Guest guest Posted August 25, 1998 Report Share Posted August 25, 1998 Hi All, I am new to the group. My name is Aricka. I am 25 years old and a stay at home mom of two little ones (Cassie is 5 and is 1). My story is a long one but I will try to keep it short. First I will tell you a little medical history, I was diagnosed with endometriosis when I was 14 years old. When I was 15 I had my first surgery, Laproscopy. They lasered off most of the endometriosis at the time. Two weeks later my appendix ruptured and they had to reopen me. The incision was from my belly button down, which is an odd place to go for an appendix, but they thought that the previous surgery might have been the culprit. When I was 18, my endometriosis flared up again and they did another Laproscopy. The doctor told me that I probably would not be able to have children. When I was 20 I had my daughter Cassie (miracle baby #1) and then when she was three, we decided to try for another one. I got pregnant automatically, but was on full bedrest from day one. It was a really rough pregnancy. They induced labor two weeks early because of his size (they estimated a little over 9lbs) because if they waited till full term, he could have been 11 lb. and I wanted to deliver vaginally. He was 10 pounds. Big boy (miracle baby #2). I was having a lot of problems after the birth so when he was six weeks old they went in and did an endometrial ablation (kills the inside of the uterus so you wont bleed anymore, it is an alternative to hysterectomy) but had major problems and had to abort the procedure half way through. They doctor did however laser off the endometriosis and said that he did not know how I ever got pregnant. So four weeks later they removed my uterus. They went in through the previous incision (belly button down) and them four weeks after that they had to reopen me to remove my ovaries (again through the same incision). There was nothing left inside and I was still having pain that would leave me doubled over on the floor. The OBGYN didn't know what to do so he sent me to a pain specialist who diagnosed me with nerve damage around the incision and inside where they had repeatedly lasered off endometriosis. Then the pain started traveling down my legs and into my feet, so he started running tons of x-rays and blood tests. He told me that he was afraid that I may have MD (Muscular Dystrophy). But thank God I didn't, but he did diagnose me with FMS/MPS. He is kind of wishy-washy on it thought. He wants to make himself beleive that it could be something else. Whatever! I am starting to think that MD would have been better. No I must say that he has done a great job on pain reduction. I now am at 40% pain releive. My biggest complaint still is the pain. It starts in my abdominal and goes around to my back. I take Elavil for that. I also have pain that runs down the front of my legs in my front thighs, around my knees and into my feet. I take Nuerontin for that. My knees aches constantly. I take Trisilate for that. A lot of my pain is from the nerve damage. I have nerve pain in my thighs. The skin on my thighs stings to the touch. I am lucky (as far as I have read) because my pain specialist believes in FMS and treating it into remission. The latest thing that seems to be working is Lidocaine Infusions. Have any of you heard of those? Well, I appologize for this being so long. I am thankful for this group! Aricka kturbin@... wrote: > Hello, > > Welcome to the list. Please take a moment to review this message. > > List Name: chronic_pain Category: Health | Disabilities Description: > > Chronic Pain: A support resource for adults with problems resulting in chronic > > physical pain and an empahsis on helping to cope and 'have a life.' This is a > > peer-group list open to anyone with chronic pain and closed to *all* others. > > Commercial exploiters will be drawn & quartered. > > The new 'Chronic Pain' list will be moderated to the greatest extent possible, > > but sometimes not fully moderated. This is being done because although there > > are several topical lists on the net, they tend to get overloaded, & more > > resources appear needed.. > > The moderator hopesto establish a self-sustaining forum for the support needed > > by others & himself. > > The moderator & list-owner is Turbin, who has faced chronic pain for a > > very long time & is a healthcare pofessional as well. It is important to > > underestand that this is not a place for professional help, but for human > > understanding. > > A brief or more lengthy introduction is from each participant appreciated. > > As there are a large number of individuals orphaned with this condition by the > > treatment establishment, should the list volume exceed manageability, sub-lists > > (sub-groups) may be formed for more personal interchange, & a more general > > parallel list will be made available to everyone as well. > > The modearator may be contacted directly at chronic_pain@... (but PLEASE > > do not send list mail or requests here!) > > Important Information: > > To send email to the list, use the email address chronic_painonelist > > Quote Link to comment Share on other sites More sharing options...
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