Re: regarding prental testing results(amnio's)

[Guest guest]

I hear you!

I have to tell you when I was pregnant with the twins the doctors were making all these plans for me to have an amnio.....Had to be done by a perinatologist because the doctors werent comfortable tapping twins, added risk etc. I went to the genetic counciler and the one I had told me that because of the mosaicism I either had a 1% chance of having another child with DS or what ever the chance was because of my age (25 at the time) with no added risk it would all depend on whether or not the egg that created Ariel started out abnormal and went normal or if the nondisjunction occurred after conception. I was so confused and upset. When I spoke to the senior doctor in my practice he took my hand, looked me in the eye and asked me did it mattered if the twins had DS. " No of course not I'd have them anyway" I told him. He said " then my dear you don't need an amnio tell them to leave those babies alone" I thank god for him every day.....

Wishing all well

Ariel8MDS

[Guest guest]

Even if amnios are accurate, what would that change?

Other than the fact that your pregnancy would be sad

and confused. Doctors need to quit insisting on

amnio's! I think it is just because they enjoy this

wonderful " science " that they have available and they

can't wait to try it out on everyone. Kinda like a boy

with a new video game, he can't get enough of it!

Amnio's are also dangerous to the mother and baby. So,

in my humble oppinion, amnio's should not be done. It

wont change if your baby has a disorder or not, it

will only change your attitude and disposition

throughout the pregnancy, and many people wind up

aborting their babies because they are not " perfect " !

just my two cents....

Kristy

--- LDSAngel77@... wrote:

> I will say, that there was ONE geneticist, who was

> discreetly telling me that

> the cells could have mutated when they were being

> cultured, or that the

> abnormal cells were being sluffed off from the

> placenta, and NOT the baby.

> She was the only one who hinted at some light at the

> end of the tunnel!

>

> When I declined to have an amnio with my son that I

> just had 4 weeks ago, my

> dr was SO adamant about me having the amnio and the

> AFP, etc, when I didn't

> want either! He couldn't seem to grasp the concept

> that I couldn't trust the

> results either way, and he too acted as if there was

> something wrong with my

> story because amnio's are " soooo acurate " ...

>

> They aren't...

>

> Angel

> Mom to , 9 MDS

> Tyler 10, 7, Jaeda 6 and Shayne 4weeks

>

> Won't you please consider adding your personal story

> on the MDS website today?

> http://www.mosaicdownsyndrome.com

> *************************************************

> MDS MESSAGE BOARD -

> http://www.mosaicdownsyndrome.com/discus

> *************************************************

>

[Guest guest]

> in my humble oppinion, amnio's should not be done. It

> wont change if your baby has a disorder or not, it

> will only change your attitude and disposition

> throughout the pregnancy, >> Kristy

> I agree Kristy. When I was pregnant w/ I knew I had an increased

risk because of my age & my triple screen showed a 60% chance of delivering

a baby w/ds. I did however have a very good OB/GYN. (a female btw) You could

talk to her like she was your next door neighbor, very down to earth. She

offered an amnio but I knew whatever the results were it wouldn't change a

thing and I didn't want to the risks involved so I just said " no thanks " It

was never mentioned again. I did however notice they had a post it note on

the inside of my chart that said, " patient declined amnio. " I'm not sure

what the purpose of that was.

Hope

[Guest guest]

,

Thank you for sharing that with us! I really think

that doctors are begining to push the amnio issue.

What a blessing your doctor was to tell you that when

you needed it most!

Kristy

--- jaaaj@... wrote:

> I hear you!

>

> I have to tell you when I was pregnant with the

> twins the doctors were making

> all these plans for me to have an amnio.....Had to

> be done by a

> perinatologist because the doctors werent

> comfortable tapping twins, added

> risk etc. I went to the genetic counciler and the

> one I had told me that

> because of the mosaicism I either had a 1% chance of

> having another child

> with DS or what ever the chance was because of my

> age (25 at the time) with

> no added risk it would all depend on whether or not

> the egg that created

> Ariel started out abnormal and went normal or if the

> nondisjunction occurred

> after conception. I was so confused and upset.

> When I spoke to the senior

> doctor in my practice he took my hand, looked me in

> the eye and asked me did

> it mattered if the twins had DS. " No of course not

> I'd have them anyway " I

> told him. He said " then my dear you don't need an

> amnio tell them to leave

> those babies alone " I thank god for him every

> day.....

>

> Wishing all well

>

> Ariel8MDS

>

>

>

[Guest guest]

Hope,

Yes, that does make you wonder. I really think that

they do push the issue, and I have heard that doctors

are required to recommend an abortion if your child

has a disablity. I am not sure about this, but that is

what I heard. I plan to ask around about that.

Kristy

--- Ronnie Sikes wrote:

> > in my humble oppinion, amnio's should not be done.

> It

> > wont change if your baby has a disorder or not, it

> > will only change your attitude and disposition

> > throughout the pregnancy, >> Kristy

>

> > I agree Kristy. When I was pregnant w/ I

> knew I had an increased

> risk because of my age & my triple screen showed a

> 60% chance of delivering

> a baby w/ds. I did however have a very good OB/GYN.

> (a female btw) You could

> talk to her like she was your next door neighbor,

> very down to earth. She

> offered an amnio but I knew whatever the results

> were it wouldn't change a

> thing and I didn't want to the risks involved so I

> just said " no thanks " It

> was never mentioned again. I did however notice they

> had a post it note on

> the inside of my chart that said, " patient declined

> amnio. " I'm not sure

> what the purpose of that was.

> Hope

>

>

>

[Guest guest]

That was not my experience. My amnio showed DS, and everyone was very clear what my options were and that they were up to me. No one pushed an abortion, but they did present me with the information. They were equally open about putting me in touch with families who have a child with DS. They were absolutely professional and supportive and even enthusiastic about my decision to keep my son and remained so throughout my ensuing pregnancy. I completely understand those who would not choose an amnio. But it helped us prepare, tell family and friends, meet other families, come to terms with the diagnosis, and be ready for nothing but a celebration when was born. I just wish, for families who choose an amnio (because we know many will continue to do so), that everyone could have the kind of support and seek the information I had and did; perhaps then more people would understand what a gift our kids are and would choose to keep their babies. Just my two cents.

Beth

Re: regarding prental testing results(amnio's)

Hope,Yes, that does make you wonder. I really think thatthey do push the issue, and I have heard that doctorsare required to recommend an abortion if your childhas a disablity. I am not sure about this, but that iswhat I heard. I plan to ask around about that.Kristy--- Ronnie Sikes wrote:> > in my humble oppinion, amnio's should not be done.> It> > wont change if your baby has a disorder or not, it> > will only change your attitude and disposition> > throughout the pregnancy, >> Kristy> > > I agree Kristy. When I was pregnant w/ I> knew I had an increased> risk because of my age & my triple screen showed a> 60% chance of delivering> a baby w/ds. I did however have a very good OB/GYN.> (a female btw) You could> talk to her like she was your next door neighbor,> very down to earth. She> offered an amnio but I knew whatever the results> were it wouldn't change a> thing and I didn't want to the risks involved so I> just said "no thanks" It> was never mentioned again. I did however notice they> had a post it note on> the inside of my chart that said, "patient declined> amnio." I'm not sure> what the purpose of that was.> Hope> > >

[Guest guest]

HERE HERE!! I was pretty sick of being nagged and cajoled for the entire pregnancy with Jonas about having these tests that I had to finally put my foot down and insist that the doctor write in my chart that I no longer wished to be nagged each time I entered their office about it and because I was nearly crying, he did so! I am so thankful that I DID NOT KNOW about the MDS, the heart problem, etc before Jonas was born. I am the type of person (not saying anyone else is) that would have imagined the absolute worst, and I never ever would have aborted the baby, I would have had one giant panic attack that lasted the rest of my pregnancy, and worst of all, I am pretty sure I would have begun to detach myself a bit in fear of what I was going to face. The way it turned out, I was able to fall in love with Jonas throughout the entire (7 month) pregnancy and I was also able to totally go head over heals when he was born before we found out a thing was wrong on his 10th day. Then I was able to spend one night crying until I feared I would burst a blood vessel in my head and then in the morning I had my perfect son back in my arms in the NICU and all the dread and fear and "feeling sorry for me, mostly" was gone forever! One other thing. I think the doctors (4) in the practice I went to were covering their own tails by pushing this. Every appointment started with them making me acknowledge that I had been told about all the tests which are available and had refused them, and then there was a special place in the chart they had to initial each time so they could prove that they had offered and I had refused. They would give me the lecture and the pep talk each time until I could never think of anything I wanted to tell them or ask them when I went there, all I could do was sit there and feel like a head of cattle they had just processed through their well oiled system! Barf. Barb Martz Mom to Jonas 1 1/2 (MDS) & 7 Re: regarding prental testing results(amnio's) Even if amnios are accurate, what would that change?Other than the fact that your pregnancy would be sadand confused. Doctors need to quit insisting onamnio's! I think it is just because they enjoy thiswonderful "science" that they have available and theycan't wait to try it out on everyone. Kinda like a boywith a new video game, he can't get enough of it!Amnio's are also dangerous to the mother and baby. So,in my humble oppinion, amnio's should not be done. Itwont change if your baby has a disorder or not, itwill only change your attitude and dispositionthroughout the pregnancy, and many people wind upaborting their babies because they are not "perfect"!just my two cents....Kristy--- LDSAngel77@... wrote:> I will say, that there was ONE geneticist, who was> discreetly telling me that > the cells could have mutated when they were being> cultured, or that the > abnormal cells were being sluffed off from the> placenta, and NOT the baby. > She was the only one who hinted at some light at the> end of the tunnel!> > When I declined to have an amnio with my son that I> just had 4 weeks ago, my > dr was SO adamant about me having the amnio and the> AFP, etc, when I didn't > want either! He couldn't seem to grasp the concept> that I couldn't trust the > results either way, and he too acted as if there was> something wrong with my > story because amnio's are "soooo acurate"...> > They aren't...> > Angel> Mom to , 9 MDS> Tyler 10, 7, Jaeda 6 and Shayne 4weeks > > Won't you please consider adding your personal story> on the MDS website today? > http://www.mosaicdownsyndrome.com> *************************************************> MDS MESSAGE BOARD -> http://www.mosaicdownsyndrome.com/discus> *************************************************>

[Guest guest]

, Thanks for sharing that story! I love to hear of a doctor who is thinking with his heart not just his liability lawyer in hand at all times. What a caring doctor! Barb Martz Re: regarding prental testing results(amnio's) I hear you! I have to tell you when I was pregnant with the twins the doctors were making all these plans for me to have an amnio.....Had to be done by a perinatologist because the doctors werent comfortable tapping twins, added risk etc. I went to the genetic counciler and the one I had told me that because of the mosaicism I either had a 1% chance of having another child with DS or what ever the chance was because of my age (25 at the time) with no added risk it would all depend on whether or not the egg that created Ariel started out abnormal and went normal or if the nondisjunction occurred after conception. I was so confused and upset. When I spoke to the senior doctor in my practice he took my hand, looked me in the eye and asked me did it mattered if the twins had DS. " No of course not I'd have them anyway" I told him. He said " then my dear you don't need an amnio tell them to leave those babies alone" I thank god for him every day..... Wishing all well Ariel8MDS Won't you please consider adding your personal story on the MDS website today? http://www.mosaicdownsyndrome.com*************************************************MDS MESSAGE BOARD - http://www.mosaicdownsyndrome.com/discus*************************************************

[Guest guest]

Kristy, I can only think of one source for a requirement that all doctors recommend that you have an abortion if you have a child with a disability and it is very hot there indeed! Barb Martz Mom to Jonas (MDS) & Child of God Re: regarding prental testing results(amnio's) Hope,Yes, that does make you wonder. I really think thatthey do push the issue, and I have heard that doctorsare required to recommend an abortion if your childhas a disablity. I am not sure about this, but that iswhat I heard. I plan to ask around about that.Kristy--- Ronnie Sikes wrote:> > in my humble oppinion, amnio's should not be done.> It> > wont change if your baby has a disorder or not, it> > will only change your attitude and disposition> > throughout the pregnancy, >> Kristy>> > I agree Kristy. When I was pregnant w/ I> knew I had an increased> risk because of my age & my triple screen showed a> 60% chance of delivering> a baby w/ds. I did however have a very good OB/GYN.> (a female btw) You could> talk to her like she was your next door neighbor,> very down to earth. She> offered an amnio but I knew whatever the results> were it wouldn't change a> thing and I didn't want to the risks involved so I> just said "no thanks" It> was never mentioned again. I did however notice they> had a post it note on> the inside of my chart that said, "patient declined> amnio." I'm not sure> what the purpose of that was.> Hope>>>

[Guest guest]

Barb,

LOL Agreed!

Kristy

--- Martz wrote:

> Kristy,

> I can only think of one source for a

> requirement that all doctors recommend that you have

> an abortion if you have a child with a disability

> and it is very hot there indeed!

>

> Barb Martz

>

> Mom to Jonas (MDS) &

>

>

> Child of God

>

> Re: regarding prental testing

> results(amnio's)

>

> Hope,

> Yes, that does make you wonder. I really think that

> they do push the issue, and I have heard that

> doctors

> are required to recommend an abortion if your child

> has a disablity. I am not sure about this, but that

> is

> what I heard. I plan to ask around about that.

> Kristy

>

>

> --- Ronnie Sikes wrote:

> > > in my humble oppinion, amnio's should not be

> done.

> > It

> > > wont change if your baby has a disorder or not,

> it

> > > will only change your attitude and disposition

> > > throughout the pregnancy, >> Kristy

> >

> > > I agree Kristy. When I was pregnant w/ I

> > knew I had an increased

> > risk because of my age & my triple screen showed a

> > 60% chance of delivering

> > a baby w/ds. I did however have a very good

> OB/GYN.

> > (a female btw) You could

> > talk to her like she was your next door neighbor,

> > very down to earth. She

> > offered an amnio but I knew whatever the results

> > were it wouldn't change a

> > thing and I didn't want to the risks involved so I

> > just said " no thanks " It

> > was never mentioned again. I did however notice

> they

> > had a post it note on

> > the inside of my chart that said, " patient

> declined

> > amnio. " I'm not sure

> > what the purpose of that was.

> > Hope

> >

> >

> >