Re: Dutch health authorities - PSSD respons - The Netherlands

[Guest guest]

I like your persistance. You truly want PSSD to be exposed, but do you really

think it will happen? We are a relatively small group who took pills for " mental

illness " . Depression is so widely diagnosed these days and a symptom of

depression is " loss of interest in sex " . Hell I even saw one website for

depression that said you can lose your orgasm to depression, which doesn't make

a whole lot of sense to me... I've never experienced that due to depression. The

profits that these companies are making from these pills are enormous, not to

mention these pills ARE helping a lot of people and the large majority of them

will not experience PSSD. So if PSSD was exposed... their business would most

likely take a huge hit. What would the companies or doctors get in return if

PSSD was exposed? They would face a bunch of unwanted scrutiny. The only way to

get it exposed would be to have some organization that is willing to help us.

And even then, I'm thinking that they would have to see some of us. The people

that would be exposed for this would have to be young males who are smart,

healthy, and emotionally well. I think the 5-HT1 and 5-HT2 are relevant to the

problem, but who knows... We are all different. Whatever happened with Professor

Waldinger?

>

>

> Dear All

>

> Bellow I translated an email I send to the Dutch health institute

> (LAREB). They are responsible for medication safety in the Netherlands.

> After this email I got into contact with a medical specialist working

> there.

>

> The mail and publications convinced him to do a scanning of the database

> they have on side effects. Due to the construct of their database and

> findings several things go wrong in establishing an overview on PSSD.

>

> 1. Sexual side effects are reported differently and stored not

> uniformly;

>

> 2. SSRI's are not seen as a group; medication is monitored

> individually;

>

> 3. The definition of side-effects states that they are prevalent

> during usage, discontinuation is not monitored

>

> Above points make that the reports on PSSD are being shattered in the

> database. A consolidation was needed on both medication and all sexual

> side effects after discontinuation.

>

> A new scan on the database revealed multiple reports of PSSD, convincing

> them PSSD exists. Individual communication on their doings is a bit

> " closed " but I will continue on the contact with have now.

>

> Any suggestions are welcome! Any information I am happy to provide.

>

> Bellow I also included a message one of us Dutch PSSD sufferers got back

> after reporting his PSSD. This response shows communication has changed!

> And they are becoming aware of PSSD!

>

>

>

> Dear sir/miss,

>

> By means of this mail I would like to inform you about an illness which

> I and multiple others have been left with after the use of

> antidepressants; specifically SSRI's. Commonly prescribed SSRI's

> in the Netherlands are Seroxat (Paxil) and Prozac (Fluoxetine).

>

> We all have kept a persistent sexual dysfunction after (many times short

> usage) of these medications. The sexual side-effects which were present

> during taking have remained until present.

>

> Prevalent complaints are:

>

> - Strong loss of Libido

>

> - Erectile dysfunction - no erection

>

> - Limited orgasm to non – orgasm

>

> - Genital Anastasia

>

> - Bladder problems

>

> With me and others sexual dysfunction started with the use of

> medication. Sexual complaints had no relationship with the reasons for

> prescribing the medication.

>

> Our illness is called Post SSRI Sexual Dysfunction (PSSD). The causes of

> these complaints are unclear, as is the possibility to reverse the

> symptoms. Down regulating of 5-HT1 and 5-HT2 receptors by increase of

> Serotonine due to the SSRI is seen as the cause. Possibly down

> regulating can become permanent. Unclear is however why this happens and

> what can be done against it.

>

> In the United States several articles have been published about PSSD

> recognizing its existence. Two articles which can also be found on

> PUBMED have been included with this mail. Informally it is commonly

> thought side effects caused by SSRI's disappear after quitting

> medication. No research has however been done to confirm this claim.

> Our experience and the articles published prove differently.

>

> By means of the mail I would like to establish contact with about PSSD.

> The influence PSSD has on our life is significant. Lacking the ability

> to experience sexuality does harm to the essence of being a human. We

> are looking for means to start research, and hopefully find a solution

> for our illness.

>

> Finally it is important to give name to PSSD to the world. From a

> medical, ethical and social perspective it is highly relevant to

> communicate the risks involved with these commonly prescribed

> medications.

>

> I hope you are open for a dialogue with us as a group.

>

> Awaiting your response,

>

>

>

>

>

> Bellow you find the correspondence send to one of your Dutch group after

> he reported his PSSD: things have changed!

>

>

>

> The Dutch official product information of Fluoxetine describes sexual

> dysfunction as common side effects. Anorgasmia and loss of libido are

> named. What you have described, namely symptoms remaining after

> medication is stopped, is not mentioned in the product information.

> American product information of Fluoxetine mentions that sexual

> dysfunction can persist; it does however not specify which dysfunctions.

> LAREB has received multiple reports of persistent sexual dysfunction

> after Fluoxetine has quitted, or other anti depressants from the same

> group as Fluoxetine. These reports concern both man and woman between

> 20 and 59 years old.

>

> Your report will be stored in the LAREB database, where all side effects

> of medication in the Netherlands are collected. LAREB is able to provide

> a thorough inside in the safety of medication and will take action when

> needed.

>

> Thank you again for reporting at LAREB.

>

[Guest guest]

If they create drugs to reverse PSSD, it would be financially beneficial for

them.

> >

> >

> > Dear All

> >

> > Bellow I translated an email I send to the Dutch health institute

> > (LAREB). They are responsible for medication safety in the Netherlands.

> > After this email I got into contact with a medical specialist working

> > there.

> >

> > The mail and publications convinced him to do a scanning of the database

> > they have on side effects. Due to the construct of their database and

> > findings several things go wrong in establishing an overview on PSSD.

> >

> > 1. Sexual side effects are reported differently and stored not

> > uniformly;

> >

> > 2. SSRI's are not seen as a group; medication is monitored

> > individually;

> >

> > 3. The definition of side-effects states that they are prevalent

> > during usage, discontinuation is not monitored

> >

> > Above points make that the reports on PSSD are being shattered in the

> > database. A consolidation was needed on both medication and all sexual

> > side effects after discontinuation.

> >

> > A new scan on the database revealed multiple reports of PSSD, convincing

> > them PSSD exists. Individual communication on their doings is a bit

> > " closed " but I will continue on the contact with have now.

> >

> > Any suggestions are welcome! Any information I am happy to provide.

> >

> > Bellow I also included a message one of us Dutch PSSD sufferers got back

> > after reporting his PSSD. This response shows communication has changed!

> > And they are becoming aware of PSSD!

> >

> >

> >

> > Dear sir/miss,

> >

> > By means of this mail I would like to inform you about an illness which

> > I and multiple others have been left with after the use of

> > antidepressants; specifically SSRI's. Commonly prescribed SSRI's

> > in the Netherlands are Seroxat (Paxil) and Prozac (Fluoxetine).

> >

> > We all have kept a persistent sexual dysfunction after (many times short

> > usage) of these medications. The sexual side-effects which were present

> > during taking have remained until present.

> >

> > Prevalent complaints are:

> >

> > - Strong loss of Libido

> >

> > - Erectile dysfunction - no erection

> >

> > - Limited orgasm to non – orgasm

> >

> > - Genital Anastasia

> >

> > - Bladder problems

> >

> > With me and others sexual dysfunction started with the use of

> > medication. Sexual complaints had no relationship with the reasons for

> > prescribing the medication.

> >

> > Our illness is called Post SSRI Sexual Dysfunction (PSSD). The causes of

> > these complaints are unclear, as is the possibility to reverse the

> > symptoms. Down regulating of 5-HT1 and 5-HT2 receptors by increase of

> > Serotonine due to the SSRI is seen as the cause. Possibly down

> > regulating can become permanent. Unclear is however why this happens and

> > what can be done against it.

> >

> > In the United States several articles have been published about PSSD

> > recognizing its existence. Two articles which can also be found on

> > PUBMED have been included with this mail. Informally it is commonly

> > thought side effects caused by SSRI's disappear after quitting

> > medication. No research has however been done to confirm this claim.

> > Our experience and the articles published prove differently.

> >

> > By means of the mail I would like to establish contact with about PSSD.

> > The influence PSSD has on our life is significant. Lacking the ability

> > to experience sexuality does harm to the essence of being a human. We

> > are looking for means to start research, and hopefully find a solution

> > for our illness.

> >

> > Finally it is important to give name to PSSD to the world. From a

> > medical, ethical and social perspective it is highly relevant to

> > communicate the risks involved with these commonly prescribed

> > medications.

> >

> > I hope you are open for a dialogue with us as a group.

> >

> > Awaiting your response,

> >

> >

> >

> >

> >

> > Bellow you find the correspondence send to one of your Dutch group after

> > he reported his PSSD: things have changed!

> >

> >

> >

> > The Dutch official product information of Fluoxetine describes sexual

> > dysfunction as common side effects. Anorgasmia and loss of libido are

> > named. What you have described, namely symptoms remaining after

> > medication is stopped, is not mentioned in the product information.

> > American product information of Fluoxetine mentions that sexual

> > dysfunction can persist; it does however not specify which dysfunctions.

> > LAREB has received multiple reports of persistent sexual dysfunction

> > after Fluoxetine has quitted, or other anti depressants from the same

> > group as Fluoxetine. These reports concern both man and woman between

> > 20 and 59 years old.

> >

> > Your report will be stored in the LAREB database, where all side effects

> > of medication in the Netherlands are collected. LAREB is able to provide

> > a thorough inside in the safety of medication and will take action when

> > needed.

> >

> > Thank you again for reporting at LAREB.

> >

>

[Guest guest]

I saw a new GP recently as I have moved to live in a new area. I went

along to see her with some stuff about PSSD that I had downloaded from

the internet. When I told her about PSSD she said depression causes loss

of sex drive and as you still have some nervous illness that is probably

the reason for your loss of sex drive. Hmm, I said, but stress, worry or

depresion, now matter how severe, does not cause a permanent loss of sex

drive that goes on for years and years on end; it only causes a loss of

drive that goes on for a few days, or few weeks at most. Anyway, I said,

all my genitals are numb and I am interested in sex, but try as hard I

can I can't get all that excited anymore, things just feel dead. I told

her that most sufferers tend to be lonely and without a partner, and

that it is a very difficult thing to cope with and most sufferers are

devasted by it.

She looked at me as if I was making it all up so I gave her the internet

stuff that I had but I knew she would not read it so I wrote down on

peace of paper 'Dr Stuart Shipko, Libido Lost, YouTube', for her to

Google. I haven't seen her since so I don't know what she thinks about

this but I suspect she will be very sceptical as doctors usually are.

Kv

> >

> >

> > Dear All

> >

> > Bellow I translated an email I send to the Dutch health institute

> > (LAREB). They are responsible for medication safety in the

Netherlands.

> > After this email I got into contact with a medical specialist

working

> > there.

> >

> > The mail and publications convinced him to do a scanning of the

database

> > they have on side effects. Due to the construct of their database

and

> > findings several things go wrong in establishing an overview on

PSSD.

> >

> > 1. Sexual side effects are reported differently and stored not

> > uniformly;

> >

> > 2. SSRI's are not seen as a group; medication is monitored

> > individually;

> >

> > 3. The definition of side-effects states that they are prevalent

> > during usage, discontinuation is not monitored

> >

> > Above points make that the reports on PSSD are being shattered in

the

> > database. A consolidation was needed on both medication and all

sexual

> > side effects after discontinuation.

> >

> > A new scan on the database revealed multiple reports of PSSD,

convincing

> > them PSSD exists. Individual communication on their doings is a bit

> > " closed " but I will continue on the contact with have now.

> >

> > Any suggestions are welcome! Any information I am happy to provide.

> >

> > Bellow I also included a message one of us Dutch PSSD sufferers got

back

> > after reporting his PSSD. This response shows communication has

changed!

> > And they are becoming aware of PSSD!

> >

> >

> >

> > Dear sir/miss,

> >

> > By means of this mail I would like to inform you about an illness

which

> > I and multiple others have been left with after the use of

> > antidepressants; specifically SSRI's. Commonly prescribed SSRI's

> > in the Netherlands are Seroxat (Paxil) and Prozac (Fluoxetine).

> >

> > We all have kept a persistent sexual dysfunction after (many times

short

> > usage) of these medications. The sexual side-effects which were

present

> > during taking have remained until present.

> >

> > Prevalent complaints are:

> >

> > - Strong loss of Libido

> >

> > - Erectile dysfunction - no erection

> >

> > - Limited orgasm to non – orgasm

> >

> > - Genital Anastasia

> >

> > - Bladder problems

> >

> > With me and others sexual dysfunction started with the use of

> > medication. Sexual complaints had no relationship with the reasons

for

> > prescribing the medication.

> >

> > Our illness is called Post SSRI Sexual Dysfunction (PSSD). The

causes of

> > these complaints are unclear, as is the possibility to reverse the

> > symptoms. Down regulating of 5-HT1 and 5-HT2 receptors by increase

of

> > Serotonine due to the SSRI is seen as the cause. Possibly down

> > regulating can become permanent. Unclear is however why this happens

and

> > what can be done against it.

> >

> > In the United States several articles have been published about PSSD

> > recognizing its existence. Two articles which can also be found on

> > PUBMED have been included with this mail. Informally it is commonly

> > thought side effects caused by SSRI's disappear after quitting

> > medication. No research has however been done to confirm this claim.

> > Our experience and the articles published prove differently.

> >

> > By means of the mail I would like to establish contact with about

PSSD.

> > The influence PSSD has on our life is significant. Lacking the

ability

> > to experience sexuality does harm to the essence of being a human.

We

> > are looking for means to start research, and hopefully find a

solution

> > for our illness.

> >

> > Finally it is important to give name to PSSD to the world. From a

> > medical, ethical and social perspective it is highly relevant to

> > communicate the risks involved with these commonly prescribed

> > medications.

> >

> > I hope you are open for a dialogue with us as a group.

> >

> > Awaiting your response,

> >

> >

> >

> >

> >

> > Bellow you find the correspondence send to one of your Dutch group

after

> > he reported his PSSD: things have changed!

> >

> >

> >

> > The Dutch official product information of Fluoxetine describes

sexual

> > dysfunction as common side effects. Anorgasmia and loss of libido

are

> > named. What you have described, namely symptoms remaining after

> > medication is stopped, is not mentioned in the product information.

> > American product information of Fluoxetine mentions that sexual

> > dysfunction can persist; it does however not specify which

dysfunctions.

> > LAREB has received multiple reports of persistent sexual dysfunction

> > after Fluoxetine has quitted, or other anti depressants from the

same

> > group as Fluoxetine. These reports concern both man and woman

between

> > 20 and 59 years old.

> >

> > Your report will be stored in the LAREB database, where all side

effects

> > of medication in the Netherlands are collected. LAREB is able to

provide

> > a thorough inside in the safety of medication and will take action

when

> > needed.

> >

> > Thank you again for reporting at LAREB.

> >

>

[Guest guest]

Be happy that someone still want to work about it

> >

> >

> > Dear All

> >

> > Bellow I translated an email I send to the Dutch health institute

> > (LAREB). They are responsible for medication safety in the Netherlands.

> > After this email I got into contact with a medical specialist working

> > there.

> >

> > The mail and publications convinced him to do a scanning of the database

> > they have on side effects. Due to the construct of their database and

> > findings several things go wrong in establishing an overview on PSSD.

> >

> > 1. Sexual side effects are reported differently and stored not

> > uniformly;

> >

> > 2. SSRI's are not seen as a group; medication is monitored

> > individually;

> >

> > 3. The definition of side-effects states that they are prevalent

> > during usage, discontinuation is not monitored

> >

> > Above points make that the reports on PSSD are being shattered in the

> > database. A consolidation was needed on both medication and all sexual

> > side effects after discontinuation.

> >

> > A new scan on the database revealed multiple reports of PSSD, convincing

> > them PSSD exists. Individual communication on their doings is a bit

> > " closed " but I will continue on the contact with have now.

> >

> > Any suggestions are welcome! Any information I am happy to provide.

> >

> > Bellow I also included a message one of us Dutch PSSD sufferers got back

> > after reporting his PSSD. This response shows communication has changed!

> > And they are becoming aware of PSSD!

> >

> >

> >

> > Dear sir/miss,

> >

> > By means of this mail I would like to inform you about an illness which

> > I and multiple others have been left with after the use of

> > antidepressants; specifically SSRI's. Commonly prescribed SSRI's

> > in the Netherlands are Seroxat (Paxil) and Prozac (Fluoxetine).

> >

> > We all have kept a persistent sexual dysfunction after (many times short

> > usage) of these medications. The sexual side-effects which were present

> > during taking have remained until present.

> >

> > Prevalent complaints are:

> >

> > - Strong loss of Libido

> >

> > - Erectile dysfunction - no erection

> >

> > - Limited orgasm to non – orgasm

> >

> > - Genital Anastasia

> >

> > - Bladder problems

> >

> > With me and others sexual dysfunction started with the use of

> > medication. Sexual complaints had no relationship with the reasons for

> > prescribing the medication.

> >

> > Our illness is called Post SSRI Sexual Dysfunction (PSSD). The causes of

> > these complaints are unclear, as is the possibility to reverse the

> > symptoms. Down regulating of 5-HT1 and 5-HT2 receptors by increase of

> > Serotonine due to the SSRI is seen as the cause. Possibly down

> > regulating can become permanent. Unclear is however why this happens and

> > what can be done against it.

> >

> > In the United States several articles have been published about PSSD

> > recognizing its existence. Two articles which can also be found on

> > PUBMED have been included with this mail. Informally it is commonly

> > thought side effects caused by SSRI's disappear after quitting

> > medication. No research has however been done to confirm this claim.

> > Our experience and the articles published prove differently.

> >

> > By means of the mail I would like to establish contact with about PSSD.

> > The influence PSSD has on our life is significant. Lacking the ability

> > to experience sexuality does harm to the essence of being a human. We

> > are looking for means to start research, and hopefully find a solution

> > for our illness.

> >

> > Finally it is important to give name to PSSD to the world. From a

> > medical, ethical and social perspective it is highly relevant to

> > communicate the risks involved with these commonly prescribed

> > medications.

> >

> > I hope you are open for a dialogue with us as a group.

> >

> > Awaiting your response,

> >

> >

> >

> >

> >

> > Bellow you find the correspondence send to one of your Dutch group after

> > he reported his PSSD: things have changed!

> >

> >

> >

> > The Dutch official product information of Fluoxetine describes sexual

> > dysfunction as common side effects. Anorgasmia and loss of libido are

> > named. What you have described, namely symptoms remaining after

> > medication is stopped, is not mentioned in the product information.

> > American product information of Fluoxetine mentions that sexual

> > dysfunction can persist; it does however not specify which dysfunctions.

> > LAREB has received multiple reports of persistent sexual dysfunction

> > after Fluoxetine has quitted, or other anti depressants from the same

> > group as Fluoxetine. These reports concern both man and woman between

> > 20 and 59 years old.

> >

> > Your report will be stored in the LAREB database, where all side effects

> > of medication in the Netherlands are collected. LAREB is able to provide

> > a thorough inside in the safety of medication and will take action when

> > needed.

> >

> > Thank you again for reporting at LAREB.

> >

>

[Guest guest]

I have contacted loads of professionals, psychiatrists, doctors,

jouranalists, about PSSD sending them the Dr Stuart Shipko video, my own

PSSD experience, plus case histories from our site (all names removed).

I very seldom get a reply.

Kv

> >>

> >>

> >> Dear All

> >>

> >> Bellow I translated an email I send to the Dutch health institute

> >> (LAREB). They are responsible for medication safety in the

Netherlands.

> >> After this email I got into contact with a medical specialist

working

> >> there.

> >>

> >> The mail and publications convinced him to do a scanning of the

database

> >> they have on side effects. Due to the construct of their database

and

> >> findings several things go wrong in establishing an overview on

PSSD.

> >>

> >> 1. Sexual side effects are reported differently and stored not

> >> uniformly;

> >>

> >> 2. SSRI's are not seen as a group; medication is monitored

> >> individually;

> >>

> >> 3. The definition of side-effects states that they are prevalent

> >> during usage, discontinuation is not monitored

> >>

> >> Above points make that the reports on PSSD are being shattered in

the

> >> database. A consolidation was needed on both medication and all

sexual

> >> side effects after discontinuation.

> >>

> >> A new scan on the database revealed multiple reports of PSSD,

convincing

> >> them PSSD exists. Individual communication on their doings is a bit

> >> " closed " but I will continue on the contact with have now.

> >>

> >> Any suggestions are welcome! Any information I am happy to provide.

> >>

> >> Bellow I also included a message one of us Dutch PSSD sufferers got

back

> >> after reporting his PSSD. This response shows communication has

changed!

> >> And they are becoming aware of PSSD!

> >>

> >>

> >>

> >> Dear sir/miss,

> >>

> >> By means of this mail I would like to inform you about an illness

which

> >> I and multiple others have been left with after the use of

> >> antidepressants; specifically SSRI's. Commonly prescribed SSRI's

> >> in the Netherlands are Seroxat (Paxil) and Prozac (Fluoxetine).

> >>

> >> We all have kept a persistent sexual dysfunction after (many times

short

> >> usage) of these medications. The sexual side-effects which were

present

> >> during taking have remained until present.

> >>

> >> Prevalent complaints are:

> >>

> >> - Strong loss of Libido

> >>

> >> - Erectile dysfunction - no erection

> >>

> >> - Limited orgasm to non †" orgasm

> >>

> >> - Genital Anastasia

> >>

> >> - Bladder problems

> >>

> >> With me and others sexual dysfunction started with the use of

> >> medication. Sexual complaints had no relationship with the reasons

for

> >> prescribing the medication.

> >>

> >> Our illness is called Post SSRI Sexual Dysfunction (PSSD). The

causes of

> >> these complaints are unclear, as is the possibility to reverse the

> >> symptoms. Down regulating of 5-HT1 and 5-HT2 receptors by increase

of

> >> Serotonine due to the SSRI is seen as the cause. Possibly down

> >> regulating can become permanent. Unclear is however why this

happens and

> >> what can be done against it.

> >>

> >> In the United States several articles have been published about

PSSD

> >> recognizing its existence. Two articles which can also be found on

> >> PUBMED have been included with this mail. Informally it is commonly

> >> thought side effects caused by SSRI's disappear after quitting

> >> medication. No research has however been done to confirm this

claim.

> >> Our experience and the articles published prove differently.

> >>

> >> By means of the mail I would like to establish contact with about

PSSD.

> >> The influence PSSD has on our life is significant. Lacking the

ability

> >> to experience sexuality does harm to the essence of being a human.

We

> >> are looking for means to start research, and hopefully find a

solution

> >> for our illness.

> >>

> >> Finally it is important to give name to PSSD to the world. From a

> >> medical, ethical and social perspective it is highly relevant to

> >> communicate the risks involved with these commonly prescribed

> >> medications.

> >>

> >> I hope you are open for a dialogue with us as a group.

> >>

> >> Awaiting your response,

> >>

> >>

> >>

> >>

> >>

> >> Bellow you find the correspondence send to one of your Dutch group

after

> >> he reported his PSSD: things have changed!

> >>

> >>

> >>

> >> The Dutch official product information of Fluoxetine describes

sexual

> >> dysfunction as common side effects. Anorgasmia and loss of libido

are

> >> named. What you have described, namely symptoms remaining after

> >> medication is stopped, is not mentioned in the product information.

> >> American product information of Fluoxetine mentions that sexual

> >> dysfunction can persist; it does however not specify which

dysfunctions.

> >> LAREB has received multiple reports of persistent sexual

dysfunction

> >> after Fluoxetine has quitted, or other anti depressants from the

same

> >> group as Fluoxetine. These reports concern both man and woman

between

> >> 20 and 59 years old.

> >>

> >> Your report will be stored in the LAREB database, where all side

effects

> >> of medication in the Netherlands are collected. LAREB is able to

provide

> >> a thorough inside in the safety of medication and will take action

when

> >> needed.

> >>

> >> Thank you again for reporting at LAREB.

> >>

> >

> >

>

[Guest guest]

It would be very nice to get compensated for this, but Im sure we would have to

PROVE that PSSD exists. PSSD exists in the brain, so Im doubting we could prove

it. The thing is I believe that a large group of doctors and big pharma people

actually know that PSSD is real... but they are not going to speak up because it

would cause way too many problems.

> > >

> > >

> > > Dear All

> > >

> > > Bellow I translated an email I send to the Dutch health institute

> > > (LAREB). They are responsible for medication safety in the Netherlands.

> > > After this email I got into contact with a medical specialist working

> > > there.

> > >

> > > The mail and publications convinced him to do a scanning of the database

> > > they have on side effects. Due to the construct of their database and

> > > findings several things go wrong in establishing an overview on PSSD.

> > >

> > > 1. Sexual side effects are reported differently and stored not

> > > uniformly;

> > >

> > > 2. SSRI's are not seen as a group; medication is monitored

> > > individually;

> > >

> > > 3. The definition of side-effects states that they are prevalent

> > > during usage, discontinuation is not monitored

> > >

> > > Above points make that the reports on PSSD are being shattered in the

> > > database. A consolidation was needed on both medication and all sexual

> > > side effects after discontinuation.

> > >

> > > A new scan on the database revealed multiple reports of PSSD, convincing

> > > them PSSD exists. Individual communication on their doings is a bit

> > > " closed " but I will continue on the contact with have now.

> > >

> > > Any suggestions are welcome! Any information I am happy to provide.

> > >

> > > Bellow I also included a message one of us Dutch PSSD sufferers got back

> > > after reporting his PSSD. This response shows communication has changed!

> > > And they are becoming aware of PSSD!

> > >

> > >

> > >

> > > Dear sir/miss,

> > >

> > > By means of this mail I would like to inform you about an illness which

> > > I and multiple others have been left with after the use of

> > > antidepressants; specifically SSRI's. Commonly prescribed SSRI's

> > > in the Netherlands are Seroxat (Paxil) and Prozac (Fluoxetine).

> > >

> > > We all have kept a persistent sexual dysfunction after (many times short

> > > usage) of these medications. The sexual side-effects which were present

> > > during taking have remained until present.

> > >

> > > Prevalent complaints are:

> > >

> > > - Strong loss of Libido

> > >

> > > - Erectile dysfunction - no erection

> > >

> > > - Limited orgasm to non †" orgasm

> > >

> > > - Genital Anastasia

> > >

> > > - Bladder problems

> > >

> > > With me and others sexual dysfunction started with the use of

> > > medication. Sexual complaints had no relationship with the reasons for

> > > prescribing the medication.

> > >

> > > Our illness is called Post SSRI Sexual Dysfunction (PSSD). The causes of

> > > these complaints are unclear, as is the possibility to reverse the

> > > symptoms. Down regulating of 5-HT1 and 5-HT2 receptors by increase of

> > > Serotonine due to the SSRI is seen as the cause. Possibly down

> > > regulating can become permanent. Unclear is however why this happens and

> > > what can be done against it.

> > >

> > > In the United States several articles have been published about PSSD

> > > recognizing its existence. Two articles which can also be found on

> > > PUBMED have been included with this mail. Informally it is commonly

> > > thought side effects caused by SSRI's disappear after quitting

> > > medication. No research has however been done to confirm this claim.

> > > Our experience and the articles published prove differently.

> > >

> > > By means of the mail I would like to establish contact with about PSSD.

> > > The influence PSSD has on our life is significant. Lacking the ability

> > > to experience sexuality does harm to the essence of being a human. We

> > > are looking for means to start research, and hopefully find a solution

> > > for our illness.

> > >

> > > Finally it is important to give name to PSSD to the world. From a

> > > medical, ethical and social perspective it is highly relevant to

> > > communicate the risks involved with these commonly prescribed

> > > medications.

> > >

> > > I hope you are open for a dialogue with us as a group.

> > >

> > > Awaiting your response,

> > >

> > >

> > >

> > >

> > >

> > > Bellow you find the correspondence send to one of your Dutch group after

> > > he reported his PSSD: things have changed!

> > >

> > >

> > >

> > > The Dutch official product information of Fluoxetine describes sexual

> > > dysfunction as common side effects. Anorgasmia and loss of libido are

> > > named. What you have described, namely symptoms remaining after

> > > medication is stopped, is not mentioned in the product information.

> > > American product information of Fluoxetine mentions that sexual

> > > dysfunction can persist; it does however not specify which dysfunctions.

> > > LAREB has received multiple reports of persistent sexual dysfunction

> > > after Fluoxetine has quitted, or other anti depressants from the same

> > > group as Fluoxetine. These reports concern both man and woman between

> > > 20 and 59 years old.

> > >

> > > Your report will be stored in the LAREB database, where all side effects

> > > of medication in the Netherlands are collected. LAREB is able to provide

> > > a thorough inside in the safety of medication and will take action when

> > > needed.

> > >

> > > Thank you again for reporting at LAREB.

> > >

> >

> >

>

[Guest guest]

I can't remember who it was, but someone here mentioned that they'd contacted Whitaker, who is a medical/scientific journalist (it may have been you, Kaivey). I sent him a message too, and he responded and said that he's aware of PSSD and that he's writing about it currently. I'm not sure exactly what form of writing that will be, but I noted to him that our situation fits in with his previous book, Anatomy of an Epidemic, in which he argues that the effect of the psychopharmacological era has been mainly to exacerbate mental illness (on an epidemiological scale) rather than improve it. I've yet to read his book (it won an award for best medical journalism book of 2010), but I watched a talk he gave about it and based on his message he certainly seems like he'd be sympathetic to what's happened to all of us. He

did say that he might contact me for information in the future, but who knows if that will actually happen. Anyway, all this is to say that at least one person in a position of respect may be able to help. That's something I haven't encountered in years of appealing to doctors. It seems that journalists in general would be more receptive to our story since it could help their careers rather than hurt them.Here's the description for the book:In this astonishing and startling book, award-winning science and history writer Whitaker investigates a medical mystery: Why has the number of disabled mentally ill in the United States tripled over

the past two decades? Every day, 1,100 adults and children are added to

the government disability rolls because they have become newly disabled

by mental illness, with this epidemic spreading most rapidly among our nation’s children. What is going on? Anatomy of an Epidemic challenges

readers to think through that question themselves. First, Whitaker investigates what is known today about the biological causes of mental disorders. Do psychiatric medications fix “chemical imbalances†in the brain, or do they, in fact, create them? Researchers spent decades studying that question, and by the late 1980s, they had their answer. Readers will be startled—and dismayed—to discover what was reported in the scientific journals. Then comes the scientific query at the heart of this book: During the past fifty years, when investigators looked at how psychiatric drugs affected long-term outcomes,

what did they find? Did they discover that the drugs help people stay well? Function better? Enjoy good physical health? Or did they find that

these medications, for some paradoxical reason, increase the likelihood that people will become chronically ill, less able to function well, more prone to physical illness? This

is the first book to look at the merits of psychiatric medications through the prism of long-term results. Are long-term recovery rates higher for medicated or unmedicated schizophrenia patients? Does taking an antidepressant decrease or increase the risk that a depressed person will become disabled by the disorder? Do bipolar patients fare better today than they did forty years ago, or much worse? When the National Institute of Mental Health (NIMH) studied the long-term outcomes of children with ADHD, did they determine that stimulants provide any benefit? By the end of this review of the outcomes literature, readers are certain to have a haunting question of their own: Why have the results from these long-term studies—all of which point to the same startling conclusion—been kept from the public? In this compelling history, Whitaker also tells the personal stories of children

and adults swept up in this epidemic. Finally, he reports on innovative

programs of psychiatric care in Europe and the United States that are producing good long-term outcomes. Our nation has been hit by an epidemic of disabling mental illness, and yet, as Anatomy of an Epidemic reveals, the medical blueprints for curbing that epidemic have already been drawn up. To: SSRIsex Sent: Wednesday, March 14, 2012 2:31 PM Subject: Re: Dutch health authorities - PSSD respons - The Netherlands

I have contacted loads of professionals, psychiatrists, doctors,jouranalists, about PSSD sending them the Dr Stuart Shipko video, my ownPSSD experience, plus case histories from our site (all names removed).I very seldom get a reply.Kv> >>> >>> >> Dear All> >>> >> Bellow I translated an email I send to the Dutch health institute> >> (LAREB). They are responsible for medication safety in theNetherlands.> >> After this email I got into contact with a medical specialistworking> >> there.> >>> >> The mail and publications convinced him to do a scanning of thedatabase> >> they have on side

effects. Due to the construct of their databaseand> >> findings several things go wrong in establishing an overview onPSSD.> >>> >> 1. Sexual side effects are reported differently and stored not> >> uniformly;> >>> >> 2. SSRI's are not seen as a group; medication is monitored> >> individually;> >>> >> 3. The definition of side-effects states that they are prevalent> >> during usage, discontinuation is not monitored> >>> >> Above points make that the reports on PSSD are being shattered inthe> >> database. A consolidation was needed on both medication and allsexual> >> side effects after discontinuation.> >>> >> A new scan on the database revealed multiple reports of PSSD,convincing> >> them PSSD exists. Individual

communication on their doings is a bit> >> "closed" but I will continue on the contact with have now.> >>> >> Any suggestions are welcome! Any information I am happy to provide.> >>> >> Bellow I also included a message one of us Dutch PSSD sufferers gotback> >> after reporting his PSSD. This response shows communication haschanged!> >> And they are becoming aware of PSSD!> >>> >>> >>> >> Dear sir/miss,> >>> >> By means of this mail I would like to inform you about an illnesswhich> >> I and multiple others have been left with after the use of> >> antidepressants; specifically SSRI's. Commonly prescribed SSRI's> >> in the Netherlands are Seroxat (Paxil) and Prozac (Fluoxetine).> >>> >> We all have kept a

persistent sexual dysfunction after (many timesshort> >> usage) of these medications. The sexual side-effects which werepresent> >> during taking have remained until present.> >>> >> Prevalent complaints are:> >>> >> - Strong loss of Libido> >>> >> - Erectile dysfunction - no erection> >>> >> - Limited orgasm to non â€" orgasm> >>> >> - Genital Anastasia> >>> >> - Bladder problems> >>> >> With me and others sexual dysfunction started with the use of> >> medication. Sexual complaints had no relationship with the reasonsfor> >> prescribing the medication.> >>> >> Our illness is called Post SSRI Sexual Dysfunction (PSSD). Thecauses of> >> these complaints are unclear,

as is the possibility to reverse the> >> symptoms. Down regulating of 5-HT1 and 5-HT2 receptors by increaseof> >> Serotonine due to the SSRI is seen as the cause. Possibly down> >> regulating can become permanent. Unclear is however why thishappens and> >> what can be done against it.> >>> >> In the United States several articles have been published aboutPSSD> >> recognizing its existence. Two articles which can also be found on> >> PUBMED have been included with this mail. Informally it is commonly> >> thought side effects caused by SSRI's disappear after quitting> >> medication. No research has however been done to confirm thisclaim.> >> Our experience and the articles published prove differently.> >>> >> By means of the mail I would like to establish contact with

aboutPSSD.> >> The influence PSSD has on our life is significant. Lacking theability> >> to experience sexuality does harm to the essence of being a human.We> >> are looking for means to start research, and hopefully find asolution> >> for our illness.> >>> >> Finally it is important to give name to PSSD to the world. From a> >> medical, ethical and social perspective it is highly relevant to> >> communicate the risks involved with these commonly prescribed> >> medications.> >>> >> I hope you are open for a dialogue with us as a group.> >>> >> Awaiting your response,> >>> >>> >>> >>> >>> >> Bellow you find the correspondence send to one of your Dutch groupafter> >> he reported

his PSSD: things have changed!> >>> >>> >>> >> The Dutch official product information of Fluoxetine describessexual> >> dysfunction as common side effects. Anorgasmia and loss of libidoare> >> named. What you have described, namely symptoms remaining after> >> medication is stopped, is not mentioned in the product information.> >> American product information of Fluoxetine mentions that sexual> >> dysfunction can persist; it does however not specify whichdysfunctions.> >> LAREB has received multiple reports of persistent sexualdysfunction> >> after Fluoxetine has quitted, or other anti depressants from thesame> >> group as Fluoxetine. These reports concern both man and womanbetween> >> 20 and 59 years old.> >>> >> Your report will be

stored in the LAREB database, where all sideeffects> >> of medication in the Netherlands are collected. LAREB is able toprovide> >> a thorough inside in the safety of medication and will take actionwhen> >> needed.> >>> >> Thank you again for reporting at LAREB.> >>> >> >>------------------------------------This group is for support, discussion, or educational purposes only. It does not provide psychiatric or medical care. All medications and supplements should be taken under a doctor's supervision.

[Guest guest]

I've been thinking the same thing.

So there's got to be a way to approach this.

There HAS to be a way to get a class action law suit going or at least bring

PSSD to the public's attention.

Something else I've been wondering - why couldn't we use the chat room here to

brainstorm about doing something?

I've gone to the chat room a few times and there's never anyone there. In

addition to brainstorming, I'd like to chat with others who have been on lexapro

and compare symptoms or to chat with other females about dealing with PSSD.

> > > >

> > > >

> > > > Dear All

> > > >

> > > > Bellow I translated an email I send to the Dutch health institute

> > > > (LAREB). They are responsible for medication safety in the Netherlands.

> > > > After this email I got into contact with a medical specialist working

> > > > there.

> > > >

> > > > The mail and publications convinced him to do a scanning of the database

> > > > they have on side effects. Due to the construct of their database and

> > > > findings several things go wrong in establishing an overview on PSSD.

> > > >

> > > > 1. Sexual side effects are reported differently and stored not

> > > > uniformly;

> > > >

> > > > 2. SSRI's are not seen as a group; medication is monitored

> > > > individually;

> > > >

> > > > 3. The definition of side-effects states that they are prevalent

> > > > during usage, discontinuation is not monitored

> > > >

> > > > Above points make that the reports on PSSD are being shattered in the

> > > > database. A consolidation was needed on both medication and all sexual

> > > > side effects after discontinuation.

> > > >

> > > > A new scan on the database revealed multiple reports of PSSD, convincing

> > > > them PSSD exists. Individual communication on their doings is a bit

> > > > " closed " but I will continue on the contact with have now.

> > > >

> > > > Any suggestions are welcome! Any information I am happy to provide.

> > > >

> > > > Bellow I also included a message one of us Dutch PSSD sufferers got back

> > > > after reporting his PSSD. This response shows communication has changed!

> > > > And they are becoming aware of PSSD!

> > > >

> > > >

> > > >

> > > > Dear sir/miss,

> > > >

> > > > By means of this mail I would like to inform you about an illness which

> > > > I and multiple others have been left with after the use of

> > > > antidepressants; specifically SSRI's. Commonly prescribed SSRI's

> > > > in the Netherlands are Seroxat (Paxil) and Prozac (Fluoxetine).

> > > >

> > > > We all have kept a persistent sexual dysfunction after (many times short

> > > > usage) of these medications. The sexual side-effects which were present

> > > > during taking have remained until present.

> > > >

> > > > Prevalent complaints are:

> > > >

> > > > - Strong loss of Libido

> > > >

> > > > - Erectile dysfunction - no erection

> > > >

> > > > - Limited orgasm to non †" orgasm

> > > >

> > > > - Genital Anastasia

> > > >

> > > > - Bladder problems

> > > >

> > > > With me and others sexual dysfunction started with the use of

> > > > medication. Sexual complaints had no relationship with the reasons for

> > > > prescribing the medication.

> > > >

> > > > Our illness is called Post SSRI Sexual Dysfunction (PSSD). The causes of

> > > > these complaints are unclear, as is the possibility to reverse the

> > > > symptoms. Down regulating of 5-HT1 and 5-HT2 receptors by increase of

> > > > Serotonine due to the SSRI is seen as the cause. Possibly down

> > > > regulating can become permanent. Unclear is however why this happens and

> > > > what can be done against it.

> > > >

> > > > In the United States several articles have been published about PSSD

> > > > recognizing its existence. Two articles which can also be found on

> > > > PUBMED have been included with this mail. Informally it is commonly

> > > > thought side effects caused by SSRI's disappear after quitting

> > > > medication. No research has however been done to confirm this claim.

> > > > Our experience and the articles published prove differently.

> > > >

> > > > By means of the mail I would like to establish contact with about PSSD.

> > > > The influence PSSD has on our life is significant. Lacking the ability

> > > > to experience sexuality does harm to the essence of being a human. We

> > > > are looking for means to start research, and hopefully find a solution

> > > > for our illness.

> > > >

> > > > Finally it is important to give name to PSSD to the world. From a

> > > > medical, ethical and social perspective it is highly relevant to

> > > > communicate the risks involved with these commonly prescribed

> > > > medications.

> > > >

> > > > I hope you are open for a dialogue with us as a group.

> > > >

> > > > Awaiting your response,

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Bellow you find the correspondence send to one of your Dutch group after

> > > > he reported his PSSD: things have changed!

> > > >

> > > >

> > > >

> > > > The Dutch official product information of Fluoxetine describes sexual

> > > > dysfunction as common side effects. Anorgasmia and loss of libido are

> > > > named. What you have described, namely symptoms remaining after

> > > > medication is stopped, is not mentioned in the product information.

> > > > American product information of Fluoxetine mentions that sexual

> > > > dysfunction can persist; it does however not specify which dysfunctions.

> > > > LAREB has received multiple reports of persistent sexual dysfunction

> > > > after Fluoxetine has quitted, or other anti depressants from the same

> > > > group as Fluoxetine. These reports concern both man and woman between

> > > > 20 and 59 years old.

> > > >

> > > > Your report will be stored in the LAREB database, where all side effects

> > > > of medication in the Netherlands are collected. LAREB is able to provide

> > > > a thorough inside in the safety of medication and will take action when

> > > > needed.

> > > >

> > > > Thank you again for reporting at LAREB.

> > > >

> > >

> > >

> >

>

[Guest guest]

A few of us spoke with Bob Whitaker. He, in fact, interviewed some of

us about 6-9 mos ago and was doing a piece. I have not yet seen it,

however. Will have to do a follow up call to get a status.

> > >>

> > >>

> > >> Dear All

> > >>

> > >> Bellow I translated an email I send to the Dutch health institute

> > >> (LAREB). They are responsible for medication safety in the

> Netherlands.

> > >> After this email I got into contact with a medical specialist

> working

> > >> there.

> > >>

> > >> The mail and publications convinced him to do a scanning of the

> database

> > >> they have on side effects. Due to the construct of their database

> and

> > >> findings several things go wrong in establishing an overview on

> PSSD.

> > >>

> > >> 1. Sexual side effects are reported differently and stored not

> > >> uniformly;

> > >>

> > >> 2. SSRI's are not seen as a group; medication is monitored

> > >> individually;

> > >>

> > >> 3. The definition of side-effects states that they are prevalent

> > >> during usage, discontinuation is not monitored

> > >>

> > >> Above points make that the reports on PSSD are being shattered in

> the

> > >> database. A consolidation was needed on both medication and all

> sexual

> > >> side effects after discontinuation.

> > >>

> > >> A new scan on the database revealed multiple reports of PSSD,

> convincing

> > >> them PSSD exists. Individual communication on their doings is a

bit

> > >> " closed " but I will continue on the contact with have now.

> > >>

> > >> Any suggestions are welcome! Any information I am happy to

provide.

> > >>

> > >> Bellow I also included a message one of us Dutch PSSD sufferers

got

> back

> > >> after reporting his PSSD. This response shows communication has

> changed!

> > >> And they are becoming aware of PSSD!

> > >>

> > >>

> > >>

> > >> Dear sir/miss,

> > >>

> > >> By means of this mail I would like to inform you about an illness

> which

> > >> I and multiple others have been left with after the use of

> > >> antidepressants; specifically SSRI's. Commonly prescribed SSRI's

> > >> in the Netherlands are Seroxat (Paxil) and Prozac (Fluoxetine).

> > >>

> > >> We all have kept a persistent sexual dysfunction after (many

times

> short

> > >> usage) of these medications. The sexual side-effects which were

> present

> > >> during taking have remained until present.

> > >>

> > >> Prevalent complaints are:

> > >>

> > >> - Strong loss of Libido

> > >>

> > >> - Erectile dysfunction - no erection

> > >>

> > >> - Limited orgasm to non †" orgasm

> > >>

> > >> - Genital Anastasia

> > >>

> > >> - Bladder problems

> > >>

> > >> With me and others sexual dysfunction started with the use of

> > >> medication. Sexual complaints had no relationship with the

reasons

> for

> > >> prescribing the medication.

> > >>

> > >> Our illness is called Post SSRI Sexual Dysfunction (PSSD). The

> causes of

> > >> these complaints are unclear, as is the possibility to reverse

the

> > >> symptoms. Down regulating of 5-HT1 and 5-HT2 receptors by

increase

> of

> > >> Serotonine due to the SSRI is seen as the cause. Possibly down

> > >> regulating can become permanent. Unclear is however why this

> happens and

> > >> what can be done against it.

> > >>

> > >> In the United States several articles have been published about

> PSSD

> > >> recognizing its existence. Two articles which can also be found

on

> > >> PUBMED have been included with this mail. Informally it is

commonly

> > >> thought side effects caused by SSRI's disappear after quitting

> > >> medication. No research has however been done to confirm this

> claim.

> > >> Our experience and the articles published prove differently.

> > >>

> > >> By means of the mail I would like to establish contact with about

> PSSD.

> > >> The influence PSSD has on our life is significant. Lacking the

> ability

> > >> to experience sexuality does harm to the essence of being a

human.

> We

> > >> are looking for means to start research, and hopefully find a

> solution

> > >> for our illness.

> > >>

> > >> Finally it is important to give name to PSSD to the world. From a

> > >> medical, ethical and social perspective it is highly relevant to

> > >> communicate the risks involved with these commonly prescribed

> > >> medications.

> > >>

> > >> I hope you are open for a dialogue with us as a group.

> > >>

> > >> Awaiting your response,

> > >>

> > >>

> > >>

> > >>

> > >>

> > >> Bellow you find the correspondence send to one of your Dutch

group

> after

> > >> he reported his PSSD: things have changed!

> > >>

> > >>

> > >>

> > >> The Dutch official product information of Fluoxetine describes

> sexual

> > >> dysfunction as common side effects. Anorgasmia and loss of libido

> are

> > >> named. What you have described, namely symptoms remaining after

> > >> medication is stopped, is not mentioned in the product

information.

> > >> American product information of Fluoxetine mentions that sexual

> > >> dysfunction can persist; it does however not specify which

> dysfunctions.

> > >> LAREB has received multiple reports of persistent sexual

> dysfunction

> > >> after Fluoxetine has quitted, or other anti depressants from the

> same

> > >> group as Fluoxetine. These reports concern both man and woman

> between

> > >> 20 and 59 years old.

> > >>

> > >> Your report will be stored in the LAREB database, where all side

> effects

> > >> of medication in the Netherlands are collected. LAREB is able to

> provide

> > >> a thorough inside in the safety of medication and will take

action

> when

> > >> needed.

> > >>

> > >> Thank you again for reporting at LAREB.

> > >>

> > >

> > >

> >

>

>

>

>

>

> ------------------------------------

>

> This group is for support, discussion, or educational purposes

only. It does not provide psychiatric or medical care. All

medications and supplements should be taken under a doctor's

supervision.

[Guest guest]

It would be great if you could do a follow up!

Besides,

I agree that contacting journalists would be a good pathway to find exposure.

I will let myh mind go on writing a piece in engelish,

people could use to forward (in many directions)

Seb.

> > > >>

> > > >>

> > > >> Dear All

> > > >>

> > > >> Bellow I translated an email I send to the Dutch health institute

> > > >> (LAREB). They are responsible for medication safety in the

> > Netherlands.

> > > >> After this email I got into contact with a medical specialist

> > working

> > > >> there.

> > > >>

> > > >> The mail and publications convinced him to do a scanning of the

> > database

> > > >> they have on side effects. Due to the construct of their database

> > and

> > > >> findings several things go wrong in establishing an overview on

> > PSSD.

> > > >>

> > > >> 1. Sexual side effects are reported differently and stored not

> > > >> uniformly;

> > > >>

> > > >> 2. SSRI's are not seen as a group; medication is monitored

> > > >> individually;

> > > >>

> > > >> 3. The definition of side-effects states that they are prevalent

> > > >> during usage, discontinuation is not monitored

> > > >>

> > > >> Above points make that the reports on PSSD are being shattered in

> > the

> > > >> database. A consolidation was needed on both medication and all

> > sexual

> > > >> side effects after discontinuation.

> > > >>

> > > >> A new scan on the database revealed multiple reports of PSSD,

> > convincing

> > > >> them PSSD exists. Individual communication on their doings is a

> bit

> > > >> " closed " but I will continue on the contact with have now.

> > > >>

> > > >> Any suggestions are welcome! Any information I am happy to

> provide.

> > > >>

> > > >> Bellow I also included a message one of us Dutch PSSD sufferers

> got

> > back

> > > >> after reporting his PSSD. This response shows communication has

> > changed!

> > > >> And they are becoming aware of PSSD!

> > > >>

> > > >>

> > > >>

> > > >> Dear sir/miss,

> > > >>

> > > >> By means of this mail I would like to inform you about an illness

> > which

> > > >> I and multiple others have been left with after the use of

> > > >> antidepressants; specifically SSRI's. Commonly prescribed SSRI's

> > > >> in the Netherlands are Seroxat (Paxil) and Prozac (Fluoxetine).

> > > >>

> > > >> We all have kept a persistent sexual dysfunction after (many

> times

> > short

> > > >> usage) of these medications. The sexual side-effects which were

> > present

> > > >> during taking have remained until present.

> > > >>

> > > >> Prevalent complaints are:

> > > >>

> > > >> - Strong loss of Libido

> > > >>

> > > >> - Erectile dysfunction - no erection

> > > >>

> > > >> - Limited orgasm to non †" orgasm

> > > >>

> > > >> - Genital Anastasia

> > > >>

> > > >> - Bladder problems

> > > >>

> > > >> With me and others sexual dysfunction started with the use of

> > > >> medication. Sexual complaints had no relationship with the

> reasons

> > for

> > > >> prescribing the medication.

> > > >>

> > > >> Our illness is called Post SSRI Sexual Dysfunction (PSSD). The

> > causes of

> > > >> these complaints are unclear, as is the possibility to reverse

> the

> > > >> symptoms. Down regulating of 5-HT1 and 5-HT2 receptors by

> increase

> > of

> > > >> Serotonine due to the SSRI is seen as the cause. Possibly down

> > > >> regulating can become permanent. Unclear is however why this

> > happens and

> > > >> what can be done against it.

> > > >>

> > > >> In the United States several articles have been published about

> > PSSD

> > > >> recognizing its existence. Two articles which can also be found

> on

> > > >> PUBMED have been included with this mail. Informally it is

> commonly

> > > >> thought side effects caused by SSRI's disappear after quitting

> > > >> medication. No research has however been done to confirm this

> > claim.

> > > >> Our experience and the articles published prove differently.

> > > >>

> > > >> By means of the mail I would like to establish contact with about

> > PSSD.

> > > >> The influence PSSD has on our life is significant. Lacking the

> > ability

> > > >> to experience sexuality does harm to the essence of being a

> human.

> > We

> > > >> are looking for means to start research, and hopefully find a

> > solution

> > > >> for our illness.

> > > >>

> > > >> Finally it is important to give name to PSSD to the world. From a

> > > >> medical, ethical and social perspective it is highly relevant to

> > > >> communicate the risks involved with these commonly prescribed

> > > >> medications.

> > > >>

> > > >> I hope you are open for a dialogue with us as a group.

> > > >>

> > > >> Awaiting your response,

> > > >>

> > > >>

> > > >>

> > > >>

> > > >>

> > > >> Bellow you find the correspondence send to one of your Dutch

> group

> > after

> > > >> he reported his PSSD: things have changed!

> > > >>

> > > >>

> > > >>

> > > >> The Dutch official product information of Fluoxetine describes

> > sexual

> > > >> dysfunction as common side effects. Anorgasmia and loss of libido

> > are

> > > >> named. What you have described, namely symptoms remaining after

> > > >> medication is stopped, is not mentioned in the product

> information.

> > > >> American product information of Fluoxetine mentions that sexual

> > > >> dysfunction can persist; it does however not specify which

> > dysfunctions.

> > > >> LAREB has received multiple reports of persistent sexual

> > dysfunction

> > > >> after Fluoxetine has quitted, or other anti depressants from the

> > same

> > > >> group as Fluoxetine. These reports concern both man and woman

> > between

> > > >> 20 and 59 years old.

> > > >>

> > > >> Your report will be stored in the LAREB database, where all side

> > effects

> > > >> of medication in the Netherlands are collected. LAREB is able to

> > provide

> > > >> a thorough inside in the safety of medication and will take

> action

> > when

> > > >> needed.

> > > >>

> > > >> Thank you again for reporting at LAREB.

> > > >>

> > > >

> > > >

> > >

> >

> >

> >

> >

> >

> > ------------------------------------

> >

> > This group is for support, discussion, or educational purposes

> only. It does not provide psychiatric or medical care. All

> medications and supplements should be taken under a doctor's

> supervision.

[Guest guest]

I got interviewed by bob Whitaker too. Bob really wants to get our

message out, but without mainstream medical interest it is hard to get

the media interested. I thought that Dr Stuart Shipko was a very

impressive character and so people would listen, but it seems you need a

large number of doctors saying the same thing before anyone will take an

interest.

Bob Whitaker names a number of psychiatrists and consultants whose

research seems to show that antidepressants may cause depression to

become chronic for a significant amount of users, but this news has

never turned up in any newspaper. It beats me how the world's number one

drug could be seriously harming so many people but this has not picked

up any interest in the media either.

Kv

> > > >>

> > > >>

> > > >> Dear All

> > > >>

> > > >> Bellow I translated an email I send to the Dutch health

institute

> > > >> (LAREB). They are responsible for medication safety in the

> > Netherlands.

> > > >> After this email I got into contact with a medical specialist

> > working

> > > >> there.

> > > >>

> > > >> The mail and publications convinced him to do a scanning of the

> > database

> > > >> they have on side effects. Due to the construct of their

database

> > and

> > > >> findings several things go wrong in establishing an overview on

> > PSSD.

> > > >>

> > > >> 1. Sexual side effects are reported differently and stored not

> > > >> uniformly;

> > > >>

> > > >> 2. SSRI's are not seen as a group; medication is monitored

> > > >> individually;

> > > >>

> > > >> 3. The definition of side-effects states that they are

prevalent

> > > >> during usage, discontinuation is not monitored

> > > >>

> > > >> Above points make that the reports on PSSD are being shattered

in

> > the

> > > >> database. A consolidation was needed on both medication and all

> > sexual

> > > >> side effects after discontinuation.

> > > >>

> > > >> A new scan on the database revealed multiple reports of PSSD,

> > convincing

> > > >> them PSSD exists. Individual communication on their doings is a

> bit

> > > >> " closed " but I will continue on the contact with have now.

> > > >>

> > > >> Any suggestions are welcome! Any information I am happy to

> provide.

> > > >>

> > > >> Bellow I also included a message one of us Dutch PSSD sufferers

> got

> > back

> > > >> after reporting his PSSD. This response shows communication has

> > changed!

> > > >> And they are becoming aware of PSSD!

> > > >>

> > > >>

> > > >>

> > > >> Dear sir/miss,

> > > >>

> > > >> By means of this mail I would like to inform you about an

illness

> > which

> > > >> I and multiple others have been left with after the use of

> > > >> antidepressants; specifically SSRI's. Commonly prescribed

SSRI's

> > > >> in the Netherlands are Seroxat (Paxil) and Prozac (Fluoxetine).

> > > >>

> > > >> We all have kept a persistent sexual dysfunction after (many

> times

> > short

> > > >> usage) of these medications. The sexual side-effects which were

> > present

> > > >> during taking have remained until present.

> > > >>

> > > >> Prevalent complaints are:

> > > >>

> > > >> - Strong loss of Libido

> > > >>

> > > >> - Erectile dysfunction - no erection

> > > >>

> > > >> - Limited orgasm to non †" orgasm

> > > >>

> > > >> - Genital Anastasia

> > > >>

> > > >> - Bladder problems

> > > >>

> > > >> With me and others sexual dysfunction started with the use of

> > > >> medication. Sexual complaints had no relationship with the

> reasons

> > for

> > > >> prescribing the medication.

> > > >>

> > > >> Our illness is called Post SSRI Sexual Dysfunction (PSSD). The

> > causes of

> > > >> these complaints are unclear, as is the possibility to reverse

> the

> > > >> symptoms. Down regulating of 5-HT1 and 5-HT2 receptors by

> increase

> > of

> > > >> Serotonine due to the SSRI is seen as the cause. Possibly down

> > > >> regulating can become permanent. Unclear is however why this

> > happens and

> > > >> what can be done against it.

> > > >>

> > > >> In the United States several articles have been published about

> > PSSD

> > > >> recognizing its existence. Two articles which can also be found

> on

> > > >> PUBMED have been included with this mail. Informally it is

> commonly

> > > >> thought side effects caused by SSRI's disappear after quitting

> > > >> medication. No research has however been done to confirm this

> > claim.

> > > >> Our experience and the articles published prove differently.

> > > >>

> > > >> By means of the mail I would like to establish contact with

about

> > PSSD.

> > > >> The influence PSSD has on our life is significant. Lacking the

> > ability

> > > >> to experience sexuality does harm to the essence of being a

> human.

> > We

> > > >> are looking for means to start research, and hopefully find a

> > solution

> > > >> for our illness.

> > > >>

> > > >> Finally it is important to give name to PSSD to the world. From

a

> > > >> medical, ethical and social perspective it is highly relevant

to

> > > >> communicate the risks involved with these commonly prescribed

> > > >> medications.

> > > >>

> > > >> I hope you are open for a dialogue with us as a group.

> > > >>

> > > >> Awaiting your response,

> > > >>

> > > >>

> > > >>

> > > >>

> > > >>

> > > >> Bellow you find the correspondence send to one of your Dutch

> group

> > after

> > > >> he reported his PSSD: things have changed!

> > > >>

> > > >>

> > > >>

> > > >> The Dutch official product information of Fluoxetine describes

> > sexual

> > > >> dysfunction as common side effects. Anorgasmia and loss of

libido

> > are

> > > >> named. What you have described, namely symptoms remaining after

> > > >> medication is stopped, is not mentioned in the product

> information.

> > > >> American product information of Fluoxetine mentions that sexual

> > > >> dysfunction can persist; it does however not specify which

> > dysfunctions.

> > > >> LAREB has received multiple reports of persistent sexual

> > dysfunction

> > > >> after Fluoxetine has quitted, or other anti depressants from

the

> > same

> > > >> group as Fluoxetine. These reports concern both man and woman

> > between

> > > >> 20 and 59 years old.

> > > >>

> > > >> Your report will be stored in the LAREB database, where all

side

> > effects

> > > >> of medication in the Netherlands are collected. LAREB is able

to

> > provide

> > > >> a thorough inside in the safety of medication and will take

> action

> > when

> > > >> needed.

> > > >>

> > > >> Thank you again for reporting at LAREB.

> > > >>

> > > >

> > > >

> > >

> >

> >

> >

> >

> >

> > ------------------------------------

> >

> > This group is for support, discussion, or educational purposes

> only. It does not provide psychiatric or medical care. All

> medications and supplements should be taken under a doctor's

> supervision.

[Guest guest]

I messaged Whitaker on facebook and shared ManFromUk2007's video as well

as Dr. Shipko's (both on YouTube). I also told him that I'd read two of his

books, " Mad in America " , and " Anatomy of an Epidemic " . He told me that he had

been in touch with the fellow in the red shirt and was currently writing

something about PSSD.

Yes, I think it's a good idea to contact as many reputable journalists as we can

find, especially those who write about psychology and have no financial ties to

pharmaceutical companies.

Kay

> > >>

> > >>

> > >> Dear All

> > >>

> > >> Bellow I translated an email I send to the Dutch health institute

> > >> (LAREB). They are responsible for medication safety in the

> Netherlands.

> > >> After this email I got into contact with a medical specialist

> working

> > >> there.

> > >>

> > >> The mail and publications convinced him to do a scanning of the

> database

> > >> they have on side effects. Due to the construct of their database

> and

> > >> findings several things go wrong in establishing an overview on

> PSSD.

> > >>

> > >> 1. Sexual side effects are reported differently and stored not

> > >> uniformly;

> > >>

> > >> 2. SSRI's are not seen as a group; medication is monitored

> > >> individually;

> > >>

> > >> 3. The definition of side-effects states that they are prevalent

> > >> during usage, discontinuation is not monitored

> > >>

> > >> Above points make that the reports on PSSD are being shattered in

> the

> > >> database. A consolidation was needed on both medication and all

> sexual

> > >> side effects after discontinuation.

> > >>

> > >> A new scan on the database revealed multiple reports of PSSD,

> convincing

> > >> them PSSD exists. Individual communication on their doings is a bit

> > >> " closed " but I will continue on the contact with have now.

> > >>

> > >> Any suggestions are welcome! Any information I am happy to provide.

> > >>

> > >> Bellow I also included a message one of us Dutch PSSD sufferers got

> back

> > >> after reporting his PSSD. This response shows communication has

> changed!

> > >> And they are becoming aware of PSSD!

> > >>

> > >>

> > >>

> > >> Dear sir/miss,

> > >>

> > >> By means of this mail I would like to inform you about an illness

> which

> > >> I and multiple others have been left with after the use of

> > >> antidepressants; specifically SSRI's. Commonly prescribed SSRI's

> > >> in the Netherlands are Seroxat (Paxil) and Prozac (Fluoxetine).

> > >>

> > >> We all have kept a persistent sexual dysfunction after (many times

> short

> > >> usage) of these medications. The sexual side-effects which were

> present

> > >> during taking have remained until present.

> > >>

> > >> Prevalent complaints are:

> > >>

> > >> - Strong loss of Libido

> > >>

> > >> - Erectile dysfunction - no erection

> > >>

> > >> - Limited orgasm to non †" orgasm

> > >>

> > >> - Genital Anastasia

> > >>

> > >> - Bladder problems

> > >>

> > >> With me and others sexual dysfunction started with the use of

> > >> medication. Sexual complaints had no relationship with the reasons

> for

> > >> prescribing the medication.

> > >>

> > >> Our illness is called Post SSRI Sexual Dysfunction (PSSD). The

> causes of

> > >> these complaints are unclear, as is the possibility to reverse the

> > >> symptoms. Down regulating of 5-HT1 and 5-HT2 receptors by increase

> of

> > >> Serotonine due to the SSRI is seen as the cause. Possibly down

> > >> regulating can become permanent. Unclear is however why this

> happens and

> > >> what can be done against it.

> > >>

> > >> In the United States several articles have been published about

> PSSD

> > >> recognizing its existence. Two articles which can also be found on

> > >> PUBMED have been included with this mail. Informally it is commonly

> > >> thought side effects caused by SSRI's disappear after quitting

> > >> medication. No research has however been done to confirm this

> claim.

> > >> Our experience and the articles published prove differently.

> > >>

> > >> By means of the mail I would like to establish contact with about

> PSSD.

> > >> The influence PSSD has on our life is significant. Lacking the

> ability

> > >> to experience sexuality does harm to the essence of being a human.

> We

> > >> are looking for means to start research, and hopefully find a

> solution

> > >> for our illness.

> > >>

> > >> Finally it is important to give name to PSSD to the world. From a

> > >> medical, ethical and social perspective it is highly relevant to

> > >> communicate the risks involved with these commonly prescribed

> > >> medications.

> > >>

> > >> I hope you are open for a dialogue with us as a group.

> > >>

> > >> Awaiting your response,

> > >>

> > >>

> > >>

> > >>

> > >>

> > >> Bellow you find the correspondence send to one of your Dutch group

> after

> > >> he reported his PSSD: things have changed!

> > >>

> > >>

> > >>

> > >> The Dutch official product information of Fluoxetine describes

> sexual

> > >> dysfunction as common side effects. Anorgasmia and loss of libido

> are

> > >> named. What you have described, namely symptoms remaining after

> > >> medication is stopped, is not mentioned in the product information.

> > >> American product information of Fluoxetine mentions that sexual

> > >> dysfunction can persist; it does however not specify which

> dysfunctions.

> > >> LAREB has received multiple reports of persistent sexual

> dysfunction

> > >> after Fluoxetine has quitted, or other anti depressants from the

> same

> > >> group as Fluoxetine. These reports concern both man and woman

> between

> > >> 20 and 59 years old.

> > >>

> > >> Your report will be stored in the LAREB database, where all side

> effects

> > >> of medication in the Netherlands are collected. LAREB is able to

> provide

> > >> a thorough inside in the safety of medication and will take action

> when

> > >> needed.

> > >>

> > >> Thank you again for reporting at LAREB.

> > >>

> > >

> > >

> >

>

>

>

>

>

> ------------------------------------

>

> This group is for support, discussion, or educational purposes only.  It does

not provide psychiatric or medical care.  All medications and supplements

should be taken under a doctor's supervision.

[Guest guest]

I'm not so sure this problem exhists in the brain, at least not for all of us.

I think that, at least for some of us, it may very well be nerve damage. It

seems that someone inadvertently gave me a saddle block almost 29 years ago and

it never wore off. Only it wasn't given during childbirth, as is common

practice.

Kay

> > > >

> > > >

> > > > Dear All

> > > >

> > > > Bellow I translated an email I send to the Dutch health institute

> > > > (LAREB). They are responsible for medication safety in the Netherlands.

> > > > After this email I got into contact with a medical specialist working

> > > > there.

> > > >

> > > > The mail and publications convinced him to do a scanning of the database

> > > > they have on side effects. Due to the construct of their database and

> > > > findings several things go wrong in establishing an overview on PSSD.

> > > >

> > > > 1. Sexual side effects are reported differently and stored not

> > > > uniformly;

> > > >

> > > > 2. SSRI's are not seen as a group; medication is monitored

> > > > individually;

> > > >

> > > > 3. The definition of side-effects states that they are prevalent

> > > > during usage, discontinuation is not monitored

> > > >

> > > > Above points make that the reports on PSSD are being shattered in the

> > > > database. A consolidation was needed on both medication and all sexual

> > > > side effects after discontinuation.

> > > >

> > > > A new scan on the database revealed multiple reports of PSSD, convincing

> > > > them PSSD exists. Individual communication on their doings is a bit

> > > > " closed " but I will continue on the contact with have now.

> > > >

> > > > Any suggestions are welcome! Any information I am happy to provide.

> > > >

> > > > Bellow I also included a message one of us Dutch PSSD sufferers got back

> > > > after reporting his PSSD. This response shows communication has changed!

> > > > And they are becoming aware of PSSD!

> > > >

> > > >

> > > >

> > > > Dear sir/miss,

> > > >

> > > > By means of this mail I would like to inform you about an illness which

> > > > I and multiple others have been left with after the use of

> > > > antidepressants; specifically SSRI's. Commonly prescribed SSRI's

> > > > in the Netherlands are Seroxat (Paxil) and Prozac (Fluoxetine).

> > > >

> > > > We all have kept a persistent sexual dysfunction after (many times short

> > > > usage) of these medications. The sexual side-effects which were present

> > > > during taking have remained until present.

> > > >

> > > > Prevalent complaints are:

> > > >

> > > > - Strong loss of Libido

> > > >

> > > > - Erectile dysfunction - no erection

> > > >

> > > > - Limited orgasm to non †" orgasm

> > > >

> > > > - Genital Anastasia

> > > >

> > > > - Bladder problems

> > > >

> > > > With me and others sexual dysfunction started with the use of

> > > > medication. Sexual complaints had no relationship with the reasons for

> > > > prescribing the medication.

> > > >

> > > > Our illness is called Post SSRI Sexual Dysfunction (PSSD). The causes of

> > > > these complaints are unclear, as is the possibility to reverse the

> > > > symptoms. Down regulating of 5-HT1 and 5-HT2 receptors by increase of

> > > > Serotonine due to the SSRI is seen as the cause. Possibly down

> > > > regulating can become permanent. Unclear is however why this happens and

> > > > what can be done against it.

> > > >

> > > > In the United States several articles have been published about PSSD

> > > > recognizing its existence. Two articles which can also be found on

> > > > PUBMED have been included with this mail. Informally it is commonly

> > > > thought side effects caused by SSRI's disappear after quitting

> > > > medication. No research has however been done to confirm this claim.

> > > > Our experience and the articles published prove differently.

> > > >

> > > > By means of the mail I would like to establish contact with about PSSD.

> > > > The influence PSSD has on our life is significant. Lacking the ability

> > > > to experience sexuality does harm to the essence of being a human. We

> > > > are looking for means to start research, and hopefully find a solution

> > > > for our illness.

> > > >

> > > > Finally it is important to give name to PSSD to the world. From a

> > > > medical, ethical and social perspective it is highly relevant to

> > > > communicate the risks involved with these commonly prescribed

> > > > medications.

> > > >

> > > > I hope you are open for a dialogue with us as a group.

> > > >

> > > > Awaiting your response,

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Bellow you find the correspondence send to one of your Dutch group after

> > > > he reported his PSSD: things have changed!

> > > >

> > > >

> > > >

> > > > The Dutch official product information of Fluoxetine describes sexual

> > > > dysfunction as common side effects. Anorgasmia and loss of libido are

> > > > named. What you have described, namely symptoms remaining after

> > > > medication is stopped, is not mentioned in the product information.

> > > > American product information of Fluoxetine mentions that sexual

> > > > dysfunction can persist; it does however not specify which dysfunctions.

> > > > LAREB has received multiple reports of persistent sexual dysfunction

> > > > after Fluoxetine has quitted, or other anti depressants from the same

> > > > group as Fluoxetine. These reports concern both man and woman between

> > > > 20 and 59 years old.

> > > >

> > > > Your report will be stored in the LAREB database, where all side effects

> > > > of medication in the Netherlands are collected. LAREB is able to provide

> > > > a thorough inside in the safety of medication and will take action when

> > > > needed.

> > > >

> > > > Thank you again for reporting at LAREB.

> > > >

> > >

> > >

> >

>

[Guest guest]

Ah, looks like I am late to party on this one. Please let us know if anything comes of it. To: SSRIsex Sent: Thursday, March 15, 2012 2:44 PM Subject: Re: Dutch health authorities - PSSD respons - The Netherlands

I got interviewed by bob Whitaker too. Bob really wants to get ourmessage out, but without mainstream medical interest it is hard to getthe media interested. I thought that Dr Stuart Shipko was a veryimpressive character and so people would listen, but it seems you need alarge number of doctors saying the same thing before anyone will take aninterest.Bob Whitaker names a number of psychiatrists and consultants whoseresearch seems to show that antidepressants may cause depression tobecome chronic for a significant amount of users, but this news hasnever turned up in any newspaper. It beats me how the world's number onedrug could be seriously harming so many people but this has not pickedup any interest in the media either.Kv> > > >>> > > >>> > > >> Dear All> > > >>> > > >> Bellow I translated an email I send to the Dutch healthinstitute> > > >> (LAREB). They are

responsible for medication safety in the> > Netherlands.> > > >> After this email I got into contact with a medical specialist> > working> > > >> there.> > > >>> > > >> The mail and publications convinced him to do a scanning of the> > database> > > >> they have on side effects. Due to the construct of theirdatabase> > and> > > >> findings several things go wrong in establishing an overview on> > PSSD.> > > >>> > > >> 1. Sexual side effects are reported differently and stored not> > > >> uniformly;> > > >>> > > >> 2. SSRI's are not seen as a group; medication is monitored> > > >> individually;> > > >>> > > >> 3. The definition of

side-effects states that they areprevalent> > > >> during usage, discontinuation is not monitored> > > >>> > > >> Above points make that the reports on PSSD are being shatteredin> > the> > > >> database. A consolidation was needed on both medication and all> > sexual> > > >> side effects after discontinuation.> > > >>> > > >> A new scan on the database revealed multiple reports of PSSD,> > convincing> > > >> them PSSD exists. Individual communication on their doings is a> bit> > > >> "closed" but I will continue on the contact with have now.> > > >>> > > >> Any suggestions are welcome! Any information I am happy to> provide.> > > >>> > > >> Bellow I also

included a message one of us Dutch PSSD sufferers> got> > back> > > >> after reporting his PSSD. This response shows communication has> > changed!> > > >> And they are becoming aware of PSSD!> > > >>> > > >>> > > >>> > > >> Dear sir/miss,> > > >>> > > >> By means of this mail I would like to inform you about anillness> > which> > > >> I and multiple others have been left with after the use of> > > >> antidepressants; specifically SSRI's. Commonly prescribedSSRI's> > > >> in the Netherlands are Seroxat (Paxil) and Prozac (Fluoxetine).> > > >>> > > >> We all have kept a persistent sexual dysfunction after (many> times> > short> > >

>> usage) of these medications. The sexual side-effects which were> > present> > > >> during taking have remained until present.> > > >>> > > >> Prevalent complaints are:> > > >>> > > >> - Strong loss of Libido> > > >>> > > >> - Erectile dysfunction - no erection> > > >>> > > >> - Limited orgasm to non â€" orgasm> > > >>> > > >> - Genital Anastasia> > > >>> > > >> - Bladder problems> > > >>> > > >> With me and others sexual dysfunction started with the use of> > > >> medication. Sexual complaints had no relationship with the> reasons> > for> > > >> prescribing the medication.> > >

>>> > > >> Our illness is called Post SSRI Sexual Dysfunction (PSSD). The> > causes of> > > >> these complaints are unclear, as is the possibility to reverse> the> > > >> symptoms. Down regulating of 5-HT1 and 5-HT2 receptors by> increase> > of> > > >> Serotonine due to the SSRI is seen as the cause. Possibly down> > > >> regulating can become permanent. Unclear is however why this> > happens and> > > >> what can be done against it.> > > >>> > > >> In the United States several articles have been published about> > PSSD> > > >> recognizing its existence. Two articles which can also be found> on> > > >> PUBMED have been included with this mail. Informally it is> commonly> > >

>> thought side effects caused by SSRI's disappear after quitting> > > >> medication. No research has however been done to confirm this> > claim.> > > >> Our experience and the articles published prove differently.> > > >>> > > >> By means of the mail I would like to establish contact withabout> > PSSD.> > > >> The influence PSSD has on our life is significant. Lacking the> > ability> > > >> to experience sexuality does harm to the essence of being a> human.> > We> > > >> are looking for means to start research, and hopefully find a> > solution> > > >> for our illness.> > > >>> > > >> Finally it is important to give name to PSSD to the world. Froma> > > >> medical, ethical and

social perspective it is highly relevantto> > > >> communicate the risks involved with these commonly prescribed> > > >> medications.> > > >>> > > >> I hope you are open for a dialogue with us as a group.> > > >>> > > >> Awaiting your response,> > > >>> > > >>> > > >>> > > >>> > > >>> > > >> Bellow you find the correspondence send to one of your Dutch> group> > after> > > >> he reported his PSSD: things have changed!> > > >>> > > >>> > > >>> > > >> The Dutch official product information of Fluoxetine describes> > sexual> > > >> dysfunction as common side effects. Anorgasmia and loss

oflibido> > are> > > >> named. What you have described, namely symptoms remaining after> > > >> medication is stopped, is not mentioned in the product> information.> > > >> American product information of Fluoxetine mentions that sexual> > > >> dysfunction can persist; it does however not specify which> > dysfunctions.> > > >> LAREB has received multiple reports of persistent sexual> > dysfunction> > > >> after Fluoxetine has quitted, or other anti depressants fromthe> > same> > > >> group as Fluoxetine. These reports concern both man and woman> > between> > > >> 20 and 59 years old.> > > >>> > > >> Your report will be stored in the LAREB database, where allside> > effects> >

> >> of medication in the Netherlands are collected. LAREB is ableto> > provide> > > >> a thorough inside in the safety of medication and will take> action> > when> > > >> needed.> > > >>> > > >> Thank you again for reporting at LAREB.> > > >>> > > >> > > >> > >> >> >> >> >> >> > ------------------------------------> >> > This group is for support, discussion, or educational purposes> only. It does not provide psychiatric or medical care. All> medications and supplements should be taken under a doctor's> supervision.

[Guest guest]

Hi Man There was news on a Popular Radio station in Montreal city Canada talking how long term use of SSRIs abti deppressnants can make deppression worse or cause chronic deppression. Maybe PSSD is a form of chronic deppression, the flat mood, no anxiety , and the sexual side effects etc From: Kaivey

To: SSRIsex Sent: Thursday, March 15, 2012 2:44:59 PM Subject: Re: Dutch health authorities - PSSD respons - The Netherlands

I got interviewed by bob Whitaker too. Bob really wants to get our

message out, but without mainstream medical interest it is hard to get

the media interested. I thought that Dr Stuart Shipko was a very

impressive character and so people would listen, but it seems you need a

large number of doctors saying the same thing before anyone will take an

interest.

Bob Whitaker names a number of psychiatrists and consultants whose

research seems to show that antidepressants may cause depression to

become chronic for a significant amount of users, but this news has

never turned up in any newspaper. It beats me how the world's number one

drug could be seriously harming so many people but this has not picked

up any interest in the media either.

Kv

> > > >>

> > > >>

> > > >> Dear All

> > > >>

> > > >> Bellow I translated an email I send to the Dutch health

institute

> > > >> (LAREB). They are responsible for medication safety in the

> > Netherlands.

> > > >> After this email I got into contact with a medical specialist

> > working

> > > >> there.

> > > >>

> > > >> The mail and publications convinced him to do a scanning of the

> > database

> > > >> they have on side effects. Due to the construct of their

database

> > and

> > > >> findings several things go wrong in establishing an overview on

> > PSSD.

> > > >>

> > > >> 1. Sexual side effects are reported differently and stored not

> > > >> uniformly;

> > > >>

> > > >> 2. SSRI's are not seen as a group; medication is monitored

> > > >> individually;

> > > >>

> > > >> 3. The definition of side-effects states that they are

prevalent

> > > >> during usage, discontinuation is not monitored

> > > >>

> > > >> Above points make that the reports on PSSD are being shattered

in

> > the

> > > >> database. A consolidation was needed on both medication and all

> > sexual

> > > >> side effects after discontinuation.

> > > >>

> > > >> A new scan on the database revealed multiple reports of PSSD,

> > convincing

> > > >> them PSSD exists. Individual communication on their doings is a

> bit

> > > >> "closed" but I will continue on the contact with have now.

> > > >>

> > > >> Any suggestions are welcome! Any information I am happy to

> provide.

> > > >>

> > > >> Bellow I also included a message one of us Dutch PSSD sufferers

> got

> > back

> > > >> after reporting his PSSD. This response shows communication has

> > changed!

> > > >> And they are becoming aware of PSSD!

> > > >>

> > > >>

> > > >>

> > > >> Dear sir/miss,

> > > >>

> > > >> By means of this mail I would like to inform you about an

illness

> > which

> > > >> I and multiple others have been left with after the use of

> > > >> antidepressants; specifically SSRI's. Commonly prescribed

SSRI's

> > > >> in the Netherlands are Seroxat (Paxil) and Prozac (Fluoxetine).

> > > >>

> > > >> We all have kept a persistent sexual dysfunction after (many

> times

> > short

> > > >> usage) of these medications. The sexual side-effects which were

> > present

> > > >> during taking have remained until present.

> > > >>

> > > >> Prevalent complaints are:

> > > >>

> > > >> - Strong loss of Libido

> > > >>

> > > >> - Erectile dysfunction - no erection

> > > >>

> > > >> - Limited orgasm to non â€" orgasm

> > > >>

> > > >> - Genital Anastasia

> > > >>

> > > >> - Bladder problems

> > > >>

> > > >> With me and others sexual dysfunction started with the use of

> > > >> medication. Sexual complaints had no relationship with the

> reasons

> > for

> > > >> prescribing the medication.

> > > >>

> > > >> Our illness is called Post SSRI Sexual Dysfunction (PSSD). The

> > causes of

> > > >> these complaints are unclear, as is the possibility to reverse

> the

> > > >> symptoms. Down regulating of 5-HT1 and 5-HT2 receptors by

> increase

> > of

> > > >> Serotonine due to the SSRI is seen as the cause. Possibly down

> > > >> regulating can become permanent. Unclear is however why this

> > happens and

> > > >> what can be done against it.

> > > >>

> > > >> In the United States several articles have been published about

> > PSSD

> > > >> recognizing its existence. Two articles which can also be found

> on

> > > >> PUBMED have been included with this mail. Informally it is

> commonly

> > > >> thought side effects caused by SSRI's disappear after quitting

> > > >> medication. No research has however been done to confirm this

> > claim.

> > > >> Our experience and the articles published prove differently.

> > > >>

> > > >> By means of the mail I would like to establish contact with

about

> > PSSD.

> > > >> The influence PSSD has on our life is significant. Lacking the

> > ability

> > > >> to experience sexuality does harm to the essence of being a

> human.

> > We

> > > >> are looking for means to start research, and hopefully find a

> > solution

> > > >> for our illness.

> > > >>

> > > >> Finally it is important to give name to PSSD to the world. From

a

> > > >> medical, ethical and social perspective it is highly relevant

to

> > > >> communicate the risks involved with these commonly prescribed

> > > >> medications.

> > > >>

> > > >> I hope you are open for a dialogue with us as a group.

> > > >>

> > > >> Awaiting your response,

> > > >>

> > > >>

> > > >>

> > > >>

> > > >>

> > > >> Bellow you find the correspondence send to one of your Dutch

> group

> > after

> > > >> he reported his PSSD: things have changed!

> > > >>

> > > >>

> > > >>

> > > >> The Dutch official product information of Fluoxetine describes

> > sexual

> > > >> dysfunction as common side effects. Anorgasmia and loss of

libido

> > are

> > > >> named. What you have described, namely symptoms remaining after

> > > >> medication is stopped, is not mentioned in the product

> information.

> > > >> American product information of Fluoxetine mentions that sexual

> > > >> dysfunction can persist; it does however not specify which

> > dysfunctions.

> > > >> LAREB has received multiple reports of persistent sexual

> > dysfunction

> > > >> after Fluoxetine has quitted, or other anti depressants from

the

> > same

> > > >> group as Fluoxetine. These reports concern both man and woman

> > between

> > > >> 20 and 59 years old.

> > > >>

> > > >> Your report will be stored in the LAREB database, where all

side

> > effects

> > > >> of medication in the Netherlands are collected. LAREB is able

to

> > provide

> > > >> a thorough inside in the safety of medication and will take

> action

> > when

> > > >> needed.

> > > >>

> > > >> Thank you again for reporting at LAREB.

> > > >>

> > > >

> > > >

> > >

> >

> >

> >

> >

> >

> > ------------------------------------

> >

> > This group is for support, discussion, or educational purposes

> only. It does not provide psychiatric or medical care. All

> medications and supplements should be taken under a doctor's

> supervision.

[Guest guest]

Hi linda, i think it is a part in the brain and a part in the nerve. Humans have

serotonin receptors in the brain but also serotonin receptors in the nerve.

> > > > >

> > > > >

> > > > > Dear All

> > > > >

> > > > > Bellow I translated an email I send to the Dutch health institute

> > > > > (LAREB). They are responsible for medication safety in the

Netherlands.

> > > > > After this email I got into contact with a medical specialist working

> > > > > there.

> > > > >

> > > > > The mail and publications convinced him to do a scanning of the

database

> > > > > they have on side effects. Due to the construct of their database and

> > > > > findings several things go wrong in establishing an overview on PSSD.

> > > > >

> > > > > 1. Sexual side effects are reported differently and stored not

> > > > > uniformly;

> > > > >

> > > > > 2. SSRI's are not seen as a group; medication is monitored

> > > > > individually;

> > > > >

> > > > > 3. The definition of side-effects states that they are prevalent

> > > > > during usage, discontinuation is not monitored

> > > > >

> > > > > Above points make that the reports on PSSD are being shattered in the

> > > > > database. A consolidation was needed on both medication and all sexual

> > > > > side effects after discontinuation.

> > > > >

> > > > > A new scan on the database revealed multiple reports of PSSD,

convincing

> > > > > them PSSD exists. Individual communication on their doings is a bit

> > > > > " closed " but I will continue on the contact with have now.

> > > > >

> > > > > Any suggestions are welcome! Any information I am happy to provide.

> > > > >

> > > > > Bellow I also included a message one of us Dutch PSSD sufferers got

back

> > > > > after reporting his PSSD. This response shows communication has

changed!

> > > > > And they are becoming aware of PSSD!

> > > > >

> > > > >

> > > > >

> > > > > Dear sir/miss,

> > > > >

> > > > > By means of this mail I would like to inform you about an illness

which

> > > > > I and multiple others have been left with after the use of

> > > > > antidepressants; specifically SSRI's. Commonly prescribed SSRI's

> > > > > in the Netherlands are Seroxat (Paxil) and Prozac (Fluoxetine).

> > > > >

> > > > > We all have kept a persistent sexual dysfunction after (many times

short

> > > > > usage) of these medications. The sexual side-effects which were

present

> > > > > during taking have remained until present.

> > > > >

> > > > > Prevalent complaints are:

> > > > >

> > > > > - Strong loss of Libido

> > > > >

> > > > > - Erectile dysfunction - no erection

> > > > >

> > > > > - Limited orgasm to non †" orgasm

> > > > >

> > > > > - Genital Anastasia

> > > > >

> > > > > - Bladder problems

> > > > >

> > > > > With me and others sexual dysfunction started with the use of

> > > > > medication. Sexual complaints had no relationship with the reasons for

> > > > > prescribing the medication.

> > > > >

> > > > > Our illness is called Post SSRI Sexual Dysfunction (PSSD). The causes

of

> > > > > these complaints are unclear, as is the possibility to reverse the

> > > > > symptoms. Down regulating of 5-HT1 and 5-HT2 receptors by increase of

> > > > > Serotonine due to the SSRI is seen as the cause. Possibly down

> > > > > regulating can become permanent. Unclear is however why this happens

and

> > > > > what can be done against it.

> > > > >

> > > > > In the United States several articles have been published about PSSD

> > > > > recognizing its existence. Two articles which can also be found on

> > > > > PUBMED have been included with this mail. Informally it is commonly

> > > > > thought side effects caused by SSRI's disappear after quitting

> > > > > medication. No research has however been done to confirm this claim.

> > > > > Our experience and the articles published prove differently.

> > > > >

> > > > > By means of the mail I would like to establish contact with about

PSSD.

> > > > > The influence PSSD has on our life is significant. Lacking the ability

> > > > > to experience sexuality does harm to the essence of being a human. We

> > > > > are looking for means to start research, and hopefully find a solution

> > > > > for our illness.

> > > > >

> > > > > Finally it is important to give name to PSSD to the world. From a

> > > > > medical, ethical and social perspective it is highly relevant to

> > > > > communicate the risks involved with these commonly prescribed

> > > > > medications.

> > > > >

> > > > > I hope you are open for a dialogue with us as a group.

> > > > >

> > > > > Awaiting your response,

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > Bellow you find the correspondence send to one of your Dutch group

after

> > > > > he reported his PSSD: things have changed!

> > > > >

> > > > >

> > > > >

> > > > > The Dutch official product information of Fluoxetine describes sexual

> > > > > dysfunction as common side effects. Anorgasmia and loss of libido are

> > > > > named. What you have described, namely symptoms remaining after

> > > > > medication is stopped, is not mentioned in the product information.

> > > > > American product information of Fluoxetine mentions that sexual

> > > > > dysfunction can persist; it does however not specify which

dysfunctions.

> > > > > LAREB has received multiple reports of persistent sexual dysfunction

> > > > > after Fluoxetine has quitted, or other anti depressants from the same

> > > > > group as Fluoxetine. These reports concern both man and woman between

> > > > > 20 and 59 years old.

> > > > >

> > > > > Your report will be stored in the LAREB database, where all side

effects

> > > > > of medication in the Netherlands are collected. LAREB is able to

provide

> > > > > a thorough inside in the safety of medication and will take action

when

> > > > > needed.

> > > > >

> > > > > Thank you again for reporting at LAREB.

> > > > >

> > > >

> > > >

> > >

> >

>