least onceamonth to see mine.Bummer.... > Lyn > > That which happens in life is not as important as how you accept it. > http://home.talkcity.com/spiritcir/lynmari/index.html > Dachsie B'day Page: http://members.tripod.com/~Lynmari/DACHSHUND > Join the arthritis warriors at: > http://www.onelist.com/subscribe.cgi/rheumathritis > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 1998 Report Share Posted October 4, 1998 sis was audited by IRS because they could not believe that anyone would give as much money to church as she does, but she is a firm 10%er.**** Here you're more likely to get audited if you didn't give 10% to the church. ~››~››~››~››~›› Did you really live today or were you merely passing time?. ‹‹§‹‹§‹‹§‹‹§‹‹§‹‹§ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 1998 Report Share Posted October 5, 1998 Diane-They should have got their avalanche of material from me already....hope so! I tried not to include anything super technical, but I figured if she is an RN she could appreciate something more than the average layperson. So I included lab tests and their results for lupus, etc. I hope it helps. You tell them, remission is possible. My daughter is a prime example. Love Lyn That which happens in life is not as important as how you accept it. http://home.talkcity.com/spiritcir/lynmari/index.html Dachsie B'day Page: http://members.tripod.com/~Lynmari/DACHSHUND Join the arthritis warriors at: http://www.onelist.com/subscribe.cgi/rheumathritis Quote Link to comment Share on other sites More sharing options...
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