Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 Barby, are you saying they wont consider a transplant, or hep c treatment, or..,. what exactly are you saying?? There once was a lady here whom they wouldn't let on the list for a transplant until she got off of pain meds. I can hear the sound of quacking all the way over here. Love bobby. long life, old age, everything good-Apache prayer ugggggggg ok no letter ,so i called said it was mailed yesterday huh? what the heck happened to monday!! asses, so i talked to a nurse cried and she told me this much... his tests showed asprin, sleeping med. tylenol,and pain med ,lortab from the family dr. for pain, so hes not gonna be considered for another 6 months till his system is clear from these meds. and i dont understand what do they want him to do for sleeping for pain??? i tried to ask her other ?s but she said i would have to wait for the report and i should have it by monday as well as the family dr. and hep dr..,she said it was avery lenghty detailed letter, so like that makes me feel anybetter ,now i wished i hadnt called!!i dont think they are gonna be able to help him ,what then. we have done EVERYTHING all the drs. have asked of us, they perscibed the meds. what the hell. ok yeah i am pissed guys, 6 months what do they know i dont. i guess i will find out soon, like this will help me sleep better NOT ,sorry ranting, jhow could 1 dr. give him something that was gonna stop him from getting treatment!!? ? do they not think or not care??!! omg this is crazy, she said he stated he didnt want him driving or operating heavy equipment because of his apparent confusion? so what next, at work he drives is on ladders in lifts, if he satys home more than he does he'd go crazy, hes a man ,he loves working, what...ok barby stop honey calm down wait for the stupid stupid letter., this is crazy i wished i hadnt called ,i should have been still and waited instead of only getting a couple tidbids.i wanna go slap his dr. in his face !!!! this is my husband damit my husband and he stopped us dead in our tracks.ok i need to cry throw something and just feel sorry for myself and bobby for awhile. better to get it out of my system before i tell him this, its gonna be a long day for sure much love barby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 i really dont know what the heck i am saying bobby, she was referring to the hep.c treatment ,with the meds. she wouldnt answer anything about the transplant list, said she would perfer i waited on the letter.thats why i said she must know something i dont. what do pain meds. have to do with it??? the family dr. game them to him shouldnt he have known better, he origanally found the hep. c,what happened to that women?? cause i am not letting him swallow another pill, surely they can give him something else huh??? > > Barby, are you saying they wont consider a transplant, or hep c treatment, or..,. what exactly are you saying?? There once was a lady here whom they wouldn't let on the list for a transplant until she got off of pain meds. I can hear the sound of quacking all the way over here. Love bobby. > > long life, old age, everything good-Apache prayer > > > > ugggggggg > > > ok no letter ,so i called said it was mailed yesterday huh? what the > heck happened to monday!! asses, so i talked to a nurse cried and she > told me this much... his tests showed asprin, sleeping med. > tylenol,and pain med ,lortab from the family dr. for pain, so hes not > gonna be considered for another 6 months till his system is clear > from these meds. and i dont understand what do they want him to do > for sleeping for pain??? i tried to ask her other ?s but she said i > would have to wait for the report and i should have it by monday as > well as the family dr. and hep dr..,she said it was avery lenghty > detailed letter, so like that makes me feel anybetter ,now i wished i > hadnt called!!i dont think they are gonna be able to help him ,what > then. we have done EVERYTHING all the drs. have asked of us, they > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 months > what do they know i dont. i guess i will find out soon, like this > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. give > him something that was gonna stop him from getting treatment!!? ? do > they not think or not care??!! omg this is crazy, she said he stated > he didnt want him driving or operating heavy equipment because of his > apparent confusion? so what next, at work he drives is on ladders in > lifts, if he satys home more than he does he'd go crazy, hes a > man ,he loves working, what...ok barby stop honey calm down wait for > the stupid stupid letter., this is crazy i wished i hadnt called ,i > should have been still and waited instead of only getting a couple > tidbids.i wanna go slap his dr. in his face !!!! this is my husband > damit my husband and he stopped us dead in our tracks.ok i need to > cry throw something and just feel sorry for myself and bobby for > awhile. better to get it out of my system before i tell him this, its > gonna be a long day for sure much love barby > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 First, untreated pain is a medical emergency. Second, if he is taking medicine for pain on a regular basis, and it is prescribed by a doctor, he should NOT suddenly stop the drug,. It could make him very sick. The doctors should be talking to each other via letters called clinic notes. I dont know anything about hep c treatment, but I have never heard of this before. It sounds very very fishy. You are saying tht she said no treatment until he stops taking all of his prescribed medication. They didnt tell him beforhand? usually they have you fill out a form with all medications on it, finding out that a patient is taking a certain med from a toxicology report sounds more like a criminal investigation than medicine. It seem to me that these folks should #1 know what he is taking, #2 advise him what he can and cannot take during treatment, #3 talk to his family doctor to see if that doctor is doing something which might interfere with the other doctrs. #4 not drop Bobby thru the cracks and let him suffer from pain. This is Vandy you are taking about? I might be getting confused. Please help m,e. I had a rough weekend, so I might be getting Bobby Glen mixed up with another member./ Love Bobby long life, old age, everything good-Apache prayer ugggggggg > > > ok no letter ,so i called said it was mailed yesterday huh? what the > heck happened to monday!! asses, so i talked to a nurse cried and she > told me this much... his tests showed asprin, sleeping med. > tylenol,and pain med ,lortab from the family dr. for pain, so hes not > gonna be considered for another 6 months till his system is clear > from these meds. and i dont understand what do they want him to do > for sleeping for pain??? i tried to ask her other ?s but she said i > would have to wait for the report and i should have it by monday as > well as the family dr. and hep dr..,she said it was avery lenghty > detailed letter, so like that makes me feel anybetter ,now i wished i > hadnt called!!i dont think they are gonna be able to help him ,what > then. we have done EVERYTHING all the drs. have asked of us, they > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 months > what do they know i dont. i guess i will find out soon, like this > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. give > him something that was gonna stop him from getting treatment!!? ? do > they not think or not care??!! omg this is crazy, she said he stated > he didnt want him driving or operating heavy equipment because of his > apparent confusion? so what next, at work he drives is on ladders in > lifts, if he satys home more than he does he'd go crazy, hes a > man ,he loves working, what...ok barby stop honey calm down wait for > the stupid stupid letter., this is crazy i wished i hadnt called ,i > should have been still and waited instead of only getting a couple > tidbids.i wanna go slap his dr. in his face !!!! this is my husband > damit my husband and he stopped us dead in our tracks.ok i need to > cry throw something and just feel sorry for myself and bobby for > awhile. better to get it out of my system before i tell him this, its > gonna be a long day for sure much love barby > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 yes bobby its bobby glen, and yes its vandy, and yup we filled out a paper listing all his meds. plus took them with us.i dont understand either i called the family dr. he is gonna call me after hes done with his pts. they also said dont stop the pain meds. all at once, so maybe they can give hiom something else,his office is contacting vandy to get the report today.dr. d knows my mental state can go down hill quickly from panicing lol,so surely by this evening he will have answers for me. what do you mean fishy, should i be worried about something?? or looking for something in paticular?,geez my mind is all over the place right now,bobby glen was honest with the dr. at vandy ,he did forget to tell him about the sleeping meds. but what the hell ,benadyl and tylenol pm you buy at walmart!!!!god bless!!!--- In livercirrhosissupport , Bob Aragon wrote: > > First, untreated pain is a medical emergency. Second, if he is taking medicine for pain on a regular basis, and it is prescribed by a doctor, he should NOT suddenly stop the drug,. It could make him very sick. The doctors should be talking to each other via letters called clinic notes. I dont know anything about hep c treatment, but I have never heard of this before. It sounds very very fishy. You are saying tht she said no treatment until he stops taking all of his prescribed medication. They didnt tell him beforhand? usually they have you fill out a form with all medications on it, finding out that a patient is taking a certain med from a toxicology report sounds more like a criminal investigation than medicine. It seem to me that these folks should #1 know what he is taking, > #2 advise him what he can and cannot take during treatment, > #3 talk to his family doctor to see if that doctor is doing something which might interfere with the other doctrs. #4 not drop Bobby thru the cracks and let him suffer from pain. This is Vandy you are taking about? I might be getting confused. Please help m,e. I had a rough weekend, so I might be getting Bobby Glen mixed up with another member./ Love Bobby > > long life, old age, everything good-Apache prayer > > > > ugggggggg > > > > > > ok no letter ,so i called said it was mailed yesterday huh? what > the > > heck happened to monday!! asses, so i talked to a nurse cried and > she > > told me this much... his tests showed asprin, sleeping med. > > tylenol,and pain med ,lortab from the family dr. for pain, so hes > not > > gonna be considered for another 6 months till his system is clear > > from these meds. and i dont understand what do they want him to do > > for sleeping for pain??? i tried to ask her other ?s but she said i > > would have to wait for the report and i should have it by monday as > > well as the family dr. and hep dr..,she said it was avery lenghty > > detailed letter, so like that makes me feel anybetter ,now i wished > i > > hadnt called!!i dont think they are gonna be able to help him ,what > > then. we have done EVERYTHING all the drs. have asked of us, they > > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 > months > > what do they know i dont. i guess i will find out soon, like this > > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. give > > him something that was gonna stop him from getting treatment!!? ? > do > > they not think or not care??!! omg this is crazy, she said he > stated > > he didnt want him driving or operating heavy equipment because of > his > > apparent confusion? so what next, at work he drives is on ladders > in > > lifts, if he satys home more than he does he'd go crazy, hes a > > man ,he loves working, what...ok barby stop honey calm down wait > for > > the stupid stupid letter., this is crazy i wished i hadnt called ,i > > should have been still and waited instead of only getting a couple > > tidbids.i wanna go slap his dr. in his face !!!! this is my husband > > damit my husband and he stopped us dead in our tracks.ok i need to > > cry throw something and just feel sorry for myself and bobby for > > awhile. better to get it out of my system before i tell him this, > its > > gonna be a long day for sure much love barby > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 you know what bobby maybe your onto something here..where as this was his first appt. at vandy and letters are going to the family dr. and the hep. c dr. maybe this is the start of everyone getting on the same page ..you think??? maybe this is routine in the beggining huh? hmmm i dont know what to think, lord i sure wished i hadnt called that nurse, and just waited till i had our letter with ALL the info,silly girl barby silly girl!!!! > > > > > > Barby, are you saying they wont consider a transplant, or hep c > > treatment, or..,. what exactly are you saying?? There once was a > lady > > here whom they wouldn't let on the list for a transplant until she > > got off of pain meds. I can hear the sound of quacking all the way > > over here. Love bobby. > > > > > > long life, old age, everything good-Apache prayer > > > > > > > > > > > > ugggggggg > > > > > > > > > ok no letter ,so i called said it was mailed yesterday huh? what > > the > > > heck happened to monday!! asses, so i talked to a nurse cried and > > she > > > told me this much... his tests showed asprin, sleeping med. > > > tylenol,and pain med ,lortab from the family dr. for pain, so hes > > not > > > gonna be considered for another 6 months till his system is clear > > > from these meds. and i dont understand what do they want him to > do > > > for sleeping for pain??? i tried to ask her other ?s but she said > i > > > would have to wait for the report and i should have it by monday > as > > > well as the family dr. and hep dr..,she said it was avery lenghty > > > detailed letter, so like that makes me feel anybetter ,now i > wished > > i > > > hadnt called!!i dont think they are gonna be able to help > him ,what > > > then. we have done EVERYTHING all the drs. have asked of us, they > > > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 > > months > > > what do they know i dont. i guess i will find out soon, like this > > > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. > give > > > him something that was gonna stop him from getting treatment!!? ? > > do > > > they not think or not care??!! omg this is crazy, she said he > > stated > > > he didnt want him driving or operating heavy equipment because of > > his > > > apparent confusion? so what next, at work he drives is on ladders > > in > > > lifts, if he satys home more than he does he'd go crazy, hes a > > > man ,he loves working, what...ok barby stop honey calm down wait > > for > > > the stupid stupid letter., this is crazy i wished i hadnt > called ,i > > > should have been still and waited instead of only getting a > couple > > > tidbids.i wanna go slap his dr. in his face !!!! this is my > husband > > > damit my husband and he stopped us dead in our tracks.ok i need > to > > > cry throw something and just feel sorry for myself and bobby for > > > awhile. better to get it out of my system before i tell him this, > > its > > > gonna be a long day for sure much love barby > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 hi pink i am confused too. what did he go to the doc for...hep c traetment is what i am getting from you. they never gave us an option for treatment. from what i understood from my husband docs is that he was too bad and the course they intend to go will be to get sick enough for a transplant then treat. does this sound reasonable? when he first got very sick they said he would not live 5 years...its been 5 years rejoice. is your husband on the list? ugggggggg > > > ok no letter ,so i called said it was mailed yesterday huh? what the > heck happened to monday!! asses, so i talked to a nurse cried and she > told me this much... his tests showed asprin, sleeping med. > tylenol,and pain med ,lortab from the family dr. for pain, so hes not > gonna be considered for another 6 months till his system is clear > from these meds. and i dont understand what do they want him to do > for sleeping for pain??? i tried to ask her other ?s but she said i > would have to wait for the report and i should have it by monday as > well as the family dr. and hep dr..,she said it was avery lenghty > detailed letter, so like that makes me feel anybetter ,now i wished i > hadnt called!!i dont think they are gonna be able to help him ,what > then. we have done EVERYTHING all the drs. have asked of us, they > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 months > what do they know i dont. i guess i will find out soon, like this > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. give > him something that was gonna stop him from getting treatment!!? ? do > they not think or not care??!! omg this is crazy, she said he stated > he didnt want him driving or operating heavy equipment because of his > apparent confusion? so what next, at work he drives is on ladders in > lifts, if he satys home more than he does he'd go crazy, hes a > man ,he loves working, what...ok barby stop honey calm down wait for > the stupid stupid letter., this is crazy i wished i hadnt called ,i > should have been still and waited instead of only getting a couple > tidbids.i wanna go slap his dr. in his face !!!! this is my husband > damit my husband and he stopped us dead in our tracks.ok i need to > cry throw something and just feel sorry for myself and bobby for > awhile. better to get it out of my system before i tell him this, its > gonna be a long day for sure much love barby > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 sandra i am confused too, the dr. at vandy was for hep. c, the hepc dr. here said he wasnt a candidate for treatment and sent us to vandy, i thought to evaluate for a transplant, now i dont know what the heck is going on to tell you the truth, its all in the letter which i dont have yet, this was from a nurse at the gasto. unit at vandy that told ne this stuff today. hopefully our family dr. can shed some light on all this when he gets the report today.as far as i know hes not on any list unless its in the letter, i am glad your husband has surpassed their 5 yr. guess.i feel like this disease is all a gamble right now.has yours ever had a transplant?? and they never treated his hep. c??? how does all this work or how is it supposed too? > > > > Barby, are you saying they wont consider a transplant, or hep c > treatment, or..,. what exactly are you saying?? There once was a lady > here whom they wouldn't let on the list for a transplant until she > got off of pain meds. I can hear the sound of quacking all the way > over here. Love bobby. > > > > long life, old age, everything good-Apache prayer > > > > > > > > ugggggggg > > > > > > ok no letter ,so i called said it was mailed yesterday huh? what > the > > heck happened to monday!! asses, so i talked to a nurse cried and > she > > told me this much... his tests showed asprin, sleeping med. > > tylenol,and pain med ,lortab from the family dr. for pain, so hes > not > > gonna be considered for another 6 months till his system is clear > > from these meds. and i dont understand what do they want him to do > > for sleeping for pain??? i tried to ask her other ?s but she said i > > would have to wait for the report and i should have it by monday as > > well as the family dr. and hep dr..,she said it was avery lenghty > > detailed letter, so like that makes me feel anybetter ,now i wished > i > > hadnt called!!i dont think they are gonna be able to help him ,what > > then. we have done EVERYTHING all the drs. have asked of us, they > > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 > months > > what do they know i dont. i guess i will find out soon, like this > > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. give > > him something that was gonna stop him from getting treatment!!? ? > do > > they not think or not care??!! omg this is crazy, she said he > stated > > he didnt want him driving or operating heavy equipment because of > his > > apparent confusion? so what next, at work he drives is on ladders > in > > lifts, if he satys home more than he does he'd go crazy, hes a > > man ,he loves working, what...ok barby stop honey calm down wait > for > > the stupid stupid letter., this is crazy i wished i hadnt called ,i > > should have been still and waited instead of only getting a couple > > tidbids.i wanna go slap his dr. in his face !!!! this is my husband > > damit my husband and he stopped us dead in our tracks.ok i need to > > cry throw something and just feel sorry for myself and bobby for > > awhile. better to get it out of my system before i tell him this, > its > > gonna be a long day for sure much love barby > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 we went thru 3 days of evaluations including psychiatric evaluation. we then had to get an approval as to if he would be a candidate when the time came. his meld score has to be a certain number before he gets on the list. 18 i think is what the university of Alabama does. it may be a national number but varies greatly depending on variables like hcc ect... i don't let my family doc prescribe any thing to my husband unless the hep doctors approve...we also do not use Tylenol or like products since they are metabolized thru the liver. if he gets a colds or flu i am very careful with what cold meds i give him as to not raise his BP. we go to UAB in nov... he is being checked for the possible development of HCC. the way his numbers were moving we suspected that without HCC he would most likly be placed on the list next year, but with hcc it will probably be sooner...that is if he has it. i ain't claiming nothing that the Lord has not given us. ugggggggg > > > > > > ok no letter ,so i called said it was mailed yesterday huh? what > the > > heck happened to monday!! asses, so i talked to a nurse cried and > she > > told me this much... his tests showed asprin, sleeping med. > > tylenol,and pain med ,lortab from the family dr. for pain, so hes > not > > gonna be considered for another 6 months till his system is clear > > from these meds. and i dont understand what do they want him to do > > for sleeping for pain??? i tried to ask her other ?s but she said i > > would have to wait for the report and i should have it by monday as > > well as the family dr. and hep dr..,she said it was avery lenghty > > detailed letter, so like that makes me feel anybetter ,now i wished > i > > hadnt called!!i dont think they are gonna be able to help him ,what > > then. we have done EVERYTHING all the drs. have asked of us, they > > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 > months > > what do they know i dont. i guess i will find out soon, like this > > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. give > > him something that was gonna stop him from getting treatment!!? ? > do > > they not think or not care??!! omg this is crazy, she said he > stated > > he didnt want him driving or operating heavy equipment because of > his > > apparent confusion? so what next, at work he drives is on ladders > in > > lifts, if he satys home more than he does he'd go crazy, hes a > > man ,he loves working, what...ok barby stop honey calm down wait > for > > the stupid stupid letter., this is crazy i wished i hadnt called ,i > > should have been still and waited instead of only getting a couple > > tidbids.i wanna go slap his dr. in his face !!!! this is my husband > > damit my husband and he stopped us dead in our tracks.ok i need to > > cry throw something and just feel sorry for myself and bobby for > > awhile. better to get it out of my system before i tell him this, > its > > gonna be a long day for sure much love barby > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 also if he gets on the list i think is what they do is give yo a pager to carry soo if he was on " the list " you will know... ugggggggg > > > > > > ok no letter ,so i called said it was mailed yesterday huh? what > the > > heck happened to monday!! asses, so i talked to a nurse cried and > she > > told me this much... his tests showed asprin, sleeping med. > > tylenol,and pain med ,lortab from the family dr. for pain, so hes > not > > gonna be considered for another 6 months till his system is clear > > from these meds. and i dont understand what do they want him to do > > for sleeping for pain??? i tried to ask her other ?s but she said i > > would have to wait for the report and i should have it by monday as > > well as the family dr. and hep dr..,she said it was avery lenghty > > detailed letter, so like that makes me feel anybetter ,now i wished > i > > hadnt called!!i dont think they are gonna be able to help him ,what > > then. we have done EVERYTHING all the drs. have asked of us, they > > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 > months > > what do they know i dont. i guess i will find out soon, like this > > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. give > > him something that was gonna stop him from getting treatment!!? ? > do > > they not think or not care??!! omg this is crazy, she said he > stated > > he didnt want him driving or operating heavy equipment because of > his > > apparent confusion? so what next, at work he drives is on ladders > in > > lifts, if he satys home more than he does he'd go crazy, hes a > > man ,he loves working, what...ok barby stop honey calm down wait > for > > the stupid stupid letter., this is crazy i wished i hadnt called ,i > > should have been still and waited instead of only getting a couple > > tidbids.i wanna go slap his dr. in his face !!!! this is my husband > > damit my husband and he stopped us dead in our tracks.ok i need to > > cry throw something and just feel sorry for myself and bobby for > > awhile. better to get it out of my system before i tell him this, > its > > gonna be a long day for sure much love barby > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 dont let your heart get in the way of your head right now..i know that is easier said then done. when my husband first got sick i was an emotional wreck...remember i told you my son had just died my daughter went to prison and now they said i will loose my husband. i was a wreck...the first doc we saw was sour/and not personable at all. we went to office for labs if we wanted to know the results then we had to pay another copay to find the results. i was not happy about that. one morn i had my usband meet me for his appointment as i was just getting off work that AM. he did not bring his money and i did not have my check book...well they said to send them the money ....2 week went and i forgot to send. the office manager who was prepairing my husbands paper work to send to The university of Alabama told me she would hold up the transfer of medical record if she did not have the money. i asked her if that was ethical to hold my husbands heath hostage for 25 dollars. we got " in to it " the doc fired us...my husband and me. OH well. good riddance to bad rubbish. my point is use your head. Â ugggggggg > > > > > > ok no letter ,so i called said it was mailed yesterday huh? what > the > > heck happened to monday!! asses, so i talked to a nurse cried and > she > > told me this much... his tests showed asprin, sleeping med. > > tylenol,and pain med ,lortab from the family dr. for pain, so hes > not > > gonna be considered for another 6 months till his system is clear > > from these meds. and i dont understand what do they want him to do > > for sleeping for pain??? i tried to ask her other ?s but she said i > > would have to wait for the report and i should have it by monday as > > well as the family dr. and hep dr..,she said it was avery lenghty > > detailed letter, so like that makes me feel anybetter ,now i wished > i > > hadnt called!!i dont think they are gonna be able to help him ,what > > then. we have done EVERYTHING all the drs. have asked of us, they > > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 > months > > what do they know i dont. i guess i will find out soon, like this > > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. give > > him something that was gonna stop him from getting treatment!!? ? > do > > they not think or not care??!! omg this is crazy, she said he > stated > > he didnt want him driving or operating heavy equipment because of > his > > apparent confusion? so what next, at work he drives is on ladders > in > > lifts, if he satys home more than he does he'd go crazy, hes a > > man ,he loves working, what...ok barby stop honey calm down wait > for > > the stupid stupid letter., this is crazy i wished i hadnt called ,i > > should have been still and waited instead of only getting a couple > > tidbids.i wanna go slap his dr. in his face !!!! this is my husband > > damit my husband and he stopped us dead in our tracks.ok i need to > > cry throw something and just feel sorry for myself and bobby for > > awhile. better to get it out of my system before i tell him this, > its > > gonna be a long day for sure much love barby > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 When we met with the transplant evaluation team - they asked for a COMPLETE list of meds we were taking. And from the research we did before that, we pretty much knew that alcohol and some meds would have prohibited him from getting on the list. (Wasn't an issue for him.) Very surprised your family dr. didn't know. Dotty From: livercirrhosissupport [mailto:livercirrhosissupport ] On Behalf Of pinkmeetsblue Sent: Wednesday, September 24, 2008 11:27 AM To: livercirrhosissupport Subject: ugggggggg ok no letter ,so i called said it was mailed yesterday huh? what the heck happened to monday!! asses, so i talked to a nurse cried and she told me this much... his tests showed asprin, sleeping med. tylenol,and pain med ,lortab from the family dr. for pain, so hes not gonna be considered for another 6 months till his system is clear from these meds. and i dont understand what do they want him to do for sleeping for pain??? i tried to ask her other ?s but she said i would have to wait for the report and i should have it by monday as well as the family dr. and hep dr..,she said it was avery lenghty detailed letter, so like that makes me feel anybetter ,now i wished i hadnt called!!i dont think they are gonna be able to help him ,what then. we have done EVERYTHING all the drs. have asked of us, they perscibed the meds. what the hell. ok yeah i am pissed guys, 6 months what do they know i dont. i guess i will find out soon, like this will help me sleep better NOT ,sorry ranting, jhow could 1 dr. give him something that was gonna stop him from getting treatment!!?? do they not think or not care??!! omg this is crazy, she said he stated he didnt want him driving or operating heavy equipment because of his apparent confusion? so what next, at work he drives is on ladders in lifts, if he satys home more than he does he'd go crazy, hes a man ,he loves working, what...ok barby stop honey calm down wait for the stupid stupid letter., this is crazy i wished i hadnt called ,i should have been still and waited instead of only getting a couple tidbids.i wanna go slap his dr. in his face !!!! this is my husband damit my husband and he stopped us dead in our tracks.ok i need to cry throw something and just feel sorry for myself and bobby for awhile. better to get it out of my system before i tell him this, its gonna be a long day for sure much love barby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 wow girl i am sorry ,you sure have been through alot!!! we too have experienced having to pay copays just to get test results ,these drs. can be something else.i am gonna take your advise and use my head thanks ,barby > > > > > > Barby, are you saying they wont consider a transplant, or hep c > > treatment, or..,. what exactly are you saying?? There once was a > lady > > here whom they wouldn't let on the list for a transplant until she > > got off of pain meds. I can hear the sound of quacking all the way > > over here. Love bobby. > > > > > > long life, old age, everything good-Apache prayer > > > > > > > > > > > > ugggggggg > > > > > > > > > ok no letter ,so i called said it was mailed yesterday huh? what > > the > > > heck happened to monday!! asses, so i talked to a nurse cried and > > she > > > told me this much... his tests showed asprin, sleeping med. > > > tylenol,and pain med ,lortab from the family dr. for pain, so hes > > not > > > gonna be considered for another 6 months till his system is clear > > > from these meds. and i dont understand what do they want him to > do > > > for sleeping for pain??? i tried to ask her other ?s but she said > i > > > would have to wait for the report and i should have it by monday > as > > > well as the family dr. and hep dr..,she said it was avery lenghty > > > detailed letter, so like that makes me feel anybetter ,now i > wished > > i > > > hadnt called!!i dont think they are gonna be able to help > him ,what > > > then. we have done EVERYTHING all the drs. have asked of us, they > > > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 > > months > > > what do they know i dont. i guess i will find out soon, like this > > > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. > give > > > him something that was gonna stop him from getting treatment!!? ? > > do > > > they not think or not care??!! omg this is crazy, she said he > > stated > > > he didnt want him driving or operating heavy equipment because of > > his > > > apparent confusion? so what next, at work he drives is on ladders > > in > > > lifts, if he satys home more than he does he'd go crazy, hes a > > > man ,he loves working, what...ok barby stop honey calm down wait > > for > > > the stupid stupid letter., this is crazy i wished i hadnt > called ,i > > > should have been still and waited instead of only getting a > couple > > > tidbids.i wanna go slap his dr. in his face !!!! this is my > husband > > > damit my husband and he stopped us dead in our tracks.ok i need > to > > > cry throw something and just feel sorry for myself and bobby for > > > awhile. better to get it out of my system before i tell him this, > > its > > > gonna be a long day for sure much love barby > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 Forgive me if a similar post shows up. I must have not sent it. Any way, I just want to say that what sounds fishy is that there is a subset of doctors who dont like pain meds.or sleeping meds. They view people who use these as addicts. Its not right. Before I went to see my wif's pain doctor, I asked in writintg to my hepatologist if taking opioid pain meds would hurt my chances or have any effect on getting a transplant later on. He said NO, BUT there have been other doctors at the SAME facility who were furious at me for getting prescribed these meds. The " fellow " of the hepatology program who is highly respected 2 year resident came into my room and lectured me, and then it turned into a shouting match. I had been to their ER 8 times and no one ever helped me, so I went elsewhere, and that reeeealy pissed them off. I am hoping that this is NOT the situation Bobbyglenn is in. One thing you can do from now on is request copies of all the records from the records department. The patient has that right. My doctors know that I read every thing that they say about me, and believe me, it makes a difference in the relationship. I read all of the clinic notes to my primary care from the hepatologist, and it really helps me to know what is going on. You should always aske questions and write the answers down at the time. or ask the doctor to do it. I always hand my hepatologist a pen and paper with the questions preprinted in bullet point form. . He doesnt mind doing this, and I dont leave his office confused anymore. long life, old age, everything good-Apache prayer ugggggggg > > > > > > ok no letter ,so i called said it was mailed yesterday huh? what > the > > heck happened to monday!! asses, so i talked to a nurse cried and > she > > told me this much... his tests showed asprin, sleeping med. > > tylenol,and pain med ,lortab from the family dr. for pain, so hes > not > > gonna be considered for another 6 months till his system is clear > > from these meds. and i dont understand what do they want him to do > > for sleeping for pain??? i tried to ask her other ?s but she said i > > would have to wait for the report and i should have it by monday as > > well as the family dr. and hep dr..,she said it was avery lenghty > > detailed letter, so like that makes me feel anybetter ,now i wished > i > > hadnt called!!i dont think they are gonna be able to help him ,what > > then. we have done EVERYTHING all the drs. have asked of us, they > > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 > months > > what do they know i dont. i guess i will find out soon, like this > > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. give > > him something that was gonna stop him from getting treatment!!? ? > do > > they not think or not care??!! omg this is crazy, she said he > stated > > he didnt want him driving or operating heavy equipment because of > his > > apparent confusion? so what next, at work he drives is on ladders > in > > lifts, if he satys home more than he does he'd go crazy, hes a > > man ,he loves working, what...ok barby stop honey calm down wait > for > > the stupid stupid letter., this is crazy i wished i hadnt called ,i > > should have been still and waited instead of only getting a couple > > tidbids.i wanna go slap his dr. in his face !!!! this is my husband > > damit my husband and he stopped us dead in our tracks.ok i need to > > cry throw something and just feel sorry for myself and bobby for > > awhile. better to get it out of my system before i tell him this, > its > > gonna be a long day for sure much love barby > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 yeah i have been ponding the pain meds. and have come to the conclusion that dr. d in all fairness to him had perscribed the lortabs before the hep.c diagnosis,i wonder if it hasnt just come to him that bobby shouldnt be on them?? i am not sure, i love this dr. he has been we me through thick and thin ,when my sister died 4 yrs ago he was the only person who could console me, i dont believe he would ever do anything to hurt me or bobby ,i think he just over looked it ,hopefully we will find out soon enough .when he says he will call he always does, hes never let me down, today was just a blow, and i dont know why because i still dont have all the facts, i seem to jump the gun lately. i will let you all know exactly what this report says, maybe the nurse said it wrong huh? or maybe i interprted it wrong, dear lord please let it all be wrong!!! much love barby > > When we met with the transplant evaluation team - they asked for a COMPLETE > list of meds we were taking. And from the research we did before that, we > pretty much knew that alcohol and some meds would have prohibited him from > getting on the list. (Wasn't an issue for him.) > Very surprised your family dr. didn't know. > > Dotty > From: livercirrhosissupport > [mailto:livercirrhosissupport ] On Behalf Of pinkmeetsblue > Sent: Wednesday, September 24, 2008 11:27 AM > To: livercirrhosissupport > Subject: ugggggggg > > ok no letter ,so i called said it was mailed yesterday huh? what the > heck happened to monday!! asses, so i talked to a nurse cried and she > told me this much... his tests showed asprin, sleeping med. > tylenol,and pain med ,lortab from the family dr. for pain, so hes not > gonna be considered for another 6 months till his system is clear > from these meds. and i dont understand what do they want him to do > for sleeping for pain??? i tried to ask her other ?s but she said i > would have to wait for the report and i should have it by monday as > well as the family dr. and hep dr..,she said it was avery lenghty > detailed letter, so like that makes me feel anybetter ,now i wished i > hadnt called!!i dont think they are gonna be able to help him ,what > then. we have done EVERYTHING all the drs. have asked of us, they > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 months > what do they know i dont. i guess i will find out soon, like this > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. give > him something that was gonna stop him from getting treatment!!?? do > they not think or not care??!! omg this is crazy, she said he stated > he didnt want him driving or operating heavy equipment because of his > apparent confusion? so what next, at work he drives is on ladders in > lifts, if he satys home more than he does he'd go crazy, hes a > man ,he loves working, what...ok barby stop honey calm down wait for > the stupid stupid letter., this is crazy i wished i hadnt called ,i > should have been still and waited instead of only getting a couple > tidbids.i wanna go slap his dr. in his face !!!! this is my husband > damit my husband and he stopped us dead in our tracks.ok i need to > cry throw something and just feel sorry for myself and bobby for > awhile. better to get it out of my system before i tell him this, its > gonna be a long day for sure much love barby > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 Hi, In my experience, before my transplant they wanted to start me on the treatment for Hep C, but I was too sick to withstand it with the ascites and varices. The regular gastroenterologist wasn't comfortable treating me for the Hep C because of the decompensated cirrhosis. He wanted me to have mine done at the transplant clinic. Since most meds are metabolized in the liver, all the things he is taking may be hard for his liver to handle, and doing treatment for the Hep C on top of it, may not be a good thing. Tylenol isn't good for the liver, especially when the liver isn't functioning like it should. I still am limited to 2 grams of Tylenol a day if I need to take it. I don't, and never did take Tylenol unless I absolutely need to. They may just want to get him evaluated for the transplant and wait until after the transplant to start the treatment for Hep C like they are doing with me. You shouldn't worry too much about what the nurse said until you get that letter. Don't stress yourself out until you know what's really going on from the letter. I wasn't given a pager when I was listed on the transplant list because I have a cell phone. Different hospitals may do things differently, but if you have a cell phone, they don't give you a pager, at least where I had my transplant. I hope you get that letter soon. Take care. Penny > > > > > > Barby, are you saying they wont consider a transplant, or hep c > > treatment, or..,. what exactly are you saying?? There once was a > lady > > here whom they wouldn't let on the list for a transplant until she > > got off of pain meds. I can hear the sound of quacking all the way > > over here. Love bobby. > > > > > > long life, old age, everything good-Apache prayer > > > > > > > > > > > > ugggggggg > > > > > > > > > ok no letter ,so i called said it was mailed yesterday huh? what > > the > > > heck happened to monday!! asses, so i talked to a nurse cried and > > she > > > told me this much... his tests showed asprin, sleeping med. > > > tylenol,and pain med ,lortab from the family dr. for pain, so hes > > not > > > gonna be considered for another 6 months till his system is clear > > > from these meds. and i dont understand what do they want him to > do > > > for sleeping for pain??? i tried to ask her other ?s but she said > i > > > would have to wait for the report and i should have it by monday > as > > > well as the family dr. and hep dr..,she said it was avery lenghty > > > detailed letter, so like that makes me feel anybetter ,now i > wished > > i > > > hadnt called!!i dont think they are gonna be able to help > him ,what > > > then. we have done EVERYTHING all the drs. have asked of us, they > > > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 > > months > > > what do they know i dont. i guess i will find out soon, like this > > > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. > give > > > him something that was gonna stop him from getting treatment!!? ? > > do > > > they not think or not care??!! omg this is crazy, she said he > > stated > > > he didnt want him driving or operating heavy equipment because of > > his > > > apparent confusion? so what next, at work he drives is on ladders > > in > > > lifts, if he satys home more than he does he'd go crazy, hes a > > > man ,he loves working, what...ok barby stop honey calm down wait > > for > > > the stupid stupid letter., this is crazy i wished i hadnt > called ,i > > > should have been still and waited instead of only getting a > couple > > > tidbids.i wanna go slap his dr. in his face !!!! this is my > husband > > > damit my husband and he stopped us dead in our tracks.ok i need > to > > > cry throw something and just feel sorry for myself and bobby for > > > awhile. better to get it out of my system before i tell him this, > > its > > > gonna be a long day for sure much love barby > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 Barby, One more thing I wanted to say is that your husband's viral load is 6 million something, right? My friend who is going to help me with my Hep C treatment, her viral load is also 6 million and has been for years even after her two treatments for the Hep C, and she has cirrhosis, but her liver is in pretty good shape. She's had Hep C longer than me, and her viral load has always been in the millions, and mine has never been higher than 200,000, usually 30,000 or less. It was 990 last year before my transplant, so my point is that everybody's body reacts differently. Take care. Penny > > > > > > > > Barby, are you saying they wont consider a transplant, or hep c > > > treatment, or..,. what exactly are you saying?? There once was a > > lady > > > here whom they wouldn't let on the list for a transplant until > she > > > got off of pain meds. I can hear the sound of quacking all the > way > > > over here. Love bobby. > > > > > > > > long life, old age, everything good-Apache prayer > > > > > > > > > > > > > > > > ugggggggg > > > > > > > > > > > > ok no letter ,so i called said it was mailed yesterday huh? > what > > > the > > > > heck happened to monday!! asses, so i talked to a nurse cried > and > > > she > > > > told me this much... his tests showed asprin, sleeping med. > > > > tylenol,and pain med ,lortab from the family dr. for pain, so > hes > > > not > > > > gonna be considered for another 6 months till his system is > clear > > > > from these meds. and i dont understand what do they want him to > > do > > > > for sleeping for pain??? i tried to ask her other ?s but she > said > > i > > > > would have to wait for the report and i should have it by > monday > > as > > > > well as the family dr. and hep dr..,she said it was avery > lenghty > > > > detailed letter, so like that makes me feel anybetter ,now i > > wished > > > i > > > > hadnt called!!i dont think they are gonna be able to help > > him ,what > > > > then. we have done EVERYTHING all the drs. have asked of us, > they > > > > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 > > > months > > > > what do they know i dont. i guess i will find out soon, like > this > > > > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. > > give > > > > him something that was gonna stop him from getting > treatment!!? ? > > > do > > > > they not think or not care??!! omg this is crazy, she said he > > > stated > > > > he didnt want him driving or operating heavy equipment because > of > > > his > > > > apparent confusion? so what next, at work he drives is on > ladders > > > in > > > > lifts, if he satys home more than he does he'd go crazy, hes a > > > > man ,he loves working, what...ok barby stop honey calm down > wait > > > for > > > > the stupid stupid letter., this is crazy i wished i hadnt > > called ,i > > > > should have been still and waited instead of only getting a > > couple > > > > tidbids.i wanna go slap his dr. in his face !!!! this is my > > husband > > > > damit my husband and he stopped us dead in our tracks.ok i need > > to > > > > cry throw something and just feel sorry for myself and bobby > for > > > > awhile. better to get it out of my system before i tell him > this, > > > its > > > > gonna be a long day for sure much love barby > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 thanks for the hopeful words penny,i am being still right now and waiting,i cant cry anymore anyways gave myself a headache,just goanna wait and hopefully the dr. will call as soon as hes done with his pts.and i can get some answers. love barby > > > > > > > > > > Barby, are you saying they wont consider a transplant, or hep > c > > > > treatment, or..,. what exactly are you saying?? There once was > a > > > lady > > > > here whom they wouldn't let on the list for a transplant until > > she > > > > got off of pain meds. I can hear the sound of quacking all the > > way > > > > over here. Love bobby. > > > > > > > > > > long life, old age, everything good-Apache prayer > > > > > > > > > > > > > > > > > > > > ugggggggg > > > > > > > > > > > > > > > ok no letter ,so i called said it was mailed yesterday huh? > > what > > > > the > > > > > heck happened to monday!! asses, so i talked to a nurse cried > > and > > > > she > > > > > told me this much... his tests showed asprin, sleeping med. > > > > > tylenol,and pain med ,lortab from the family dr. for pain, so > > hes > > > > not > > > > > gonna be considered for another 6 months till his system is > > clear > > > > > from these meds. and i dont understand what do they want him > to > > > do > > > > > for sleeping for pain??? i tried to ask her other ?s but she > > said > > > i > > > > > would have to wait for the report and i should have it by > > monday > > > as > > > > > well as the family dr. and hep dr..,she said it was avery > > lenghty > > > > > detailed letter, so like that makes me feel anybetter ,now i > > > wished > > > > i > > > > > hadnt called!!i dont think they are gonna be able to help > > > him ,what > > > > > then. we have done EVERYTHING all the drs. have asked of us, > > they > > > > > perscibed the meds. what the hell. ok yeah i am pissed guys, > 6 > > > > months > > > > > what do they know i dont. i guess i will find out soon, like > > this > > > > > will help me sleep better NOT ,sorry ranting, jhow could 1 > dr. > > > give > > > > > him something that was gonna stop him from getting > > treatment!!? ? > > > > do > > > > > they not think or not care??!! omg this is crazy, she said he > > > > stated > > > > > he didnt want him driving or operating heavy equipment > because > > of > > > > his > > > > > apparent confusion? so what next, at work he drives is on > > ladders > > > > in > > > > > lifts, if he satys home more than he does he'd go crazy, hes > a > > > > > man ,he loves working, what...ok barby stop honey calm down > > wait > > > > for > > > > > the stupid stupid letter., this is crazy i wished i hadnt > > > called ,i > > > > > should have been still and waited instead of only getting a > > > couple > > > > > tidbids.i wanna go slap his dr. in his face !!!! this is my > > > husband > > > > > damit my husband and he stopped us dead in our tracks.ok i > need > > > to > > > > > cry throw something and just feel sorry for myself and bobby > > for > > > > > awhile. better to get it out of my system before i tell him > > this, > > > > its > > > > > gonna be a long day for sure much love barby > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 Barby, this is a very important question. The reason is that Bobby stands to lose the most. There is more misinformation about opioid analgesics (painmeds) than any other branch of medicine. There is a War On Drugs and unfortunately that tends to spill out into our health care and it ought not, but it does. Doctors are supposed to treat our illnesses based on scientific facts, but all to often they stray from scientific facts and let other things influence the treatment of pain. Society's fear of addiction is one example. Can you imagine a diabetic's doctor withholding insulin not because of blood sugar level, but on the basis of practicing in a bad neighborhood? Pain is now seen as a disease all by itself regardless of the cause. But the treatment of it is different than all other types of medicine. The most common myth regarding it is that people will get HIGH on it. It is easy to spot an addict as opposed to a pain patient. An addict will ALWAYS get worse, never better. A patient properly treated for pain will get better, not worse. Please look all of this up if you have any doubts as to what I am telling you. Lortab has tylenol, and the only reason for the tylenol is because it limits the amount you can prescribe. As a layperson, I believe that it is a poor choice for someone with a bad liver. Pure opioids which do not have tylenol or ibuprofen are available, but usually only a pain medicine doctor will touch them with a 10 foot pole. They are highly regulated by the federal government, But they are NOT I repeat NOT toxic to the liver in most cases when taken as prescribed, and in reasonable doses. Bobby did well to seek a liver specialist for his liver. He would do even better to seek a pain specialist to deal with his pain. Our pain doctor told us last year " Sharon's neuro surgeon is not specialized in the treatment of severe pain any more than I am qualified to do neuro surgery. He is right on the money. Love, bobby long life, old age, everything good-Apache prayer ugggggggg > > ok no letter ,so i called said it was mailed yesterday huh? what the > heck happened to monday!! asses, so i talked to a nurse cried and she > told me this much... his tests showed asprin, sleeping med. > tylenol,and pain med ,lortab from the family dr. for pain, so hes not > gonna be considered for another 6 months till his system is clear > from these meds. and i dont understand what do they want him to do > for sleeping for pain??? i tried to ask her other ?s but she said i > would have to wait for the report and i should have it by monday as > well as the family dr. and hep dr..,she said it was avery lenghty > detailed letter, so like that makes me feel anybetter ,now i wished i > hadnt called!!i dont think they are gonna be able to help him ,what > then. we have done EVERYTHING all the drs. have asked of us, they > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 months > what do they know i dont. i guess i will find out soon, like this > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. give > him something that was gonna stop him from getting treatment!!? ? do > they not think or not care??!! omg this is crazy, she said he stated > he didnt want him driving or operating heavy equipment because of his > apparent confusion? so what next, at work he drives is on ladders in > lifts, if he satys home more than he does he'd go crazy, hes a > man ,he loves working, what...ok barby stop honey calm down wait for > the stupid stupid letter., this is crazy i wished i hadnt called ,i > should have been still and waited instead of only getting a couple > tidbids.i wanna go slap his dr. in his face !!!! this is my husband > damit my husband and he stopped us dead in our tracks.ok i need to > cry throw something and just feel sorry for myself and bobby for > awhile. better to get it out of my system before i tell him this, its > gonna be a long day for sure much love barby > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 omg do you think thats it bobby, they think hes an addict, thats crazy they will be informed the date he was perscibed the lortab, which was only in aug. if thats their concern i will set them straight real quick!!! > > > > > > Barby, are you saying they wont consider a transplant, or hep c > > treatment, or..,. what exactly are you saying?? There once was a > lady > > here whom they wouldn't let on the list for a transplant until she > > got off of pain meds. I can hear the sound of quacking all the way > > over here. Love bobby. > > > > > > long life, old age, everything good-Apache prayer > > > > > > > > > > > > ugggggggg > > > > > > > > > ok no letter ,so i called said it was mailed yesterday huh? what > > the > > > heck happened to monday!! asses, so i talked to a nurse cried and > > she > > > told me this much... his tests showed asprin, sleeping med. > > > tylenol,and pain med ,lortab from the family dr. for pain, so hes > > not > > > gonna be considered for another 6 months till his system is clear > > > from these meds. and i dont understand what do they want him to > do > > > for sleeping for pain??? i tried to ask her other ?s but she said > i > > > would have to wait for the report and i should have it by monday > as > > > well as the family dr. and hep dr..,she said it was avery lenghty > > > detailed letter, so like that makes me feel anybetter ,now i > wished > > i > > > hadnt called!!i dont think they are gonna be able to help > him ,what > > > then. we have done EVERYTHING all the drs. have asked of us, they > > > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 > > months > > > what do they know i dont. i guess i will find out soon, like this > > > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. > give > > > him something that was gonna stop him from getting treatment!!? ? > > do > > > they not think or not care??!! omg this is crazy, she said he > > stated > > > he didnt want him driving or operating heavy equipment because of > > his > > > apparent confusion? so what next, at work he drives is on ladders > > in > > > lifts, if he satys home more than he does he'd go crazy, hes a > > > man ,he loves working, what...ok barby stop honey calm down wait > > for > > > the stupid stupid letter., this is crazy i wished i hadnt > called ,i > > > should have been still and waited instead of only getting a > couple > > > tidbids.i wanna go slap his dr. in his face !!!! this is my > husband > > > damit my husband and he stopped us dead in our tracks.ok i need > to > > > cry throw something and just feel sorry for myself and bobby for > > > awhile. better to get it out of my system before i tell him this, > > its > > > gonna be a long day for sure much love barby > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 i stand corrected it was the end ofjune he was perscibed pain meds ,my bad,before they found the hep.c > > > > > > Barby, are you saying they wont consider a transplant, or hep c > > treatment, or..,. what exactly are you saying?? There once was a > lady > > here whom they wouldn't let on the list for a transplant until she > > got off of pain meds. I can hear the sound of quacking all the way > > over here. Love bobby. > > > > > > long life, old age, everything good-Apache prayer > > > > > > > > > > > > ugggggggg > > > > > > > > > ok no letter ,so i called said it was mailed yesterday huh? what > > the > > > heck happened to monday!! asses, so i talked to a nurse cried and > > she > > > told me this much... his tests showed asprin, sleeping med. > > > tylenol,and pain med ,lortab from the family dr. for pain, so hes > > not > > > gonna be considered for another 6 months till his system is clear > > > from these meds. and i dont understand what do they want him to > do > > > for sleeping for pain??? i tried to ask her other ?s but she said > i > > > would have to wait for the report and i should have it by monday > as > > > well as the family dr. and hep dr..,she said it was avery lenghty > > > detailed letter, so like that makes me feel anybetter ,now i > wished > > i > > > hadnt called!!i dont think they are gonna be able to help > him ,what > > > then. we have done EVERYTHING all the drs. have asked of us, they > > > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 > > months > > > what do they know i dont. i guess i will find out soon, like this > > > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. > give > > > him something that was gonna stop him from getting treatment!!? ? > > do > > > they not think or not care??!! omg this is crazy, she said he > > stated > > > he didnt want him driving or operating heavy equipment because of > > his > > > apparent confusion? so what next, at work he drives is on ladders > > in > > > lifts, if he satys home more than he does he'd go crazy, hes a > > > man ,he loves working, what...ok barby stop honey calm down wait > > for > > > the stupid stupid letter., this is crazy i wished i hadnt > called ,i > > > should have been still and waited instead of only getting a > couple > > > tidbids.i wanna go slap his dr. in his face !!!! this is my > husband > > > damit my husband and he stopped us dead in our tracks.ok i need > to > > > cry throw something and just feel sorry for myself and bobby for > > > awhile. better to get it out of my system before i tell him this, > > its > > > gonna be a long day for sure much love barby > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 i believe you bobby i never knew the pain med. had tylenol or was an opiate till i looked it up today i agree bad med for bobby glenn, how are pain drs. listed in the phone book i dont see anything under pain management in ours, and what other meds. can they give him?? i know i am his biggest advacate, so i need to be informed and holding both rifles high when we walk ointo the office ,so to speek,love barby--- In livercirrhosissupport , Bob Aragon wrote: > > Barby, this is a very important question. The reason is that Bobby stands to lose the most. There is more misinformation about opioid analgesics (painmeds) than any other branch of medicine. There is a War On Drugs and unfortunately that tends to spill out into our health care and it ought not, but it does. Doctors are supposed to treat our illnesses based on scientific facts, but all to often they stray from scientific facts and let other things influence the treatment of pain. Society's fear of addiction is one example. Can you imagine a diabetic's doctor withholding insulin not because of blood sugar level, but on the basis of practicing in a bad neighborhood? Pain is now seen as a disease all by itself regardless of the cause. But the treatment of it is different than all other types of medicine. The most common myth regarding it is that people will get HIGH on it. It is easy to spot an addict as opposed to a pain patient. An addict will ALWAYS get > worse, never better. A patient properly treated for pain will get better, not worse. Please look all of this up if you have any doubts as to what I am telling you. Lortab has tylenol, and the only reason for the tylenol is because it limits the amount you can prescribe. As a layperson, I believe that it is a poor choice for someone with a bad liver. Pure opioids which do not have tylenol or ibuprofen are available, but usually only a pain medicine doctor will touch them with a 10 foot pole. They are highly regulated by the federal government, But they are NOT I repeat NOT toxic to the liver in most cases when taken as prescribed, and in reasonable doses. Bobby did well to seek a liver specialist for his liver. He would do even better to seek a pain specialist to deal with his pain. Our pain doctor told us last year " Sharon's neuro surgeon is not specialized in the treatment of severe pain any more than I am qualified to do neuro surgery. He is right > on the money. Love, bobby > > long life, old age, everything good-Apache prayer > > > > ugggggggg > > > > ok no letter ,so i called said it was mailed yesterday huh? what > the > > heck happened to monday!! asses, so i talked to a nurse cried and > she > > told me this much... his tests showed asprin, sleeping med. > > tylenol,and pain med ,lortab from the family dr. for pain, so hes > not > > gonna be considered for another 6 months till his system is clear > > from these meds. and i dont understand what do they want him to do > > for sleeping for pain??? i tried to ask her other ?s but she said i > > would have to wait for the report and i should have it by monday as > > well as the family dr. and hep dr..,she said it was avery lenghty > > detailed letter, so like that makes me feel anybetter ,now i wished > i > > hadnt called!!i dont think they are gonna be able to help him ,what > > then. we have done EVERYTHING all the drs. have asked of us, they > > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 > months > > what do they know i dont. i guess i will find out soon, like this > > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. give > > him something that was gonna stop him from getting treatment!!? ? do > > they not think or not care??!! omg this is crazy, she said he > stated > > he didnt want him driving or operating heavy equipment because of > his > > apparent confusion? so what next, at work he drives is on ladders > in > > lifts, if he satys home more than he does he'd go crazy, hes a > > man ,he loves working, what...ok barby stop honey calm down wait > for > > the stupid stupid letter., this is crazy i wished i hadnt called ,i > > should have been still and waited instead of only getting a couple > > tidbids.i wanna go slap his dr. in his face !!!! this is my husband > > damit my husband and he stopped us dead in our tracks.ok i need to > > cry throw something and just feel sorry for myself and bobby for > > awhile. better to get it out of my system before i tell him this, > its > > gonna be a long day for sure much love barby > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 I want to be very clear--- I don't know if thats what they are thinking. I am merely telling you my experience with a doctor ( a fellow in the CU hepatology department) whom was obviously biased in favor of not aggressively treating pain. My own hepatologist, however, who is this other doctor's professor just shrugged his shoulders and rolled his eyes when I complained about her to him. He is practically the one who suggested that I seek help from a pain specialist, and when I had a very painful complication last summer, he recommended that the pain doctor put me on something stronger and longer acting. The key here is to find out why what was said was said, and then you can decide what to do. Love, Bobby long life, old age, everything good-Apache prayer ugggggggg > > > > > > > > > ok no letter ,so i called said it was mailed yesterday huh? what > > the > > > heck happened to monday!! asses, so i talked to a nurse cried and > > she > > > told me this much... his tests showed asprin, sleeping med. > > > tylenol,and pain med ,lortab from the family dr. for pain, so hes > > not > > > gonna be considered for another 6 months till his system is clear > > > from these meds. and i dont understand what do they want him to > do > > > for sleeping for pain??? i tried to ask her other ?s but she said > i > > > would have to wait for the report and i should have it by monday > as > > > well as the family dr. and hep dr..,she said it was avery lenghty > > > detailed letter, so like that makes me feel anybetter ,now i > wished > > i > > > hadnt called!!i dont think they are gonna be able to help > him ,what > > > then. we have done EVERYTHING all the drs. have asked of us, they > > > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 > > months > > > what do they know i dont. i guess i will find out soon, like this > > > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. > give > > > him something that was gonna stop him from getting treatment!!? ? > > do > > > they not think or not care??!! omg this is crazy, she said he > > stated > > > he didnt want him driving or operating heavy equipment because of > > his > > > apparent confusion? so what next, at work he drives is on ladders > > in > > > lifts, if he satys home more than he does he'd go crazy, hes a > > > man ,he loves working, what...ok barby stop honey calm down wait > > for > > > the stupid stupid letter., this is crazy i wished i hadnt > called ,i > > > should have been still and waited instead of only getting a > couple > > > tidbids.i wanna go slap his dr. in his face !!!! this is my > husband > > > damit my husband and he stopped us dead in our tracks.ok i need > to > > > cry throw something and just feel sorry for myself and bobby for > > > awhile. better to get it out of my system before i tell him this, > > its > > > gonna be a long day for sure much love barby > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 i understand bobby, i will wait and see tommorrow is the daY one way or another.i will not act till i calm myself have all the facts and talk with you first lol lol lol, much love and thanks my friend, barby > > > > > > > > Barby, are you saying they wont consider a transplant, or hep c > > > treatment, or..,. what exactly are you saying?? There once was a > > lady > > > here whom they wouldn't let on the list for a transplant until > she > > > got off of pain meds. I can hear the sound of quacking all the > way > > > over here. Love bobby. > > > > > > > > long life, old age, everything good-Apache prayer > > > > > > > > > > > > > > > > ugggggggg > > > > > > > > > > > > ok no letter ,so i called said it was mailed yesterday huh? > what > > > the > > > > heck happened to monday!! asses, so i talked to a nurse cried > and > > > she > > > > told me this much... his tests showed asprin, sleeping med. > > > > tylenol,and pain med ,lortab from the family dr. for pain, so > hes > > > not > > > > gonna be considered for another 6 months till his system is > clear > > > > from these meds. and i dont understand what do they want him to > > do > > > > for sleeping for pain??? i tried to ask her other ?s but she > said > > i > > > > would have to wait for the report and i should have it by > monday > > as > > > > well as the family dr. and hep dr..,she said it was avery > lenghty > > > > detailed letter, so like that makes me feel anybetter ,now i > > wished > > > i > > > > hadnt called!!i dont think they are gonna be able to help > > him ,what > > > > then. we have done EVERYTHING all the drs. have asked of us, > they > > > > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 > > > months > > > > what do they know i dont. i guess i will find out soon, like > this > > > > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. > > give > > > > him something that was gonna stop him from getting > treatment!!? ? > > > do > > > > they not think or not care??!! omg this is crazy, she said he > > > stated > > > > he didnt want him driving or operating heavy equipment because > of > > > his > > > > apparent confusion? so what next, at work he drives is on > ladders > > > in > > > > lifts, if he satys home more than he does he'd go crazy, hes a > > > > man ,he loves working, what...ok barby stop honey calm down > wait > > > for > > > > the stupid stupid letter., this is crazy i wished i hadnt > > called ,i > > > > should have been still and waited instead of only getting a > > couple > > > > tidbids.i wanna go slap his dr. in his face !!!! this is my > > husband > > > > damit my husband and he stopped us dead in our tracks.ok i need > > to > > > > cry throw something and just feel sorry for myself and bobby > for > > > > awhile. better to get it out of my system before i tell him > this, > > > its > > > > gonna be a long day for sure much love barby > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 My pain doctor is very very clear when he has repeatedly told both Sharon and myself that there is a difference in a doctor who does " pain management " and a doctor who specializes in <PAIN MEDICINE>. They may do some of the same things, such as a midwife and a full blown obstetrics surgeon, but they are not the same. You need to call your insurance carrier and tell someone at member services that your husband need to see a doctor who specailizes in Pain medicine. Hey, I found this - good luck. http://www.healthgrades.com/local-doctors-directory/by-specialty/pain-medicine http://www.healthgrades.com/local-doctors-directory/by-specialty/pain-medicine/k\ entucky-kylong life, old age, everything good-Apache prayer ugggggggg > > > > ok no letter ,so i called said it was mailed yesterday huh? what > the > > heck happened to monday!! asses, so i talked to a nurse cried and > she > > told me this much... his tests showed asprin, sleeping med. > > tylenol,and pain med ,lortab from the family dr. for pain, so hes > not > > gonna be considered for another 6 months till his system is clear > > from these meds. and i dont understand what do they want him to do > > for sleeping for pain??? i tried to ask her other ?s but she said i > > would have to wait for the report and i should have it by monday as > > well as the family dr. and hep dr..,she said it was avery lenghty > > detailed letter, so like that makes me feel anybetter ,now i wished > i > > hadnt called!!i dont think they are gonna be able to help him ,what > > then. we have done EVERYTHING all the drs. have asked of us, they > > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 > months > > what do they know i dont. i guess i will find out soon, like this > > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. give > > him something that was gonna stop him from getting treatment!!? ? do > > they not think or not care??!! omg this is crazy, she said he > stated > > he didnt want him driving or operating heavy equipment because of > his > > apparent confusion? so what next, at work he drives is on ladders > in > > lifts, if he satys home more than he does he'd go crazy, hes a > > man ,he loves working, what...ok barby stop honey calm down wait > for > > the stupid stupid letter., this is crazy i wished i hadnt called ,i > > should have been still and waited instead of only getting a couple > > tidbids.i wanna go slap his dr. in his face !!!! this is my husband > > damit my husband and he stopped us dead in our tracks.ok i need to > > cry throw something and just feel sorry for myself and bobby for > > awhile. better to get it out of my system before i tell him this, > its > > gonna be a long day for sure much love barby > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 wow you are good bobby, how do you find this stuff we have several drs. right here in town, first things first though...the letter, thank you barby > > > > > > When we met with the transplant evaluation team - they asked for > a > > COMPLETE > > > list of meds we were taking. And from the research we did before > > that, we > > > pretty much knew that alcohol and some meds would have prohibited > > him from > > > getting on the list. (Wasn't an issue for him.) > > > Very surprised your family dr. didn't know. > > > > > > Dotty > > > From: livercirrhosissuppo rtyahoogroups (DOT) com > > > [mailto:livercirrho sissuppo rtyahoogroups (DOT) com] On Behalf Of > > pinkmeetsblue > > > Sent: Wednesday, September 24, 2008 11:27 AM > > > To: livercirrhosissuppo rtyahoogroups (DOT) com > > > Subject: ugggggggg > > > > > > ok no letter ,so i called said it was mailed yesterday huh? what > > the > > > heck happened to monday!! asses, so i talked to a nurse cried and > > she > > > told me this much... his tests showed asprin, sleeping med. > > > tylenol,and pain med ,lortab from the family dr. for pain, so hes > > not > > > gonna be considered for another 6 months till his system is clear > > > from these meds. and i dont understand what do they want him to > do > > > for sleeping for pain??? i tried to ask her other ?s but she said > i > > > would have to wait for the report and i should have it by monday > as > > > well as the family dr. and hep dr..,she said it was avery lenghty > > > detailed letter, so like that makes me feel anybetter ,now i > wished > > i > > > hadnt called!!i dont think they are gonna be able to help > him ,what > > > then. we have done EVERYTHING all the drs. have asked of us, they > > > perscibed the meds. what the hell. ok yeah i am pissed guys, 6 > > months > > > what do they know i dont. i guess i will find out soon, like this > > > will help me sleep better NOT ,sorry ranting, jhow could 1 dr. > give > > > him something that was gonna stop him from getting treatment!!? ? > do > > > they not think or not care??!! omg this is crazy, she said he > > stated > > > he didnt want him driving or operating heavy equipment because of > > his > > > apparent confusion? so what next, at work he drives is on ladders > > in > > > lifts, if he satys home more than he does he'd go crazy, hes a > > > man ,he loves working, what...ok barby stop honey calm down wait > > for > > > the stupid stupid letter., this is crazy i wished i hadnt > called ,i > > > should have been still and waited instead of only getting a > couple > > > tidbids.i wanna go slap his dr. in his face !!!! this is my > husband > > > damit my husband and he stopped us dead in our tracks.ok i need > to > > > cry throw something and just feel sorry for myself and bobby for > > > awhile. better to get it out of my system before i tell him this, > > its > > > gonna be a long day for sure much love barby > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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