Re: Bummed Out

[Guest guest]

Hi ,

Sounds like you have a never-ending battle! I did run extreme fever for

several months, and it was not being caused by any of the chronic

diseases-- was due to perforated duodenal ulcer, & perforated peritoneum.

This makes me ask did they give you any GI tests? I don't know what the

likliehood of your having toxemia (resulting toxic accumulations of fluid

internally) are, but it is very hard to rule out. I learned while

hospitalized for this that a number of such cases (fever) are left

undiagnosed. The only way mine was identified was through exploratory

surgery. I think your priority needs to be medical Dx here, & the Soc.Sec.

will need to wait until they can Dx & treat you. However, if it extends

undiagnosed, it is disabling & grounds for S. Sec approval. But this would

be most likely on appeal. They would want to wait (in absence of a Dx) to

see that you would be disabled for a year. Not a pretty situation.

What you need most is the exhaustive testing it sounds like your docs are

doing.

Ken

At 04:34 PM 7/2/98 -0700, you wrote:

>Please share this with the group. I don't have the mail address:

>

> am really bummed today.

>

>As most of you know, I have been fighting with SSDI, like all the rest. I

have CFIDS/FMS/MPS, which was in remission since 1990, until I got a virus

last September. I lost my job,etc.

>

>I applied for SSDI benefits in January. My first denial came in March,

stating that I will be better and able to work within a year. Well, it is

now July. I still run fevers of over 105', almost daily. I have been seen

at University Hospital, and now National Jewish. ALL the docs I have seen

(15 since January) are all concerned over the fevers, and are all testing

for FUO which is the primary, CFIDS is secondary, and if we can find the

FUO, maybe can help the CFIDS.

>

>Anyhow, yesterday my SSDI caseworker told me she would be presenting the

file to the doc today for signature, and she would highly recommend

approval. Today, she called and said he will not sign, because, although

National Jewish is now waiting on results from 14 tests run June 22, there

is no evidence that I am sick! Some of the many things they are testing

for are LYME, Epstein-Barr, PARVO, Mono, etc.

>

>I just needed to vent!

>

>Thanks!

>

>

>

Turbin

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