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Re: Message to Barbara

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Pati, you are blessed that they are in their teenage years but that was

when I enjoyed my son the most we became buddies. I figured if by then I

hadn't taught him right from wrong it was way to late so I started treating

him like an adult. And really enjoying him I was a very strike mom when he

was growing up so he really enjoyed the buddy system also he would share

his adventures with me and he has always had a great sense of humor and

enjoyed making people laugh.I will never ever forget the first grown up

joke he told me. He was in ROTC and in the 9th grade well they took the

boys to Pensacola my old home town and as I was working I couldn't go as a

chap which the teachers were hoping because I new my way around town and

all the short cuts ect. Well they stayed in the barracks with the recruits

when I picked him up at the airport he says mom I have got a joke ur going

to love well I should have known what was coming the joke wasn't bad but I

was just so shocked it seemed like yesterday he was telling knock knock

jokes. He was all ready to tell me and he laughs really easy so he was

trying not to laugh so I could hear what he was saying. Seems this couple

got married and went to a cottage on the lake for the honeymoon. The

caretaker asked about bring food but the groom said oh no we don't need

anything we are living on the fruits of love every couple of days the

caretaker stopped by seeing if they needed any food the answer was always

the same so on the 4th visit he told the man would u please quite throwing

ur peelings out the window your killing my ducks. My mouth feel open I

almost went off the road and then I laughed until I cried. Hope this finds

u feeling better Barb----------

>

> To: chronic_painonelist

> Subject: Re: Message to Barbara

> Date: Saturday, July 18, 1998 7:24 PM

>

>

>

> Hi Barbara, Thank you for your note. My childre (all boys) are ages

> 19, 17, 15. They have been great up to this point. They don't feel

> sorry for me, in fact they treat me exactly the same as I was prior to

> becoming disabled, which I insist. Being teenagers they have very

> active social lives but they always make sure I'm okay before

> venturing out. I feel very blessed to have such great kids. Now my

> parents and siblings have responded completely opposite. They feel

> sorry for me, which drives me crazy. My father can't seem to get over

> being angry about the accident and alls he wants to talk about is my

> disabilities. My mom told me a year ago that seeing me makes her

> physically ill. I haven't heard from her since and she won't accept my

> calls. My siblings attitudes vary. I rarely ever see them but they

> call often. My biggest concern is not being a burden to my children.

> They are very devoted to me but I often have to remind them they have

> lives of their own. I am very blessed!! Pati

>

>

>

>

> ---Barbara wrote:

> >

> >

> >

> > Hi Pati I just read your letter and I hope they can find something

> to help

> > you where you can enjoy your children. The one blessing that I had

> when I

> > got sick was my son was grown and on his own. I was so very lucky

> there and

> > I Thank God for that. Take care Barb

> >

> > ----------

> > >

> > > To: chronic_painonelist

> > > Subject: Re: Patti : Ask away

> > > Date: Friday, July 17, 1998 6:47 PM

> > >

> > >

> > >

> > > , No you are not prying, by me being on this list I hope to

> > > learn from others as well as share my experiences so that I can help

> > > others. First, I wasn't really aware that more then one medication

> > > could be in my pump. I have Baclofen in my pump now which is used to

> > > treat spasticity but does nothing for pain. As far as taking

> morphine

> > > orally or by patch, the side effects are often worse then my pain,

> > > especially the nausea, so I take medication for nausea. The morphine

> > > makes it so I don't care I'm in pain, in other words I'm " high " ,

> which

> > > helps, but not the way I want to live my life. Since my doctor says

> > > there is no medication that will actually ease my pain, this is the

> > > path I've been forced to take. I'm still waiting on a surgery date

> for

> > > having the spinal stimulator implanted. This my doctor says is

> worth a

> > > try, since I don't want to be drugged up all the time. I have 3

> > > children, haven't been able to see them play baseball, soccer, etc.

> > > because of the pain. My quality of life diminishes everyday due to

> > > pain. I'm only 40 years old and just can't believe that I'm doomed

> for

> > > a life of pain....Pati

> > >

> > >

> > >

> > >

> > > --- Turbin wrote:

> > > >

> > > >

> > > >

> > > > Patti,

> > > > I'm wondering if you might not want to leave the door open

> about

> > > using

> > > > morphine in your pump. Since you do have significant pain, the

> pump

> > > is a way

> > > > to administer far less than by oral dosage with a possibility of

> > > more relief

> > > > & less side effects. Just what is your response to the oral

> > > morphine, if I'm

> > > > not prying?

> > > >

>

> > > Ken

> > > > Pati Beck wrote:

> > > >

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > >

> ------------------------------------------------------------------------

> > > >

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