Guest guest Posted January 22, 2005 Report Share Posted January 22, 2005 Hi All, Since I answered a post last night just thought I should introduce myself. I've been lurking for quite a while. I am the mom of an 11 yo diagnosed with autism at three. We started out on the educational (ABA mostly) track and made great progress but there are a few lingering issues I'm trying to figure out solutions for. Thanks for all the good info! H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Vent all you want! Everyone needs to now and then! Besides, some people need to have thinking rearranged. I too am a business owner. Recently someone looked at my vehicle ( I drive a van, so we can do our camping and hiking trips with the kids, and just cuz I like it)and rather disparagingly said her tax lady drives a Mercedes. I just looked back and told her if my tax lady did I would feel I was paying her WAY too much! lolol She had nothing to say to that! Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Hey everyone, I have been following in the group for sometime and it's fresh funny a great way to assist people no matter what walk of life. Did post a comment previously. But I thought as well to formally introduce myself,,,, Jordan business owner and as well as knowing individual. Today was a day I was start to express myself I know that someone is reading at this, But today has been a breaking point for me: 1st off I know that this group assist people and found out about their regiment with regards to weight loss and believe I have been thru the whole weight loss routine,, even though I see as a lifestyle. There are valleys thru the experience. My point is nothing of that nature right now, get back to the point. I have gone thru an unhappy experience this morning which was I went to a headhunter for some assistance and the moment the guy see me and tells me that he can't help me because he deals with high level execs(now I have my own business) and I have an extensive resume. Now that but some excuse that he was going to contact(seems to me the appearance across some act to see the response that I would of provided(believe I did give me what he was looking for). Believe talk about walking since this whole experience I have been walking miles since my car is nonexistence. I am grateful for that bit of time to talk to God as well because this a sad state of affair, not to sound whiny but hey, I was piss.HA HA I am started to come around the day is moving on and believe there is always tomorrow. I welcome anybody comment. I hope no will shy away because I very sweet person. I want thank you all for being there and listeningdougpapa@... wrote: Don't be a perpetrator,a victim,or a bystander.RDM Good morning RDM I hope you have a great Texas day. Jordan (404)409-3223 www.HelpfultoUandme.com "Your Vision Supercedes Your Presence"" Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Rough day :-( Have faith and keep on keeping on.. The best thing about bad days is they usually get better at some point~!!!! Have a " better " day!!!! Griffmom in Indy > Don't be a perpetrator,a victim,or a bystander.RDM > > Good morning RDM > I hope you have a great Texas day. > > > > http://www.thefatmanwalking.com/ > Keep walking Steve!!! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2006 Report Share Posted April 11, 2006 Hi, my name is Yo. I have been following the discussion of the group for a while. I live in San Diego (same as Steve) and I am a weight management consultant and an author. Nineteen years ago when I first came to the US, I gain 25 lbs in 3 months. I fought to lose the weight for 2 years and I know how hard it is to lose weight, especially w/ American diet :-). However, it's possible and never ever give up! Best wishes, Yo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 Welcome Joann and all newbies. You're probably right... it is your body crying out for sugar and diet soda. The cravings should end soon. Hang in there !! It is our diet that is making us fat. We have been told for so long that it is alright to super-size our meals and we have been ignoring the truth. It's time to lay down the fast food, eat healthy, non-processed food, and start moving our bodies. I have been in this group almost a year, and I think we are moving beyond Steve. We are also here to learn about others, care about one another and to help each other. It keeps getting bbetter and better. Best of luck to everyone who needs to lose weight. Maggie welcome to all the newbies of our group, im fairly new as well and am so blessed by reading the posts. Its my 3rd day of no sugar and no diet coke and excercise, boy ar emy arms and legs letting me know about itlol, i woke up really crabby today, i dont know if its the withdrawls from the sugar and soda affecting me or not, so i am praying God will sustain me today and not to fall back into old habits, i have always been an emotional eater, and i do not want to be imprisoned by that anylonger. I wish you all happiness and health and am glad you are here, the posts i am able to read from work as well and it really helps me day! have a blessed day! joann from missouri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 Thank you maggie, these posts really give me the lift up i need. Well i am not feeling as crabby and am already planning my workout for my first break at noon. Now, when noon comes around i just need to get up and get moving! I appreciate you all , thanks for caring!MAGGIMAY88@... wrote: Welcome Joann and all newbies. You're probably right... it is your body crying out for sugar and diet soda. The cravings should end soon. Hang in there !! It is our diet that is making us fat. We have been told for so long that it is alright to super-size our meals and we have been ignoring the truth. It's time to lay down the fast food, eat healthy, non-processed food, and start moving our bodies. I have been in this group almost a year, and I think we are moving beyond Steve. We are also here to learn about others, care about one another and to help each other. It keeps getting bbetter and better. Best of luck to everyone who needs to lose weight. Maggie welcome to all the newbies of our group, im fairly new as well and am so blessed by reading the posts. Its my 3rd day of no sugar and no diet coke and excercise, boy ar emy arms and legs letting me know about itlol, i woke up really crabby today, i dont know if its the withdrawls from the sugar and soda affecting me or not, so i am praying God will sustain me today and not to fall back into old habits, i have always been an emotional eater, and i do not want to be imprisoned by that anylonger. I wish you all happiness and health and am glad you are here, the posts i am able to read from work as well and it really helps me day! have a blessed day! joann from missouri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 Hi Joann, Stay strong today!! In my opinion, the exercise should be your number one priority, no sugar should be next, and no diet coke is good, but at least it was not adding calories to your diet. But it sounds like you were drinking A LOT of it! Do you like iced tea at all? That is what I have substituted 90 percent for diet sodas. I make it fresh at my desk during the day - one tea bag in a mug with hot water, then I fill up my glass with ice and pour the hot tea over the ice. I use Splenda and you might too since you are trying for no sugar. The fun thing about iced tea is there are so many different flavors and types to try. And it satisfies my need to be sipping or chewing on something throughout the day. I am a person who tends to overeat when I am nervous, bored, anxious, or tired. Oh, and also when I'm hungry Alice > > welcome to all the newbies of our group, im fairly new as well and am so blessed by reading the posts. Its my 3rd day of no sugar and no diet coke and excercise, boy ar emy arms and legs letting me know about itlol, i woke up really crabby today, i dont know if its the withdrawls from the sugar and soda affecting me or not, so i am praying God will sustain me today and not to fall back into old habits, i have always been an emotional eater, and i do not want to be imprisoned by that anylonger. I wish you all happiness and health and am glad you are here, the posts i am able to read from work as well and it really helps me day! > have a blessed day! > > joann from missouri > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 well i havent had the problem in a while, but lately sometimes just before bed i can end up freezing, then i wake up later roasting, very uncomfortable. oh the iodine disapeared off my arm with a couple of hours, but it wasnt pure iodine it had other first aid ingrediants in it. i guess i'd better make sure my multi vitamin has enough iodine in it. A lot don't because they assume you are getting it in your salt. laurie > > > In a message dated 4/12/2006 4:51:29 PM Central Standard Time, > spamthekat@... writes: > > i used to always by cold, i wonder if that is a symptom of iodine > dificiency? i think i will try that iodine test... > > > > Laurie > This is one symptom. Before I took the iodine test and started taking Iosil > I would some time wake up at night feeling like I was freezing to death > while Sondy was still comfortable. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 Gerard, I was in New Orleans last week. We on the Mississippi Gulf Coast have been saying "why is New Orleans getting all the press about Katrina destruction?" Now I know. New Orleans East is a ghost town, out by the Lakefront as well. Too sad. We sat near some locals at lunch and one explained it so well to me. He said, "Your houses were flooded with sea water for less than twelve hours. Our houses sat for weeks with water plus every sort of contamination." One of my sons had five feet of water in his house, nowhere near a federally mandated flood zone, 1 1/2 miles from the Gulf. He had to pull drywall, carpets, and trash all appliances, and most furniture, plus wiring and heating and cooling replaced, but still he has a home. I live a block from the gulf and got no flooding. I was amazed to learn that the areas closest to the Mississippi river (French Quarter, Garden District, etc) . stayed high and dry. Hope you did not get flooding where you live. W. PS Seafood is rich in iodine, so if you eat good ole New Orleans food, you probably get plenty in your diet without salting food. Re: Intro In my case, when my parents were still living (I was living with them) my mother due to her health problems was put on a salt free dite.Although we live in New Orleans with quite a bit of spicy foods, because of the salt restrictions I now rarely use salt & with the Iodine comments earlier will check my Iodine as soon as I can go to the store to get some.Gerard>> my father salts everything, like mad. but my mom wouldnt let us> kids emulate him, so thank goodness I didnt learn to do the same.> My brother is another matter...> > you know the iodine thing has gotten my thinking, we ate virtually> no salt as a family and my mom always cooked home made food so it> wasnt like we were going out for mcdonalds or pizza or buying> frozen food.> > i used to always by cold, i wonder if that is a symptom of iodine> dificiency? i think i will try that iodine test...> > laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 hi ! So you are in No CA! Me too...I am SICK of the rain! The sun is out today! one day is great and way better then none! Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Joann...wish you were closer...I would walk all day with you....course that is the day before the last day of tax season so I will probably be working 15 hours...but I would try! lol Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Thank you, . Yesterday was a great day indeed. I ate lunch at Texas Fried Chicken and has a story to tell the group. Very good Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Thank you, . Yesterday was a great day indeed. I ate lunch at Texas Fried Chicken and has a story to tell the group. Take care, Yo dougpapa@... wrote: Best wishes, Yo Good morning Have a great day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 you are sooooooooo sweet ,, i am sittin at work gigglin, i know my co workers think im nuts, i will walk on sunday , this excercise stuff is all new to me and im excited, i am very very overweight but one time, i was hot to trot lol (that dates me doesnt it) lol i am goin to walk on saturday too, i am going to miss my work out gym at work this weekend lol bless you for your kindness! joannjjsmth@... wrote: Joann...wish you were closer...I would walk all day with you....course that is the day before the last day of tax season so I will probably be working 15 hours...but I would try! lol Janehttp://www.thefatmanwalking.com/Keep walking Steve!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Gerard, I'll give that a try, thanks. Jeanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 You are in a good place. Yes cirrhosis causes incredible fatigue and weakness. My mom slept most all of the time. It is so great that you are able to help your mom. Pamela Re: Intro Welcome Tina and other new members..I can't keep up today....I'm decluttering under the house and it is a MESS! I just wanted to check in and say hi! I'm praying for all of you and yours, lots of time as I declutter, to ask the Lord to bless you all today. I am Pamela, caregiver to my mom who died of cirrhosis in Feb '08. Today as I was going through stuff, I found a box of things we used while caring for mom. Meds, bed pads, shampoo caps, a baby monitor, thermometer etc.. All over again..the thoughts came flooding back of when I was turning her every couple hours, feeding her, giving her meds etc.. But no tears today, which is really strange, but a welcomed relief from all the other days that I do cry. I miss her something terrible!! I know caregiving is hardwork, but hang in there! It is a huge blessing to give the gift of caregiving! And when you think you can't go on, remember the One who is helping you, He really will carry you during the hard times, don't be afraid to ask, He is a great listener!! I hope you all find help here at this wonderful group. I sure have and continue to be blessed by the sweet fellowship! Well, back to it! It feels good to work hard, but I am shocked at how much STUFF has accumulated over the years. And now everything my mom made, wore, touched etc..I can't seem to part with. Blessings All.. Love, Pamela ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 I'm trying to help as much as I can. We have a 3 year old daughter so it makes my parnets happy when I take her up there. I feel so helpless b/c my mom is scared to be away from the house to long worrying that he might fall or something. I didn't realize how weak and fatigued Cirrhosis made you. It seems like he was fatigued then all of a sudden he was sleeing most of the day & night. Tina _____ From: livercirrhosissupport [mailto:livercirrhosissupport ] On Behalf Of Pamela on Sent: Thursday, November 06, 2008 1:44 PM To: livercirrhosissupport Subject: Re: Intro You are in a good place. Yes cirrhosis causes incredible fatigue and weakness. My mom slept most all of the time. It is so great that you are able to help your mom. Pamela Re: Intro Welcome Tina and other new members..I can't keep up today....I'm decluttering under the house and it is a MESS! I just wanted to check in and say hi! I'm praying for all of you and yours, lots of time as I declutter, to ask the Lord to bless you all today. I am Pamela, caregiver to my mom who died of cirrhosis in Feb '08. Today as I was going through stuff, I found a box of things we used while caring for mom. Meds, bed pads, shampoo caps, a baby monitor, thermometer etc.. All over again..the thoughts came flooding back of when I was turning her every couple hours, feeding her, giving her meds etc.. But no tears today, which is really strange, but a welcomed relief from all the other days that I do cry. I miss her something terrible!! I know caregiving is hardwork, but hang in there! It is a huge blessing to give the gift of caregiving! And when you think you can't go on, remember the One who is helping you, He really will carry you during the hard times, don't be afraid to ask, He is a great listener!! I hope you all find help here at this wonderful group. I sure have and continue to be blessed by the sweet fellowship! Well, back to it! It feels good to work hard, but I am shocked at how much STUFF has accumulated over the years. And now everything my mom made, wore, touched etc..I can't seem to part with. Blessings All.. Love, Pamela ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 Okay...I've got a couple more questions. Have any of you encountered 'oral thrust' along with Cirrhosis? My dad saw an ENT last week and that's what they said he had and they gave him Nystatin to swish. My mom just called me and said his legs and feet were a purplish color and his hands and feet are cold (sometimes he wears socks on his hands...we're in Florida & don't really use gloves). She went to MayoClinic.com and searched " purple feet " . Although it comes up with 10 different things it could be...I think she feels it's mottling. Does anyone have any experience with this??? Tina _____ From: livercirrhosissupport [mailto:livercirrhosissupport ] On Behalf Of Tina Sent: Thursday, November 06, 2008 2:22 PM To: livercirrhosissupport Subject: RE: Intro I'm trying to help as much as I can. We have a 3 year old daughter so it makes my parnets happy when I take her up there. I feel so helpless b/c my mom is scared to be away from the house to long worrying that he might fall or something. I didn't realize how weak and fatigued Cirrhosis made you. It seems like he was fatigued then all of a sudden he was sleeing most of the day & night. Tina _____ From: livercirrhosissuppo <mailto:livercirrhosissupport%40yahoogroups.com> rt [mailto:livercirrhosissuppo <mailto:livercirrhosissupport%40yahoogroups.com> rt ] On Behalf Of Pamela on Sent: Thursday, November 06, 2008 1:44 PM To: livercirrhosissuppo <mailto:livercirrhosissupport%40yahoogroups.com> rt Subject: Re: Intro You are in a good place. Yes cirrhosis causes incredible fatigue and weakness. My mom slept most all of the time. It is so great that you are able to help your mom. Pamela Re: Intro Welcome Tina and other new members..I can't keep up today....I'm decluttering under the house and it is a MESS! I just wanted to check in and say hi! I'm praying for all of you and yours, lots of time as I declutter, to ask the Lord to bless you all today. I am Pamela, caregiver to my mom who died of cirrhosis in Feb '08. Today as I was going through stuff, I found a box of things we used while caring for mom. Meds, bed pads, shampoo caps, a baby monitor, thermometer etc.. All over again..the thoughts came flooding back of when I was turning her every couple hours, feeding her, giving her meds etc.. But no tears today, which is really strange, but a welcomed relief from all the other days that I do cry. I miss her something terrible!! I know caregiving is hardwork, but hang in there! It is a huge blessing to give the gift of caregiving! And when you think you can't go on, remember the One who is helping you, He really will carry you during the hard times, don't be afraid to ask, He is a great listener!! I hope you all find help here at this wonderful group. I sure have and continue to be blessed by the sweet fellowship! Well, back to it! It feels good to work hard, but I am shocked at how much STUFF has accumulated over the years. And now everything my mom made, wore, touched etc..I can't seem to part with. Blessings All.. Love, Pamela ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 Hi, Tina. I still have oral thrush from July. I was misdiagnosed in the ER. Sent away as a hypochondriac. Now I find it is written in my record that I was diagnosed with acute pharyngitis, which is doctorese for sore throat. I had to go to an outside doctor to get a true diagnosis, and then a month of swish accompanied by fluconazole tablets three times a day along with zithromycin, which I do not even know why zith was prescribed as thrush usually accompanies a course of antbiotics. Get this, my hepatologist, based on the fact that his liver patients are not all suffering from thrush, told me that it isnt related to liver disease, and yet every other doctor I saw said it was. Bobby, aka rwe long life, old age, everything good-Apache prayer ________________________________ To: livercirrhosissupport Sent: Thursday, November 6, 2008 2:15:29 PM Subject: RE: Intro Okay...I've got a couple more questions. Have any of you encountered 'oral thrust' along with Cirrhosis? My dad saw an ENT last week and that's what they said he had and they gave him Nystatin to swish. My mom just called me and said his legs and feet were a purplish color and his hands and feet are cold (sometimes he wears socks on his hands...we're in Florida & don't really use gloves). She went to MayoClinic.com and searched " purple feet " . Although it comes up with 10 different things it could be...I think she feels it's mottling. Does anyone have any experience with this??? Tina _____ From: livercirrhosissuppo rtyahoogroups (DOT) com [mailto:livercirrhosissuppo rtyahoogroups (DOT) com] On Behalf Of Tina Sent: Thursday, November 06, 2008 2:22 PM To: livercirrhosissuppo rtyahoogroups (DOT) com Subject: RE: Intro I'm trying to help as much as I can. We have a 3 year old daughter so it makes my parnets happy when I take her up there. I feel so helpless b/c my mom is scared to be away from the house to long worrying that he might fall or something. I didn't realize how weak and fatigued Cirrhosis made you. It seems like he was fatigued then all of a sudden he was sleeing most of the day & night. Tina _____ From: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com [mailto:livercirrho sissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com] On Behalf Of Pamela on Sent: Thursday, November 06, 2008 1:44 PM To: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com Subject: Re: Intro You are in a good place. Yes cirrhosis causes incredible fatigue and weakness. My mom slept most all of the time. It is so great that you are able to help your mom. Pamela Re: Intro Welcome Tina and other new members..I can't keep up today....I'm decluttering under the house and it is a MESS! I just wanted to check in and say hi! I'm praying for all of you and yours, lots of time as I declutter, to ask the Lord to bless you all today. I am Pamela, caregiver to my mom who died of cirrhosis in Feb '08. Today as I was going through stuff, I found a box of things we used while caring for mom. Meds, bed pads, shampoo caps, a baby monitor, thermometer etc.. All over again..the thoughts came flooding back of when I was turning her every couple hours, feeding her, giving her meds etc.. But no tears today, which is really strange, but a welcomed relief from all the other days that I do cry. I miss her something terrible!! I know caregiving is hardwork, but hang in there! It is a huge blessing to give the gift of caregiving! And when you think you can't go on, remember the One who is helping you, He really will carry you during the hard times, don't be afraid to ask, He is a great listener!! I hope you all find help here at this wonderful group. I sure have and continue to be blessed by the sweet fellowship! Well, back to it! It feels good to work hard, but I am shocked at how much STUFF has accumulated over the years. And now everything my mom made, wore, touched etc..I can't seem to part with. Blessings All.. Love, Pamela ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 That is so moving. Ardis always forbid me from " snooping through her stuff " in the shed, which I would NEVER do to a guest, but after she died, I had to sort just out of necessity. I wanted to reclaim my shed. I found a box, and in it was all of her crystals, and there was a ceramic crucifix. I turned it over, and scratched in to it, before the firing process she carved her name- ARDIS, 2002. God is good. I am so glad you found the card. Memories are precious, and this is one reason I fear encephalopathy so much. I do not want to ever forget her. She was here last night, in my dreams, and I don't remember the whole context of what she said to me, but the feeling lingered all day. Bless you, love Bobby aka rwe long life, old age, everything good-Apache prayer ________________________________ To: livercirrhosissupport Sent: Thursday, November 6, 2008 3:22:26 AM Subject: Re: Intro i have a chest type table i keep memories of my son in ...i was looking for a book this morn and thought maybe i put it in the chest to keep it away from my grandson. i opened the chest and had to read the last mothers day card my son gave to me after he died...he had prob 2 dozen boxes transported to my home when he died the service people brought them to me from VA..then the funeral director brought them to my home...they were piled up in my kitchen every one told me to leave them alone for now ...all i wanted to do was smell him feel him...i opened one box ...let me open one box so i did of all the boxes i could of opened it was the one that had the belated mothers day card on top...he told me how much he loved me all that i taught him and how i helped to form him as a man...he talked about respect...then wrote me a poem...i will share if you want me to...later.. .OH what a gift from my Lord... ____________ _________ _________ __ From: " robwalkingeagle@ yahoo.com " <robwalkingeagle@ yahoo.com> To: Livercirrhosissuppo rt <livercirrhosissuppo rtyahoogroups (DOT) com> Sent: Thursday, November 6, 2008 4:29:37 AM Subject: Re: Intro There is a green shirt I have on the back of my couch, and I call it my crying shirt. She wore it on the visit to the hepatologist. She wore it again in the ambulance to the hospice. I drink my coffee from a cup I gave her in 1997. I gave her my stuffed frog for Christmas in 2004, and somehow had a feeling I would be getting it back. Ardis named him " Jaques Peppin " and you see him with me in every picture on my blog in the hospital. Sent via BlackBerry from T-Mobile Re: Intro ya, well here I was tucking in the last of the stuff into the medical supplies box and I found the pink basin they give you at the hospital. Inside it was a single hair from my mom....that was it.....I burst into tears, to touch a part of her....I miss her so much! Jesus can't come soon enough to please me...but I know he is being patient so everyone can have a chance to know Him.....and these feelings are kind of worldly, earthly feelings, not heavenly feelings. I don't think I love the way Jesus loves, but He's working on me. Thanks for your kind words and prayers Diane! Love you, Pamela Re: Intro <And now everything my mom made, wore, touched etc..I can't seem to part with.> Pamela, Don't rush that. The time will come when it will seem right to go through your Mom's things and part with some of them.. Some you'll never want to part with. Grief is a process and it shouldn't be rushed. Let it happen in it's own time. The Lord will give you peace about letting go of her things when the time is right for you. I'm praying for you cause I've been where you are now. Hugs........ . Diane MARKETPLACE ------------ --------- --------- --------- --------- --------- - From kitchen basics to easy recipes - join the Group from Kraft Foods Change settings via the Web (Yahoo! ID required) Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe Recent Activity a.. 7New Members b.. 8New Photos Visit Your Group Meditation and Lovingkindness A Yahoo! Group to share and learn. Yahoo! Health Healthy Aging Improve your quality of life. Yahoo! Groups Special K Challenge Join others who are losing pounds. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 I was told that it is a side effect of the high doses of prednisone. Susie Corpus Christi > > Hi, Tina. I still have oral thrush from July. I was misdiagnosed in the ER. Sent away as a hypochondriac. Now I find it is written in my record that I was diagnosed with acute pharyngitis, which is doctorese for sore throat. I had to go to an outside doctor to get a true diagnosis, and then a month of swish accompanied by fluconazole tablets three times a day along with zithromycin, which I do not even know why zith was prescribed as thrush usually accompanies a course of antbiotics. Get this, my hepatologist, based on the fact that his liver patients are not all suffering from thrush, told me that it isnt related to liver disease, and yet every other doctor I saw said it was. Bobby, aka rwe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 a very similar story.....They shared Mom's house that she bought as a single mom many years before their marriage. Then suddenly, after she'd been in the nursing home for a few years, us kids were no longer welcome in the house....then his kids showed up ,after never coming around their Mom & French's whole married life...and they made sure we were never in the house again. When we were finally allowed to get our family heirlooms etc, French's daughter went thru the house with him and packed up everything that was " his " , before we were allowed to go in....and French was going into dementia at the time---claiming to see people in the room with him! And yet they decided he was lucid enough to make those decisions. We were never allowed to know what things he and his daughter took. I am still bitter about it.......but don't have to deal with them anymore and God forgive me....good riddance!! I'm like you....I've got plenty of other stuff on my plate and With my arthritis & Fibro, it's not worth the effort. We just have to move on!! Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. From: diane chandler <dianechandler@ att.net> Subject: Re: Intro To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Wednesday, November 5, 2008, 10:15 PM <And now everything my mom made, wore, touched etc..I can't seem to part with.> Pamela, Don't rush that. The time will come when it will seem right to go through your Mom's things and part with some of them. Some you'll never want to part with. Grief is a process and it shouldn't be rushed. Let it happen in it's own time. The Lord will give you peace about letting go of her things when the time is right for you. I'm praying for you cause I've been where you are now. Hugs........ . Diane Re: Intro Welcome Tina and other new members..I can't keep up today....I'm decluttering under the house and it is a MESS! I just wanted to check in and say hi! I'm praying for all of you and yours, lots of time as I declutter, to ask the Lord to bless you all today. I am Pamela, caregiver to my mom who died of cirrhosis in Feb '08. Today as I was going through stuff, I found a box of things we used while caring for mom. Meds, bed pads, shampoo caps, a baby monitor, thermometer etc.. All over again..the thoughts came flooding back of when I was turning her every couple hours, feeding her, giving her meds etc.. But no tears today, which is really strange, but a welcomed relief from all the other days that I do cry. I miss her something terrible!! I know caregiving is hardwork, but hang in there! It is a huge blessing to give the gift of caregiving! And when you think you can't go on, remember the One who is helping you, He really will carry you during the hard times, don't be afraid to ask, He is a great listener!! I hope you all find help here at this wonderful group. I sure have and continue to be blessed by the sweet fellowship! Well, back to it! It feels good to work hard, but I am shocked at how much STUFF has accumulated over the years. And now everything my mom made, wore, touched etc..I can't seem to part with. Blessings All.. Love, Pamela ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 At my uncle 's recent funeral, there was still an apparent rift in full bore after 20 long years. My grandfather moved in to the big city of Denver in the late 60's and bought a small house on the east side. Now he was retired from the coal mines of southern Colorado, and had black lung, and declared that he was " dying " . This " dying " phase encompassed his entire life, and his youngest son agreed to have his name added to the mortgage in case of Grandfather's demise. Oldest sister lived next to Grandfather, and thorough the hard years of the oil embargo double digit inflation, and later 20% interest rates in the 80's, oldest daughter, my aunt Margaret helped pay that house payment for years. Fast forward, to my grandfather's death bed, his dying wish is to have that little house kept in the family, to be a central meeting place for a family now in the hundreds.(8 brothers and sisters, +kids+grandkids+great grandkids>) The reading of the will... Son who was added to the morgage has brought a lawsuit. He alone will own the house,and gets the Denver sheriff to kick out aunt Delores, who had been living in the house. The house goes to uncle Gil, and the siblings are ostracized. Now, years later, half have forgiven him, the other half have not. It is to this day an ugly affair. Especially at family reunions, weddings and funerals. Long ago , my grandfather rolled over in his grave. Bobby long life, old age, everything good-Apache prayer ________________________________ To: livercirrhosissupport Sent: Friday, November 7, 2008 8:21:56 AM Subject: Re: Intro a very similar story.....They shared Mom's house that she bought as a single mom many years before their marriage. Then suddenly, after she'd been in the nursing home for a few years, us kids were no longer welcome in the house....then his kids showed up ,after never coming around their Mom & French's whole married life...and they made sure we were never in the house again. When we were finally allowed to get our family heirlooms etc, French's daughter went thru the house with him and packed up everything that was " his " , before we were allowed to go in....and French was going into dementia at the time---claiming to see people in the room with him! And yet they decided he was lucid enough to make those decisions. We were never allowed to know what things he and his daughter took. I am still bitter about it.......but don't have to deal with them anymore and God forgive me....good riddance!! I'm like you....I've got plenty of other stuff on my plate and With my arthritis & Fibro, it's not worth the effort. We just have to move on!! Love,Jill We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. From: diane chandler <dianechandler@ att.net> Subject: Re: Intro To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Wednesday, November 5, 2008, 10:15 PM <And now everything my mom made, wore, touched etc..I can't seem to part with.> Pamela, Don't rush that. The time will come when it will seem right to go through your Mom's things and part with some of them. Some you'll never want to part with. Grief is a process and it shouldn't be rushed. Let it happen in it's own time. The Lord will give you peace about letting go of her things when the time is right for you. I'm praying for you cause I've been where you are now. Hugs........ . Diane Re: Intro Welcome Tina and other new members..I can't keep up today....I'm decluttering under the house and it is a MESS! I just wanted to check in and say hi! I'm praying for all of you and yours, lots of time as I declutter, to ask the Lord to bless you all today. I am Pamela, caregiver to my mom who died of cirrhosis in Feb '08. Today as I was going through stuff, I found a box of things we used while caring for mom. Meds, bed pads, shampoo caps, a baby monitor, thermometer etc.. All over again..the thoughts came flooding back of when I was turning her every couple hours, feeding her, giving her meds etc.. But no tears today, which is really strange, but a welcomed relief from all the other days that I do cry. I miss her something terrible!! I know caregiving is hardwork, but hang in there! It is a huge blessing to give the gift of caregiving! And when you think you can't go on, remember the One who is helping you, He really will carry you during the hard times, don't be afraid to ask, He is a great listener!! I hope you all find help here at this wonderful group. I sure have and continue to be blessed by the sweet fellowship! Well, back to it! It feels good to work hard, but I am shocked at how much STUFF has accumulated over the years. And now everything my mom made, wore, touched etc..I can't seem to part with. Blessings All.. Love, Pamela ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 Wow...since July! My dad was having trouble swallowing so they went to the ENT and had a barium swallow. Tina _____ From: livercirrhosissupport [mailto:livercirrhosissupport ] On Behalf Of Bob Aragon Sent: Thursday, November 06, 2008 7:29 PM To: livercirrhosissupport Subject: Re: Intro Hi, Tina. I still have oral thrush from July. I was misdiagnosed in the ER. Sent away as a hypochondriac. Now I find it is written in my record that I was diagnosed with acute pharyngitis, which is doctorese for sore throat. I had to go to an outside doctor to get a true diagnosis, and then a month of swish accompanied by fluconazole tablets three times a day along with zithromycin, which I do not even know why zith was prescribed as thrush usually accompanies a course of antbiotics. Get this, my hepatologist, based on the fact that his liver patients are not all suffering from thrush, told me that it isnt related to liver disease, and yet every other doctor I saw said it was. Bobby, aka rwe long life, old age, everything good-Apache prayer ________________________________ From: Tina <beadin_beagle@ <mailto:beadin_beagle%40yahoo.com> yahoo.com> To: livercirrhosissuppo <mailto:livercirrhosissupport%40yahoogroups.com> rt Sent: Thursday, November 6, 2008 2:15:29 PM Subject: RE: Intro Okay...I've got a couple more questions. Have any of you encountered 'oral thrust' along with Cirrhosis? My dad saw an ENT last week and that's what they said he had and they gave him Nystatin to swish. My mom just called me and said his legs and feet were a purplish color and his hands and feet are cold (sometimes he wears socks on his hands...we're in Florida & don't really use gloves). She went to MayoClinic.com and searched " purple feet " . Although it comes up with 10 different things it could be...I think she feels it's mottling. Does anyone have any experience with this??? Tina _____ From: livercirrhosissuppo rtyahoogroups (DOT) com [mailto:livercirrhosissuppo rtyahoogroups (DOT) com] On Behalf Of Tina Sent: Thursday, November 06, 2008 2:22 PM To: livercirrhosissuppo rtyahoogroups (DOT) com Subject: RE: Intro I'm trying to help as much as I can. We have a 3 year old daughter so it makes my parnets happy when I take her up there. I feel so helpless b/c my mom is scared to be away from the house to long worrying that he might fall or something. I didn't realize how weak and fatigued Cirrhosis made you. It seems like he was fatigued then all of a sudden he was sleeing most of the day & night. Tina _____ From: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com [mailto:livercirrho sissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com] On Behalf Of Pamela on Sent: Thursday, November 06, 2008 1:44 PM To: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com Subject: Re: Intro You are in a good place. Yes cirrhosis causes incredible fatigue and weakness. My mom slept most all of the time. It is so great that you are able to help your mom. Pamela Re: Intro Welcome Tina and other new members..I can't keep up today....I'm decluttering under the house and it is a MESS! I just wanted to check in and say hi! I'm praying for all of you and yours, lots of time as I declutter, to ask the Lord to bless you all today. I am Pamela, caregiver to my mom who died of cirrhosis in Feb '08. Today as I was going through stuff, I found a box of things we used while caring for mom. Meds, bed pads, shampoo caps, a baby monitor, thermometer etc.. All over again..the thoughts came flooding back of when I was turning her every couple hours, feeding her, giving her meds etc.. But no tears today, which is really strange, but a welcomed relief from all the other days that I do cry. I miss her something terrible!! I know caregiving is hardwork, but hang in there! It is a huge blessing to give the gift of caregiving! And when you think you can't go on, remember the One who is helping you, He really will carry you during the hard times, don't be afraid to ask, He is a great listener!! I hope you all find help here at this wonderful group. I sure have and continue to be blessed by the sweet fellowship! Well, back to it! It feels good to work hard, but I am shocked at how much STUFF has accumulated over the years. And now everything my mom made, wore, touched etc..I can't seem to part with. Blessings All.. Love, Pamela ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
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