Re: Is there any clinic where PSSD is treated?

[Guest guest]

Well then, are there any people who was helped by Dr. Goldstein?

If any, please write about your experience.

> >

> > Is there any clinic or physician in the US or another country specializing

in PSSD therapy?

> > Does this therapy have an success?

> >

>

[Guest guest]

Here are a few old posts. No one to my knowledge has been completely cured, but

some have been helped. Yet I have seen some of these people still on the board

so I don't know to what extent they were helped.

- - - - - - - -- - - - - - -- - - - - -- - - - -- - - - - - - -- - - -- - - - -

--

Sorry, I haven't been checking the group posts as regularly as I once did. Maybe

that in itself is telling.

As far as the 'Goldstein Protocol' I have to say it has helped. Has it been a

cure? Not completely - not yet. But things are better. I don't know if it's the

treatment or the passage of time that are the reason for my improvements - but

there have been improvements.

I took Dostinex for just over a year - I've stopped now, thinking I've given it

sufficient time to improve dopaminergic tone - that and I've lost health

insurance coverage through my former employer. I've been on Clomid for longer -

a year and a half or so - and am still taking it. Though I think I may start to

taper off that - and see what my T levels look like without it. I was also

taking amantadine to potentiate the dostinex.

I was following the group at the time the whole homeopathic feverfew thing hit

the german list...and at about that time, someone on this list posted about how

low doses of melatonin taken sporadically helped increase sensitivity. I found

it interesting that feverfew is quite high in melatonin, so I thought there

might be something to both accounts. I took some melatonin (.5mg) on one night,

off the next for a few weeks, and I did in fact note dramatically improved

sensitivity around that time. Again - I don't know if it can be fully attributed

to the melatonin or the good sleep I got while on it or something else...all I

know is that at about that same time, I noticed a real improvement in nocturnal

erections, sexual dreams, sensitivity during masturbation and much improved

quality of orgasm.

I do believe that the year of dostinex, amantadine, clomid, and daily low-dose

cialis helped to recondition my nervous system. While on them, I had a lot of

interesting sensations in the nerves in my penis...sometimes like a shooting,

electrical pain and totally uncomfortable - but definitely something happening

to my nerves down there. My urologist - who has been incredibly supportive with

all this - encouraged me saying that such sensations are typical of nerves that

are repairing themselves. Who knows...

Would I recommend people who have tried everything else and seen no improvement

try this combination? Yes. I would.

At this point - while things are not 100% and still a bit unpredictable...for

the most part, sex is pleasant and worthwhile. I have some sensation - stronger

at times, weaker at others, but not dull, flat, and numb like before. My orgasms

vary - sometimes they are quite amazing like years ago before all this...and

sometimes...they are just okay...but very very rarely are they so unsatisfactory

that I wish I'd just gotten the extra half hour of sleep. It's been quite a few

months now since I last felt really discouraged and hopeless with sex...that's a

pretty big development, because for a long time, I was very much at the end of

my rope with all of it - ready to end it.

So - I wish I could say - yes - I've fully recovered and here's how: Step 1,

Step 2, Step 3...but I can't. However I can say that I've got enough function

and sensation back that life doesn't seem so hopeless and sex doesn't seem

futile. I've also started to feel 'turned on' again. Mind you, I don't often get

an erection from visual stimuli - but it has happened. And that alone is a big

development.

For what it's worth...

Re: Clomide and Cabergoline is working for me now,.. lets see how long this last

I was on both of these for a while. Saw some marked improvement initally and

then plateaued. So I decided to stop taking both to see where things really were

- without any drugs involved. Things fluctuate. Sometimes I have great

sensitivity, feel aroused, have a quite pleasurable, satisfying orgasm...and

other times I have a rather blah, dull, numb experience, can't get or stay hard,

and climax with the all the fizz of opening a flat, half-drunk bottle of soda

that's been in the fridge for over a week. But I tell myself - at least it's

variable - at least it's not all flat all the time like it used to be. At least

one or two bottles in six is worth drinking - to extend the metaphor.

My T levels went back to low 300s without the Clomid, but I've decided to leave

well enough alone for now.

My other symptoms, the genital anesthesia, erectile dysfunction, low libido,

anorgasmia...have all improved somewhat. Things are not 100% and things do

fluctuate - but on the whole, things are much better than when I first started

posting here a few years ago.

I think - and this is really just my opinion from personal experience - that the

cabergoline/clomid treatment plan helped reset things - flipped some switches in

my nervous system or something. My doctor has continued to use the cabergoline

treatment with other patients after me, and says that some have seen benefit. I

think in my case, these two meds got things started. I think time has done the

rest and will continue to.

If I had known three or four years ago that I would be where I am today, I would

not have been in such deep despair. If someone could have told me with certainty

that it would take a couple years of suffering through it patiently, I might

have been a little less desperate. Angry? Sure. Despairing and suicidal, maybe

not as much. But no one could tell me that for sure. I can't tell YOU that for

sure. I would guess though that it IS likely for you (whoever you are reading

this) that with time, you will see improvement - perhaps enough improvement to

make sex both possible and pleasurable. I do NOT believe there is a quick fix or

a magic pill or formula which will undo this psycho-pharmacological nightmare

overnight. Maybe in the future, when the condition is better understood, there

will be. Until then, I don't believe any herbal concoction from China or

mystical mix of supplements or homeopathic preparations will right the wrongs

that SSRIs caused. The HOPE that each new treatment strategy introduces may

serially serve as so many stepping stones which give us something positive to

focus on as we step from 'here' to 'there'. I think it's that hope and the

passage of time that really help in the end, not the various regimens of herbs

and supplements themselves.

So back to my condition now: it's true - things aren't perfect. Things aren't

" back to normal " . My sex life and sexual experience are not at all typical for a

young adult male. And I wish that I had never taken all the antidepressant

medications that I was prescribed over the years. BUT - I am in a place now

where I have recovered to some extent - and enough that I do not obsess about

this condition as much as I once did. I do not feel that enjoyable sex has been

stolen from me for good, and I trust that things will continue to improve.

Perhaps one day - I will say that I HAD rather than HAVE PSSD. Right now, I'm

probably somewhere in between the two.

gwistik

Zoloft Sucks

Re: Re: Dr.Goldstein's treatment

Ok the Goldstein we are talking about is Dr.Irvin Goldstein (San Diego Sexual

Medicine) from San Diego, CA. Some folks from our forum started getting

treatment from him (some directly and some with the help of their local

practitioners who consulted Dr.Goldstein) and some have reported consistent

improvements while on the medicine and some reported lasting improvements even

after they quit the medications. His treatment mainly includes 1 or 2 dopamine

agonists - like Dostinex/Amantadine and Chlomid - if your Testosterone is low,

and Arimidex - if your Estrogen is high, etc etc. Basically if you can convince

your primary physician to give you these medicines, then there's no reason why

you need to go all the way to San Diego.

> > >

> > > Is there any clinic or physician in the US or another country specializing

in PSSD therapy?

> > > Does this therapy have an success?

> > >

> >

>

[Guest guest]

FYI Goldstein even has a short blurb about PSSD on his website.

http://www.sexualmed.org/index.cfm/sexual-health-issues/for-men/post-ssri-discon\

tinuation-sexual-dysfunction/overview/;jsessionid=B0DCB4083DECBB65D66F2E1E7BD2D5\

26

Its unfortunate but it may be that no doctor knows how to effectively cure PSSD.

Goldstein claims to have had some luck. I have read about him and have friends

who are sexologists that know him and I have heard good things. While it will

cost me $2000 to see him he will do 4 hours of tests to help me understand all

of what might be wrong. Since I have soft glans issues in addition to reduced

sensation sometimes I wonder if there is something else in addition to PSSD

going wrong with me.

> > >

> > > Is there any clinic or physician in the US or another country specializing

in PSSD therapy?

> > > Does this therapy have an success?

> > >

> >

>