Pudendal nerve specialists?

[Guest guest]

Has anyone ever consulted with a doctor who specializes in pudendal nerve

damage?

There's a list of doctors here: http://www.pudendalhope.info/node/54

I had some improvement with acupuncture where I told the doctor I believed the

pudendal nerves were damaged so I believe that these were the nerves he was

targeting, and now I've been going for pelvic floor physical

therapy/biofeedback.

The way I understand it the pudendal nerves are in three bunches leading to

1)rectum/anus 2) urethra/perineum, and 3) genital area. With acupuncture I had

improvements of the first 2 areas.

The physical therapists seem very intrigued about pssd (much more interested

than the doctors I've seen) and have been very helpful. I am experiencing more

improvement with my urinary issues after a few weeks of therapy.

I'll have to ask the PT again what she called the nerves that she says have been

most effected. I believe she called them the dorsal-clitoral nerves. So in my

mind it is quite obvious that this is one of the major issues causing my genital

anesthesia.

I explained to her my theory that the more I do kegel exercises, the worse my

genital anesthesia is (even though doctors keep telling me that I am wrong and

that kegel exercises should help the situation). She said (if I understood her

correctly) that even standing for prolonged periods of time places a strain on

the damaged pudendal nerves.

Her suggestion was orgasm first thing in the morning after lying down all night

as opposed to at the end of a busy day.

All this time I've been trying to figure out some rhyme or reason to why some

orgasms are ok (about 25% sensation) as opposed to the zero sensation I still

experience from time to time.

And so far this theory holds up very well - lots of " pudendal nerve rest "

results in much more sensation.

[Guest guest]

I was also wondering if anyone else has gone for pelvic floor physical

therapy/biofeedback. If not, I highly recommend it.

When my doctor referred me for physical therapy I was curious to know how this

was going to work out, given the fact that I feel numb and can't necessarily

feel anything when I do kegel exercises.

In fact I basically gave up on doing kegels long ago because I had read that if

you are doing them wrong you can do more harm than good, and since I couldn't

feel them I figured that I was probably doing them wrong.

But in therapy/biofeedback I discovered that I must have been doing them

correctly in spite of being numb, and the therapist told me that the muscles are

strong in spite of the fact that I can't feel them.

She said she sees many women with this type of problem BUT I am the first that

has these issues because of ssri's. Mostly it is childbirth related or physical

injury.

We discovered that I totally can't feel much of anything while standing, can

feel a bit while lying down, and have the most sensation while sitting.

It was very interesting to be hooked up for biofeedback and " SEE " the muscles

working in spite of the fact I couldn't feel them.

She said that by doing the PT exercises I should regain some feeling, and it

seems to be working. I am starting to feel a connection to the pc muscle.

>

> Has anyone ever consulted with a doctor who specializes in pudendal nerve

damage?

>

> There's a list of doctors here: http://www.pudendalhope.info/node/54

>

> I had some improvement with acupuncture where I told the doctor I believed the

pudendal nerves were damaged so I believe that these were the nerves he was

targeting, and now I've been going for pelvic floor physical

therapy/biofeedback.

>

> The way I understand it the pudendal nerves are in three bunches leading to

1)rectum/anus 2) urethra/perineum, and 3) genital area. With acupuncture I had

improvements of the first 2 areas.

>

> The physical therapists seem very intrigued about pssd (much more interested

than the doctors I've seen) and have been very helpful. I am experiencing more

improvement with my urinary issues after a few weeks of therapy.

>

> I'll have to ask the PT again what she called the nerves that she says have

been most effected. I believe she called them the dorsal-clitoral nerves. So

in my mind it is quite obvious that this is one of the major issues causing my

genital anesthesia.

>

> I explained to her my theory that the more I do kegel exercises, the worse my

genital anesthesia is (even though doctors keep telling me that I am wrong and

that kegel exercises should help the situation). She said (if I understood her

correctly) that even standing for prolonged periods of time places a strain on

the damaged pudendal nerves.

>

> Her suggestion was orgasm first thing in the morning after lying down all

night as opposed to at the end of a busy day.

>

> All this time I've been trying to figure out some rhyme or reason to why some

orgasms are ok (about 25% sensation) as opposed to the zero sensation I still

experience from time to time.

>

> And so far this theory holds up very well - lots of " pudendal nerve rest "

results in much more sensation.

>

[Guest guest]

Well that's good news! Hopefully the PT keeps working for you and things

improve well!

> >

> > Has anyone ever consulted with a doctor who specializes in pudendal nerve

damage?

> >

> > There's a list of doctors here: http://www.pudendalhope.info/node/54

> >

> > I had some improvement with acupuncture where I told the doctor I believed

the pudendal nerves were damaged so I believe that these were the nerves he was

targeting, and now I've been going for pelvic floor physical

therapy/biofeedback.

> >

> > The way I understand it the pudendal nerves are in three bunches leading to

1)rectum/anus 2) urethra/perineum, and 3) genital area. With acupuncture I had

improvements of the first 2 areas.

> >

> > The physical therapists seem very intrigued about pssd (much more interested

than the doctors I've seen) and have been very helpful. I am experiencing more

improvement with my urinary issues after a few weeks of therapy.

> >

> > I'll have to ask the PT again what she called the nerves that she says have

been most effected. I believe she called them the dorsal-clitoral nerves. So

in my mind it is quite obvious that this is one of the major issues causing my

genital anesthesia.

> >

> > I explained to her my theory that the more I do kegel exercises, the worse

my genital anesthesia is (even though doctors keep telling me that I am wrong

and that kegel exercises should help the situation). She said (if I understood

her correctly) that even standing for prolonged periods of time places a strain

on the damaged pudendal nerves.

> >

> > Her suggestion was orgasm first thing in the morning after lying down all

night as opposed to at the end of a busy day.

> >

> > All this time I've been trying to figure out some rhyme or reason to why

some orgasms are ok (about 25% sensation) as opposed to the zero sensation I

still experience from time to time.

> >

> > And so far this theory holds up very well - lots of " pudendal nerve rest "

results in much more sensation.

> >

>

[Guest guest]

I was considering pudendal nerve involvment before I learned of PSSD and realized that my symptoms began coinciding with a brief trial of 5 different psychiatric medications including the two different SSRI anti-depresants of Zoloft and Remeron--therefore, I find it to much of a coincidence to exclude SSRI as a factor in my development of various sexual dysfunctions--especially when I analyse all the details of how my symptoms began and evolved--and then compare them to the potential symptoms of pudental nerve entrapment--and then compare them to the list of potential symptoms for PSSD. I find PSSD to be a better fit. But, to be objective--I have not totally excluded the potential for there being more than one factor for the cause of my symptoms. I sometime wonder if SSRIs are so good at altering the ability to experience pleasure--and are

advertised for the treatment of certain forms of pain. Then I wonder if SSRI could aggravate/alter the nerve function in someone who has some predisposition for nerve dysfunction such as some one with some nerve problems such as pudendal nerve issues.*******************************************************************Subject: Pudendal nerve specialists?To: SSRIsex Date: Thursday, June 28, 2012, 1:51 PMHas anyone ever consulted with a doctor who specializes in pudendal nerve damage?There's a list of doctors here: http://www.pudendalhope.info/node/54I

had some improvement with acupuncture where I told the doctor I believed the pudendal nerves were damaged so I believe that these were the nerves he was targeting, and now I've been going for pelvic floor physical therapy/biofeedback.The way I understand it the pudendal nerves are in three bunches leading to 1)rectum/anus 2) urethra/perineum, and 3) genital area. With acupuncture I had improvements of the first 2 areas.The physical therapists seem very intrigued about pssd (much more interested than the doctors I've seen) and have been very helpful. I am experiencing more improvement with my urinary issues after a few weeks of therapy.I'll have to ask the PT again what she called the nerves that she says have been most effected. I believe she called them the dorsal-clitoral nerves. So in my mind it is quite obvious that this is one of the major issues causing my genital anesthesia. I

explained to her my theory that the more I do kegel exercises, the worse my genital anesthesia is (even though doctors keep telling me that I am wrong and that kegel exercises should help the situation). She said (if I understood her correctly) that even standing for prolonged periods of time places a strain on the damaged pudendal nerves.Her suggestion was orgasm first thing in the morning after lying down all night as opposed to at the end of a busy day.All this time I've been trying to figure out some rhyme or reason to why some orgasms are ok (about 25% sensation) as opposed to the zero sensation I still experience from time to time.And so far this theory holds up very well - lots of "pudendal nerve rest" results in much more sensation. ------------------------------------This group is for support, discussion, or

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