Re: Propecia side effects make the news , why not us ?

[Guest guest]

Because we're "mental", "depressed", "crazy", "it's all in our head." etc.

[Guest guest]

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[Guest guest]

Here are my thoughts on reasons: 1) We have psychiatric backgrounds so they

assume the cause is related to the anxiety and/or depression. 2) PropeciaHelp

folks have been very, very active in making this happen. They developed a very

impressive & professional website - we have an antiquated chat room. 3) They

have been very proactive in talking to attorneys and the press (ie. the hunger

strike) - we have just dabbled!

So, that being said, what are WE going to do to elevate the game? Many, many of

us need to reach the journalists that have written these articles and the

producers of these new programs that are covering this story and say " US, TOO! " .

Not one of us, but 100's of us! The PropeciaHelp people are speaking out and

they aren't hesitating to let their identities be known. Are we willing to do

the same? Are we willing to take a risk to find a solution?

I know the moderator from the PropeciaHelp board has reached out to us but

hasn't had much success beyond a few of us (myself included) joining his board.

What are WE willing to do to get noticed? If I got the names and contact info

for the media giving PropeciaHelp attention, who is willing to call them?

(Beside just myself?!)

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[Guest guest]

But when you are talking about a solution...do you mean finding a potantial

cure? I think the biggest step would be getting scientists (molecualrbiologists

etc) interested in the Problem and starting scientific studies. Ideally there

are PSSD-Sufferers who have some background in this field (for myself I have

sadly not). The Propecia -Sufferes (so called PFS-Syndrome) have started such

studies already. Awor,a PFS sufferer, who has initiated these current studies

thinks that PSSD and PFS have something in common on the molecular androgene

level (epigenetical - both drugs Finasteride and SSRI lower androgens on cell

level) and they hope they can also explain the PSSD-Problem when these studies

are done. But who knows...maybe PFS and PSSD are complete different issues.

Sorry for bad english..

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[Guest guest]

I have some encouraging news that I've been sitting on for a couple of weeks

because I haven't been able to spend time here lately.

Many weeks ago I recontacted Habush & Habush attorneys (law firm dealing with

propeciahelp victims) and explained that I had the same side effects as

propecia, but got them through ssri's. (I had contacted them many months ago

asking about class action law suit and never got a call back.)

This time I did get a call back from a lawyer/physician who was very helpful.

He said that Habush & Habush have all they can handle with propecia, but felt

that we COULD find another law firm to take this on. He said it would have to

be mass tort lawsuit, not class action.

The lawyer also gave me the contact information for the moderator of

propeciahelp, and as alex10 has mentioned the moderator (who is also heavily

involved in scientific research, thus very interested in the similarities we

have) is very willing to help us in any way possible.

He wrote this to me a few weeks ago:

" I am glad to finally have contact with a PSSD sufferer. I am also encouraged by

your resolve. There is not one iota of doubt in my mind that PSSD, PFS, Lupron

and Accutane induced persistent adverse reactions are all the same problem.

Of all those groups, we are by far the most advanced in terms of scientific

research, litigation, media and organization, from what I could see.

Unfortunately, we are also the smallest. If we can manage to pool all this

together, all of us could start moving at light speed instead of fermenting in

small, isolated groups, which all believe that their problem is " unique " . We are

doing real, molecular level research as opposed to just answering some

questionnaires. We have achieved excellent results so far and have a pretty good

understanding about what is going on. We are working very hard on completely

PROVING what the problem is, as opposed to just guessing. Once we manage this, I

intend to extend this research to Lupron and later also to PSSD. Once we get

this far, the manufacturers of all of this poison crap will have ZERO chance of

fighting us in court. "

10, as we have discussed...I recently emailed the lawyer and told him that

you would be interested in speaking with him, and he said I could give you his

contact information. I will get it to you soon.

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[Guest guest]

I failed to mention that there would have to be individual law suits going on

for each ssri - lexapro, prozac, zoloft, cymbalta, etc.

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[Guest guest]

I doubt that PSSD and PFS have the same origin. PSSD is brain damage!

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[Guest guest]

Hi alex,I find your points and efforts the right way to make progress. The procepia group should be a role model on how we should move forward. We are large group of people and should be able to make a statement.I do however think that a more concentrated grouping of our efforts is needed, meaning we have to start cooperating with each other. This group is filled with blanks and uncoordinated efforts. The only real thing moving at the moment is the research questionnair. Our group is definately large enough to start a lawsuit, and for sure should be able to put pressure on the medicalworld to start taking us serious. There are other medical people who do "believe" us, there are more critical voices who could use our case for their strugle against the pharma.But first of all,In my opinion, grouping up is the primary thing to do, with more combined efforts. I am willing to help out,SebastiaanOp 13 jul. 2012 om 22:29 heeft "alex10s@..." het volgende geschreven:

OK, I compiled a list of some of the press coverage received by the Propecia Press Release including links to the articles and reporter information. I also included the contact info for the law firm that wrote and distributed the Press Release. We all need to start contacting these folks and while it is still active in the media and let them know "Us, too!". We need to let them know this is not just happening to Propecia victims! This is happening to SSRI users! If we want to make something happen NOW is the time!!! We need 100's of calls and emails not 1 or 2. We have more than 2,500 members on this site (more than PropeciaHelp.com) and there are more SSRI users than Propecia users and we need to ride this media coat tail.

Who is in? Who is going to contact these people? My self alone will accomplish nothing! We need to inundate them will calls!

PRESS RELEASE -- Waichman, LLP (Law Firm for Propecia Victims) -

Falkowitz, Managing Attorney

www.Yourlawyer.com

Press Release: http://www.prweb.com/releases/propeciasexualsideeffects/72012/prweb9695876.htm

_____________________________________________________________________________________

Good Morning America / ABC News – July 12, 2012

http://gma.yahoo.com/men-propecias-sexual-side-effects-may-long-lasting-215732153--abc-news-wellness.html

CARRIE GANN, ABC News Medical Unit

GMA - / ABC World News -

Baltimore Examiner – July 12, 2012

http://www.examiner.com/article/global-news-outlets-run-propecia-horror-stories-first-reported-the-examiner

Peige, Baltimore Courts Examiner – www.johnpeige.com

Daily Mail – UK – July 12, 2012

http://www.dailymail.co.uk/health/article-2172553/Propecia-Baldness-drug-Wayne-Rooney-took-cause-permanent-impotence-shrink-genitals-men.html?ito=feeds-newsxml

Bates -- claire.batesdailymail (DOT) co.uk – Tel. 020 7938 6000 (Main #)

The Sun – UK – July 13, 2012

http://www.thesun.co.uk/sol/homepage/news/4426562/Hair-loss-drug-used-by-Rooney-could-cause-impotence.html

Snell -- .Snell@... – Tel. 0 (Main #)

MSNBC Blog / NBC Nightly News – July 12, 1012

http://dailynightly.msnbc.msn.com/_news/2012/07/12/12708861-frequently-asked-questions-about-propecia?lite

Dr. Syderman – Chief Medical Editor, NBC News --

Medical Daily – July 12, 2012

http://www.medicaldaily.com/news/20120712/10823/propecia-hair-loss-wayne-rooney-sexual-dysfunction-impotence.htm

Hsu – Reporter

editor@... / News@...

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[Guest guest]

What do you exactly mean when you talk about Paxil Progress brain washing

people?

> Sadly there is only theorizing with the damage of SSRI mainly because of pages

like the faith healer Paxil Progress where they brain wash people.

[Guest guest]

I've read this on PP.

" Chronic treatment with fluoxetine (Prozac) has been shown to cause persistent

desensitization of 5HT1A receptors even after removal of the SSRI in rats.[25]

These long-term adaptive changes in 5-HT receptors, as well as more complex,

global changes, are likely to be mediated through alterations of gene

expression.[26][27][28][29][30] Some of these gene expression changes are a

result of altered DNA structure caused by chromatin remodeling,[31][32]

specifically epigenetic modification of histones[33] and gene silencing by DNA

methylation due to increased expression of the methyl binding proteins MeCP2 and

MBD1.[34] Altered gene expression and chromatin remodeling are also involved in

the mechanism of action of electroconvulsive therapy (ECT). "

[Guest guest]

First,let me tell you that this will offend people but I'm not that kind of guy

who keeps these things to himself and if I have to play this game I will play it

fair.

What I meant by brain washing is that they make people believe that " riding it

out " is the best thing one can do.That suffering is normal and they will heal

with time.

Big nonsence.Once you upset the balance you are waiting for the tsunami to reach

you and it will reach you sooner or later.

This drug causes epigenetic changes or hpta dysfunction,adrenal exhaustion,liver

damage,estrogen dominance,downregulation of certain neurotransmitters resulting

in shorter lifespan and just ride it out as they say.

Ride it out my ass!

They encourage people to take magnesium while they have no idea if they are

deficient in the first place or not.They encourage each other to take

methylation supplements and unaware of their methylation status.One man's meat

is another man's poison.

Sometimes a stranger pops up like you see in a western movie,sharing great

knowledge.Providing scientific data that this drug causes permanent damage etc.

But ofcourse these people get banned by a mysterious reasons,you can check this

thread: http://www.topix.com/forum/drug/effexor/THMJMS4GGGNADOS7F

I've tried to register months ago when I was developing panic disorder ofcourse

they didn't let me because I'm european lol.

The first thing that comes to my mind about paxil progress is a little

harsh.Headless chickens running around,have no idea what they are doing and have

no idea where they are heading to.The problem with them is that they tend to

lock scientific threads due to some faint hearted pussies not able to handle the

truth about Paxil or any SSRI drugs that it can cause genetic alterations.It's

tough I know but if all of us would stick together and accept this fact we could

find a cure.

What I'm trying to say is that telling people who have 5 years of prolonged

withdrawal behind them to keep at it and soon he'll cure is just so stupid...

Depression is hormonal! SSRI-s cause damage to all the important organs.Some

damage could be reversed but others? Even scientists have no clue about a

remedy.So let's stick together and accept the fact that this is just as serious

as a heart attack and we need more people to be aware of it and help finding the

cure.

> > Sadly there is only theorizing with the damage of SSRI mainly because of

pages like the faith healer Paxil Progress where they brain wash people.

>

[Guest guest]

is it possible to test our own dna to look for the damage and mutations? has it

ever been done? for antidepressants or any other type of damage? Is it

possible?

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> > I'm a bit disappointed as by checking other forums like accutane sufferers'

or other steroid/drugs and post orgasmic illness syndrome sufferers there's

always scientific posts showing what genetic alterations those drugs cause and

those people will eventually have proof of the damage the drugs cause,should be

able to reverse the effects and especially sue the corporations.

> > Sadly there is only theorizing with the damage of SSRI mainly because of

pages like the faith healer Paxil Progress where they brain wash people.

> > Yes,we might be the 1% who are suffering long term and will not heal without

treatment but we need to grow big,post everything about SSRI and mice studies

resulting in brain damage and demand medicine to reverse the madness for once

and for all!

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[Guest guest]

I am sure the folks on Paxil Progress are simply engaging in self-deception.

They want to believe it will just go away. I believe that a cure for pssd is

possible, but only when medical science is able to fully regenerate the brain.

When they can fix dementia, they can fix pssd. I believe that the truth about

psych meds will one day be widely known. They will be looked upon as one of the

great frauds perpetrated on the public. It will be known that a conspiracy was

perpetrated based on malicious lies and bottomless greed. We may not live to see

that promised land, but historians will write of it one day.

Re: Propecia side effects make the news , why not us ?

First,let me tell you that this will offend people but I'm not that kind of guy

who keeps these things to himself and if I have to play this game I will play it

fair.

What I meant by brain washing is that they make people believe that " riding it

out " is the best thing one can do.That suffering is normal and they will heal

with time.

Big nonsence.Once you upset the balance you are waiting for the tsunami to reach

you and it will reach you sooner or later.

This drug causes epigenetic changes or hpta dysfunction,adrenal exhaustion,liver

damage,estrogen dominance,downregulation of certain neurotransmitters resulting

in shorter lifespan and just ride it out as they say.

Ride it out my ass!

They encourage people to take magnesium while they have no idea if they are

deficient in the first place or not.They encourage each other to take

methylation supplements and unaware of their methylation status.One man's meat

is another man's poison.

Sometimes a stranger pops up like you see in a western movie,sharing great

[Guest guest]

has anyone else contacted any of the individuals listed? if so what is the

status and do they need more people to speak to?

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