Guest guest Posted May 20, 2003 Report Share Posted May 20, 2003 Jeanne, That goes to show everyone that the doctors only think they know what they are talking about! How incredibly frustrating for you and your pregnancy! Thank God the doctors were wrong! Kristy LDSAngel77@... wrote: , I've had a false positive with an amnio. With my daughter, the amnio came back saying she was a mosaic 20p-.... a deletion of a portion of the 20th chromosome. They really pushed me to abort, said it would be a SEVERE situation, and that she would fail to thrive and die before the age of 1 anyhow... I had her bloodwork done at birth...she's completely normal and just had her 7th birthday this month!! Angel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2003 Report Share Posted May 20, 2003 All my prenatal tests came back normal when I was pregnant with . also scored an 8 and 9 on the apgar tests. It was his pediatrician who picked up on small indications that may have DS or MDS (his pinkies are bent and his ears are lower on his head). At 's 1 week visit, Dr. decided to draw blood and test his DNA. It was shortly after that we learned he had MDS. I am very thankful to Dr. for following his instinct because we were then able to have checked out from head to toe and get him into the local Early Intervention program at 1 month. But, to be honest, it was a shock and I felt terribly guilty because I wanted to wake up and find it was all an awful dream; that the baby lying in the cradle next to me was Hannah (the name we picked out for a girl) and she was " perfect " . The sadness passed. I mean there are times I wish I could " take away " the MDS because I hate to think that life will be a little harder for , but then again, without the MDS, what kind of person would he be? He is a funny, bright and lovable little boy and I can't imagine life without him. He has changed me so much and for the better. -- Original Message ----- From: Price To: MosaicDS Sent: Monday, May 19, 2003 12:46 PM Subject: QUESTION I want to ask if anyone has ever had an amnio that came back normal and then had a child with msd or has ever heard of this happening? Price Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2003 Report Share Posted May 20, 2003 Maureen, your story sound a lot like mine. All my prenatal testing came back normal also. It wasn't until Kyrell was given the physical all babies have to get before they leave the hospital. The pediatric doctor at the hospital gave him his physical and came to my room and started talking about some characteristics like one of his palms has the line straight across his hand. The doctor wanted a test done because she said this could hereditary also. I'm thankful for her also because my son received early intervention immediately. I too wanted a girl because I already had a boy and I wanted 2 kids. I got my girl third. I guess someone had other plans for me. I love my Relly and I wouldn't change him for the world!! > >Reply-To: MosaicDS >To: <MosaicDS > >Subject: Re: QUESTION >Date: Tue, 20 May 2003 12:45:33 -0400 > >All my prenatal tests came back normal when I was pregnant with . > also scored an 8 and 9 on the apgar tests. It was his pediatrician >who picked up on small indications that may have DS or MDS (his >pinkies are bent and his ears are lower on his head). At 's 1 week >visit, Dr. decided to draw blood and test his DNA. It was shortly >after that we learned he had MDS. I am very thankful to Dr. for >following his instinct because we were then able to have checked out >from head to toe and get him into the local Early Intervention program at 1 >month. But, to be honest, it was a shock and I felt terribly guilty >because I wanted to wake up and find it was all an awful dream; that the >baby lying in the cradle next to me was Hannah (the name we picked out for >a girl) and she was " perfect " . The sadness passed. I mean there are times >I wish I could " take away " the MDS because I hate to think that life will >be a little harder for , but then again, without the MDS, what kind >of person would he be? He is a funny, bright and lovable little boy and I >can't imagine life without him. He has changed me so much and for the >better. > >-- Original Message ----- > From: Price > To: MosaicDS > Sent: Monday, May 19, 2003 12:46 PM > Subject: QUESTION > > > I want to ask if anyone has ever had an amnio that came back normal and >then > had a child with msd or has ever heard of this happening? > > Price > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 My son has a bowel disease, but when he was hospitalized last christmas for another reason... after an x-ray... the dr told us he had an ILEUS (sp?) meaning, his bowel didn't have the normal waving motions, so things in the intestine kinda sat more still than they should, causing gasses to build up. 's gas is the worst when he lays down to go to bed at night... WOW~ didn't know some things were humanly possible!! I always meant to look up more about it.... Angel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Hi Bessie, In Oregon there are a couple of MA plans that have an OOP max on medical services (immuno coinsurance included) so our patients will get some relief from the high immuno OOP at about mid-year. None of the plans' sales reps or customer service depts are reliable sources of info on this topic yet...I threw that last word in because I need to believe it will get better ;-) on Financial Counselor Legacy Transplant Services 1040 NW 22nd Ave Ste 480 Portland OR 97210 toll free fax lmorrisolhs (DOT) org "The test of our progress is not whether we add more to the abundance of those who have much; it is whether we provide enough for those who have too little." FDR -----Original Message-----From: TxFinancialCoordinators [mailto:TxFinancialCoordinators ]On Behalf Of Bessie PlummerSent: Tuesday, March 14, 2006 9:27 AMTo: txfinancialcoordinators Subject: Question Since the intiation of Part D, our transplant patients who had Medicare at thetime of transplant are having significant difficulty with their billing forimmunosuppressants. Prior to Jan 1 2006, these patients had 100% of theirimmunos covered. Now, with Medicare Advantage plans, some of the insurancecompanies are charging either 20% or copays for the balance of the bill notcovered by Medicare Part B. We want to ascertain if there are Medicare Advantage Plans that still coverimmunosuppression at 100% so that we may recommend these plans to our pts . Furthermore, obtaining answers from the companies themselves seems to be impossible. Does anyone out there have knowlege of which policies still cover 100% forimmunos, and what those plans cover under part D for other drugs.We areinterested in the following plans:Keystone 65Personal Choice 65(PPO)Aetna productsHorizon Medicare Blue Cross/ShieldDelaware Advantage Plans I am grateful for any assistance offered. Bessie Plummer Transplant Financial Coordinator/Office Manager Jefferson University Hospital Transplant Program Philadelphia, Pennsylvania Yahoo! MailUse Photomail to share photos without annoying attachments. IMPORTANT NOTICE: This communication, including any attachment, contains information that may be confidential or privileged, and is intended solely for the entity or individual to whom it is addressed. If you are not the intended recipient, you should contact the sender and delete the message. Any unauthorized disclosure, copying, or distribution of this message is strictly prohibited. Nothing in this email, including any attachment, is intended to be a legally binding signature. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2007 Report Share Posted August 10, 2007 I was just thinking, and I wanted to ask you guys your take on it. WOULD IT BE GOOD TO GET A MEDI-ALERT BRACELET, AND ENGRAVE DECOMPENSATED CIRRHOSIS-ENCEPHALAPY (SP)? My husand will not listen to me, when I try to make him aware of possible serious conditions that may be secondary to cirrhosis. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2007 Report Share Posted August 10, 2007 Hi ...I think it's a good idea. You might want to check with your doctor to see what wording he might suggest, but your words seem fine to me. They would certainly alert ER folk as to what your underlying condition is.It would appear to me that the real problem here is that your husband refuses to accept your condition. You might want to make sure that he is with you when you see your doctor. You might also want to have your doctor discuss with you and your husband the " possible serious conditions that may be secondary to cirrhosis. " If he has been there with you in the doctor's office...or has all the info that's necessary to understand...you must understand that it is pretty normal to reject the reality you don't want. When I told my middle son, Ben, what was happening with Kjersten, he gave me a huge hug (he's 6'7 " and 250#) and said, " I knew, Dad. I didn't know everything, but I knew. " My Mom, however, patted my hand and said, " Don' worry. The doctors will fix everything. " It's very difficult to realize that someone you love is close to death. Sometimes those who are very close refuse to recognize reality. You can only pull them close to you only so far...a very good friend of mine in North Idaho once said that " you always do the best you can under the circumstances. " The truth is that none of us wants to do harm to anyone else...we really want to help others....but we can't always do that.DennisTo: livercirrhosissupport@...: sljp32798@...: Fri, 10 Aug 2007 21:12:00 +0000Subject: [Liver Cirrhosis Support] question I was just thinking, and I wanted to ask you guys your take on it. WOULD IT BE GOOD TO GET A MEDI-ALERT BRACELET, AND ENGRAVE DECOMPENSATED CIRRHOSIS-ENCEPHALAPY (SP)? My husand will not listen to me, when I try to make him aware of possible serious conditions that may be secondary to cirrhosis. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2007 Report Share Posted August 10, 2007 Hi , dont know about what to put on the medic alert bracelet, i did have one for diabetes some years back. i believe my hubby is in denial about what all can happen too. he gets this glazed over look in his eyes when i try to explain things, but he will read the info if i run it off on the copier. he still forgets and puts freekin clorox in the washer, and i cant stand that smell. i think he and i both are in different stages of denial right now to be open about it. huggs,jodoco > > I was just thinking, and I wanted to ask you guys your take on it. > > WOULD IT BE GOOD TO GET A MEDI-ALERT BRACELET, AND ENGRAVE > DECOMPENSATED CIRRHOSIS-ENCEPHALAPY (SP)? My husand will not listen to > me, when I try to make him aware of possible serious conditions that > may be secondary to cirrhosis. > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2007 Report Share Posted August 10, 2007 Mine is in the mail now. Stainless. question I was just thinking, and I wanted to ask you guys your take on it. WOULD IT BE GOOD TO GET A MEDI-ALERT BRACELET, AND ENGRAVE DECOMPENSATED CIRRHOSIS-ENCEPHALA PY (SP)? My husand will not listen to me, when I try to make him aware of possible serious conditions that may be secondary to cirrhosis. Thanks, <!-- #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;} #ygrp-mlmsg table {font-size:inherit;font:100%;} #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;} #ygrp-mlmsg pre, code {font:115% monospace;} #ygrp-mlmsg * {line-height:1.22em;} #ygrp-text{ font-family:Georgia; } #ygrp-text p{ margin:0 0 1em 0;} #ygrp-tpmsgs{ font-family:Arial; clear:both;} #ygrp-vitnav{ padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} #ygrp-vitnav a{ padding:0 1px;} #ygrp-actbar{ clear:both;margin:25px 0;white-space:nowrap;color:#666;text-align:right;} #ygrp-actbar .left{ float:left;white-space:nowrap;} ..bld{font-weight:bold;} #ygrp-grft{ font-family:Verdana;font-size:77%;padding:15px 0;} #ygrp-ft{ font-family:verdana;font-size:77%;border-top:1px solid #666; padding:5px 0; } #ygrp-mlmsg #logo{ padding-bottom:10px;} #ygrp-vital{ background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;} #ygrp-vital #vithd{ font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:upp\ ercase;} #ygrp-vital ul{ padding:0;margin:2px 0;} #ygrp-vital ul li{ list-style-type:none;clear:both;border:1px solid #e0ecee; } #ygrp-vital ul li .ct{ font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-ri\ ght:.5em;} #ygrp-vital ul li .cat{ font-weight:bold;} #ygrp-vital a { text-decoration:none;} #ygrp-vital a:hover{ text-decoration:underline;} #ygrp-sponsor #hd{ color:#999;font-size:77%;} #ygrp-sponsor #ov{ padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;} #ygrp-sponsor #ov ul{ padding:0 0 0 8px;margin:0;} #ygrp-sponsor #ov li{ list-style-type:square;padding:6px 0;font-size:77%;} #ygrp-sponsor #ov li a{ text-decoration:none;font-size:130%;} #ygrp-sponsor #nc { background-color:#eee;margin-bottom:20px;padding:0 8px;} #ygrp-sponsor .ad{ padding:8px 0;} #ygrp-sponsor .ad #hd1{ font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%\ ;} #ygrp-sponsor .ad a{ text-decoration:none;} #ygrp-sponsor .ad a:hover{ text-decoration:underline;} #ygrp-sponsor .ad p{ margin:0;} o {font-size:0;} ..MsoNormal { margin:0 0 0 0;} #ygrp-text tt{ font-size:120%;} blockquote{margin:0 0 0 4px;} ..replbq {margin:4;} --> ________________________________________________________________________________\ ____ Be a better Globetrotter. Get better travel answers from someone who knows. Yahoo! Answers - Check it out. http://answers.yahoo.com/dir/?link=list & sid=396545469 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2007 Report Share Posted August 11, 2007 , I think its a VERY good idea. I have medical conditions myself & I take meds so I wear one. Just do it, you dont need your hubby s permission. Dennis, sometimes EVEN the patient wont except reality. (re: my stepsis) love tilly whos up at 3AM enjoying a WONDERFUL thunderstorm, dogs dont like it thu. Dennis wrote: Hi ...I think it's a good idea. You might want to check with your doctor to see what wording he might suggest, but your words seem fine to me. They would certainly alert ER folk as to what your underlying condition is.It would appear to me that the real problem here is that your husband refuses to accept your condition. You might want to make sure that he is with you when you see your doctor. You might also want to have your doctor discuss with you and your husband the " possible serious conditions that may be secondary to cirrhosis. " If he has been there with you in the doctor's office...or has all the info that's necessary to understand...you must understand that it is pretty normal to reject the reality you don't want. When I told my middle son, Ben, what was happening with Kjersten, he gave me a huge hug (he's 6'7 " and 250#) and said, " I knew, Dad. I didn't know everything, but I knew. " My Mom, however, patted my hand and said, " Don' worry. The doctors will fix everything. " It's very difficult to realize that someone you love is close to death. Sometimes those who are very close refuse to recognize reality. You can only pull them close to you only so far...a very good friend of mine in North Idaho once said that " you always do the best you can under the circumstances. " The truth is that none of us wants to do harm to anyone else...we really want to help others....but we can't always do that.DennisTo: livercirrhosissupport@...: sljp32798@...: Fri, 10 Aug 2007 21:12:00 +0000Subject: question I was just thinking, and I wanted to ask you guys your take on it. WOULD IT BE GOOD TO GET A MEDI-ALERT BRACELET, AND ENGRAVE DECOMPENSATED CIRRHOSIS-ENCEPHALAPY (SP)? My husand will not listen to me, when I try to make him aware of possible serious conditions that may be secondary to cirrhosis. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2007 Report Share Posted August 11, 2007 Try these http://www.medids.com/index.html Hope that helps, I like the one with the paper in it, its easy to change as your meds change. love tilly jodoco_46 wrote: Hi , dont know about what to put on the medic alert bracelet, i did have one for diabetes some years back. i believe my hubby is in denial about what all can happen too. he gets this glazed over look in his eyes when i try to explain things, but he will read the info if i run it off on the copier. he still forgets and puts freekin clorox in the washer, and i cant stand that smell. i think he and i both are in different stages of denial right now to be open about it. huggs,jodoco > > I was just thinking, and I wanted to ask you guys your take on it. > > WOULD IT BE GOOD TO GET A MEDI-ALERT BRACELET, AND ENGRAVE > DECOMPENSATED CIRRHOSIS-ENCEPHALAPY (SP)? My husand will not listen to > me, when I try to make him aware of possible serious conditions that > may be secondary to cirrhosis. > > Thanks, > > > I live in my own little world, they like me there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Hi Dot, Any changes should be reported to your doctors. Our livers handle 500 functions which means it shows us any mix of symptoms to say it is better or worse. Err on the side of caution and call you doctor. Losing weight can be a sign of other things as well, so don't wait call them and let them earn their money. :-) > > Hi there, > > I've been a member of this club for quite a while now and I am > experiencing new symptoms which I wonder if anyone else has had with > regard to their liver problems, prior transplant. > > I am losing weight (6 kilos in just over a week) and my appetite, and > I am also experiencing a sudden dislike for tea or coffee. I was > told, by my specialist, that it may be a problem. > > Is this a symptom of the deterioration, or perhaps another problem > altogether? and if it is how serious is it. > > Hope someone can help me with this. > > Thanks > Dot > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 I discovered a bunch of little symptoms last winter. I brought them up to my hepatologist. He seemed to only be looking for the big signs of liver failure. Mainly third spacing of fluid leading to acites and edema. Once in a while he will notice " trace by pedal edema " and mark that down, but I keep track of his clinic notes and he mostly disregards all my little subtle signs, mostly because he is interested in weather I show any early signs of liver failure. I have learned to pick and choose what exactly to say in regard to this, but I agree that your doctor should be aware of each change you experience, especially weight loss. From: linderandall <no_reply > To: livercirrhosissupport Sent: Wednesday, September 5, 2007 10:38:28 AM Subject: Re: question Hi Dot, Any changes should be reported to your doctors. Our livers handle 500 functions which means it shows us any mix of symptoms to say it is better or worse. Err on the side of caution and call you doctor. Losing weight can be a sign of other things as well, so don't wait call them and let them earn their money. :-) > > Hi there, > > I've been a member of this club for quite a while now and I am > experiencing new symptoms which I wonder if anyone else has had with > regard to their liver problems, prior transplant. > > I am losing weight (6 kilos in just over a week) and my appetite, and > I am also experiencing a sudden dislike for tea or coffee. I was > told, by my specialist, that it may be a problem. > > Is this a symptom of the deterioration, or perhaps another problem > altogether? and if it is how serious is it. > > Hope someone can help me with this. > > Thanks > Dot > <!-- #ygrp-mkp{ border:1px solid #d8d8d8;font-family:Arial;margin:14px 0px;padding:0px 14px;} #ygrp-mkp hr{ border:1px solid #d8d8d8;} #ygrp-mkp #hd{ color:#628c2a;font-size:85%;font-weight:bold;line-height:122%;margin:10px 0px;} #ygrp-mkp #ads{ margin-bottom:10px;} #ygrp-mkp .ad{ padding:0 0;} #ygrp-mkp .ad a{ color:#0000ff;text-decoration:none;} --> <!-- #ygrp-sponsor #ygrp-lc{ font-family:Arial;} #ygrp-sponsor #ygrp-lc #hd{ margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;} #ygrp-sponsor #ygrp-lc .ad{ margin-bottom:10px;padding:0 0;} --> <!-- #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;} #ygrp-mlmsg table {font-size:inherit;font:100%;} #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;} #ygrp-mlmsg pre, code {font:115% monospace;} #ygrp-mlmsg * {line-height:1.22em;} #ygrp-text{ font-family:Georgia; } #ygrp-text p{ margin:0 0 1em 0;} #ygrp-tpmsgs{ font-family:Arial; clear:both;} #ygrp-vitnav{ padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} #ygrp-vitnav a{ padding:0 1px;} #ygrp-actbar{ clear:both;margin:25px 0;white-space:nowrap;color:#666;text-align:right;} #ygrp-actbar .left{ float:left;white-space:nowrap;} ..bld{font-weight:bold;} #ygrp-grft{ font-family:Verdana;font-size:77%;padding:15px 0;} #ygrp-ft{ font-family:verdana;font-size:77%;border-top:1px solid #666; padding:5px 0; } #ygrp-mlmsg #logo{ padding-bottom:10px;} #ygrp-vital{ background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;} #ygrp-vital #vithd{ font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:upp\ ercase;} #ygrp-vital ul{ padding:0;margin:2px 0;} #ygrp-vital ul li{ list-style-type:none;clear:both;border:1px solid #e0ecee; } #ygrp-vital ul li .ct{ font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-ri\ ght:.5em;} #ygrp-vital ul li .cat{ font-weight:bold;} #ygrp-vital a{ text-decoration:none;} #ygrp-vital a:hover{ text-decoration:underline;} #ygrp-sponsor #hd{ color:#999;font-size:77%;} #ygrp-sponsor #ov{ padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;} #ygrp-sponsor #ov ul{ padding:0 0 0 8px;margin:0;} #ygrp-sponsor #ov li{ list-style-type:square;padding:6px 0;font-size:77%;} #ygrp-sponsor #ov li a{ text-decoration:none;font-size:130%;} #ygrp-sponsor #nc{ background-color:#eee;margin-bottom:20px;padding:0 8px;} #ygrp-sponsor .ad{ padding:8px 0;} #ygrp-sponsor .ad #hd1{ font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%\ ;} #ygrp-sponsor .ad a{ text-decoration:none;} #ygrp-sponsor .ad a:hover{ text-decoration:underline;} #ygrp-sponsor .ad p{ margin:0;} o{font-size:0;} ..MsoNormal{ margin:0 0 0 0;} #ygrp-text tt{ font-size:120%;} blockquote{margin:0 0 0 4px;} ..replbq{margin:4;} --> ________________________________________________________________________________\ ____ Need a vacation? Get great deals to amazing places on Yahoo! Travel. http://travel.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 What are some of the little symptoms? And what are the signs of liver failure? My next appt is the 18th of Oct, and being new at this have no idea what to expect or look for! -- ((((Hugs)))) Joyce in RI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Joyce, here are some of stigmata or clinical signs, just remember I am not a doctor, so don't take my word for it, just google and then decide if it looks reputable ( mayo clinic, pub med, merk manual, aasld) or not and even reputable sites will offer different opinions. Spider veins on the neck chest, arms, etc (upper body) .A big cluster of varicose veins around the belly button. White opaque finger nails. Red blotchy palms. The whites of the eyes being yellow. Swollen ankles, a big swollen belly. Easily bruising. Gynocomastia (in males). here is a pdf with more... http://jcomjournal.com/pdf/hp_jul03_stigmata.pdf Re: Re: question What are some of the little symptoms? And what are the signs of liver failure? My next appt is the 18th of Oct, and being new at this have no idea what to expect or look for! -- ((((Hugs)))) Joyce in RI <!-- #ygrp-mkp{ border:1px solid #d8d8d8;font-family:Arial;margin:14px 0px;padding:0px 14px;} #ygrp-mkp hr{ border:1px solid #d8d8d8;} #ygrp-mkp #hd{ color:#628c2a;font-size:85%;font-weight:bold;line-height:122%;margin:10px 0px;} #ygrp-mkp #ads{ margin-bottom:10px;} #ygrp-mkp .ad{ padding:0 0;} #ygrp-mkp .ad a{ color:#0000ff;text-decoration:none;} --> <!-- #ygrp-sponsor #ygrp-lc{ font-family:Arial;} #ygrp-sponsor #ygrp-lc #hd{ margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;} #ygrp-sponsor #ygrp-lc .ad{ margin-bottom:10px;padding:0 0;} --> <!-- #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;} #ygrp-mlmsg table {font-size:inherit;font:100%;} #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;} #ygrp-mlmsg pre, code {font:115% monospace;} #ygrp-mlmsg * {line-height:1.22em;} #ygrp-text{ font-family:Georgia; } #ygrp-text p{ margin:0 0 1em 0;} #ygrp-tpmsgs{ font-family:Arial; clear:both;} #ygrp-vitnav{ padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} #ygrp-vitnav a{ padding:0 1px;} #ygrp-actbar{ clear:both;margin:25px 0;white-space:nowrap;color:#666;text-align:right;} #ygrp-actbar .left{ float:left;white-space:nowrap;} ..bld{font-weight:bold;} #ygrp-grft{ font-family:Verdana;font-size:77%;padding:15px 0;} #ygrp-ft{ font-family:verdana;font-size:77%;border-top:1px solid #666; padding:5px 0; } #ygrp-mlmsg #logo{ padding-bottom:10px;} #ygrp-vital{ background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;} #ygrp-vital #vithd{ font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:upp\ ercase;} #ygrp-vital ul{ padding:0;margin:2px 0;} #ygrp-vital ul li{ list-style-type:none;clear:both;border:1px solid #e0ecee; } #ygrp-vital ul li .ct{ font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-ri\ ght:.5em;} #ygrp-vital ul li .cat{ font-weight:bold;} #ygrp-vital a{ text-decoration:none;} #ygrp-vital a:hover{ text-decoration:underline;} #ygrp-sponsor #hd{ color:#999;font-size:77%;} #ygrp-sponsor #ov{ padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;} #ygrp-sponsor #ov ul{ padding:0 0 0 8px;margin:0;} #ygrp-sponsor #ov li{ list-style-type:square;padding:6px 0;font-size:77%;} #ygrp-sponsor #ov li a{ text-decoration:none;font-size:130%;} #ygrp-sponsor #nc{ background-color:#eee;margin-bottom:20px;padding:0 8px;} #ygrp-sponsor .ad{ padding:8px 0;} #ygrp-sponsor .ad #hd1{ font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%\ ;} #ygrp-sponsor .ad a{ text-decoration:none;} #ygrp-sponsor .ad a:hover{ text-decoration:underline;} #ygrp-sponsor .ad p{ margin:0;} o{font-size:0;} ..MsoNormal{ margin:0 0 0 0;} #ygrp-text tt{ font-size:120%;} blockquote{margin:0 0 0 4px;} ..replbq{margin:4;} --> ________________________________________________________________________________\ ____ Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos & more. http://mobile.yahoo.com/go?refer=1GNXIC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Hi Dot, I'm MaC. I don't have cirrhosis but was a caregiver for my wife who passed away from the disease. I have come to learn a lot about cirrhosis. My wife lost considerable weight and appetite early on in her disease. It was one of her first signs that she was sick. Your loss of weight and lack of appetite are symptoms of cirrhosis but it doesn't necessarily mean things are getting worse. The next time you see your doctor you should see what the lab work tells you or if they plan to do an MRI. MaC > > Hi there, > > I've been a member of this club for quite a while now and I am > experiencing new symptoms which I wonder if anyone else has had with > regard to their liver problems, prior transplant. > > I am losing weight (6 kilos in just over a week) and my appetite, and > I am also experiencing a sudden dislike for tea or coffee. I was > told, by my specialist, that it may be a problem. > > Is this a symptom of the deterioration, or perhaps another problem > altogether? and if it is how serious is it. > > Hope someone can help me with this. > > Thanks > Dot > --------------------------------- Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Here are a couple of other links about cirrhosis and liver failure: Cirrhosis: http://www.emedicine.com/med/topic3183.htm Acute Liver Failure: http://www.emedicine.com/med/topic990.htm JOYCE wrote: What are some of the little symptoms? And what are the signs of liver failure? My next appt is the 18th of Oct, and being new at this have no idea what to expect or look for! -- ((((Hugs)))) Joyce in RI --------------------------------- Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos & more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2007 Report Share Posted November 27, 2007 When my wife had high ammonia and hepatic encephalopathy she never complained of headaches. It could be your Mom is just having a headache, it could be she's dehydrated like you mentioned you were worried about before. Make sure she gets plenty of fluids stays on a low protein and low sodium diet. Also, I would keep a journal and continually write down your concerns and questions so at the next doctors visit you can present that to her doctor. MaC Ohana5 wrote: Can anyone tell me if increasing ammonia levels can give you a headache? Mom's having headaches, BP is fine, she did start taking a med cortef (hydrocortizone) for her RA (sed rate was high) but other than that and the Lactulose, no other changes. Thanks, Pamela Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2007 Report Share Posted December 26, 2007 The only experience I have had with this would be with my best friend, and she didnt change much once she developed severe 3rd stage encephalopathy. This is the stage when a person will lash out in an unrecognizable language, become combative, sleep much of the day, and confabulate, or tell stories that have no relation to reality. She rambled in the ER about her bag of library books, and how the nurses had misplaced them, that she needed to go to the library to turn them in. eventually Sharon convinced her that she had turned them in for her. Of course there were no library books. When she improved, she was discharged from the hospital, and she became that confused several times in the next months, but that was in Feb. o6, and she died August 3rd 06. During this time she was in this final stage of the chronic part of the disease, but the really final stage,liver failure, lasted only 24 hours or so, and that was fulmimant hapatic failure, or liver failure. She stopped making platelets, and her gums bled. She died very shortly thereafter. I read that the human body can only last for a day or so without a liver. One course I read which I will link here says that jaundice is more related to cholostatit ( diseases where bile is blocked) diseases and in cirrhosis it is a very ominous sign. Ardis developed a bright orange tint in May of 06.(refer to the photo album) It was a definate sign that her day on earth were numbered. I do hope your dear wifw can get on the transplant list as soon as possible. Hope is a powerful thing. http://www.ece.ncsu.edu/imaging/MedImg/SIMS/Module2/GE2_3.html Question H1, Everyone. Hope all went well over the holidays. Anyho! What would be some of the symptoms that I would look for from advanced 3rd stage cirrhosis into 4th or end stage cirrhosis. Thanks JD <!-- #ygrp-mkp{ border:1px solid #d8d8d8;font-family:Arial;margin:14px 0px;padding:0px 14px;} #ygrp-mkp hr{ border:1px solid #d8d8d8;} #ygrp-mkp #hd{ color:#628c2a;font-size:85%;font-weight:bold;line-height:122%;margin:10px 0px;} #ygrp-mkp #ads{ margin-bottom:10px;} #ygrp-mkp .ad{ padding:0 0;} #ygrp-mkp .ad a{ color:#0000ff;text-decoration:none;} --> <!-- #ygrp-sponsor #ygrp-lc{ font-family:Arial;} #ygrp-sponsor #ygrp-lc #hd{ margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;} #ygrp-sponsor #ygrp-lc .ad{ margin-bottom:10px;padding:0 0;} --> <!-- #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;} #ygrp-mlmsg table {font-size:inherit;font:100%;} #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;} #ygrp-mlmsg pre, code {font:115% monospace;} #ygrp-mlmsg * {line-height:1.22em;} #ygrp-text{ font-family:Georgia; } #ygrp-text p{ margin:0 0 1em 0;} #ygrp-tpmsgs{ font-family:Arial; clear:both;} #ygrp-vitnav{ padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} #ygrp-vitnav a{ padding:0 1px;} #ygrp-actbar{ clear:both;margin:25px 0;white-space:nowrap;color:#666;text-align:right;} #ygrp-actbar .left{ float:left;white-space:nowrap;} ..bld{font-weight:bold;} #ygrp-grft{ font-family:Verdana;font-size:77%;padding:15px 0;} #ygrp-ft{ font-family:verdana;font-size:77%;border-top:1px solid #666; padding:5px 0; } #ygrp-mlmsg #logo{ padding-bottom:10px;} #ygrp-vital{ background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;} #ygrp-vital #vithd{ font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:upp\ ercase;} #ygrp-vital ul{ padding:0;margin:2px 0;} #ygrp-vital ul li{ list-style-type:none;clear:both;border:1px solid #e0ecee; } #ygrp-vital ul li .ct{ font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-ri\ ght:.5em;} #ygrp-vital ul li .cat{ font-weight:bold;} #ygrp-vital a{ text-decoration:none;} #ygrp-vital a:hover{ text-decoration:underline;} #ygrp-sponsor #hd{ color:#999;font-size:77%;} #ygrp-sponsor #ov{ padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;} #ygrp-sponsor #ov ul{ padding:0 0 0 8px;margin:0;} #ygrp-sponsor #ov li{ list-style-type:square;padding:6px 0;font-size:77%;} #ygrp-sponsor #ov li a{ text-decoration:none;font-size:130%;} #ygrp-sponsor #nc{ background-color:#eee;margin-bottom:20px;padding:0 8px;} #ygrp-sponsor .ad{ padding:8px 0;} #ygrp-sponsor .ad #hd1{ font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%\ ;} #ygrp-sponsor .ad a{ text-decoration:none;} #ygrp-sponsor .ad a:hover{ text-decoration:underline;} #ygrp-sponsor .ad p{ margin:0;} o{font-size:0;} ..MsoNormal{ margin:0 0 0 0;} #ygrp-text tt{ font-size:120%;} blockquote{margin:0 0 0 4px;} ..replbq{margin:4;} --> ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
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