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>

>Furthermore, most docs think that anywhere in range is OK. But the truth

>is that most of us need our Free T3 and Free T4 to be in the upper half of

>their ranges to feel well. >

OK, on risk of getting booted off the list <grin>, *maybe* my thyroid is

fine. I doubt it, but maybe it is. Because according to what you say,

both my T3 Total and Free T4 are at the upper half of these ranges.

I've lost count of the number of doctors who have tried to find our what's

wrong with me. And then, today, there was another who doesn't know his

butt from a hole in the ground!

So, if my problem is malabsorption of vitamins and minerals because of my

bowel surgery, how in the heck do I get this diagnosed? If I have a

scarred throat because of the feeding tube, will they admit it? Of course

not!

I hear about people who have rare diseases, and wonder how many doctors

they have to see before their problems are found.....

Sorry for the rant.........I've about had it with these stoopid doctors!

Bobbi C.

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> Since then I've found from my

>reading that by taking vitamins in smaller doses, and always with meals,....>>

>....another thought to ponder... hehehehe

>

I'm pondering a lot lately, I tell you what! LOL!

Thanks for the suggestion of splitting the pills up into smaller

doses........I hadn't thought of that. I also got some liquid B12, which

seems to help a lot......it goes under the tongue.......And I've been

taking lots of evening primrose oil caps........six a day, one every few

hours or so.........

I'll start spreading out the rest of my vitamins and stuff, too ,and make

sure to take them with food.

Thanks!

Bobbi C.

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Bobbi,

Just think of it as a way of helping your body to heal, giving it steady

small doses of the things that it needs to fix and repair itself so that

it can plug away at what it needs to do. When all of our glands worked

normally AND we didn't have major repair work to do we did great on a

vitamin once a day and not worrying about skipping meals.. but now we

have to keep our bodies as strong and smooth functioning as possible.

Topper ()

On Mon, 18 Aug 2003 20:01:21 -0500 Bobbi Chukran

writes:

> > Since then I've found from my

> >reading that by taking vitamins in smaller doses, and always with

> meals,....>>

> >....another thought to ponder... hehehehe

> >

>

> I'm pondering a lot lately, I tell you what! LOL!

>

> Thanks for the suggestion of splitting the pills up into smaller

> doses........I hadn't thought of that. I also got some liquid B12,

> which

> seems to help a lot......it goes under the tongue.......And I've

> been

> taking lots of evening primrose oil caps........six a day, one every

> few

> hours or so.........

>

> I'll start spreading out the rest of my vitamins and stuff, too ,and

> make

> sure to take them with food.

>

> Thanks!

>

> Bobbi C.

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That's a good way to remember it. I've also started eating more meals a

day......smaller, and more of them. I'm probably getting the same (or

less) calories that way, and I'm not falling-down hungry all the

time........

Bobbi C.

>Just think of it as a way of helping your body to heal, giving it steady

>small doses of the things that it needs to fix and repair itself so that

>it can plug away at what it needs to do. >>

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Bobbi,

Great way to keep your body furnace stoked and burning all the fuel

instead of storing it!

Topper ()

On Mon, 18 Aug 2003 21:29:37 -0500 Bobbi Chukran

writes:

> That's a good way to remember it. I've also started eating more

> meals a

> day......smaller, and more of them. I'm probably getting the same

> (or

> less) calories that way, and I'm not falling-down hungry all the

> time........

>

> Bobbi C.

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>Bobbi, your Total T3 is NOT going to tell you what your FREE T3 is.

>

Ah. I see. So, did the lab have to test the FREE T3 to get the Total T3?

I wonder if I could call them and find out what it was? Or is it a

separate test?

Ay yi yi.

Bobbi C.

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> Why is it that a drug that's been around for 100 yrs is considered to be

> " old hat " in a so-called " modern " drug world? Funny, the medical

>paradigm and the powers that were also tried to tell us that there was no

>validity to treatment with herbs and so-on. Today, a WHOLE bunch of them

>are listed as standard treatments in the Physicians' Desk Reference,

>which is virtually a doctor's bible on what medicines do and don't do.>

It's simply because the Armour stuff probably can't be patented, so that

means there isn't BIG MONEY in it for the pharmaceutical industry and for

doctors to prescribe. Same thing with herbs....they can't be patented (and

thus sold for big profits), so the big companies don't bother with them,

and the doctors don't prescribe them.

This is what a naturopathic doctor told me once......

Bobbi C.

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I've heard the exact same thing..... It's all money.. that's why docs

push the synthetics and not the Armour.. the perks that they get.....

It's REALLY sad..

You know what? We should go into the docs offices wearing T shirts with

the Hippocratic oath on them!

Topper ()

http://groups.yahoo.com/group/The_Thyroid_Support_Group/

http://toppertwo.tripod.com

On Tue, 19 Aug 2003 08:18:30 -0500 Bobbi Chukran

writes:

> It's simply because the Armour stuff probably can't be patented, so

> that

> means there isn't BIG MONEY in it for the pharmaceutical industry

> and for

> doctors to prescribe. Same thing with herbs....they can't be

> patented (and

> thus sold for big profits), so the big companies don't bother with

> them, and the doctors don't prescribe them.

>

> This is what a naturopathic doctor told me once......

>

> Bobbi C.

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Yes! Or shirts that say " I'm on Armour. Ask me why! " LOL!

>You know what? We should go into the docs offices wearing T shirts with

>the Hippocratic oath on them!>

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It seems to me to be more hypocritical than the Hippocratic oath!

Re: "Normal" ranges?

I've heard the exact same thing..... It's all money.. that's why docspush the synthetics and not the Armour.. the perks that they get.....It's REALLY sad.. You know what? We should go into the docs offices wearing T shirts withthe Hippocratic oath on them!Topper ()http://groups.yahoo.com/group/The_Thyroid_Support_Group/http://toppertwo.tripod.comOn Tue, 19 Aug 2003 08:18:30 -0500 Bobbi Chukran writes:> It's simply because the Armour stuff probably can't be patented, so > that> means there isn't BIG MONEY in it for the pharmaceutical industry > and for> doctors to prescribe. Same thing with herbs....they can't be > patented (and> thus sold for big profits), so the big companies don't bother with > them, and the doctors don't prescribe them.> > This is what a naturopathic doctor told me once......> > Bobbi C.

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Have any of you ever seen the documentary that one of the networks did on

'name brand' drugs and how the industry (drug salesmen) tell that one drug

isn't really better than the other, and......not all generics are the same

drug as the orginal drug? I watched Dateline, or 20-20 or some show one

night in the last couple of yrs that showed that most of these new drugs

are pushed because it's a 'money' and patent issue. If they tell that

these drugs are 'better' then the dr's will prescribe them and of course

who benefits first? Yep, the drug company. Then next in line is of

course, the DR who gets perks. It's not a wonder Synthroid has become a

dr's favorite thing to push. What I also find very interesting is that the

drug companie's somehow get a listing to show which dr's are pushing their

drugs? That to me seems criminal, but they don't ask me what I think! lol

Oh, and I love the t-shirt idea topper! :-)

Sandy~Houston

Original Message:

-----------------

From: topper2@...

Date: Tue, 19 Aug 2003 09:45:11 -0500

To: Texas_Thyroid_Groups

Subject: Re: " Normal " ranges?

<html><body>

<tt>

I've heard the exact same thing..... It's all money.. that's why docs<BR>

push the synthetics and not the Armour.. the perks that they get.....<BR>

It's REALLY sad.. <BR>

<BR>

You know what? We should go into the docs offices wearing T shirts with<BR>

the Hippocratic oath on them!<BR>

<BR>

Topper ()<BR>

<a

href= " http://groups.yahoo.com/group/The_Thyroid_Support_Group/ " >http://group

s.yahoo.com/group/The_Thyroid_Support_Group/</a><BR>

<a href= " http://toppertwo.tripod.com " >http://toppertwo.tripod.com</a><BR>

<BR>

On Tue, 19 Aug 2003 08:18:30 -0500 Bobbi Chukran

<BR>

writes:<BR>

<BR>

> It's simply because the Armour stuff probably can't be patented, so <BR>

> that<BR>

> means there isn't BIG MONEY in it for the pharmaceutical industry <BR>

> and for<BR>

> doctors to prescribe.  Same thing with herbs....they can't be <BR>

> patented (and<BR>

> thus sold for big profits), so the big companies don't bother with <BR>

> them, and the doctors don't prescribe them.<BR>

> <BR>

> This is what a naturopathic doctor told me once......<BR>

> <BR>

> Bobbi C.<BR>

</tt>

<br>

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hahahaha that one is priceless! Can you imagine most

Endo's face when you walk in with a shirt like that on?

hahahaha. Definately some devious thinking (but all in

fun) :-)

Sandy~houston

On Tue, 19 Aug 2003 10:02:47 -0500

Bobbi Chukran wrote:

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Separate test.

Re: " Normal " ranges?

> >Bobbi, your Total T3 is NOT going to tell you what your FREE T3 is.

> >

>

> Ah. I see. So, did the lab have to test the FREE T3 to get the Total T3?

> I wonder if I could call them and find out what it was? Or is it a

> separate test?

>

> Ay yi yi.

>

> Bobbi C.

>

>

>

>

>

>

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That was the one I left out on that post on the causes of thyroid disease

being so rampant-----the money-hungry pharmaceutical companies. Forest

makes Armour, and I will guarantee you that it was the big old drug

companies that created $ynthroid who created virtually the biggest lie ever

told in the medical world----that synthetic T4 could take the place of

natural thyroid hormone!

Re: " Normal " ranges?

> > Why is it that a drug that's been around for 100 yrs is considered to

be

> > " old hat " in a so-called " modern " drug world? Funny, the medical

> >paradigm and the powers that were also tried to tell us that there was

no

> >validity to treatment with herbs and so-on. Today, a WHOLE bunch of

them

> >are listed as standard treatments in the Physicians' Desk Reference,

> >which is virtually a doctor's bible on what medicines do and don't do.>

>

> It's simply because the Armour stuff probably can't be patented, so that

> means there isn't BIG MONEY in it for the pharmaceutical industry and for

> doctors to prescribe. Same thing with herbs....they can't be patented

(and

> thus sold for big profits), so the big companies don't bother with them,

> and the doctors don't prescribe them.

>

> This is what a naturopathic doctor told me once......

>

> Bobbi C.

>

>

>

>

>

>

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Yeh---- " First, do no harm. "

Re: " Normal " ranges?

> I've heard the exact same thing..... It's all money.. that's why docs

> push the synthetics and not the Armour.. the perks that they get.....

> It's REALLY sad..

>

> You know what? We should go into the docs offices wearing T shirts with

> the Hippocratic oath on them!

>

> Topper ()

> http://groups.yahoo.com/group/The_Thyroid_Support_Group/

> http://toppertwo.tripod.com

>

>

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Yes, Big Brother 1984 is really here! Don't ya love your treatment being

dictated by " the little man with the brief case " , and vacations and such?

We had one antibiotic prescribed so much on our nursing floor by our

in-house doctor, over a period of about a year, for every single infection

that came down the pike, that I asked one of the nurses were they sure they

weren't creating a community-acquired " super-bug? (bacteria). It was a good

antibiotic, but I have my suspicions here. And he's a $ynthroid nazi also,

so you know we don't get along very well. And, yes, the only reason why

Armour isn't in the medical social circles is because millions and billions

spent by the pharmaceutical company that created $ynthroid.

Re: Normal ranges?

> Have any of you ever seen the documentary that one of the networks did on

> 'name brand' drugs and how the industry (drug salesmen) tell that one drug

> isn't really better than the other, and......not all generics are the same

> drug as the orginal drug? I watched Dateline, or 20-20 or some show one

> night in the last couple of yrs that showed that most of these new drugs

> are pushed because it's a 'money' and patent issue. If they tell that

> these drugs are 'better' then the dr's will prescribe them and of course

> who benefits first? Yep, the drug company. Then next in line is of

> course, the DR who gets perks. It's not a wonder Synthroid has become a

> dr's favorite thing to push. What I also find very interesting is that

the

> drug companie's somehow get a listing to show which dr's are pushing their

> drugs? That to me seems criminal, but they don't ask me what I think! lol

>

> Oh, and I love the t-shirt idea topper! :-)

>

> Sandy~Houston

>

>

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Gosh , I sat here reading this and suddenly I had this awful thought! I know that most people who end up with hyperT are encouraged to take RAI, but I'd hate to sit here and think that the drug companies would be that awful to want more people to nuke the thyroid so they could sell more drugs. Ackkkk! I've thought some pretty interesting things about some of these drug manufacturers, but this one just really popped out when I was reading your post.....

not saying it's the case, but it's odd how so many people are told to get rid of the thyroid because of Graves.....and some of the stories they tell these people to get them to succumb to it. hmmm I just hate when I get these 'stinkin thinkin' things going on. Funny that it's taken all this time for me to even wonder if the drug manufacturers have ever had any influence on having dr's suggest RAI to ablate the thyroid. Very interesting concept though. :-(

Sandy~Houston

Re: Normal ranges?> Have any of you ever seen the documentary that one of the networks did on> 'name brand' drugs and how the industry (drug salesmen) tell that one drug> isn't really better than the other, and......not all generics are the same

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>>people are told to get rid of the thyroid because of Graves<<

Want MORE food for thought? Many times cats will go hyperthyroid when they get older.. they usually recommend controlling this with meds rather than nuking their thyroid... Strange don't ya think? Especially since cats are so difficult to medicate!

TMilton, WV Reply to valharley@...Education before vaccination www.catshots.com

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I wouldn't go so far as to say that it's a thought to doctors or pharmaceuticals to ablate the thyroid just to get someone to take the drugs. Actually, Graves' eventually does destroy the thyroid, and in some cases, if it doesn't do it's thing soon enough, the heart will be in arrhythmia, and that person will be in dire straits much sooner than someone else would be. I've seen some peoples' thyroids even stand up to the RAI treatment, like a stubborn child, and their heart is still racing along, 24 hrs, 7 days a wk, to the tune of 120-150 beats per minute. Tough little bugars. Sure, it will eventually play out, but how soon? This is one area where I don't really know if I'm in agreement about not having the RAI or surgery. Of course, all persons should understand and know the risks of all options and be given that choice by their doctors, but, sometimes keeping the thyroid in tact (even w/o RAI) can be a disaster. It depends on how fast it's burning itsself out, and other factors. One of my co-workers looked pretty normal before her long 3-day weekend started, although she had looked like she'd lost a little weight over a couple weeks period of time. But, when I saw her clocking in 3 days later, she had already lost about 7 more lbs, her skin was yellow gold, and her eyes had popped forward out of her head just over 3 days! She was telling someone that she had thought about calling in because she felt ill, her heart was jumping out of her chest, and she was so nervous, that she had had trouble driving herself to work. She said she felt like she was breathing fast. I turned her around, looked at her eyes, and said "You have Graves' Disease, my dear". Took her pulse, and it was racing along at 150 or so. She went out to the emergency room, and they had to start her on meds to slow her heart rate right away, else she might have had a heart attack. She is in her 40's and might not have survived it! They did the RAI within a week, and she has had good experiences on hypo meds. She looked at the RAI as having saved her life. This is why I don't always agree on holding off on the RAI. Depends on what's going on there. The eye problems are a cardinal sign of Graves', and can show up as long as 20 yrs later, with or without RAI.

Re: Normal ranges?

Gosh , I sat here reading this and suddenly I had this awful thought! I know that most people who end up with hyperT are encouraged to take RAI, but I'd hate to sit here and think that the drug companies would be that awful to want more people to nuke the thyroid so they could sell more drugs. Ackkkk! I've thought some pretty interesting things about some of these drug manufacturers, but this one just really popped out when I was reading your post.....

not saying it's the case, but it's odd how so many people are told to get rid of the thyroid because of Graves.....and some of the stories they tell these people to get them to succumb to it. hmmm I just hate when I get these 'stinkin thinkin' things going on. Funny that it's taken all this time for me to even wonder if the drug manufacturers have ever had any influence on having dr's suggest RAI to ablate the thyroid. Very interesting concept though. :-(

Sandy~Houston

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,

RAI saved my life.. but I would have preferred the option of choices.. everything for me happened too fast.. in the hospital within an hour of seeing the doc that diagnosed me.... lab results called to the hospital to confirm the diagnosing docs suspicions, five minutes to decide yes or no to the RAI, sign papers and do it....

My resting heart rate then was 160.... just standing up shot it sky high.....

Scarry stuff.

Topper ()http://groups.yahoo.com/group/The_Thyroid_Support_Group/http://toppertwo.tripod.com

On Wed, 20 Aug 2003 04:36:29 -0500 " " writes:

I wouldn't go so far as to say that it's a thought to doctors or pharmaceuticals to ablate the thyroid just to get someone to take the drugs. Actually, Graves' eventually does destroy the thyroid, and in some cases, if it doesn't do it's thing soon enough, the heart will be in arrhythmia, and that person will be in dire straits much sooner than someone else would be. I've seen some peoples' thyroids even stand up to the RAI treatment, like a stubborn child, and their heart is still racing along, 24 hrs, 7 days a wk, to the tune of 120-150 beats per minute. Tough little bugars. Sure, it will eventually play out, but how soon? This is one area where I don't really know if I'm in agreement about not having the RAI or surgery. Of course, all persons should understand and know the risks of all options and be given that choice by their doctors, but, sometimes keeping the thyroid in tact (even w/o RAI) can be a disaster. It depends on how fast it's burning itsself out, and other factors. One of my co-workers looked pretty normal before her long 3-day weekend started, although she had looked like she'd lost a little weight over a couple weeks period of time. But, when I saw her clocking in 3 days later, she had already lost about 7 more lbs, her skin was yellow gold, and her eyes had popped forward out of her head just over 3 days! She was telling someone that she had thought about calling in because she felt ill, her heart was jumping out of her chest, and she was so nervous, that she had had trouble driving herself to work. She said she felt like she was breathing fast. I turned her around, looked at her eyes, and said "You have Graves' Disease, my dear". Took her pulse, and it was racing along at 150 or so. She went out to the emergency room, and they had to start her on meds to slow her heart rate right away, else she might have had a heart attack. She is in her 40's and might not have survived it! They did the RAI within a week, and she has had good experiences on hypo meds. She looked at the RAI as having saved her life. This is why I don't always agree on holding off on the RAI. Depends on what's going on there. The eye problems are a cardinal sign of Graves', and can show up as long as 20 yrs later, with or without RAI.

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,

RAI saved my life.. but I would have preferred the option of choices.. everything for me happened too fast.. in the hospital within an hour of seeing the doc that diagnosed me.... lab results called to the hospital to confirm the diagnosing docs suspicions, five minutes to decide yes or no to the RAI, sign papers and do it....

My resting heart rate then was 160.... just standing up shot it sky high.....

Scarry stuff.

Topper ()http://groups.yahoo.com/group/The_Thyroid_Support_Group/http://toppertwo.tripod.com

On Wed, 20 Aug 2003 04:36:29 -0500 " " writes:

I wouldn't go so far as to say that it's a thought to doctors or pharmaceuticals to ablate the thyroid just to get someone to take the drugs. Actually, Graves' eventually does destroy the thyroid, and in some cases, if it doesn't do it's thing soon enough, the heart will be in arrhythmia, and that person will be in dire straits much sooner than someone else would be. I've seen some peoples' thyroids even stand up to the RAI treatment, like a stubborn child, and their heart is still racing along, 24 hrs, 7 days a wk, to the tune of 120-150 beats per minute. Tough little bugars. Sure, it will eventually play out, but how soon? This is one area where I don't really know if I'm in agreement about not having the RAI or surgery. Of course, all persons should understand and know the risks of all options and be given that choice by their doctors, but, sometimes keeping the thyroid in tact (even w/o RAI) can be a disaster. It depends on how fast it's burning itsself out, and other factors. One of my co-workers looked pretty normal before her long 3-day weekend started, although she had looked like she'd lost a little weight over a couple weeks period of time. But, when I saw her clocking in 3 days later, she had already lost about 7 more lbs, her skin was yellow gold, and her eyes had popped forward out of her head just over 3 days! She was telling someone that she had thought about calling in because she felt ill, her heart was jumping out of her chest, and she was so nervous, that she had had trouble driving herself to work. She said she felt like she was breathing fast. I turned her around, looked at her eyes, and said "You have Graves' Disease, my dear". Took her pulse, and it was racing along at 150 or so. She went out to the emergency room, and they had to start her on meds to slow her heart rate right away, else she might have had a heart attack. She is in her 40's and might not have survived it! They did the RAI within a week, and she has had good experiences on hypo meds. She looked at the RAI as having saved her life. This is why I don't always agree on holding off on the RAI. Depends on what's going on there. The eye problems are a cardinal sign of Graves', and can show up as long as 20 yrs later, with or without RAI.

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Hi T,

Think

about it. There are a lot of pet owners who cannot afford to have

surgery done on a cat. The vet will make his money in the repeat

office visits.

The human

side is different. There is usually insurance and payments can be

arranged on what is not covered under insurance. I hate that,

especially when the patient has no doctor available after surgery to

ensure that the thyroid is being replaced at the optimal level for that

patient.

Dianne

At 07:28 PM 8/19/03 -0400, you wrote:

>>people are

told to get rid of the thyroid because of Graves<<

Want MORE food for thought? Many times cats will go

hyperthyroid when they get older.. they usually recommend controlling

this with meds rather than nuking their thyroid... Strange don't ya

think? Especially since cats are so difficult to medicate!

T

Milton, WV Reply to

valharley@...

Education before vaccination

www.catshots.com

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, I guess the reason I made that comment was it was a fleeting thought. I know that in these almost 2 yrs having Graves/hyperT was not a picnic. While that might not have been the appropriate way for me to attempt to pose my thoughts, "that I'd hate to think" it certainly does make one wonder on several levels. To be seen in a hurry, and not have to wait for 2 - 3 months, which is the way it works here in Houston, you'd have to go to an emergency room. Not all emergency personnel are that up to date on thyroid trouble. Or that's what I found here when I ended up in the ER. I ended up having a gallbladder removed instead, then about a year after that happened, started having the same symptoms I originally started out with. Only it couldn't be the gallbladder this time, cuz there wasn't one.

I guess I tend to hope that people are honest and forthcoming with info, especially when we're dealing with dr's, but sometimes they truly make me wonder. If it takes me 2 - 3 months to get in, with bad symptoms, then another 7 - 10 days for the second appt after uptake test to find out what's causing the thyroid irregularities, before they'll even talk to us about meds, then I have to ask myself some things. First is if it's so important to our health, why don't they discuss ALL the aspects of what's going on and what we can expect. I have to agree with Topper. It's one thing to only offer a person one choice to cure hyperthyroidism. It's another to just assume that they have NO chance of remission and to tell them it's a have to situation. My Endo finally shared the info with me that since I refused RAI, that my thryoid would burn itself out. I myself was just willing to take a chance and pray that remission was possible. I'd rather have my thyroid wear itself out than to have to do something to make it go away. Radioactive iodine doesn't even sound good to me. And I guess as long as they make us wait, (well, most of us) it does make you wonder if it's really something that can't be controlled by drugs. I think as far as I know, my resting pulse was 125 at it's highest. I can't imagine it being any higher than that. :-(

Sandy~houston

Re: Normal ranges?

,

RAI saved my life.. but I would have preferred the option of choices.. everything for me happened too fast.. in the hospital within an hour of seeing the doc that diagnosed me.... lab results called to the hospital to confirm the diagnosing docs suspicions, five minutes to decide yes or no to the RAI, sign papers and do it....

My resting heart rate then was 160.... just standing up shot it sky high.....

Scarry stuff.

Topper ()http://groups.yahoo.com/group/The_Thyroid_Support_Group/http://toppertwo.tripod.com

On Wed, 20 Aug 2003 04:36:29 -0500 " " writes:

I wouldn't go so far as to say that it's a thought to doctors or pharmaceuticals to ablate the thyroid just to get someone to take the drugs. Actually, Graves' eventually does destroy the thyroid, and in some cases, if it doesn't do it's thing soon enough, the heart will be in arrhythmia, and that person will be in dire straits much sooner than someone else would be. I've seen some peoples' thyroids even stand up to the RAI treatment, like a stubborn child, and their heart is still racing along, 24 hrs, 7 days a wk, to the tune of 120-150 beats per minute. Tough little bugars. Sure, it will eventually play out, but how soon? This is one area where I don't really know if I'm in agreement about not having the RAI or surgery. Of course, all persons should understand and know the risks of all options and be given that choice by their doctors, but, sometimes keeping the thyroid in tact (even w/o RAI) can be a disaster. It depends on how fast it's burning itsself out, and other factors. One of my co-workers looked pretty normal before her long 3-day weekend started, although she had looked like she'd lost a little weight over a couple weeks period of time. But, when I saw her clocking in 3 days later, she had already lost about 7 more lbs, her skin was yellow gold, and her eyes had popped forward out of her head just over 3 days! She was telling someone that she had thought about calling in because she felt ill, her heart was jumping out of her chest, and she was so nervous, that she had had trouble driving herself to work. She said she felt like she was breathing fast. I turned her around, looked at her eyes, and said "You have Graves' Disease, my dear". Took her pulse, and it was racing along at 150 or so. She went out to the emergency room, and they had to start her on meds to slow her heart rate right away, else she might have had a heart attack. She is in her 40's and might not have survived it! They did the RAI within a week, and she has had good experiences on hypo meds. She looked at the RAI as having saved her life. This is why I don't always agree on holding off on the RAI. Depends on what's going on there. The eye problems are a cardinal sign of Graves', and can show up as long as 20 yrs later, with or without RAI.

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, I guess the reason I made that comment was it was a fleeting thought. I know that in these almost 2 yrs having Graves/hyperT was not a picnic. While that might not have been the appropriate way for me to attempt to pose my thoughts, "that I'd hate to think" it certainly does make one wonder on several levels. To be seen in a hurry, and not have to wait for 2 - 3 months, which is the way it works here in Houston, you'd have to go to an emergency room. Not all emergency personnel are that up to date on thyroid trouble. Or that's what I found here when I ended up in the ER. I ended up having a gallbladder removed instead, then about a year after that happened, started having the same symptoms I originally started out with. Only it couldn't be the gallbladder this time, cuz there wasn't one.

I guess I tend to hope that people are honest and forthcoming with info, especially when we're dealing with dr's, but sometimes they truly make me wonder. If it takes me 2 - 3 months to get in, with bad symptoms, then another 7 - 10 days for the second appt after uptake test to find out what's causing the thyroid irregularities, before they'll even talk to us about meds, then I have to ask myself some things. First is if it's so important to our health, why don't they discuss ALL the aspects of what's going on and what we can expect. I have to agree with Topper. It's one thing to only offer a person one choice to cure hyperthyroidism. It's another to just assume that they have NO chance of remission and to tell them it's a have to situation. My Endo finally shared the info with me that since I refused RAI, that my thryoid would burn itself out. I myself was just willing to take a chance and pray that remission was possible. I'd rather have my thyroid wear itself out than to have to do something to make it go away. Radioactive iodine doesn't even sound good to me. And I guess as long as they make us wait, (well, most of us) it does make you wonder if it's really something that can't be controlled by drugs. I think as far as I know, my resting pulse was 125 at it's highest. I can't imagine it being any higher than that. :-(

Sandy~houston

Re: Normal ranges?

,

RAI saved my life.. but I would have preferred the option of choices.. everything for me happened too fast.. in the hospital within an hour of seeing the doc that diagnosed me.... lab results called to the hospital to confirm the diagnosing docs suspicions, five minutes to decide yes or no to the RAI, sign papers and do it....

My resting heart rate then was 160.... just standing up shot it sky high.....

Scarry stuff.

Topper ()http://groups.yahoo.com/group/The_Thyroid_Support_Group/http://toppertwo.tripod.com

On Wed, 20 Aug 2003 04:36:29 -0500 " " writes:

I wouldn't go so far as to say that it's a thought to doctors or pharmaceuticals to ablate the thyroid just to get someone to take the drugs. Actually, Graves' eventually does destroy the thyroid, and in some cases, if it doesn't do it's thing soon enough, the heart will be in arrhythmia, and that person will be in dire straits much sooner than someone else would be. I've seen some peoples' thyroids even stand up to the RAI treatment, like a stubborn child, and their heart is still racing along, 24 hrs, 7 days a wk, to the tune of 120-150 beats per minute. Tough little bugars. Sure, it will eventually play out, but how soon? This is one area where I don't really know if I'm in agreement about not having the RAI or surgery. Of course, all persons should understand and know the risks of all options and be given that choice by their doctors, but, sometimes keeping the thyroid in tact (even w/o RAI) can be a disaster. It depends on how fast it's burning itsself out, and other factors. One of my co-workers looked pretty normal before her long 3-day weekend started, although she had looked like she'd lost a little weight over a couple weeks period of time. But, when I saw her clocking in 3 days later, she had already lost about 7 more lbs, her skin was yellow gold, and her eyes had popped forward out of her head just over 3 days! She was telling someone that she had thought about calling in because she felt ill, her heart was jumping out of her chest, and she was so nervous, that she had had trouble driving herself to work. She said she felt like she was breathing fast. I turned her around, looked at her eyes, and said "You have Graves' Disease, my dear". Took her pulse, and it was racing along at 150 or so. She went out to the emergency room, and they had to start her on meds to slow her heart rate right away, else she might have had a heart attack. She is in her 40's and might not have survived it! They did the RAI within a week, and she has had good experiences on hypo meds. She looked at the RAI as having saved her life. This is why I don't always agree on holding off on the RAI. Depends on what's going on there. The eye problems are a cardinal sign of Graves', and can show up as long as 20 yrs later, with or without RAI.

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