Re: European - Dutch Professor Waldinger - adresses PSSD

[Guest guest]

Hi,

One of us has experienced changes eith the use of alcohol;

After treatment with requip, he experienced more libido and more feeling in his

genitals. For up to 2 days after alcohol use.

Waldinger explained that alcohol works on different neurotransmitting system.

One is the glutamine system which is an activating system and is stimulated by

alcohol. Hence this could be an explanation of the effect alcohol did have on

him.

But than again this does not hold for everyone, adverse effects can also happen.

The only thing alcohol and the effect on pssd shows that, again, it involves

different systems not working effectively.

> > > >

> > > > Dear all,

> > > >

> > > > Me and 2 other PSSD sufferors have close contact with Professor

Waldinger in the Netherlands.

> > > >

> > > > Professor Waldinger is Psychiatrist and Neurologist and is specialized

in sexuality. He has a reknown name in the world of psychiatry and sexuality.

> > > >

> > > > He is familiar with PSSD, has seen cases in the past. He is, as many of

us, still just hypothesizing what could be the cause of our syndrome.

> > > >

> > > > He is however underlining that SSRI can cause PSSD, and is open to have

a dialogue. He has prescribed requip to one of us to try and elavate libido.

> > > >

> > > > We as a group of 3 however do not serve as a large enough population for

him to do research. secondly he thinking about writing an article about PSSD but

would need more people;

> > > >

> > > > therefor,

> > > >

> > > > we are looking for fellow PSSD'ers living in the Netherlands or in a

neirby country, to get in contact with each other, and try to persuade Waldinger

to publish about our syndrome, and/or serve as a research population.

> > > >

> > > > hope to find some respons here!

> > > >

> > > > thanks in advance,

> > > >

> > > > Sebastiaan, Freek and

> > > >

> > >

> >

>

[Guest guest]

Hi all,

Our posting has also landed on the german pssd site.

It has caused some confusion, which i also would like to clearify here.

One of the member stated that waldinger is only interested in prescribing all

kinds of medicine.

This is not the case entirely.

Waldinger is a leading professor. In his career he met several people with pssd.

For him there is no question pssd exists. For him however it is also a mystery

what is the cause or cure. The current medical world is not able (yet) to

answer this question.

Having a contact as waldinger as a group is however valuable. He can act as a

spokesman for our cause. But this also involves us being able to channel our

effort in an external direction.

How much time do all of spend sharing information internally?

I have encountered numerous failing external attemps, encountering disbelieve

and unwillingness. Pssd is not believed in general, or intentionally denied.

But external communication is essential in finding a solution for our cause. It

is only when the medical world starts acknowleding pssd, research can be done,

cures can be found and people can be warned.

I hope this is a helpfull addition.

Anyone interested in providing information for an article,

Or willing to contact waldinger,

Please let us know.

In SSRIsex , " Sebastiaan Hoogendoorn "

wrote:

>

> Dear all,

>

> Me and 2 other PSSD sufferors have close contact with Professor Waldinger in

the Netherlands.

>

> Professor Waldinger is Psychiatrist and Neurologist and is specialized in

sexuality. He has a reknown name in the world of psychiatry and sexuality.

>

> He is familiar with PSSD, has seen cases in the past. He is, as many of us,

still just hypothesizing what could be the cause of our syndrome.

>

> He is however underlining that SSRI can cause PSSD, and is open to have a

dialogue. He has prescribed requip to one of us to try and elavate libido.

>

> We as a group of 3 however do not serve as a large enough population for him

to do research. secondly he thinking about writing an article about PSSD but

would need more people;

>

> therefor,

>

> we are looking for fellow PSSD'ers living in the Netherlands or in a neirby

country, to get in contact with each other, and try to persuade Waldinger to

publish about our syndrome, and/or serve as a research population.

>

> hope to find some respons here!

>

> thanks in advance,

>

> Sebastiaan, Freek and

>

[Guest guest]

Hello,

I am ok to be part of this group but i will be very prudent. I won t accept any

drug test or stuff like that, anything that would make me feel like a

guinea-pig, but i am ok to give a testimonial and meet the professor. I live in

paris and can come in netherlands.

Regards,

>

> Dear all,

>

> Me and 2 other PSSD sufferors have close contact with Professor Waldinger in

the Netherlands.

>

> Professor Waldinger is Psychiatrist and Neurologist and is specialized in

sexuality. He has a reknown name in the world of psychiatry and sexuality.

>

> He is familiar with PSSD, has seen cases in the past. He is, as many of us,

still just hypothesizing what could be the cause of our syndrome.

>

> He is however underlining that SSRI can cause PSSD, and is open to have a

dialogue. He has prescribed requip to one of us to try and elavate libido.

>

> We as a group of 3 however do not serve as a large enough population for him

to do research. secondly he thinking about writing an article about PSSD but

would need more people;

>

> therefor,

>

> we are looking for fellow PSSD'ers living in the Netherlands or in a neirby

country, to get in contact with each other, and try to persuade Waldinger to

publish about our syndrome, and/or serve as a research population.

>

> hope to find some respons here!

>

> thanks in advance,

>

> Sebastiaan, Freek and

>

[Guest guest]

Can I meet him boys Skype?Sent from my HTC smartphone on the Now Network from Sprint!----- Reply message -----To: <SSRIsex >Subject: Re: European - Dutch Professor Waldinger - adresses PSSDDate: Tue, Jan 3, 2012 7:47 pm Hello,I am ok to be part of this group but i will be very prudent. I won t accept any drug test or stuff like that, anything that would make me feel like a guinea-pig, but i am ok to give a testimonial and meet the professor. I live in paris and can come in netherlands.Regards,>> Dear all,> > Me and 2 other PSSD sufferors have close contact with Professor Waldinger in the Netherlands.> > Professor Waldinger is Psychiatrist and Neurologist and is specialized in sexuality. He has a reknown name in the world of psychiatry and sexuality.> > He is familiar with PSSD, has seen cases in the past. He is, as many of us, still just hypothesizing what could be the cause of our syndrome.> > He is however underlining that SSRI can cause PSSD, and is open to have a dialogue. He has prescribed requip to one of us to try and elavate libido. > > We as a group of 3 however do not serve as a large enough population for him to do research. secondly he thinking about writing an article about PSSD but would need more people;> > therefor,> > we are looking for fellow PSSD'ers living in the Netherlands or in a neirby country, to get in contact with each other, and try to persuade Waldinger to publish about our syndrome, and/or serve as a research population.> > hope to find some respons here!> > thanks in advance,> > Sebastiaan, Freek and >

[Guest guest]

Hi both,

Waldinger is not looking for medical solutions, before he has more knowledge on

the biological causes of pssd.

His objective would be to objectivy pssd by establishing an article with enough

persons providing him information on the symptoms and causes ( type of

medication, dosis) etc,

In my last meeting with him, he told me he was going to think about a framework

the upcoming months.

Keep you posted!

>

> >

>

> > Dear all,

>

> >

>

> > Me and 2 other PSSD sufferors have close contact with Professor Waldinger in

the Netherlands.

>

> >

>

> > Professor Waldinger is Psychiatrist and Neurologist and is specialized in

sexuality. He has a reknown name in the world of psychiatry and sexuality.

>

> >

>

> > He is familiar with PSSD, has seen cases in the past. He is, as many of us,

still just hypothesizing what could be the cause of our syndrome.

>

> >

>

> > He is however underlining that SSRI can cause PSSD, and is open to have a

dialogue. He has prescribed requip to one of us to try and elavate libido.

>

> >

>

> > We as a group of 3 however do not serve as a large enough population for him

to do research. secondly he thinking about writing an article about PSSD but

would need more people;

>

> >

>

> > therefor,

>

> >

>

> > we are looking for fellow PSSD'ers living in the Netherlands or in a neirby

country, to get in contact with each other, and try to persuade Waldinger to

publish about our syndrome, and/or serve as a research population.

>

> >

>

> > hope to find some respons here!

>

> >

>

> > thanks in advance,

>

> >

>

> > Sebastiaan, Freek and

>

> >

>

>

>

>

>

>

>

>

>

>

>

>

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[Guest guest]

You can also tell Waldinger that Buspar has helped me a lot. Much more interest

and desire and I am much happier in the mean time.

> > > >

> > > > Dear all,

> > > >

> > > > Me and 2 other PSSD sufferors have close contact with Professor

Waldinger in the Netherlands.

> > >

> >

>

[Guest guest]

The first time I went to Waldinger...I took them all with me...

No need however; He already had them on his computer :-)

But thanks for mentioning them!

> >

> > Dear all,

> >

> > Me and 2 other PSSD sufferors have close contact with Professor

> Waldinger in the Netherlands.

> >

> > Professor Waldinger is Psychiatrist and Neurologist and is specialized

> in sexuality. He has a reknown name in the world of psychiatry and

> sexuality.

> >

> > He is familiar with PSSD, has seen cases in the past. He is, as many

> of us, still just hypothesizing what could be the cause of our syndrome.

> >

> > He is however underlining that SSRI can cause PSSD, and is open to

> have a dialogue. He has prescribed requip to one of us to try and

> elavate libido.

> >

> > We as a group of 3 however do not serve as a large enough population

> for him to do research. secondly he thinking about writing an article

> about PSSD but would need more people;

> >

> > therefor,

> >

> > we are looking for fellow PSSD'ers living in the Netherlands or in a

> neirby country, to get in contact with each other, and try to persuade

> Waldinger to publish about our syndrome, and/or serve as a research

> population.

> >

> > hope to find some respons here!

> >

> > thanks in advance,

> >

> > Sebastiaan, Freek and

> >

>