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Rough few days!

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Hi Everyone,

It's been a rough few days, more than the norm. Had my Bard Button replaced

on Tuesday by my GI with a -Cook Passport. The Bard had sprung a leak

last Friday and the gastric juices were burning the abdominal skin around my

stoma. The surgeons locally cannot do my gastrostomy tube replacements, I

have to go to a 3 hr trip from my home to have my GI do it. My GP

phoned him on Friday while I was in her office to let him know. He asked me

to try and hang tough till Tuesday and to smother the area with Vaseline

than apply a dressing to help protect the skin from the gastric juices. If

necessary to stop pumping and try to take as much clear fluid orally as

possible. For me no small feat since I am totally g-tube dependent.

I have considerable internal swelling with a g-tube replacement and my last

one in Oct 97 left me unable to resume my feedings for 8 days. This time

the Passport was larger than the Bard he took out and considerable pressure

was needed to insert it. Until late last night I haven't been able to

inject my morphine into the g-tube because as soon as I opened the Passport

valve blood and bile came out under pressure and I couldn't get the morphine

in. I resorted to taking it by mouth mixed with a little 7UP and sometimes

did that 3 times before getting a dose in as I would vomit seconds after

taking it. This morning I vomited dark brown liquid and not fresh blood for

the first time so I think the bleeding has finally stopped, since then I

have been vomiting only bile. I am getting better relief from the morphine

now so I am more comfortable. Anything that put stress on my abdominal area

always causes a marked elevation in my pain because of the MVI. I was

suppose to have my renal ultrasound done this morning but that had to be

postponed till July 3rd. I'll have my cystoscopy (without anesthetic, again

because of the MVI) in the morning and the ultrasound in the afternoon.

I have a real backlog of mail to read through and I am slowly getting there.

Some of you have been feeling down and I wish I could have been able to

offer a word of encouragement. You are in my thoughts and heart and I hope

things are starting to improve. Love to you all.

Marg :o)

mesenteric vascular insufficiency, chronic pancreatitis, severe

malabsorption, paralytic ilius, non eater, g-tube

doll@...

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