Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 Sorry to be dumb but what is SQ? subcutaneous? I can't figure out the Q. Just wanting to be sure I have the protocol straight, after his comments. Thanks, Abbie Re: Dr. Mc- B12 ? > > Thanks for the quick reply. Hannah is 47lbs. We are doing injection SQ once > per week. No the urine is not pink and yes I am sure it is going SQ. We are > getting ours from Coastal Comp. Initially, we got ours from Midwest Comp. in > KS and we were giving it IM as our DAN directed. After about a month, I > switched over to SQ because of all I had read. We have been giving folinic acid > 400mcg bid in addition to folic acid(in multi) 200mcg bid. In the beginning we > gave DMG 125mg daily. I have questioned our DAN about whether the DMG might > be causing some aggression. He suggested TMG which we tried and it definatly > caused aggression and hyperactivity. We are currently back on DMG. Thanks so > much for your comments. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 Thanks for the quick reply. Hannah is 47lbs. We are doing injection SQ once per week. No the urine is not pink and yes I am sure it is going SQ. We are getting ours from Coastal Comp. Initially, we got ours from Midwest Comp. in KS and we were giving it IM as our DAN directed. After about a month, I switched over to SQ because of all I had read. We have been giving folinic acid 400mcg bid in addition to folic acid(in multi) 200mcg bid. In the beginning we gave DMG 125mg daily. I have questioned our DAN about whether the DMG might be causing some aggression. He suggested TMG which we tried and it definatly caused aggression and hyperactivity. We are currently back on DMG. Thanks so much for your comments. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 Yes it is subcutaneous. I am a nurse and this is an abbreviation. Sorry. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 : I sent a " help " query to Dr. Neubrander who is a pal of mine. This is what he answered: In answer to the " help " below, in order for me to make the most intelligent decision, I would need to know the child's weight, the frequency of injections, the technique for administration, e.g. SQ, IM, " we think we're doing SQ but the urine is pink " , etc. Please note that I never put more than MB12 into the initial mix for these exact reasons! With the protocol I use, after 35,000 plus plus injections, I have never seen this. However, I hear of " funny things " when mixing and matching. Therefore, if you get me these answers, I will give my feedback. What obviously concerns me is the apparent discrepancy with what is being done and what I do -- the parent's statement " the standard 1000 mcg " -- this is not even close to what I believe or what I do so therefore I can say with certainty that this family is not following the protocol I believe in. Also, DMG, folinic acid WITH MB12 definitely changes the mix. There is only so much homocysteine in the telephone booth so putting more people in the phone booth definitely does not let more calls go out -- it just crowds the phone booth and more BO (side effects) occur. This child is a responder, no doubt, and will come out the other side if handled properly. It amazes me how poorly I have been able to get across some of the simple basics that repeat themselves in a predictable manner. Let me know what you find out. There is an answer and this child WILL (not can) be helped! Jim To: <csb-autism-rx > Sent: Tuesday, October 12, 2004 8:56 AM Subject: Dr. Mc- B12 ? > > We started B12, folinic acid and DMG 2X week and saw increased language the > first couple of times. After a few weeks increased to 3X week. Within a few > weeks Hannah developed these verbal tics (for lack of a better term). They > were uncontrollable. She also started stuttering with certain words. We stopped > B12 for a few weeks and the verbal tics stopped. After about a month we > restarted the B12 1X week. We are about 4 weeks into it and she has developed > this obsessive mouth noise and change of voice inflection. Again, she seems to > have no control. She is taking the standard 1000mcg. Our DAN wants to > increase to 2Xweek but something tells me this is not the right thing to do. Does > anyone ever give less than the 1000mcg per shot or less than 1X week? How long > does it take the body to use what is injected? I wonder if Hannah would do > better with a smaller amount given more frequently. The B12 over time > definately seems to be helping with socialization issues and her play is more > appropriate. But somethings just not right. Any advice welcomed. Thanks. > Quote Link to comment Share on other sites More sharing options...
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