Guest guest Posted August 13, 1998 Report Share Posted August 13, 1998 I don't post very much here because I feel so blessed not to suffer as much as many of you. But I see that several of you have FMS and wonder if you have a good source of information on the subject. Driving is very hard on me. By the time I get to work, I must use my cane. A few hours later I can retire it for the most part... until the trip home.. Must use it after I get home for a while. I do not sleep more than an hour at a time (well, to be totally honest, sometimes I do get a two hour stretch in there). I have discovered that laughter and a healthy attitude cuts down on the pain. (natural morphine!). Never am I without pain, but I have, like many of you, learned to live with it. My memory, or lack thereof, gets me into big trouble. I am an executive Secretary and hope that I do not get fired because of my memory problems. I am also a motivational speaker. Hope some day to make this my full time profession. Actually, I am not terribly sure why I am writing, only that I wanted to talk to someone who understands pain and confusion and the need to hold down a job and the desire to change careers while still suffering from this disease. Thanks for the ear!! Pixie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 1998 Report Share Posted August 13, 1998 Hi Pixie, You have a great attitude! You really are dealing with significant limitations. We have several information experts in the list who I am sure will have some things for you, & we're trying to assemble some faqs for everyone. Ken At 09:03 AM 8/13/98 -0400, you wrote: > > >I don't post very much here because I feel so blessed not to suffer as much as >many of you. But I see that several of you have FMS and wonder if you have a >good source of information on the subject. > >Driving is very hard on me. By the time I get to work, I must use my cane. A >few hours later I can retire it for the most part... until the trip home.. >Must use it after I get home for a while. > >I do not sleep more than an hour at a time (well, to be totally honest, >sometimes I do get a two hour stretch in there). I have discovered that >laughter and a healthy attitude cuts down on the pain. (natural morphine!). >Never am I without pain, but I have, like many of you, learned to live with >it. > >My memory, or lack thereof, gets me into big trouble. I am an executive >Secretary and hope that I do not get fired because of my memory problems. > >I am also a motivational speaker. Hope some day to make this my full time >profession. > >Actually, I am not terribly sure why I am writing, only that I wanted to talk >to someone who understands pain and confusion and the need to hold down a job >and the desire to change careers while still suffering from this disease. > >Thanks for the ear!! > >Pixie > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 1998 Report Share Posted August 13, 1998 Some days it's easier to deal with FMS than others. When I'm stressed like I am at work right now I come home and go right to sleep. I have no food in the fridge, too tired to cook or shop. For a while, and it did help, I keep frozen dinners in the freeer for when I'm flaring so that I at least eat something nurishing. Right now I'm trying to at least eat a healthy lunch. But I figure as long as I can laugh I'll be ok. ~*~*~*~ ~*~*~*~ Peace of mind is the mental condition in which you have accepted the worst. Lin Y. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 1998 Report Share Posted August 14, 1998 Dear Pixie, I too have FMS as well as a few other diagnosis. I think my biggest source of information is to go to the Web. Also I do spend some time in the FMS chat rooms. In there I have found a group of people who understand the many issues that arise from FMS. We all have terrible memories, so ..... Do you have the book " Fibromyalgia and Chronic Myofascial Pain Syndrome? That is also a great book for information and help in dealing with Fibro. I too am trying to keep my job and still do the things that " moms " do when I get home. I was just told yesterday that I now need to use a cane. Part of that is because of my spinal condition and at this point I have no reflexes in my left leg. I'm sure you will find, as I have, others here who will help and support you. This list has been wonderful for me. Kathleen Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.